Menopause Matters Forum

Menopause Discussion => Personal Experiences => Topic started by: BlueButterfly on October 08, 2018, 12:42:05 AM

Title: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 08, 2018, 12:42:05 AM
I need to rant.  >:(

I'm tired, not fatigued but mentally and emotionally drained!

It's one thing after another. I feel like I get control or at least get over the health anxiety of one problem only to have others creep up.

This past week included a severe muscle spasm/pinched nerve in my back between my shoulder blades that lasted for hours and was seriously some of the worst pain I've felt! The hot shower did very little, the soak in the bath...a little bit more but still just hurt and then I found the knots in the muscle just off to the right of the spine...so tried massaging those. Big mistake! Pain shot around my side and to the front! Just touching those knots repeated the pain for awhile. Sore muscles for days after that. Caused me some crazy anxiety that maybe I had a heart attack and should have gone to emergency but didn't want to do that again. Went to the doctor the next day though and he strongly believes it wasn't a heart attack (I've had so many heart tests and it's very healthy and I really had no symptoms to indicate heart but you know ... anxiety). Still couldn't let go of the idea for a few days but feel okay now.
Still have muscle knots in both shoulders, right more than left, whole back in a weak knot and muscle spasms (not bad, just noticable) in my lower legs. A soak in an Epsom bath helps. I've started taking magnesium again and probably need to increase the dose. Thinking of going to a chiropractor.

I also had pain down there for a week! Just sharp stabs sometimes, mostly just enough to feel it, a few painful ones. That has now passed, of course!!

I can't seem to stop losing weight! I should be okay with this as I'm still not down to the weight I was AFTER I had my youngest (11 years ago!) but I'm getting close. I spent so much time at the higher weight guess I just got used to it. I was always very slender so I WAS the heaviest I'd ever been before all this started. I guess I'm most bothered because I am not in control of the weight loss! (Been told thyroid is fine! Really want to have it checked again. Not sure what it would be though as I have symptoms of both hyper and hypo  :-\) I shouldn't be but I'm annoyed with none of my clothes fitting anymore. And can't buy new at the time because of costs of all these tests and doctor visits and hubby's new job that pays less.  >:( It's more "stable" so I should be happy.  ::)

My blood sugar seems to be low these days now. I felt like my insides we're shaking this morning and just not great overall. It improved after eating and has gotten better as I've forced myself to almost continually eat all day. Makes my heart feel like it's beating out of my chest....not fast, just hard. I guess faster but in the 60s beats per minute. My heart rate is regularly in the 50s now when relaxing. Blood pressure okay. I think it's low sometimes. I get dizzy when I stand up but not always. It was 105/68 the other night and stood up quickly without any problems. Gosh, if things were only consistent so I could manage it, I think.

I'm sick of anxiety. I'm just so fed up all this even started happening!

I'm cold and hot all day, freezing or red faced and hot.

My nerves feel "over active" right now. I think I'm feeling things stronger than they really are??

I think my body is very sensitive to small change! I can't think of why else every blood test puts me in normal range... not even in the low or high end of normal....but I still have things happening. They are right in the middle!
I feel like whatever is going on, I'm being shot into it from a cannon! I thought it would be a slower transition!

And why can't I eat gluten anymore?!?!  :'( I want a pizza for comfort! Or bread! I went a month without it, couldn't stand it anymore and ate it for the last week....and I really don't think my body liked that. Digestion issues came back but not as bad as before but there.

And muscles....are they gone? Seems like they get weak and just feel burning so quickly doing every day tasks. And dealing with this hair? Forget braiding it or doing much of anything anymore. My shoulders get tired half way through ..so glad it'll be gone soon! Getting it all cut Tuesday...bye bye waist length hair! At least when it falls out now I won't have 2+ foot length (over half a meter) strands of hair everywhere!

I'm so tired of feeling like I'm falling apart!
 
I cry at things I didn't used to. I laughed to tears at my teenage son today. Honestly I enjoyed that but it was so foreign to me. I honestly could deal with the emotions I'm having now as at least rage seems to have passed. I just want to feel like my body is working!

Sorry for the long rant. I'm just feeling so done right now. I hate having no control over this!

GYN on Wednesday! Fingers crossed it goes well. He was my angel 7 years ago! I hope so again!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Sammas on October 08, 2018, 05:30:51 AM
Sending hugs! This menopause malarkey is a pain as we feel so up and down for no reason Goid luck with your appt x
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Taz2 on October 08, 2018, 06:44:33 AM
Hugs from me too. I take it you've had your vitamin d level checked? My first symptom of low level was burning pain when trying to dry my hair or hang out the washing plus painful muscles.

I've had the pain between the shoulder blades which was really crippling. It really is just(!) a muscle spasm but can feel much more serious.

Taz x
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Dancinggirl on October 08, 2018, 07:24:09 AM
Bluebutterfly. I think there are many of us who can relate to how you are feeling. The menopause messes with our heads.
That feeling of being overwhelmed is horrid. I recently hit a wall because during the hot weather I was getting so little sleep. I've had to make some changes to improve things and I'm now starting to get some energy back. I also struggle with me digestion but I've found taking digestive enzymes has helped a lot.
The knots in your back are a real sign of stress and tension and is something you could reduce with some apropriate exercise and maybe a visit to an osteopath. I have degeneration in my lower spine and with my horrid fatigue ( due to lack of sleep) the pain was getting bad, so I took myself off to the osteopath and found an excellent Pilates class that has made a big difference. It's called Somatic Pilates and the teacher specialises in helping people with spinal problems.
I do a lot of walking as well and i do recommend you try to get out for brisk walks and do some Mindful meditation if you can as this would really help.
It is so easy to slip into negative thoughts but with some simple strategies you can learn to tackle them better - it's not easy though.
DG x
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on October 08, 2018, 10:51:58 AM
You aren't losing your mind, it's The Change  >:(

As oestrogen levels drop the body may become dry: inside and out; skin, vagina, deep in the ears, nostrils, eyes ...... and muscles may become lax = aches and pains. 

As for feeling like the blood sugar levels are low, maybe try eating every 3 hours 24/7.  National Association for Pre-menstrual Syndrome gave me that advice in the mid 1990s, I would feel ILL 10-14 days B4 each bleed to the point that I was unable to leave the house.  Grazing still suits me.  The idea is to spread your diet across 24 hours even in the night.  I had a puppy at the time and she soon learned that there were biscuits by the bed when she'd been out to wee in the early hours  ;D. 

Some ladies find that keeping a mood/food/symptom diary of use to chart feelings.  Add to that what you eat and drink might help to see what your intake actually is.  I weigh twice a year, I can tell how I am by the belt on my jeans  ::) but I am sure that your Practice Nurse or Pharmacist will check if you are worried.

Browse round.  Make notes ;-)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 08, 2018, 02:06:23 PM
Thanks everyone. I am definitely hitting a wall again right now. I'm just getting so burnt out with my body not working like it used to.

Taz2, ya know, come to think of it I haven't had my vitamin D levels checked! Of everything else they've done, that hasn't been one, at least recently. If they did do it, it would have been done months ago...when I was basking in the sun getting my tan! But I don't recall it being done. A couple years ago I did have low Vit D levels so I should probably request that. Gosh, if that was it....they are checking me for every autoimmune issue under the sun right now as nothing is showing up as a problem on the blood tests. Minor indicator of maybe lupus??? but no symptoms so false positive...and a high d dimer test (2 actually). No clots. No explanation for them being raised.
I do hope it was just a muscle spasm. I've never had pain like that but when it started it definitely felt like nerve pain. I was okay until it shot around to the front and was shooting out both sides from the bottom of my breast bone. But the fact that it could be recreated from messing with those muscle knots should be a good indicator to me. And my heart rate only climbed a bit, because I was in pain...had no problems with oxygen and never got hot, dizzy, etc. Just pain!

DancingGirl, Yes it seems stress and tension are my life now! I was talking to my mother the other day about things and she even recalls that as a teen I could not relax...I honestly don't know how to! I'm learning that the hard way now. I have done some meditation and need to get back to doing that. The first time my body because fully relaxed it scared me! My body jumped in response because it was such a foreign feeling. I have to consciously force myself to stay with that feeling. Need to try doing that again...

Birdy, I do have some magnesium, a couple kinds actually, but can't remember what type they are. I have read similar things about magnesium as well, about certain types being easier to absorb. I unfortunately have cheap supermarket brands. I need to go to the health food store and get better quality vitamins. The Espom salt baths have been helpful for the knots. They seem to help them release more than anything else. I'm taking too many a day lately though.
As for HRT, as the moment, no. I stopped everything I was on 3 months ago so I can get tested to see where I am at. I'm only 36. Almost 7 years ago, 29/30, I was put on the contraceptive pill and testosterone cream because I had no test and my ovaries were "shutting down" is what I was told. This worked great for awhile! I lost 20 lbs in a few months and could function again. (I had been like a living lump on the couch since giving birth to my daughter 4-5 years earlier....I could not function...I'd clean the house and was down for 4 days...it was horrible. was told for years it was just depression but I knew it wasn't right). My insurance no longer covered this particular GYN so I had to start shopping around after paying out of pocket a few years. I never liked any of the others. They kept me on the contraceptive pill I was on and were fine giving me the testosterone cream but after being tested not using it for a few months, was told my levels were now fine. So stopped using that can't remember when...but it wasn't regular use for a few years. Fast forward and end of May I start having severe anxiety and panic attacks...frequently. Can't figure out why! Starts on a bleed week, rages worse every 4 weeks after! Something with the bleed week. I don't feel good about staying on the pill anymore. I didn't before this all started. I was thinking my hormones were changing back in march when I went to my last yearly check up. Things were just different and the pill wasn't working like it used to. I also worry like nothing else about blood clot issues. (2 high d dimers and 2 ultrasounds checking for clots and still clear - having blood tested for clotting disorder though as my father had several clots at one time!) So I'd like to do something with less of a risk of clotting. Was thinking the natural route but I don't know either.

CLKD, yes I've sort of been keeping the diary. I struggle to remember most times though.
I will have to work on the grazing...it helped yesterday. Woke up today just nauseous and beat! Feel better after eating...starting to wonder if I'm waking up with low blood sugar levels....I've heard it can happen and it can also be a reason for waking you up early.
I used to have the craziest metabolism as a teen....I ate like you wouldn't believe, especially at the size I was. My mother still talks about how much money she saved on food when I moved out. I'm quite tall....5'10"....weighed a massive (sarcasm) 113lbs (8 stone if google is converting right) when I got married. It was the heaviest I had ever been. I feel like I'm back to that metabolism but not the appetite to support it! I know I'm not but with the way the weight is just dropping it scares me! I know the anxiety is playing a role, the lack of sugar in my diet now and whatever hormone change I had(I could barely manage to lose a couple of pounds after weeks of exercise and eating healthy/less before)! I have thought about hyperthyroid but I don't have symptoms of that except some hair loss and weight loss. I am COLD all the time and have a very slow resting heart rate (54-56) and definitely don't have energy.

I'm just a mess right now. On the plus side, I seemed to have gotten a handle on the tingling tongue issue. Started using some zinc melts. Seems to be about 95% gone now.

Almost wednesday. I'm very happy I finally get to see the doctor that helped me 7 years ago. I hope he can work that miracle again. He's a older man that I hope NEVER retires. He has experience. Last time was amazing, he just told me "Women that have symptoms like you've reported to me have done really well on X so lets give that a try." It was the EASIEST contraceptive transition I have ever made. I had NO side effects and my body just took right to it and drop right into the flow...until a few months ago when it no longer suited me. I just want to be ME again...or close to it. I want to enjoy life, I want to be free of anxiety. I don't want to feel okay but have that thought in my head...it'll be back!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on October 08, 2018, 02:53:30 PM
Thyroid function tests?   GPs aren't keen on doing extra tests if it comes back 'within normal limits'! 

