Please login or register.

Login with username, password and session length
Advanced search  

News:

Not a Forum member? You can still subscribe to our Free Newsletter

media

Pages: 1 ... 124 125 [126] 127 128 ... 187

Author Topic: utrogestan/estrogel support group  (Read 711309 times)

Tc

  • Member
  • *
  • Posts: 2270
Re: utrogestan/estrogel support group
« Reply #1875 on: September 12, 2019, 10:35:25 PM »

JP.  I agree. . Thank you  X
Logged

Tyaca

  • Guest
Re: utrogestan/estrogel support group
« Reply #1876 on: September 13, 2019, 07:44:20 AM »

Hi All,

New poster but been lurking for a long while.

I'm 42 and post meno. I'm approx 50 days into Studd regime of 3 pumps estrogel and 10 days 100 utrogestan monthly, plus testogel daily.

 I've already been feeling lots better.  Sweating stopped immediately and sleep was transformed. I'm lots less sensitive and have broken out of my cycle of feeling permanently overwhelmed and anxious.  My dead legged fatigue has gone which is amazing as that was my worst symptom.

The only thing that hasn't improved is how run down, achey and depressed I feel after running. That became a really bad symptom very recently ( started in the last six months. I've been post meno for almost ten years) I used to run regularly with only normal running type aches.  I've tried running maybe 4 times since started new hrt and I still get the joint aches, drowsiness and low feelings after abd they have taken out the next day.

That's not my question though!

Just wondering about mood and utrogestan. I was worried about how I'd feel during my ten days of utrogestan but it was ok. Bit more tired but I'm a teacher and its start of term so I can't blame everything on hormones  :)

So I take utrogestan days 1 -10 of calendar month, then am told to expect bleed days 13-15. Felt ok on utrogestan when taking it, but now on days 12-14, I feel so anxious and just rubbish generally. Is this a thing other people have experienced? If so, will it go when I get a bleed?

I feel really just before period-y and am desperate for a bleed as a release. However, I've never been much of a bleeder. When I was first starting peri, I was put on the pill and never really got a bleed then.  I'm worried I wont get my release! I'm on day 15. Hope my cycle info makes sense.

If
Logged

debra217

  • Member
  • *
  • Posts: 43
Re: utrogestan/estrogel support group
« Reply #1877 on: September 13, 2019, 08:10:32 AM »

I think this was the thread that someone asked what kind of gel I had got as there seemed to be  problems getting it. I just picked up a prescription the other day for Tostran 2%.

I should add I am in Scotland and it is manufactured by a company in the Borders  (Kyowa Kirin Ltd). This may be different from England.  But still able to get.

Logged

Hurdity

  • Member
  • *
  • Posts: 13801
Re: utrogestan/estrogel support group
« Reply #1878 on: September 13, 2019, 08:20:01 AM »

Hi Tyaca

 :welcomemm:

Sorry to hear you're feeling rough. What you're experiencing after you stop the progesterone is (unfortunately!) normal pms due to progesterone withdrawal which is what happens in a normal period. Progesterone falls and several days later a bleed usually comes. As the progesterone falls the physiological changes in your body and cells caused by the progesterone are reversed leading to temporaraily unpleasant side effects in many women - eg headache, tension, irritability, low mood etc. Once the progesterone leaves your system you should feel fine again. You may or may not get a bleed but you will still suffer the pms from the prog withdrawal as this is unrelated to whether you bleed. The bleed is determined by how much oestrogen and progesterone you take and how much the womb lining is stimulated by the oestrogen. So - if you are post-meno then you will get that release hopefully very soon!

Have you had thyroid function tested and made sure you are not lacking in any vitamins or minerals in your diet? Vit D should not be an issue at this time of year provided you were out in the sun over the summer months.

Also those feelings you get after exercise was how I felt before I started testosterone ( I am much older - mid 60's) and have lessened greatly since taking T. The gynae I saw said it can take 4-5 months to fully feel the benefits of T due to cellular effects throughout the body (rather than instant changes) so hang in there and hopefully you will continue to see an improvement.

Why not keep a diary ) if you haven't done so already) monitoring how you feel and during the different stages - which might help you realise if there have been changes as these may well be gradual?

What type of Testogel are you taking - sachets or pump pack and how big a dose? Also will your T levels be monitored after 6 months to check they are within physioloigcal limtis for women?