I have safe foods to hand 24/7:  bananas, dried fruits and nuts, porridge  :-X, a good muesli for breakfast .... some people find eggs on toast for breakfast really helpful. 

Being able to relax is a learnt habit.  What was going on in your family surroundings that didn't allow you to let go?  From age 3 I lived in a dysfunctional atmosphere  :'( which caused anxiety.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 08, 2018, 03:39:17 PM
I'm honestly not sure. I know I wasn't always thrilled at being home. My mother and I did not get along well during those teenage years. I also have ADD so slowing down is not my strongest ability. There's a lot I've read about how girls dealt with that and how it goes undiagnosed for so long. Essentially we put ourselves into stress mode so we get things done....like when you have a deadline you need to meet....but we give ourselves deadlines all the time to make sure we get things done....so always in a state of stress. That's why women tend to still do well in school with ADD. It explained a lot. So, no, I don't know how to relax.

I believe my mother was going through what I am now. It's hard to say. She had a hysterectomy before 30 but still had ovaries. Having talked to her about things, in the 2nd half of her 30s she started to lose her hair, get depression and mood swings....my mother was young when she had me so at 16 for me...my mother was only 35. It was very volatile between us in those years...and that may be why??
She still has hot flushes now and other things. She doesn't know if/where she is at with the menopause stuff. No insurance, no doctor visits (US).

I really don't have female family members to look to see if/when meno starts. Mother and 2 aunt's had hysterectomy before 30 due to endometriosis. 1 aunt without the problem but she's an anomaly...in 60s now starting meno. No hormonal problems like the  rest. Grandmother hysterectomy early 30s due to same hormonal issues as daughters.

I've dealt with endometriosis and have a 2cm uterine fibroid. I have no desire to have a hysterectomy at this time but the last doctor was being very pushy about it.  >:(

Will push for a full thyroid panel and vit d tests when hormones are checked.

At times it feels like puberty again...not what I need with a daughter going through it as well.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on October 08, 2018, 03:56:49 PM
Many years ago I read that the problem with families is that women will be either having periods or going into menopause  ::) the article was advising the men in the families to duck  ;)

When obsessions take over I don't stop  :-\ - I get my teeth in and shake it like a dog with a bone.  I have had to listen when Himself tells me to stop.  I don't realise that I'm headed for another down fall. 

Last year I began to feel really tired: I would do 20 mins. weeding then have to sit, still, for 2 hours  :-\.  My VitD levels were low, capsules from the GP eased symptoms after a blood test.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Joaniepat on October 08, 2018, 05:07:24 PM
Many years ago I read that the problem with families is that women will be either having periods or going into menopause  ::) the article was advising the men in the families to duck  ;)


Surely the problem with families is men?  ;)
JP x
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on October 08, 2018, 05:58:44 PM
 :rofl: .........  :-X
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 08, 2018, 06:04:23 PM
Agreed!! ;D

Just on the verge of tears right now.....just one of those days where I was trying not to cry over my food. I probably just need to let it out...I think I'm getting close to a period here soon.....hm.....
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 08, 2018, 08:32:59 PM
Just why?? Why do I let my mind wander? I struggle even letting myself believe that at such a young age I'm dealing with so many hormone problems....so I start to believe the doctors and I MUST have an autoimmune disease or something. But no matter how many times I've gone over the symptoms and KNOW I don't fit...I still go back...so sure it must be Lupus...Or my adrenals failing on me....
yet, it's not.....my blood tests are fine...my symptoms don't all fit...it's been ruled out...but I can't believe it's hormones but I KNOW it's hormones. Ya know what I mean?? I feel 'fine'. I really do...I just don't at the same time. I do feel healthy but there is something there that WILL NOT let me enjoy it!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Toodle Pips on October 08, 2018, 09:01:28 PM
Hi Blue butterfly,

I have had pain and knots to the right and left of my spine for months now, and have realised it goes when I don't spend so much time on my I pad.

I also can't eat like I used to. I have spent all this summer with bouts of diarrhoea, which has drained me. I already have iron problems due to heavy periods for years and miscarriages, and the stomach problems have added to my general weakness. I often get dizzy spells or am lightheaded. I still have regular periods, although this one that came today was eight days late. So I am hoping it is the beginning of the end of them for me as they have been the bane of my life for decades.

I am starting to get on top of the stomach issues by watching what I eat. I don't always adhere to this though, like tonight I ate something that sent me running to the loo. So now I am back on the Imodium for a couple of days until I can get it all settled again.

I can't lose weight, so the opposite of you, despite all the running to the loo!

I ache all over, and cry quite a lot too. Although since I started to take Menopace max, I haven't been as bad.

I spend most early mornings in a state of jittery twichiness! But it passes by 8am. I put it down to cortisol levels being higher at those times.

I also wasn't sleeping well until I started to take the Menopace max. But things are much better, and I generally feel a lot calmer than I did earlier in the summer. I just wish my periods would stop so that I could get my iron levels steady.

I often worry that it isn't my hormones and that I have some disease. However, when I do tell myself it is my hormones I tend to feel a lot happier about life.

It's really not fair that we have to go through this garbage is it!

Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 08, 2018, 11:22:03 PM
I'm just still so in awe at how our hormones can have so much control. I don't understand how one week I can be fine and then the next my whole life is different...I'm having panic attacks and anxiety almost constantly (thankfully it isn't as often). Just why does it change so fast? That seems so extreme to me!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on October 09, 2018, 12:03:41 AM
You are quite young I think from your posts so it is easy to think it is something else and not hormones plus from your last long post I think I read you are off hrt completely now.  If you are having hormonal problems and those doctors who say "ooh your too young to be menopausal" really get my goat, you will feel like your emotions are out of control and your mind will run riot.  Those are the chemicals that control all that sort of thing and if yours are diminishing, you have not control.  You described it as being like a teenager again and yes that is what it is like. Your hormones are all over the place then and they are all over the place now! It can be pretty extreme for those of us on HRT as well mind you.  I was going to say I cant imagine what it is like without it but I can because I went 3 months without any and knew I just couldn't cope.  I've said before they will have to pry it out of my bony fingers.

You are not losing your mind - you are hormonal and I am really sorry but I cant remember where you are on the hrt journey except that you are not taking any at the moment?  Hope your doctor that you saw before 7 years ago can help - it makes such a difference talking to a GP you like and feel you can trust to understand you.  I had a "let's give it a try dr" but he retired I was devastated - no one has been the same since.  :(  I think you say you are seeing him Wednesday - I have my fingers and toes crossed for you.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 09, 2018, 03:40:44 AM
yup, young...36. I'm really feeling it has to be hormonal problems. I did before but I have good blood tests to clear just about everything else (I did have Vit D about 2-3 months ago but I guess I was told it was fine because I don't recall them saying anything about it. It was also during the summer where I spent most of the summer in the backyard sitting in the sun or the pool!). What my body is doing makes no sense with the numbers that are going on. But I know oestrogen levels can effect so many things/systems. Just hope to find it all out. I really hope I don't hear "you're too young" this time. He was the first doctor to NOT say that to me and once I finished telling him all my symptoms his first response was that we needed to test hormones....that was so long ago. I hope he hasn't changed.

It's got to be hormonal. How else do you go from trying not to cry all day over ANYTHING (especially driving in traffic....just wished I could take a long drive down a dirt road....I hate living in a city)....and then suddenly at dinner....you just feel great...and dance & sing around the kitchen while listening to Queen? I wish I knew the trick to that magic...turn it on whenever I want instead of whatever my body wants at the moment?? And since you don't know me....I am not a crier....I will when I'm sad but not usually the kind to cry at everything. The dancing around the kitchen...that's normal.  ;) It was nice to feel it for a short moment in time. I'm still in there...somewhere....

I think today was really one of the first times I was extremely sad about the idea of perimenopause at my age. I'm done having my children...I have my family. I have 2 wonderful healthy children. My body did what it needed to do. I'm okay moving on to the next stage.....but I guess today I wished for it not to be there...want to just feel 'okay' and in control of my life again. I really felt not ready for this rollercoaster of a ride that my body is beginning.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 09, 2018, 04:00:28 PM
Something is coming soon, my body is screaming it! Getting up today was torture. I have not felt this drained in awhile. My heart is just pounding. Not fast but I can sure feel it. I just want to crawl back in bed. I luckily (or unfortunately) don't work anymore. The anxiety made it impossible, I had to quit. I hated that.
I am starting to want some unhealthy food. I haven't wanted that in awhile but pizza sure sounds good, a Coca-Cola would be great and some chocolate! Maybe I should just indulge. I need to see what I have around to make something sweet, chewy and bad for me.

Oh God, please help....today I feel like I'm dying or will if I have to keep going. My chest hurts but my heart sounds fine. I can breathe fine, my blood pressure, oxygen levels etc all fine. Yes sadly I have everything to check this stuff. I just want to feel okay today. I'm sick of crying because I feel so sad or just because. It's happened before. I've felt like this before ...I keep reminding myself that. Less than 24 hours to see the doctor but it's not fast enough. My body just feels so wrong in so many ways today.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on October 09, 2018, 07:06:27 PM
........ and breath!  Logic flies out the window doesn't  it  >:( .........

Make a list to take to the appointment.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 09, 2018, 07:36:48 PM
Yes breath.....I have the longest list. I am beyond convinced right now it is perimenopause. I am not due for a period for another week at least. I have been so moody and crying for a few days now. I have never had PMS like this. And the longer I'm off any hormones the worse things seem to be getting. I sure hope whatever labs he orders come back quickly! I'm also reading up on treatment options. I'd like to avoid a pill as much as possible because of my extreme fear of blood clots (still waiting for the blood test for clotting disorders, just because my father has had them). I really liked the testosterone cream...I could always tell when my body needed a bit more or bit less. Don't know if other hormones would work the same way though.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on October 10, 2018, 10:56:14 AM
HORMONES! 
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 10, 2018, 09:47:55 PM
HORMONES!!!  8)

Feel like I hit a small victory today! Doc went GREAT! Had vaginal ultrasound....fibroid about the same size, nothing he thinks needs to be worried about. (yay! Last gyn was trying to talk me into a hysterectomy over it  ::)) My ovaries are once again covered in cysts. They were not there 3 months ago before quitting the birth control pill. Had about 5-6 each ovary. Seems like a lot in 3 months even if they are from not ovulating.... I also MAY have a hormone producing cyst on one ovary. Go in tomorrow for blood tests....oestrogen, progesterone, testosterone, FSH, LH, Full thyroid panel and anti-body, Vit D and probably more I can't remember. Will meet with him next week to discuss what the tests show. Finally feel like I'm getting somewhere!

Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on October 11, 2018, 06:07:18 AM
 :jiggy: :parti: :clapping: couldn't be more happy for you - who is he and can we all see him!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 11, 2018, 11:38:16 AM
Oh I wish! I'm in the US but if you get desperate enough to come this way, I'd totally recommend him.  ;D ;) I'm beyond happy to finally be able to go to him again. He stopped accepting my insurance many years ago and I paid out of pocket as long as I could but eventually had to stop doing that and see others I was less than happy with. I don't want to do that ever again. But it worked out...it was long enough since I last saw him that I counted as a new patient again and only had to wait a couple weeks for an appointment instead of 4 months or more! 

Now just waiting for another week but I feel somewhat better...at least feeling like there is a light at the end of the tunnel right now.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on October 11, 2018, 09:32:01 PM
Could you offer up your menopause history as a 'thesis' for someone so that you don't pay and get seen by the same guy regularly? 
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 12, 2018, 11:57:36 AM
CLKD, luckily new insurance so I'm covered and don't have to pay out of pocket to see him anymore. But if I get the help I need from him, I'd rather pay for it instead of trying to find someone else again.

The next week can't come fast enough. Yesterday was a bad day. I ended up at urgent care as heart palpitations decided to come with nausea and some other nasty feelings that gave me quite a scare...I think the dizziness and feeling faint was the worst. (Not a food issue, I made sure to eat every 2-3 hours regularly) Heart is still great but the body and mind are losing it. I didn't really feel anxious but my body was screaming that I was.... according to him. I need to be back on some hormones, like now, so need to ring GYN today.

Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on October 12, 2018, 01:47:16 PM
It's awful when the physical symptoms take over!  ......... and breath.  Ups and downs can happen so quickly one doesn't know if 1 is riding a kite or flying a bike  :-\
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 12, 2018, 05:29:01 PM
I cannot believe how much my hormones are up and down these days!! I didn't know they could change that much! I mean, before contraceptive and this mess I'm in now....I was a mess but it was a clockwork mess. I knew what I would feel every week, what day and also what week I would feel normal. I knew I was pregnant before a test could show I was. I mean, it was a mess of hormones but they followed a cycle.

Right now, I don't even know how I'll feel each hour!!

 I've felt like I was going to start my menstrual bleed for about 3-4 days now...but still nothing, just constantly feeling worse...and that wouldn't be the right time either...not that I'm even sure when that is supposed to be anyways with the mess my body has been this last month.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: jillydoll on October 12, 2018, 07:46:36 PM
Good one, Bluebutterfly,
Please post and let us know how all the tests have gone.
I hope you can start to move on, and start feeling better soon.

All the best,
Jd xx
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 12, 2018, 08:59:45 PM
Not all tests back but I spoke with the nurse today at the GYN office...most things look normal but not everything is back and the doctor will tell me what the whole picture means...
But what I do know right now is my progesterone is low. I was tested as close to middle of luteal as I know so should be at its peak. I know that could cause problems. Just gotta get through to next week.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 15, 2018, 02:01:14 PM
Honestly it's not a terrible day today but I hate not feeling write right. Feeling much better than last week as my period came over the weekend. Probably going to throw off the hormone tests.  :-\ guess we'll have to see what the doctor says on Wednesday. Still looking forward to seeing what he has to say and getting back on something. I used to take Kurvelo (generic for Nordette-no longer made, sorry don't know the UK equivalent). The progesterone in it, levonorgestrel, seemed to agree quite well with me so will probably look for something with the same in it.
Just still feeling so off today still. My legs just feel so...it's really hard to describe honestly...not heavy, almost a sickly feeling in them. It starts in my lower back. OH was kind enough to give me a massage last night and certain points were able to recreate or aggravate the feeling and others provided relief so I know it's connected to that. It is still hard to keep bringing my mind back from the lovely health anxiety that something is wrong. The legs still work fine and have no weakness. They just feel weak and like they won't work if I try to use them. Maybe some exercise today. Hope the feeling passes soon. It does scare me a bit though it probably shouldn't.

On a side note, my legs actually look rather lovely today.  ;) They have some beautiful tone and shape...maybe I had some water retention going on. Or it was from wearing the heels yesterday. Too bad it's too cold to show them off!  ;D
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on October 15, 2018, 02:46:22 PM
I remember that feeling from years ago.   Could it be referred pain from the lumbar spine?
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 15, 2018, 02:54:54 PM
I remember that feeling from years ago.   Could it be referred pain from the lumbar spine?
I'm starting to think so. Glad it isnt an unusual feeling. I think with my nerves being odd lately- giving mixed signals, worse pain signals etc, and my period which does bring about cramping in my back, it's all that. Hoping it goes soon.  Legs are a bit tired now. At least they work!

Just so strange having so much muscle tension and so much lax at the same time.

Oh my I'm so dense sometimes! In replying to someone else I remembered my lovely tilted back uterus that used to give me similar feelings. Has it been so long that I've forgotten all this mess? During my time, my uterus puts pressure on the nerves and blood vessels to my legs (especially my right side...most likely why that is the ONLY leg with varicose veins all the way up into my pelvic area). So add in the lack of hormones, the extra pressure from this wonderful  ::)heavy bleed (and extra blood flow to the area) and my anatomy and we have a winner. Oh my poor brain!  :o ;D
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on October 15, 2018, 05:51:16 PM
Maybe put your brain in a warm bath of gentle bubbles?  It is easy 2 forget symptoms as we improve which is why a diary might help.  My 1-5 levels help when I'm really anxious: 1 being background, 5 reaching for the medication.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 15, 2018, 05:58:35 PM
I think my brain needs a warm sandy beach near the ocean!  ;D Might not fix it but I'd sure rather be somewhere warm and relaxing.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on October 15, 2018, 06:16:55 PM
We have our wood burner on ..... and background heating. 
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 15, 2018, 06:33:18 PM
Heating here as well! First freeze this morning.  :'( The sun will be hiding behind grey skies soon and snow. I was born a desert dweller and miss it, mostly the sun all year round.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 16, 2018, 07:31:39 PM
Thanks Birdy,

Adrenal fatigue has been mentioned to me before. I don't know what I would need to do about it really though. I don't know there, but I know here in the states very few doctors recognize it as an actual medical diagnosis so I would need to go to a naturopath or functional medicine doctor to possible get help. That wouldn't be covered and I'm exhausting our finances as it is. Luckily new insurance so less out of pocket costs and about everything was tested over the summer and paid on that already. There's not much more they could test me for these days.

As for my back, well it's just a mess anyways. I have bulging discs in my lower back so deal with sciatica at times. And the tilted uterus does put some extra pressure back there during periods. Thinking of a chiropractor at this point. I've exhausted everything else it seems.

Today the anxiety is revving itself up pretty bad....I can feel it. Tomorrow...I go tomorrow to get, hopefully, a final word on what is going on and some solutions. Aches and pains still but a bit better. Just trying to prepare for tomorrow...make sure I have all the notes I want and everything to discuss listed out. I'm sure I'll forget something.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 16, 2018, 09:14:17 PM
Thank you.
I do fit the adrenal fatigue profile quite well. I have looked some stuff up on it. I'm at a pretty advanced stage though it seems. I know it's one of those things that takes time/patience to heal. Not my strengths.
I will have to try the salt water. I 'mostly' have cut out gluten/sugars/carbs. It's awful. I'm not a fan of processed food anyways so that wasn't too bad. I tried ashgawandha once, it didn't go well. I didn't like the side effects it gave me. I am tired in the morning, crashing mid afternoon and wide awake most nights at 9pm. I probably need to focus on healing my adrenals as well as the hormones. It really is a disaster these days. I would just love to feel good again....or at least better than I do now. I'm just so drained. I don't even know if I'm really that bad these days or just so burnt out from dealing with everything that I feel worse than I really am. I had to quit working, things got so bad, but right now I REALLY need to be working as we could use the extra income. But can't work if not feeling better. *sigh* I've lost so much weight it seems...but really it's not that much in the time that's passed. With everything though, I can't seem to feel "good" even though all the blood test numbers are good.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 16, 2018, 10:02:06 PM
yeah I've been taking most of that. Rest is a different story.
Have had cortisol levels checked and they were good though. So hormones might be more at play than anything...but nothing with adrenal fatigue really hurts to try anyways! It's a nice healthy plan either way.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 17, 2018, 11:40:14 PM
Sadly my appointment didn't go as I had hoped.

Yes, I have a hormone problem but nothing he would be okay saying I'm in peri or anything like that. Still have odd cyst on ovary and now another. Wants me to do laparoscopy (I'd prefer not to) or contraceptive pill for a month and come back for another scan to see if the odd cysts have gone/shrunk/whatever. They were not there before I stopped the pill so it's all things that have happened in the last 3 months. I have more "regular" cysts as well. I also did not ovulate this month. My progesterone was low no matter that my period came early. My estrogen was 'okay'. It was within range but on the low end. FSH was actually very low....go figure.
Thoughts on the odd cyst after talking over results with a friend...most likely the endometriosis....yipee...but would be about right. Does always seem to come back quickly for me after births or stopping the pill. Just sad that I need to have the laparoscopy or take the pill again to see. I'm leaning toward the pill and will probably just get back on what I was on before. It wasn't perfect but I know I could handle the progestin in it. Aggressive endometriosis is hereditary for me so that wouldn't be a shock. Just was hoping for some better answers. I do have the option of having a blood test order that I can have on hand to go in when I'm having a really bad day and see what's going on hormonally but I just don't know. I just cried. I really was hoping for answers...not more questions. Something is going on with my hormones and while I still strongly feel peri has started...I don't have the doc to back that up without more blood tests etc. So I'm still stuck.....trying to figure out what I'm going to do....well, probably the pill to confirm the endometriosis and then.....I don't know...just wait a few more years and try again? I just don't even know. But if the pill can give me my life back...then fine. At least I'll know what to expect each week/day/month again.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 18, 2018, 04:13:44 PM
Birdy,

So I've had a single draw blood test in the morning for cortisol and also a 24 hour urine test as well (but overall test, not based on time periods) and everything has been fine so far. Not on the high end or the low end either. Right smack in the middle like about everything else. I do think that the timing is off though and need to work on my sleep routine.

Ashgawandha didn't agree with me very well so still working on healing my digestion and maybe will try it again.

I'm going to hit the adrenal fatigue diet/protocol a bit more stern now and just try to treat myself as well as I can. Very similar to diets recommended for hormonal balance, gut healing, etc. So it really isn't going to hurt my body. Just need to make sure I'm getting enough calories and nutrients. I'm so exhausted from trying to feel better....I'm just ready to give up and accept that I'm going to feel awful for a long time. But I really don't want to surrender yet. Just need to figure out what I need to do to get this body working right. Got a referral from a friend for someone that helped her through some really rough times and get her body working better so looking into that option.

I just feel so broken, lost, disappointed and defeated right now. I was really hopeful this doctor would be the one to really help me. I know I need my FSH tested during my period though to get a better picture but I'm so sick of having needles stuck in me!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 18, 2018, 06:51:34 PM
I do take magnesium.
Going to do my best to keep trying to feel better and get listened to.
It is very hard to be positive. Not feeling it today.
It doesn't help I know.
Digestion is bothering me today, stomach aches. My abdomen is tender to touch so I'm assuming some inflammation going on...wonder what I ate wrong? Or is the hormone changes happening right now? Too many factors all feeding off each other, whole 'chicken or egg' scenario.
Just lost, alone...confused....heart broken.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 19, 2018, 04:52:57 PM
yes I do but recently ran out...might be the reason for the additional digestion issues.

Thank you. Just...thank you. I don't really know what else to say...just nice not feeling so alone right now.


So I'll be starting back on the birth control pill....probably this weekend. I don't really want to but I guess I have no choice at this point. I have something growing on my ovary that is spreading (seriously just think it is the endometriosis) and more and more cysts as my body isn't ovulating now. My periods are starting to get very irregular but my levels aren't showing enough for them to really do much else. I'm very anxious about the idea of a blood clot still even though I have no reason to worry about it and should honestly probably be more concerned with how fast the endo is coming back. I have felt worse being off the pill the last few months as far as heart palps, frequent crying, more exhausted (but sleeping better  :o), even more aches and pains, muscle spasms and everything else. So I guess at least the hormones the pill was giving me was helping...but I have so much anxiety just thinking about getting back on the pill. I need to relax though.....I had a much MUCH higher chance of having a blood clot during and after pregnancy than I do on the pill...so need to chill. Relax.....Relax...RELAX

I did have my first period in decades without a migraine though. I had some headaches but not my usual migraine. Maybe just a fluke. On the pill I had about a 1-2 day migraine...before getting on it I had 4+ day long ones (plus about 2 additional weeks of migraines as well) so it was better and I always knew exactly what day it would start so could prepare. Just was really hoping to fix my body instead of just slap a band-aid on it that'll just sort of fix the issue right now.