Glad you're feeling better overall.

Hurdity x
Logged

Tc

  • Member
  • *
  • Posts: 2270
Re: utrogestan/estrogel support group
« Reply #1879 on: September 13, 2019, 08:52:48 AM »

I am only on my second day of 200 utrogestan.  Ive been keeping a,diary on the cycle. The side effects start right from the first dose and seem to get worse each cycle. Migraine  Insomnia, realy bad adrenaline rushes, sweats, horrible  shakiness,  nausea,  cystitis ,stomach cramps and weirdly flu like symptoms.  This drug is making me ill.  And it makes me depressed and agitated. I realy now believe it must be a reaction to the drug not just to progesterone. It' just feels too strong for me.  Iv e made it to less and less days each cycle.
My doc wants me to plough on til my meno appt on 17th October but I really cant carry on with it I. It doesnt make sense. If it was any other drug making me so Ill I  would stop it. So after only  2 days Ithis month im giving up. I
I cant get to docs until next week. So I'm wondering should I stop my eastrogen too. If I have to stop HRT altogether then so be it. I cant see how I could possibly feel any worse. I've never had a reaction to a drug like this in my life. I was on contraceptive pill for a few years when younger with no issues

 I've given it my best shot but enough is enough.

Xx
Logged

Hurdity

  • Member
  • *
  • Posts: 13801
Re: utrogestan/estrogel support group
« Reply #1880 on: September 13, 2019, 09:01:09 AM »

Sorry to hear the prog is aking you feel rough Tc - I'm not sure what you mean about the drug though - which drug? Are you taking it vaginally? The thing about taking prog as part of HRT is we have to take it at doses way way higher than we need for endometrial protection because it is unstable in the body and breaks down quickly. The ovary would produce it in pulses throughout the day to keep our levels up but we have to take it once or twice per day. Unfortunately when at large doses this can increase the side effects because of the high concentration - so it's not the prog itself but the amount. Utrogestan is bio-identical. Do you take it vag or orally? Vag is better re side effects but they can still occur. I get them even on 100 mg vag ( am half way through cycle now and I feel exhausted. Fought off a migraine the other day....). I totally sympathise. If taking it vaginally can you ask doc if you can reduce to 100 mg rather than give up? Also I always make sure my vag is well plumped up with daily Vagifem the week before my cycle and do every alternate day while on the utro. I have this vague idea that this might prevent so much of it being absrobed and have no idea whether it does or not as there is no research!

So sorry this is still not working out for you Tc and wishing you all the best and hang in there. Apols as in haste.

Hurdity x
Logged

Tyaca

  • Guest
Re: utrogestan/estrogel support group
« Reply #1881 on: September 13, 2019, 09:19:46 AM »

Thanks Hurdity for your reply and for all the helpful input you have given on this forum before.

My thyroid is fine, but low vitamin d. I need to remember to take my vit d tablets - I'm vigilant with the hormones as I see them as strong and medical.  But I hardly ever remember to take the vit d. I think because you can by it at Holland and barrett it feels less glamorous and important  ;)

I'm on testogel sachets. Thank you for the prompting about getting levels tested after six months. I'm assuming studd clinic will do that, but if not then I will do bloods privately. I've done private bloods before and I like to see the numbers and feel like I have control.  I'm glad to hear your post-exercise issues cleared up after being on testosterone for a while - gives me hope! My husband is convinced I just dont stretch enough after that - I'm not sure that explains the wrist and shoulder pain, or the drowsiness that makes staying awake afterwards impossible  :( 

So am I right in thinking my low mood is progesterone withdrawal rather than a response to the progesterone itself? I'm guessing that's probably good news as it would appear I can tolerate utrogestan which I know lots of people can't.  Better 5 -7 days of PMS type symptoms on withdrawal rather than 10+ days of reaction to progesterone.

Also, even though I am irritable, overwhelmed and anxious, my energy levels are ok and I don't feel like hiding in a cave. So overall I think I can handle this every month; its certainly a lot better than how I felt before starting this regime. I find it's really helpful when you know what's going on when (and why).

For example, I keep obsessing about a work thing, but I'm just trying to recognise that I might be over anxious right now and maybe come back to thinking about this issue when worst hormonal feelings have passed.

Re the bleed, if I dont get a bleed, would that be because I didn't have enough lining to shed or because I didn't take a long or strong enough dose of progesterone?