So hopefully with my new eating habits (going to be cutting out dairy here soon now....  :'( bye bye cheese) and relaxation techniques...I'll feel better than when things all started and maybe be brave enough to attempt a more natural approach to this hormone mess in a few months after it's been determined that the pill helps with ovarian growths, etc. Stupid hormone fluctuations. I know what's wrong....I do. But I don't have the energy, finances or anything left in me to keep trying to find a doctor that'll help me. I'm too broken right now.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on October 19, 2018, 05:02:34 PM
Magnesium tablets gave me the 'runs'  ::)

We are all aware that the body needs a balanced diet: fats, sugars, carbs., proteins, roughage (in no particular order)  ..........  and how it can go haywire during hormonal upheavals.  I remember those well when menstruating!  I have to eat B4 my body gets hungry to stop that awful tiredness and nausea.  Keeping hydrated and having a breakfast is the best way 4 me to begin the day however late I get out of bed  ;).  I LOVE roasted veg..  Filling and tasty with olive oil and black pepper over them.   [can you smell them cooking ? ]

I also have standbys: toast; dried fruits and nuts; bananas, anything that is slow release and doesn't get burned up too quickly.  Packets every where, in both vehicles, by the bed etc.. 'to hand' ..  I would make runny Redy Brek mid-afternoon as a pick me up until T-time.  With a teaspoon of sugar added.  Also I 'go off' foods in that I will eat i.e. cheese for weeks then suddenly  :-X which means I then have to replace those foods stuffs.  I also found that my taste buds alter during the day ........ a cuppa tastes lovely at breakfast time but by mid-afternoon  :-\

Let us know how you get on. 
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 19, 2018, 05:40:15 PM
Never had too many problems with magnesium unless I took too much. So I'm good there. My body must really need it.

Thank CLKD, I will keep you updated. I'm not thrilled at all at my options but I need to relax and everything about it. I know that. It's just very hard right now. My hormones are not in a good place for that.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on October 19, 2018, 07:14:10 PM
 :bighug:
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 19, 2018, 08:03:03 PM
Thank you.

So my regular doctor wants to speak with my GYN about the birth control options and see about a progesterone only. He's worried about my high d dimer results twice now and nothing else coming up that could be wrong. So I'm just waiting. Not sure how I feel about progesterone only though. Maybe I should try a progesterone cream? No idea. Just lost.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 19, 2018, 08:35:52 PM
I'm honestly just the most worried about getting a blood clot and with the high d dimer, I think my regular doctor is worried that I have small clotting going on somewhere they haven't found yet or something. I do worry about feeling worse than I do now too. A progesterone cream would probably be nicer than the pill but I don't know if it would be enough to manage my Endo and everything.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 19, 2018, 10:10:29 PM
I think I'll look into. I was thinking if getting a natural progesterone cream today but the price.... :o
Can find something online for less. I might wait to see if I can get a prescription for it though....I'd rather not take a pill right now.

My legs are downright achey today. Not painful, it's more like the achey you get when you are getting sick but just in my legs and hips... little bit lower back. I can feel a spot in the bottom on my foot the pain goes to...maybe it is nerves? It's such an odd feeling. It's like I'm in the middle of a heavy bleed but barely spotting. I need to get to the chiro I guess. Too many things going on. I have a hard time believing it isn't hormones. As I'm writing I can feel my face getting hot. I'm also to the point where every time I stand up, I'm getting dizzy. But my blood pressure is okay. It seems to come after periods for about a week to week and a half.

Yeah right my hormones are fine!  >:( So stupid! Might have to see another GYN.  :hotflash:
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Kathleen on October 20, 2018, 08:19:22 PM
Hello ladies.

I just wanted to send hugs to all those suffering from this hormonal madness.

I actually had a few good days recently ( miracles do happen ) but I'm back to being a nervous wreck today. To make matters worse some relatives that I find hard to tolerate have just invited themselves to lunch tomorrow!  If this had happened a few days ago I may have felt better about it but as things are I just want to hide away.

Sending hugs to everyone struggling with hormonal turmoil.

K.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 20, 2018, 08:40:32 PM
Kathleen, Best of luck with the relatives for lunch. I hope you can at least feel well enough to deal with it. Or hide away. That's what I would do!  ;D I've found I don't like being around even people I enjoy lately.

Birdy, I'm definitely a mess. I'm looking into the progesterone cream. I'm finding good info...reading that it works great quickly but can become a real problem as it ends up stored in your fatty tissue and can wreak havoc on the body later (why many women start out great and end up just awful on it!) and that can takes many months to over a year to get out of your body completely. It's recommended vaginally....hm, something to think about.

I'm really thinking of seeking out another doctor to investigate the hormone mess. I honestly feel really close to normal today except the aches in my legs. I'm trying to let not those bother me but they do. Both legs ache and feel heavy (right worse than left) and I just feel 'full' down there. It's probably the endo...but seriously why is it coming back so quickly? (have read something to do with the peri hormones going crazy) Ugh, just a mess. Not bleeding much at all but the aches feel like I should be heavy right now. This mess is getting old. I'm tired. I want help and I feel I'm getting no where.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 21, 2018, 02:15:18 AM
I can't believe I can feel the hormone shifts....heart palpitations seem to be taking a break...heavy legs passing...mild headache and random vertigo feelings now. Sheesh!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 23, 2018, 12:43:37 PM
Things are just awful. Yesterday was terrible, 2 panic attacks and anxiety for most of the day. Had to be checked for clots and have lungs checked to rule it out. I'm clear but dealing with it all was too much. I actually felt okay starting the day. I hate being in that grey area where my doctor worries about my risk almost as much as I do. If my body didn't show symptoms it would be easier. Blood tests to rule out genetic clotting as soon as I can bring myself to go get the draw. Then we know what we can do for me exactly.
Yesterday was rough. Took so long to fall asleep because the heart pounding was shaking my body.
I had to force myself to eat dinner after eating nothing but a small breakfast. Not helping with the weight loss.
I can feel every rib, starting to see them too. Hip bones are visible now too. Nice that clothes at the back of the closet fit but I need the weight loss to stop. I feel like it's drained my body. And of course the eating problems now...not getting the nutrients I need. I think some of the heart pounding is because of that. I think some of it is also because I don't have the fat anymore to pad anything.
I think I need to find a good progesterone cream today...get started on something at least. Going to use it only as needed, get myself feeling okay and then back off on usage to just maintain that.  The endometriosis is spreading I think. Not sure but more odd cramping.
Only had a 9 day long period this time, mostly spotting after a few very heavy days. Maybe I'll get longer than a 2 week break this time?
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 29, 2018, 11:15:14 PM
Finally ordered some progesterone cream...be here Wednesday. I had a great few days of feeling like the old me, even with the ovulation cramping from the endometriosis coming back. Ovulation time passed(not sure if I actually ovulated though..) and hormones switched. I felt the heart palpitations start last night while relaxing and today dealing with them as well. I wish I could have a day to day view of my hormones. I'd know exactly what I needed each day. So anxiety is back.  >:( Hate it honestly but it's all physical and just my hormones.

Hoping the progesterone cream will help slow down the endometriosis and give my hormones the boost I need right now, at least long enough to get blood tests all done and figure out a more solid course of action. I'm not planning on it being a long term solution at this time.

It was so nice to feel like myself for a few days. Thanks hormones for the smack in the face to bring me back to this current reality.  ::)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 30, 2018, 08:43:06 AM
Hey Birdy,

Honestly I'm doing pretty well. I mean, mentally I'm doing much better at the moment. Those few days of feeling like me was wonderful honest. I still had body aches, digestion issues, minor constant headache, chest pain, etc but I felt good. I think just mentally everything was good so the other stuff was minor annoyances.

Physically all the anxious feelings are coming back - internal shaking, heart palpitations, worse headache and just lack of motivation. Mentally I really do feel okay but after awhile the physical stuff wears me down and the health anxiety and such comes back. I'm really hoping to avoid that again.

I added gluten back into my diet and I don't think it's going well. Or it is all the junk I've been eating. But it is so nice having food cravings again! I'm enjoying food again and the weight is stable. But I can tell my body is not liking what I'm doing. But I still haven't stopped enjoying whatever I want to eat right now. I guess that stomach aches, even in early morning hours and not sleeping, aren't bad enough to make me eat better yet. Getting there though.

Found some old progesterone cream yesterday. Must still have a little bit of life left in it because not too long after using it last night, I felt the heart palpitations calm a bit, the bad headache I was dealing with all day eased, and just generally felt a bit better. That gives me hope for the new, stronger cream that is coming. I'm planning on starting with a very small amount and slowly building up. Then using it only as needed after that...just enough to ease symptoms is all I need. I'm so sensitive to hormone changes, I don't think it'll take too much.

How are you doing Birdy?
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 30, 2018, 07:30:50 PM
I get that same issue from time to time with my tongue and throat. I honestly don't know why. Its always on one side only too. I think I might actually bite my tongue in my sleep sometimes. I clench my jaw often as well. I had weird sensations in my mouth for awhile too but some zinc supplements took care of that.

I will try to watch that with the progesterone cream. The stuff I have now that is old is a very low dose but it does help and quickly really. So that's my reasoning for starting lower on the stuff I purchased (it's 10x stronger). I'm hoping just to use it as little as possible, just enough to make life more enjoyable. We will see how it goes.

Glad you are doing a bit better. Are you just using oestrogen now?
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on October 31, 2018, 07:25:30 PM
Is it all mixed together then? You must get it compounded I assume? Do you test hormone levels regularly?

I got bio identical P cream so we'll see. Fingers crossed it works but it has good reviews and been around for awhile. And if it doesn't work, well I'm not worse off really. Just have to try something else. Will keep you updated.

I still have been doing better though. Not great but better than before. Still having palps and internals shakes but the anxiety is taking a back seat at the moment, so I feel better. It's still there, I can feel it always lurking in the room, watching ....waiting. Awful anxiety.

 I went a bit crazy on the food! It was so nice eating again, enjoying food, I enjoyed too much.  ;D I think I might have even put a small bit of weight back on! Tummy is not so flat at the moment. But, sadly, some digestion issues came back so going back to no gluten, at least most days. I feel less anxious about my food and diet though so maybe I can find a way to enjoy eating gluten free.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 02, 2018, 02:40:31 PM
First day of progesterone cream went fine. I spent most of the day sitting around like a zombie, exhausted, hoping for my headache to go away. No, this was no from the cream. I woke up like that. Slept wrong so neck was sore and woke up with the headache. Got too cold during the night. So started exhausted and tired and then tried the progesterone cream in the morning (because I want to know how it affects me and can switch to evening once I know I'll stick with it). I could not stop yawning all day. This I do blame on the progesterone cream a bit. I was just tired enough I wanted to take a nap all day but not sleepy enough to actually do it. I used a couple small doses split during the day.
Slept better but still tired this morning. But I have already done some chores/cleaning around the home and gotten myself ready for the day, a HUGE step really. Seemed to wake up less anxious as well. Another small but slightly larger dose after my shower today. So we'll see if I get sleepy again. Feel less shaky internally as well. Kind of nice. Need to eat though...feeling the blood sugar drop now.

Don't know if it is the p cream helping all of that. It has been less on the hormones swings the last several days. But we will see.(I have had blood tests and I am estrogen dominant otherwise I would not try p cream alone. Just so anyone new knows. Hopefully this also helps slow or stop the endometriosis growth)

Got back to avoiding gluten again as well. It is amazing to me how much better my digestion is when I have avoided it for just a couple of days. I really don't want to see the correlation between gluten and my digestive issues because it means good-bye to some of my favorite foods.  :'( I will adjust. Bloating is subsiding as well.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on November 02, 2018, 02:45:45 PM
As an aside: Kathleen - "OK you'll be here for lunch but I will be elsewhere.  The top shelf in the fridge is all yours!"  ;)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 02, 2018, 10:15:57 PM
Yup, take some good probiotics daily. Helps my digestion recovers quickly when I eat gluten.

I take a daily probiotic, digestive enzymes when I feel they are needed.
Fish oil
Magnesium (different types to get rid of what I have at the moment)
Vitamin C
Vitamin D
Sometimes vitamin B12-dont need it daily

Having a great day so far. I mean, I still need improvement but compared to feeling like I was dying of some incurable disease, this is great. I'm able to do things and I might regret my busy day tomorrow but right now I CAN do things, so I am!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 03, 2018, 12:57:11 PM
I seriously don't know the last time I felt this good. I've felt so down and sometimes near death the last several months since this started. I'm not all the way back to me or close but things just feel like I'm headed that way. Started getting the pounding and some shakes last night so did an additional small amount of p cream again and could feel it slowly calm or I calmed?
I am still not even up to half of the daily dose but I really think that what I am doing is helping so no reason to rush it. It is just so nice to have some relief, even just a bit. I did not stop yesterday. Got things cleaned, laundry done, shopping (we needed food) made a wonderful dinner for the family, decorations put away, etc.  All normal things but I have not done/been able to do much of anything like that in a long time because I felt so awful. It would have been maybe one item each day. Never a whole day with all of them! Hope today goes as well. I have a project I'd really like to be working on.

So now, how to use the P cream exactly. Tips Birdy?
 I've read many different ways people have used it and what has worked for them (some every day, some most of their cycle and some only the 2nd half). It seems like one of those trial and error things.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 04, 2018, 02:24:00 PM
Thank you. I like the soles of the feet suggestion especially. I'll have to remember that as I work through my location rotation.

Horrible sleep last night. Mind was so busy last night I'm surprised I fell asleep as fast as I did. But woke up several times....upset stomach from dinner. Tried something new but my body didn't like it so much. So just going to take it easy on digestion today.

I am really liking the progesterone cream. It's definitely giving me something I need. I am having more good moments than I have been having. I am enjoying things more and just doing more. I'm cooking meals again and dancing around to music whenever I get the chance. Honestly in those moments, it's the best I've felt in probably almost a year or more.

Because I am feeling better. I am also eating better. It's a great thing BUT I am putting weight back on. I need to watch that to keep it from getting out of control. I might even actually be able to start exercising again!

So today...we will see how I feel but at the moment ..tired and a small headache. It's just one of those headaches that's just kind of there, just strong enough that you can notice it, just annoying enough but not horrible. I've had a lot more of those the last couple weeks (even before the progesterone cream).

Supposedly I am due for a period in 6 days. Last month it came early and I felt like absolute death leading up to it. My whole body felt like I had the flu, I had so many pains everywhere. My head was spinning. So far this cycle, things are better. Less pain down my legs and cramping, way less. I don't feel like I have the flu again. The heart palpitations are there but not as bad. I honestly have to keep checking the calendar because my body really doesn't feel like it is approaching. I didn't feel ovulation this last month either (couple months in a row...). So I really don't know what to expect. Maybe it isn't coming soon?

And to explain everything...I have felt my body ovulate since I was a teenager. I have always been one of those people that could get pregnant thinking too much about it. With my first, it took 2 months of trying after getting off the pill and with my 2nd, I was pregnant the first month and knew it before my period even came. Not ovulating when not on the pill is extremely odd for me. So not ovulating for a couple of months is very odd. My family is complete so this doesn't bother me. It is just more showing of my hormone changes and things going on that are new for my body.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 05, 2018, 02:17:32 PM
Ugh, stabbing sensations at the pelvic floor getting more annoying. Sometimes feel like something is stabbing me up inside...passes quickly, like a nerve hit off for a second. The pelvic floor ones are more external and really annoying. Same though, usually pass quickly but stronger than they have been and more frequently. They feel so familiar though... something I've had before but like my mind can remember when and why as it would have been years ago. I have never, up to date, had a UTI or yeast infection. I do not think it is that either....it really feels more like nerves. Just another thing I guess. (They started last month or the month before so not connected to the progesterone cream)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on November 05, 2018, 02:28:17 PM
Could be the start of thinning 'up there' Blue - vaginal atrophy?  What's to hurt if you try some appropriate treatment from the Doctor?
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 05, 2018, 02:51:14 PM
I don't know. I honestly don't know much about vaginal atrophy so I have wondered if that was it. I really don't know if the doctors would give me anything to try for that. I feel like even though I have them listening to me a bit more about hormones, I'm still not taken very seriously with it all because of my age. I do know things are changing up there...I can tell just with how my body feels. And things are drier. I know that for sure as well.
I'm very frustrated with it all really. I feel like I've gotten very little help from the doctors about things regarding the hormonal issues. Are there any reasons I couldn't use those treatments, like because of endometriosis or anything like that? I just don't know how a direct vaginal treatment would affect that, if at all. Thanks CLKD.

Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 05, 2018, 07:28:51 PM
I will look into that book! I think you are right regarding the hormones causing it. I think I had it during early pregnancy as well as teen years. Just leading up to my period I think. Cramping started as well.

So.....I am factor V gene mutation positive....no oestrogen. Sounds like I only carry 1 not 2 so that's good. Meet with the doctor later this week to discuss everything in detail.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 13, 2018, 03:35:17 PM
Still doing better than I have in awhile. Started my period so needed to take a break from the progesterone cream for a few days. I'm missing it, I can tell you that right now. I'm sleeping terrible and my mood is just lower. Not bad still though and I find I have more energy still than I used to. It really only hit me about 3 days after I hadn't used the cream. I think progesterone is exactly what I need. Still waiting to hear back from the GYN about the mini pill so I can start that. I hope it doesn't mess with my moods too much. If so, guess I'll have to stop and go back to the cream. Bleed this cycle was crazy heavy when it started, lots of clots. Hoping it is just my body flushing a lot of mess out. Cramps weren't as bad as you'd think though. Don't get me wrong, they were awful but I managed without pain killers, just a lot of heat. Some digestion issues are back...hard to say what exactly is causing that....thinking maybe just the hormone shift. Hoping to be back to normal soon. Still eating well and weight is stable. I feel healthier overall and I even get moments when my brain seems like it is actually working!  ;D I do worry this is all temporary but I'm trying to avoid thinking too much about that and enjoy what I have now instead of worrying about going back to how I was. Just cautiously optimistic right now.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on November 13, 2018, 07:33:46 PM
So glad to hear you are feeling a bit better Bluebutterly  - that's good news.  Its great when you actually know that your brain is thinking the right thoughts in the right order and you might actually be able to do something if you needed to!!!!  Its not until the brain fog clears a little you really realise just how awful and debilitating it is.  :great:
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 15, 2018, 02:08:27 PM
Thank you Ladybt,

I really do like feeling better. I never thought I'd be able to get a break from the anxiety for more than a couple of hours. But I have. It creeps up on me sometimes but I'm more capable of talking it down. I'm not sleeping well again...but I haven't used the progesterone for about 5 days because of my period. I'm starting it again today. I didn't even realize how much better it was with my sleep. I'm still finding what works for me in regard to the progesterone. I'm not sure if an every day thing or just a few days of the cycle is what I need so testing that out this month. I think I need it daily. I've done well with daily progestins in the past with birth control as well so I'm not too worried. I know without it, my brain fog, anxiety and sleep problems are back. Hoping this helps with the endometriosis as well. I have had great relief from the migraines....but that started before the progesterone. I would get regular headaches/migraines with the pill but those have gone away. They aren't back with the progesterone so maybe it was the estrogen triggering them in me....hope they stay away. Life without regular migraines is nice. I just get a low level headache these days and rarely use pain meds.

I've added biotin into my daily vitamin pills now...just to see if it helps stop the hair loss I've been experiencing.

And no more weight loss! Yay! I'm on the edge of a healthy weight for me....just a couple pounds less and I'll be considered underweight again. I feel good where I'm at as long as I'm eating well and taking my vitamins.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 21, 2018, 12:53:32 AM
So started progesterone back up as planned. I love how fast I can feel it working for me. I should be near ovulation right now...at least according to how my cycle used to be. I haven't ovulated for a couple months at least though. But, even so, I would get terrible cramps a few days before and after I would be times to ovulate as well as constipation and ovary pains.

So far no cramps, yes constipation and minor ovary pains. Small stabbing pains at pelvic floor. So either the progesterone is helping or I'm going to ovulate later, if I do. It makes me happy that things seem to be improving. But I guess time will tell. Taking the progesterone during the first half of the cycle doesn't seem to be as uplifting for me as the 2nd half but it keeps the anxiety away.

I fell and hurt my back pretty good. (It involves stairs, slipping and landing on a wood floor). I am hurting and can't decide about going to the doc or not. I can walk fine and have full movement, just hurting. But I had anxiety pretty bad over that but once I take my progesterone dose, I calm down...still think about things but can keep the thoughts from spinning out of control. Think I'm just going to be pretty sore for a few days. I can get by without pain killers as well. I might take some so I can sleep though....just enough pain that you can't sleep through it. Trying to figure out what pains are from hitting my back and what ones were there or would have been there anyways. With it being close to ovulation time, I get small stabbing pains down there..they aren't as bad as usual though. Just because I'm hurt I'm noticing everything. Honestly, I don't even know if I'd even notice some of these twinges/pains if I hadn't hurt my back.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on November 21, 2018, 04:39:42 PM
I fell years ago, flat onto my face.  I looked too awful to go the GP, I hid in our garden - it was lovely warm weather so I watched our chickens  ::).  I was surprised at how many muscles had been involved, over the next couple of weeks different muscles started to ache. Shoulders.  Breast bones.  Knees. Thighs ........

Have you any pain relief to hand if necessary/. Maybe a warm bath or shower to ease those muscles.  We no longer bounce, do we  :-X
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 21, 2018, 04:58:25 PM
I miss bouncing! And i had much less padding than usual too because of the weight loss. Great with the weight loss but that extra padding probably really would have been nice that day.  ;D

I am feeling better today...at least the back is. Still tight sometimes and I have to watch how I sit so I'm not too reclined and put pressure on the wrong part of my spine/lower back muscles. I can feel where I took the brunt of the hit because it's tender to touch. I may have done something to an ankle and possibly hit higher up on the back and one shoulder. Seriously, it's amazing how much you can hurt.

I do have pain relief on hand if I need it. I used to get terrible migraines so I always have something. I'm honestly amazed I haven't needed it. I took an Epsom bath last night and have used a heating pad as needed (ice a couple of times as well). I'm honestly surprised I'm doing as well as I am right now.
 
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on November 21, 2018, 05:00:37 PM
Keep up with the heat pad etc..  Don't be surprised if bruises appear and change colour over the next few days!

I knew in my fall that I would hit the ground.  I caught my foot on a log which was OK whilst it continued moving, when it stopped against the wall then I fell. 
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 21, 2018, 06:41:06 PM
I'm definitely looking for the bruises whenever I can. I expected to see my back black and blue by now.  Usually don't see bruises until they come out yellow-ish though. I rarely see fresh bruises....always wondered why? So it is odd because by the time I have a yellow-ish bruise it has been so long since I hit something that I don't remember where it came from. At least I'll know where these came from, if they show up. When I expect a bruise (like when I hit the back of my arm very hard into a dresser) I got nothing. But I had a bruise on my knee a couple days ago from ?????

Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 23, 2018, 02:51:59 PM
oh man, boobs hurt!!  I swear they are bigger....not that I have much to begin with but man, they are tender and hurt. And the tops aren't so empty anymore....It would be great if they didn't hurt so much.
Had horrific cramps yesterday but 200mg Ibuprofen took care of them. Hate mid cycle cramps. And it was 1 bad day, mild day before and seems mild now. Much better than 5-6 awful cramps. I can't expect everything to go away in a few weeks right?

Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on November 23, 2018, 05:37:20 PM
Of course right.  It's The Change.  Does what it says on the tin  ::) which is why it's so tiring at times.

How R your bruises?  I often knock myself and think "I won't remember doing that when the bruise comes out"  ::)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 24, 2018, 02:15:46 AM
Of course right.  It's The Change.  Does what it says on the tin  ::) which is why it's so tiring at times.

How R your bruises?  I often knock myself and think "I won't remember doing that when the bruise comes out"  ::)

I still don't see any bruises! I'm seriously shocked! Things are still tender to the touch so maybe they just haven't come out yet?!  ???
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 26, 2018, 02:31:59 PM
Still no bruising...but definitely more back nerve pain now. Maybe as the inflammation goes down? I'm feeling more aches as time passes as expected. Stupid stairs...wish I lived in a rambler....