If it's the former, I'm tempted to book myself in for a private uterine scan and see if maybe I can extend the oestrogen only phase.  I'd be happy to pay for scans on a regular basis to keep an eye on this.

TC - I'm sorry you are feeling so bad. I'm not an expert, but it seems like you are doing the right thing coming off the utrogestan and in hope your meno dr can give you an alternative regime.
« Last Edit: September 13, 2019, 09:22:27 AM by Tyaca »
Logged

Tc

  • Member
  • *
  • Posts: 2270
Re: utrogestan/estrogel support group
« Reply #1882 on: September 13, 2019, 09:38:57 AM »

Thanks hurdity. Yes I was referring to the utrogestan as a drug. . This month I've used vaginally but doc said I  need 200 if I'm going to take for less than 12 days.  As at moment I'm on 150 patch.  (I dropped from 200 last week when I had to change from estradot to progynova due to the shortagesI)

It's just too strong for me. The reaction to it is,so immediate and so severe.

My scan yesterday showed thickness between 4.5 and 5 which I believe isnt high so I dont suppose it would hurt to drop to 100  tonight and see. .  If I can stand it. Right now I just feel like I want this stuff out of my system as quickly as possible.

Sorry to hear you also have to fight off the dreaded migraines.fluctuation of a cycle isnt good for migraine sufferers. Hope you feel better quick.

Thank you Tyaca. My side effects start as soon as i take it so yes yours does seem more the traditional "withdrawal"  I'm glad you feel better on the regime than you did before. Xxxx
Logged

Tyaca

  • Guest
Re: utrogestan/estrogel support group
« Reply #1883 on: September 13, 2019, 10:18:09 AM »

Hi Birdy,

I used Medichecks.  I got a full blood count which cost £130.  You get posted a sample kit, get blood taken then send it back. Because mine was a full blood count I needed to have sample collected by nurse. I used superdrug clinic but there are lots of other options (included walk in places where you don't need an appointment).

I have a sample kit for a full female hormone check that I am going to do before I go for my three month check up at studd clinic. It cost about 70. I think I'm going to do it once every six months. I only need a small amount of blood for that so can do a pin **** at home.

I'm aware that I'm new here and so it might look a bit suspicious if I rave about a company as my third ever post but I was really impressed.  You get quite a lot of info about the tests on your online profile, including the normal range and a summary letter from dr.

When I did it in June was when I found out that my Fsh was 138 and my Lutenising hormone was 78.  That gave me the confidence to finally go private for meno treatment. I'd had so much bull shit and disbelief from my Gps over the years.
« Last Edit: September 13, 2019, 10:19:41 AM by Tyaca »
Logged

Tyaca

  • Guest
Re: utrogestan/estrogel support group
« Reply #1884 on: September 14, 2019, 06:50:02 AM »

Quick question: Does anyone get on well with the conti regime of 25 days of 100mg, then 3 days off?

I had a small amount of bleeding yesterday (day 14.  utrogestan days 1 - 10) was hoping that would help but I have woken up again with horrific morning dread.  I've been reading back through this thread (love this thread!) and I didn't get any of the negative effects people talk about when taking utrogestan.

I guess I just have to wait and see how I settle down on this regime.  I'll start a diary and see how this works for three months (which is when next apptmnt is). The regime has been good for me so far.  I guess nothing's perfect, it's just trying to work out what  the compromises I'll have to make are.
Logged

Dotty

  • Member
  • *
  • Posts: 3794
Re: utrogestan/estrogel support group
« Reply #1885 on: September 14, 2019, 07:08:50 AM »

Hi Tyaca

Are you post menopause? If so you can take the Utrogestan every day without a break x
« Last Edit: September 14, 2019, 04:03:06 PM by Dotty »
Logged

Tc

  • Member
  • *
  • Posts: 2270
Re: utrogestan/estrogel support group
« Reply #1886 on: September 14, 2019, 12:35:59 PM »

I couldnt take it continuously. But that might have been because my eastrogen was so low I ended up with an imbalance.

I only used 100mg last night vaginally. And I dont feels shaky and sick this morning  but I'm supposed to be using 200mg for 12 days so I ts not a long term solution.  if I can only get to 7 days on 100mg that's too risky on 200 patch. .
I've had a bit of a realisation that I've come to the end of the road with utrogestan.  I've been on it best part of this year.  If I took anything else I had such a bad reaction to I wouldve stopped ages ago but I think with HRT I have tried to carry on as I feel I need the eastrogen.