Still feeling pretty okay. Haven't been feeling as great as before but I think I need to blame a lot of that on my diet. I have been eating so many sweets and so much chocolate. Oh those pies....they were so good and really got me started this last long weekend. Of course that has meant more headaches and feeling more sluggish. The weather has also been cold and snowy so I sit around all day bundled up. I need to be more active as well.

Today starting to eat better again...at least it is a choice now instead of being forced because of digestion issues. Have a project I need to get done this week as well. I am finally feeling well enough and like it won't 'break me' that I am going to start exercising again. I am going to start slow but I think it would help my body balance out more.

Still using the progesterone cream. I was upping my dose but I'm not sure it is what I need honestly. I may step back down to what I was at before or just stay where I am at for the rest of this cycle, see what happens. I am curious how my next period will be. The progesterone really did help almost instantly to get rid of the anxiety and keep it away. Only time I felt it coming back was during my last bleed....but quickly went away after I started back up. My mid cycle cramping was greatly reduced. It did get bad on one day but much better than several bad days. Downside is that my breasts hurt! This has surprised me. I thought it was the estrogen that would cause that. They are 'fuller' again though. Still small but my bras feel tight and hurt to wear. I have been getting a bit b*tchy lately as well. It is honestly hard to say if it is the hormones, the lack of sleep (very possible), awful weather (I don't do well in winter) or Grinch of a hubby during this holiday season - tried to get his help with holiday shopping for the kids, like to get it done early...and he was such a scrooge about spending any money or doing anything....once again everything fell on me to do and make decisions about. Just some extra stress that I'd rather not have.

Hair still seems to be falling out but growing even faster now! Was that even possible!? I'm blaming the biotin on that one. Been great for my nails though too. Not really noticing much change with my skin...well maybe...I don't feel like I'm looking at a woman 10 years older than I in the mirror these days. Not sure if that is the progesterone, biotin, combo?? It definitely isn't sleep though! That's been awful again.

I miss just living my life without thinking about what I need to do to keep myself balanced out. I'm too young to think about 'back in the day' times. But I feel like maybe if I can get this all figured out now, MAYBE, just maybe, I will have an easier time later. I needed to start taking better care of myself anyways I guess.  ;)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on November 26, 2018, 03:13:15 PM
Tnx for the update.

It's The Change.  It can't be rushed  :-\.  I am struggling with eating as we don't have many treats in our fridge  >:(  ::)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 28, 2018, 03:56:58 PM
Tnx for the update.

It's The Change.  It can't be rushed  :-\.  I am struggling with eating as we don't have many treats in our fridge  >:(  ::)

Same here...I'm starving lately! Just always. I'm eating twice as much or more than I used to! I think I could put my teenage son to shame right now with my eating ability. But sadly, I'm also craving sweets like nothing else. I'm trying to eat healthy but it isn't satisfying me. I'm feeling like my teenage self again with this...except don't have the body or metabolism to go with it. If only!  ;D

Sore boobs diminishing...thank goodness! B*tchy me seems to be going away as well. Maybe too much progesterone for first part of the cycle? Going to try a half dose this next cycle during the first 14 days...Or until ovulation (I think it might have actually happened this cycle??? Maybe? Peri is so confusing..never had to wonder about that - Got pregnant thinking about it too much so not ovulating is strange). Can't do without it too long because the anxiety starts coming back after about 3 days off the progesterone. Curious how the next bleed will be...would love for it to be lighter. If it is very heavy, will probably start the mini-pill. Hope I don't have to. I'd hate to mess too much with what is working! And seriously, very few headaches. This is amazing! I'm used to a menstrual migraine and several others throughout the month as well as an almost constant low-level headache. Being without them is just  :o!  Now when I get a twinge of a headache, it actually takes me a minute to process that I am getting a headache! And I can only really recall the ones I got after a long Thanksgiving weekend of binge eating pie and sweets. Definitely a blood sugar issue there. After getting rid of the anxiety and feeling like I was dying of something, I feel better than I have in a very long time. I have body aches and feels old (falling down the stairs did not help  ;D) sometimes...my hair is falling out more than I think it should be but I can honestly say I'm feeling good...more focused...even possibly healthier. 
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 28, 2018, 05:16:12 PM
You didn't break the wine bottle when you fell did you?😂 sorry,only joking,gives you such a fright doesn't it,take it easy xx

If only...at least falling down the steps I have gone up and down several times a day for over a decade would have made sense!!  ;D ;D

I'm glad you are getting a break from your anxiety as well jaypo. It's amazing how much it effects us. I think I put on a couple pounds as well but they've held steady there for the last week. Just so nice to enjoy food...just enjoying it too much now!!  ;D
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 29, 2018, 09:45:47 PM
Feeling the back pain from falling really good now. Nerve stuff going on. Nothing too painful but find it very annoying. I get random jolts like I'm being shocked in one particular area, always same spot. Some pain down my leg. Some of this could be from aggravating my back the last couple days. Cleaned all day Tuesday and worked on a project yesterday. Both required lots of bending and twisting - things that aggravate my lower back anyways. Will need to use my tens unit soon.
Didn't use progesterone cream yet today... don't know why. Just never got there I guess. I know once I do, I'll feel more motivated and less blah but would still rather sit here curled up on the sofa with a blanket. Miss the sunshine...been a few days without it. Already take a large dose of vitamin D.
Must do something productive...
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 30, 2018, 12:20:32 PM
I honestly don't know if the vitamin D helps. Sunshine really works better for me. I can feel that. But winter clouds, snow and short cold days makes that very hard to get. I've been taking the vitamin D over a month now.

Yes, I do need to be more gentle on myself. I don't heal up like I used to for sure.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 30, 2018, 02:01:55 PM
I don't want to accept I'm not young anymore!  ;D But the aching body from sleeping "wrong" is telling me otherwise. I can't believe how many places I am aching and have pains pinging today! Just one day of not using the progesterone and probably eating too much gluten-I can't seem to stay completely gluten free...bread is what gets me. I've found alternatives for other things but the bread is the hardest to give up and stay away from.

I really do need the sunshine. I know people who use the tanning beds during the winter just for the vitamin D boost. I think vitamin D supplementation helps but I don't think it is the same as good old sunshine. I know, not the best thing...cancer risk and all that.

Been thinking....
I started having lower back problems a few years ago...help hubby haul a sofa up the stairs...bad idea. And recently found out I have some degeneration going on in my spine. They say it is normal for my age but even my mother is shocked by this. I don't know the extent of the degeneration, they said it was minor. I am only 36 though...and I am starting to wonder if that all if somehow connected to everything I am dealing with now? I do wonder how much my body has been showing signs of problems for many years but it was never noticed (most likely because of the birth control pill I was on). I mean, I was told at almost 30 that my ovaries were shutting down then...but never given a reason why or acted like it was not much of anything to worry about. Now, years later when I am positive I am dealing with perimenopause (seriously, How many symptoms do I have to check off the list?! And no other reason to explain them), I am told that's not what it is! And why? Why so young? I think genetics play a part but do wonder if something else is going on in my body that we haven't found. (Can there really be anything else they can test for!?) Just thinking "out loud", so to speak.
I honestly think that I will be dealing with things alone until I am over 40. I feel like then, I will be listened to more. I find that sad as I am in the age range for perimenopause. It's not THAT unusual. Maybe I will feel like trying another GYN eventually. At this point, I am so sick of visiting doctors and I am just so happy that I am feeling so much better. I will just keep doing what works for me until it doesn't anymore. And I'll be honest, I don't think doctors have much of a clue sometimes. I'm glad they are really trying to learn about menopause now but I think there is so much they just don't know.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Robin on November 30, 2018, 02:45:22 PM
I was about to suggest light therapy too Jaypo. There are some much smaller ones on the market these days and although still expensive they have come down in price. If sunlight makes you feel better then it might be something worth trying. You sit with the lamp slightly to one side of you each morning(about 30 degrees) for 30 minutes. You don't look directly at it so it could be on your desk while you are working or the breakfast table or even just while you watch tv or read. Lumie do quite a few and I think they have a website which might explain how it works. It helps get your sleep pattern back on track too x
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 30, 2018, 02:58:16 PM
Not a huge fan of the sun beds anymore either. I haven't used one in over a decade at least. I have looked into the lights. I need to do that again. I think several of us in this home could use it. Or a move...a move away from the cold, wet winters would be nice as well. I miss the heat.

Yes, If the doctors can't help us, what do we do? If money wasn't an issue, I would have gone to a ND awhile ago and still feel like I would have gotten better answers had I done that.

I understand we can't blame menopause for everything but have they seen the symptom lists for it?! Not just the hot flushes and irregular periods but the WHOLE list. There's a lot of things that can be blamed on menopause and when they have ruled EVERYTHING else out with about EVERY test they can throw at you, what else can it be? *sigh* It is so mentally exhausting sometimes. I wasn't making up all my symptoms and wow, amazing they followed this pattern that went along with my own hormone fluctuations...so odd...but no, couldn't be peri at all....  >:(*read that with extreme sarcasm*
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Robin on November 30, 2018, 03:08:23 PM
Great minds Jaypo 😆👍🏻
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Robin on November 30, 2018, 03:22:35 PM
I had all the perimenopausal symptoms that we see listed and many more issues besides all of which were put down to depression. I really thought I had gone mad. Once I got the right treatment (years of hell later) all the recognised symptoms have either disappeared or at least improved and so many things that I had no idea were related have disappeared too
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Robin on November 30, 2018, 03:24:04 PM
I've still got a long way to go but things on the whole are a lot better. It certainly sounds like perimenopause to me x
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 30, 2018, 03:31:17 PM
I had all the perimenopausal symptoms that we see listed and many more issues besides all of which were put down to depression. I really thought I had gone mad. Once I got the right treatment (years of hell later) all the recognised symptoms have either disappeared or at least improved and so many things that I had no idea were related have disappeared too

yes same here. They kept telling me it was just anxiety...anxiety caused everything.
But once I started using the progesterone cream...no more anxiety...so odd. Yes, I think it'll be years as well before I get a doctor to finally officially diagnose me. I just hope for this relief to continue so it isn't complete Hell while I wait for that day.

I've still got muscle aches and some muscles spasms sometimes, some heart palps but much less intense and less often. The hot flushes happen less as well. Mine were never too awful, not yet anyways. I just get really hot like I'm starting to run a fever, face gets very red...don't sweat though. But everything is happening so much less than it was just 2 months ago. And the anxiety is gone right now as well, so everything is great. Sleeping terrible but can deal with it better now.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on November 30, 2018, 04:08:11 PM
I do hope they find something to spare future generations. I wanted to check myself into a mental hospital quite a few times. I was dying or losing my mind for sure.

Just for fun, I went through the symptoms list on "advice for husbands" and checked off everything I have been experiencing in the last several months, since all this started...30 of the 35 symptoms!! (I'm down to under 10 at the moment) Luckily some were only a short time (month or 2...maybe 3) but things I have never experienced in my life until during this time and no other reason for it to be happening. I expect some of them to come back as I know during peri, you can be a mess for awhile only to be almost normal again for sometime. So it is either peri, or several undiagnosed diseases  ::).
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on November 30, 2018, 07:08:45 PM
We have a recently opened thread on that too - what we have self diagnosed  ::)

I don't think initially 'we' knew how dangerous sun beds can be, as well as how we should keep out of the direct sunshine.  However, we need sunshine to generate VitD and taking supplements may boost levels - symptoms for me were intense tiredness: I would do 20 mins. weeding in our garden then have to sit, still, for 2 hours.  Absolutely no energy.  After 2 weeks of daily capsules I began to get my levels back.  Mum was the same even though we both get plenty of outdoor activity.

It's remembering to swallow the capsules that's my problem  :-\
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on November 30, 2018, 08:09:23 PM
My low levels were found by specific blood test.  Some 'experts' say we should as we don't get enough sunshine, well that might be true for some ethnic minorities under the veil, or those in care, or who don't leave their homes often.  I was surprised that my levels were low in August 2017, as I am out in the garden most days!  Mum was the same, she spent hours pottering ......... we both have a good diet.  Now that I know the symptoms I can take them to boost levels.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on December 01, 2018, 09:41:58 AM
I tested low on vitamin D a couple winters ago. During the summer months, I have great levels. I'm not a fan of sunscreen unless we'll be out on the water all day. I just try to remember to start supplements about a month before winter hits and I'm usually okay. It still isn't the same as the actual sunshine for me. I don't think the supplement can totally replace what our body can make.

Been up since 1am. Went to bed before 10 as I was falling asleep anyways. No reason to be up....no anxiety, no sweats....just up. Really looking into the light therapy. Reading a lot of people getting help with sleep as well with it.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on December 01, 2018, 12:02:37 PM
I didn't sleep until after 4.00, we could have had a chat  :D

Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on December 03, 2018, 03:26:42 PM
Is there a "Can't sleep, anyone else up at this ungodly hour?" thread??  ;D

Slept last night, didn't want to get up...had to shovel the drive....  :'( Oh that time of year. Needs to be done again....my back is still recovering from my fall too! Yesterday was rough and full of a lot of nerve pain...actually starting to wonder if I need to see a doctor about it...but felt great -before clearing the drive-after last night's rest. I just need to be patient. I can't expect to recover super quick from a fall like that. I should do more resting but I actually have a clean house right now and I want to keep it that way for a bit. I have the energy to do so...but not the back at the moment.  ::)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Charys on December 03, 2018, 03:36:54 PM
Hey BlueButterfly,

All my life I have SLEPT and slept well. Until a few years ago, I needed at least 8/9 hours a night and got it. At weekends I could sleep and lie in until like 10 or 11 am. Now.........its ridiculous......I wake up at all sorts of ridiculous hours and just get up and do things as I know there is no way I will go back to sleep for a few hours. I have, oddly, found that I fall asleep fairly quickly but then am up and WIDE awake at say 3 am....I often get up for an hour.....then go back to bed for a few hours. This often works for me, breaking my night into two sleep sections. No idea why it works, but I have heard that in times gone by the 'first sleep' and 'second sleep' were the norm.In the middle people would get up and go out for some shopping! LOL Thats split night is a  fairly good night for me - on a bad night I can wake up every hour and a half. I never could have imagined a few years ago I would be in this type of sleep pattern - erratic. LOL I totally empathise and if you want to set up a 'awake at an ungodly hour' thread....I'll join you LOL
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on December 03, 2018, 03:43:48 PM
Hey BlueButterfly,

All my life I have SLEPT and slept well. Until a few years ago, I needed at least 8/9 hours a night and got it. At weekends I could sleep and lie in until like 10 or 11 am. Now.........its ridiculous......I wake up at all sorts of ridiculous hours and just get up and do things as I know there is no way I will go back to sleep for a few hours. I have, oddly, found that I fall asleep fairly quickly but then am up and WIDE awake at say 3 am....I often get up for an hour.....then go back to bed for a few hours. This often works for me, breaking my night into two sleep sections. No idea why it works, but I have heard that in times gone by the 'first sleep' and 'second sleep' were the norm.In the middle people would get up and go out for some shopping! LOL Thats split night is a  fairly good night for me - on a bad night I can wake up every hour and a half. I never could have imagined a few years ago I would be in this type of sleep pattern - erratic. LOL I totally empathise and if you want to set up a 'awake at an ungodly hour' thread....I'll join you LOL

Out for shopping?! I had never thought of doing that at 2am! Probably a great time to get the Christmas shopping done though! Can't imagine the stores being busy unless all the peri/menopausal women all start shopping at those hours!

It is quite common for me to wake up at 2 or 3 and then be up for a few hours and back to sleep. It does work for me, when it works out BUT that is rare. Hubby leaves for work in the early hours, usually shortly after I fall back asleep...so his alarm, or just him moving about wakes me again...then an hour or so later, teenager up for school....and then younger child up...and well, extra sleep is shot at that point.

If my mind is in the right place next time I can't sleep, I may just start that thread!  ;D
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Charys on December 03, 2018, 03:48:09 PM
https://www.sciencealert.com/humans-used-to-sleep-in-two-shifts-maybe-we-should-again

Quote
...then an hour or so later, teenager up for school....and then younger child up...and well, extra sleep is shot at that point.

I am fortunate in that I am past the 'child at home' stage of life.....so more easily able to get another few hours. I feel for you in not being able to do that.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on December 03, 2018, 03:49:48 PM
Paternal Granma was up at 5.00 a.m..  She had been in Service so getting up at that time was usual.  Her housework would be done by 6.30 ....... whilst we were still sleeping  ::).  Occasionally she would drop off in the early evening but that was rare.    As long as I wake feeling rested, I can cope but when dreams are busy ........

As for shopping in the early hours ...... that sounds a great idea, however, I don't wear night clothes  :D
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Joaniepat on December 03, 2018, 05:13:39 PM
Is there a "Can't sleep, anyone else up at this ungodly hour?" thread??  ;D


There certainly is! I just bumped it.
JPx
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on December 03, 2018, 05:17:04 PM
 :thankyou:
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on December 03, 2018, 06:14:38 PM
I do the "ungodly hour" shift on quite a few nights - likely to see you all there ;)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on December 03, 2018, 07:11:29 PM
I'll be in the chocolate aisle then  :D - in a dressing gown and slippers, no photos thanks  ;D
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Charys on December 03, 2018, 08:10:34 PM
 ;D
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on December 04, 2018, 06:00:09 PM
Where were you all  :-\  ;D
Title: Re: Sick of feeling like I'm losing my mind...
Post by: EnglishRose on December 04, 2018, 06:32:18 PM
I can sleep well most nights. Went through a phase early peri when the week before period I'd have 4 hours and actually would get anxiety about not sleeping..which created a vicious circle,

Currently I'm sleeping too much on better days. I can sleep 10 hours and still fall asleep after dinner watching TV.

On other days I'm waking early, basically if I don't fall asleep at tv at dinner I'm going to have a bad night sleep that night.

No idea what causes me to be catatonic one day and insomniac the next.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on December 05, 2018, 01:52:32 PM
Same slept great for a couple of days then up so much last night! I can blame last night on night sweats and my awful period. Lots of cramping, heavy but not as bad as other times, slightly better...still had to get up once in the night because of it. Always happens though, even on the pill I was like that. After the first day I don't usually have to again. Guess we will see. Can't believe the cramping. Really hoped this period would be better with more use of the progesterone. Lots of clots and thick blood. Maybe it's just more shedding as my body trues to get rid of everything in there? Maybe I need to use more cream....I feel good at this dose but it's this or the pill and I need the endometriosis controlled.....no surgery yet, don't want to. Not sure what I should do at this point...I need to get my cysts and endo under control but it's been such a relief not dealing with the anxiety. I'm very scared of what will happen if I start the minipill...will I be fine, anxiety come back, or worse..I turn into a raving bitch? I worry about that last one. Still have children at home and don't want to do that to them. It was bad enough with the anxiety and panic attacks. I can't go back to that. Maybe if we were closer to family and I had some help or my kids had a place to go when mommy was losing it.....just so confused and scared of what to do....and that "odd growth" on my ovary I was prescribed the pill for....only showed up after stopping the last contraceptive. I'm positive it is the endo but the doc wants to do surgery or for me to try medication for a month, see if it goes away. More to think about...
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on December 05, 2018, 02:34:58 PM
Maybe stick with this regime until mid-Jan and review how your over-all symptoms have been?  What do you take for the cramps?  How's the weather over there ;-)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on December 05, 2018, 03:17:29 PM
I am supposed to have another scan next week but it would probably be better to push it past the first of the year anyways. Good idea. Maybe I can try a higher dose of progesterone again.

I take ibuprofen for cramps when I'm sick of dealing with them. Honestly 200mg can be enough to reduce them enough I can handle. I find them more annoying than anything. I really can't believe the amount of clots this month. I guess that could be a good thing....it's honestly hard to say.

It snowed again!  :'( It's 22 degrees....or about -5 Degrees Celsius for you guys.  ;)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on December 10, 2018, 01:42:21 PM
Period was shorter, not 10 days long like it has been. Cramps were worse, seemed less bleeding...but more clots, mostly small. Decided I'm still going to have my follow up scan, see if anything has changed. Depending on how things go, I am considering seeking out a 2nd opinion.  That may be necessary anyways. I just want to know, for sure, what is going on with my very healthy body that seems like it is falling apart lately.

I've determined that I'm going to be better with exercise and diet. Just eating healthier. I am so tired of feeling old and tired. I'm not old and I don't want to feel it anymore. I'm too young for all of this but yet here we are.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on December 13, 2018, 05:09:54 AM
Tired, aching....ugh!
I slipped on ice, fell again, same place but less painful than bouncing down the stairs. That was a few days ago...still hurt but not bad. Worst is that is seems to throw my whole body out of order. I already have bulging discs in my lower back so it just gets worse. Had to shovel snow today and that always causes back problems anyways. Caught myself with my arm and hand....so dull ache from the shoulder down, just enough that you can't forget about it. Kind of how the rest of my body feels right now.

My muscle tension has been coming back. I ran out of my usual magnesium and was taking what I had because I didn't really want to buy some if I didn't have to. The cheap stuff helped but not enough. Finally bought more of my regular stuff today so we will see if that helps. Just all around feeling  not so great right now. My body just hurts! I probably need to take more Epsom salt baths....at least right now. I'm sure it's just the fall again and I need to give myself time and patience. Just don't want to feel awful for Christmas.  Some anxiety coming back as well and that just scares me. Still have some control over it.

Need to breathe, need to relax.....

Title: Re: Sick of feeling like I'm losing my mind...
Post by: Milamam on December 15, 2018, 10:46:29 AM
Hi BlueButrrfly-

It is normal to hurt after you have fallen on ice. And you have fallen a week or so ago on the stairs, if I temember correctly? I don't think this is related to the perimenopause. It hurts when you fall and injure!

It is OK to have less muscle strenght as our years pile up! We do age! We have to accept it.  But if your  aches are because you have had a series of falls, take whatever remedy works for you - Epsom salts in bath are great, diclofenac gel rubbed at the sore places, some iboprufen for at least a week to heal the possible infection resulting from the injury and as pain-relief, hot or cold compress on the injured part (depending on the inflamation going) - if you feel pain, cold ice packs are good immediately after the fall/bruise for tisue to come back to normal. Warmth is needed when muscles start to heal and need more induced energy and improved circulation by energising.

Take your time, use whatever is working for you to heal the bruises! It is ok if your body hurts after you have fallen! I would be worried if it doesn't, by the way!

Milamam

Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on December 15, 2018, 02:26:46 PM
OUCH ! again!  It hurts.  The older we get the harder we fall.

As oestrogen levels drop muscles may become lax = aches and pains.  So over-the-counter pain relief should help.  If it works? why not?
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on December 15, 2018, 03:50:12 PM
Thanks ladies!
Yeah I'm a mess. I was finally getting over the pain of bouncing down the stairs so not fun to add more pain again. It's getting better.. down to a bit of nerve pain again that is slowly subsiding. I expected to hurt again, just didn't want to! The Epsom salt baths have been great. My left arm feels almost completely better, just a little bit of wrist pain but minor and only when I put weight on it. Seem to be recovering faster but it also wasn't as painful of a fall! I can't be this uncoordinated yet!  ;D

Doing well right now though. Bit of anxiety but I still have control for the most part. I'm going to attribute some of that to the fall and everything that happened during that event. Just quite a few stressful events over the last week or so that I think has brought it on. Hormones are okay. They did something this last week as well, I wish I knew what but my body felt "off". Would be nice if someone could invent an at home test for hormones that would give us quick results so we could know what was happening with them during all these odd changes...would be nice if every little change didn't affect me so much either!  ;)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Milamam on December 15, 2018, 04:36:44 PM
There are OTC FSH urine tests. AKA pregnancy sticks. I am not sure whether you have these in the US. They would measure FSH and record a positive if FSH is over 25.