. I need to listen a bit more to my body and stop trying to force something on it which it obviously hates.

So hopefully I will get an alternative.

Xxx
Logged

westie

  • Member
  • *
  • Posts: 247
Re: utrogestan/estrogel support group
« Reply #1887 on: September 14, 2019, 03:29:07 PM »

Hi tc

I confess I haven't read the whole of this thread soo could be missing something fundamental from your situation but your last post really struck a chord with me.

I take 100mg utrogestan for 12 days a month. I am post meno but because I had an endometrial ablation some years ago, 100mg was prescribed on the basis that I don't have of a womb lining. Thing is , it is making me feel so awful, I am waking at night with what can only be described s adrenal rushes , I can't get back to sleep and even if I do I wake in the morning still shaken . I take 2 pumps of Estrogel which has definitely helped a bit but I am not sure if it has bought my levels up sufficiently and maybe that is why I react so badly with the utrogestan phase. I really don't know. I go round and round in circles trying to work it all out.

I don't want to give up on HRT but if I carry on like this I will seriously consider it.

W x
Logged

Ladybt28

  • Member
  • *
  • Posts: 1422
Re: utrogestan/estrogel support group
« Reply #1888 on: September 14, 2019, 04:00:15 PM »

Hi Westie, the surges can be due to lack of oestrogen.  I need 4 pumps of gel and 12 days of utro to stop my anxiety and panic attacks and control my other symptoms and I have a womb and ovaries.  2 pumps is the base dose, I think your levels are not high enough. I suggest that you up the pumps and see what happens.  When I get to day 7/8 I start to feel bad on utro...a bit low and tired but I know it will stop soon.

Tc - 7 days on 100mg vaginally - keep going.  There are ladies who are on high oestrogen and less progesterone than the prescribed dose.  I believe it can be done under supervision.  Now you have gone this far, keep going a little longer, otherwise you will be on Provera or a mirina coil and I think you tried Provera already and the result wasn't good?   Forget what you are "supposed to to".  Work out, within reason (and 7 days 100mg vaginally is within reason) what and how long you body can take and then go to your consultant and say that you want to do this,  why you want to do t and that you need supervision, scans etc.  You say you are less shaky...you know it will take a while to settle.  3 months of 7 days 100mg may but only may cause a build up but nothing dangerous and it could easily be fixed (with a big nasty dose) but you won't get cancer, or do anything which will cause long term damage from 3 months. xx
Logged

Hurdity

  • Member
  • *
  • Posts: 13801
Re: utrogestan/estrogel support group
« Reply #1889 on: September 14, 2019, 06:59:00 PM »

I couldnt take it continuously. But that might have been because my eastrogen was so low I ended up with an imbalance.

I only used 100mg last night vaginally. And I dont feels shaky and sick this morning  but I'm supposed to be using 200mg for 12 days so I ts not a long term solution.  if I can only get to 7 days on 100mg that's too risky on 200 patch. .
I've had a bit of a realisation that I've come to the end of the road with utrogestan.  I've been on it best part of this year.  If I took anything else I had such a bad reaction to I wouldve stopped ages ago but I think with HRT I have tried to carry on as I feel I need the eastrogen.

. I need to listen a bit more to my body and stop trying to force something on it which it obviously hates.

So hopefully I will get an alternative.

Xxx

I agree with Ladybt regarding the "supposed to be...". Yes theoretically you need to be taking the max dose of prog with that high-sounding dose of oestrogen (the 200 mcg) but if your blood tests have shown you are not absorbing it fully then this means your womb lining will presumably not be building, and therefore the 200 mcg patch is not actually that high - for you. Also you are in surgical menopause which is a different situation. From what I've read on here many such women need a higher (sounding) dose just to get levels up to the same as some of us (with ovaries) might achieve on much lower doses.

Like Ladybt says if you can get to a bit longer on the utro (100 mg vag) then that's great. As long as yuou are beng monitored is the main thing when going off-lcience ( ie less than recommended) if the bleed is OK and your lining stays within normal limits then that's OK....

Hurdity x
Logged
Pages: 1 ... 124 125 [126] 127 128 ... 187