Blood tests are most reliable though.

Milamam
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Kathleen on December 15, 2018, 04:42:03 PM
Hello ladies.

BlueButterfly -  So sorry that you've had these accidents.

 I completely understand the need to know what's going on with our bodies. I hate the way unpleasant symptoms just arrive out of nowhere and hang around for hours before suddenly going again. It feels as if no matter what you do you are at the mercy of these horrible surges. I get very frustrated with it all which I'm sure doesn't help but I can't help it! Maybe some of us really are more sensitive to hormonal changes?

Wishing you well and I hope your day improves.

K.






Title: Re: Sick of feeling like I'm losing my mind...
Post by: NaturalMystic on December 15, 2018, 05:49:30 PM
Hello ladies.

BlueButterfly -  So sorry that you've had these accidents.

 I completely understand the need to know what's going on with our bodies. I hate the way unpleasant symptoms just arrive out of nowhere and hang around for hours before suddenly going again. It feels as if no matter what you do you are at the mercy of these horrible surges. I get very frustrated with it all which I'm sure doesn't help but I can't help it!

K.
What are your particular symptoms hon.

I suddenly have a rush of just feeling ill, nausea, dizziness, hot, then all panicky like I'm going to drop down dead ... So scary 😓 sometimes so shaky, and feeling I'm not getting enough air ....

Hate it and having an episode as I write
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on December 15, 2018, 07:29:51 PM
Milamam,
They do have the at home FSH test strips. I haven't gotten them but I am considering it.

Kathleen, yes I really do think some of us are very sensitive to hormone changes. I really believe I am one. I could tell I was pregnant before a test could...my body just felt different...really hard to describe. I think that's what is happening now. I do think if I wasn't so sensitive to them, I wouldn't even be aware of perimenopause happening. Anybody else ever around someone that said "oh I totally forgot I was on my period"??? I didn't even know that was possible! I'm sure it is similar to hearing about women sailing through meno. Please bar tender, I'll have what she's having!

It's so hard to describe when you can tell something is different, something feels just odd or off with your body. This last week-ish, I've had more than normal discharge (not strange colored or smelly...no other symptoms I don't recall), more exhausted than normal, lots of muscle tension and knots, been having sex dreams...that's been unusual. No extra drive. The anxiety has started to come back but minor compared to what it was like and tight throat. No motivation at all. More bloating and wind. I've been wondering if it was an estrogen surge happening? Been able to use more progesterone cream than usual, trying to deal with what's been going on, and it isn't making me b*tchy like it was when I used this dose before.


I suddenly have a rush of just feeling ill, nausea, dizziness, hot, then all panicky like I'm going to drop down dead ... So scary 😓 sometimes so shaky, and feeling I'm not getting enough air ....

Hate it and having an episode as I write

This! Had this and heart palpitations before....ended up going to urgent care and just told it was anxiety! Did not go away until I finally started a period. Could not wait for that period to come because I just knew it would help. Sure enough about 2 hours before my period started those feelings finally started to ease (had them for a few days by this point) and by day 2 of my period they were 90% gone.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on December 15, 2018, 09:22:32 PM
HORMONES! and if one is using VA treatment, what goes up has to come down  :-X

NaturalMystic - what you describe sounds like symptoms prior to a hot flush?
Title: Re: Sick of feeling like I'm losing my mind...
Post by: AgathaC on December 16, 2018, 08:24:48 PM
I am very interested in this thread and what has just been written.
I have been in perimenopause for about 3/4 years I think, with symptoms worsening this year. Weight gain, fatigue, heavier and longer periods but still regular, gastric issues, dry hair/skin/nails and my two particular specialisms: sore boobs and anxiety.
I haven't had any hot flushes so to speak but something has changed this past week....
A period just five days after the last AND yesterday and today I've had two episodes exactly as described by Natural Mystic. No need to re write - exactly as you describe, NM.
I've been anxious and crying and exhausted this weekend, an extra period and two of these episodes.
I feel like this perimenopause stuff is starting to consume me.
I work for myself but I used to have a high profile job. I DO NOT KNOW how I would be able to carry out that job feeling as I do now.
I assumed that irregular periods meant bigger gaps between them not shorter. I have only just got over the last one before this one started.
Anyway, how are you today Blue Butterfly?
Title: Re: Sick of feeling like I'm losing my mind...
Post by: NaturalMystic on December 16, 2018, 08:39:57 PM
I head ul a team of 12 in a very busy and stressful job (higher education).  I don't know how I've got through many of the last 10 years, being a single mum too.

I'm going back on amitriptine for the sleep and mood, its worse since I took myself off.

Trial and error I guess.

Wish all of you well xxx
Title: Re: Sick of feeling like I'm losing my mind...
Post by: AgathaC on December 16, 2018, 08:48:28 PM
Natural Mystic - is that an antidepressant or a sleeping drug? Sorry to sound ignorant.
Wishing you well too xx
Title: Re: Sick of feeling like I'm losing my mind...
Post by: NaturalMystic on December 16, 2018, 08:52:36 PM
Its actually an old type anti depressants, a try rather than ssri ( I cant tolerate ssri's).

It was designed for depression but highly used for insomnia and pain relief.  I'm going back to it because I'm far worse without.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on December 17, 2018, 04:54:29 AM
I'm doing well actually...today has been a good day but I've been very exhausted. I stay up too late and get up too early. The heart palpitations have calmed and I just feel....calm. it's been odd to feel that even in situations that normally make me feel worse. I'm not sure if it is getting the magnesium that works for me back up to a good level in my system or a hormone shift. The hormone shift is entirely possible. I still have mostly regular periods...at least the last few months...and should be around ovulation time. That would explain the dreams probably.
I've been so cold lately..decided to check my temperature, just in case I was running a slight fever or something (I also have had ear aches and stuffiness so thought maybe a sinus or ear infection) but it's actually running lower than normal.  :o nothing dramatic but not what I'm used to. I always seemed to have a temp slightly above normal, not fever but a bit higher or right at normal. Now I'm a bit below...hubby thinks it's the loss of body fat and I'm just noticing it more with the cold weather...maybe...?
Have an appointment with my GYN tomorrow...getting a follow up scan on the odd ovary growth... amazing with all the health anxiety I have had, this doesn't worry me one bit. I still believe it is just the endometriosis and I'm hoping the progesterone cream is helping with that. So far I seem to have a bit less bleeding and shorter period...and had less mid cycle cramping...so hoping that's all a good sign. Otherwise I'll have to start the minipill-which I still don't want to do. I feel like I'm finally getting a handle on these hormones a bit and would hate to mess with them and get that horrible, I'm dying for sure, anxiety back.

How are you all doing?
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on December 17, 2018, 09:02:59 AM
My legs and feet feel cold but DH tells me that they are OK.

Brown fat across the nape and shoulders is where we are the warmest.  Apparently.  Which is why women wear shawls ........

Try not to over-think the whys, stand and enjoy feeling 'good'  ;).  Let us know how you get on?
Title: Re: Sick of feeling like I'm losing my mind...
Post by: NaturalMystic on December 17, 2018, 10:21:13 AM
10mg amitriptine and the most relaxing night ever.  Still broken sleep but not totally waking thus going into anxiety.  Feel so good this mornw
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on December 17, 2018, 07:56:25 PM
Had a terrible sleep but a great day! Doctor went fabulous! I was nervous he wouldn't like that I was just using progesterone cream.... Okay, so first...the scan....things are better! The 'odd growth' on my ovary is actually smaller! Not gone but smaller. I also have less cysts as well and I have one large cyst because I am actually ovulating this month, right now! My uterine lining was a bit thickened...but again, I am at ovulation and he said it is expected...I am ripe to get pregnant if I really wanted to...HECK NO!

So he said bad things don't get smaller. I told him I was nervous because I was just using progesterone cream....and anyways he actually approves! Told me what to watch for on what I was getting. He talked to me about the progesterone pill they have but the problems they've run into with that (Too much at once in the system, etc) and some actual benefits to the progesterone cream (slowly absorbs in the body throughout the day) but it has a short shelf life and gave me ideas on what to look for when buying some. I asked him about dose...and he said it really is dependent on the person and how they absorb so to just go with symptoms/relief for me. And we can do another scan in a couple months unless I have some other issues come up!

So I am just thrilled right now! He said that yes, it most likely is the endometriosis that is on the ovary and also the reason that the progesterone is helping me so much with my anxiety, etc.

And I hate to say it, afraid I may jinx myself, but so far, no mid-cycle cramping! Usually at this point I am curled up in the fetal position with pain killers and a heating pad, afraid to stand up straight because it feels like my insides might tear apart. Right now I am having very minimal, barely noticeable cramping....Oh I hope that continues because it is awesome.

Now to just get some sleep! I ended up getting about 3 1/2 hours of broken sleep! Had a flush when I tried to go to sleep...no big deal, wasn't too bad...just hot face & neck...cold everywhere else!  ::) But my mind would not SHUT UP. It just kept going and going....hopefully tonight or I'm going to have to get something to help me sleep better.

Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on December 17, 2018, 08:39:00 PM
It never all goes  ::) but you can shout back at your brain  ;)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: NaturalMystic on December 17, 2018, 09:32:08 PM
It never all goes  ::) but you can shout back at your brain  ;)
Oh yea

Can you imagine having a serious MH illness, poor them 😢
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on December 22, 2018, 06:51:25 PM
Hey, sorry...yes, it definitely has. I'm not sure if that is normal but for me it does. I still have my moments...but that was normal for me too!  ;D I can sure give blondes a bad name sometimes.  ;) I do find I am catching myself before those moments...like realizing that I was about to put my phone in the microwave before I actually did it.

I am less forgetful and I can focus on things better than I used to. I actually have a clean house at the moment, have been making meals and treats...and even cleaning up after. I am finding less random objects in wrong rooms throughout the house and ALMOST remembering to put things away. I do still enter and leave the same room a couple times to remember what I was after. But a lot of that is my ADD as well. I get distracted by something else when I enter the room usually. (I  find my mind is more active...the ADD has ramped up a  bit) I think just getting the estrogen and progesterone balanced out helps. I don't know much about all this hormonal mess just know it's helping me. I feel more like me than I have in a long time.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on December 22, 2018, 08:15:53 PM
Glad to hear it Bluebutterfly - sometimes we don't realise just how bad we were until we feel a little bit better...hope it carries on.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on December 23, 2018, 11:21:18 AM
Hope the p helps you as well Birdy. I know it's been a life saver for me. I didn't expect it to help me actually be able to accomplish things....I thought it was supposed to make you tired?
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on December 26, 2018, 04:00:09 PM
Good info, thanks! You'll have to let me know if the progesterone helps balance you out!

Survived Christmas, yay! It was enjoyable actually. I've been going for several days now. . family, meals, treats, etc. The oven has been going quite a bit. Warms the house.  ;) I'm exhausted but not drained... really surprised. One last go today...started dinner in the slow cooker already though so just need to clean up from the Christmas explosion.

Missed a day or was late with using the progesterone cream...used less on some days because I was busy so stopping for 3 minutes to rub another dose of cream on....well, feel like I'm going to start a period today! Too early...that would be like a 20 day cycle.  >:( It's not that much of a dose! I really didn't expect it to have that kind of affect on my body! Need to be more careful I guess.  ::)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on December 26, 2018, 04:07:47 PM
Hi bluebutterfly - its funny how the "feeling ok" bit creeps up on you. Glad you are feeling better than you have.  Yep, we do need to be careful about missing doses or doing it to late - mental note "don't do that again"!  doesnt matter whether it is a small dose your body obviously needs it.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Roseneath on December 27, 2018, 07:31:17 PM
Hi ladies. I thought I would tag onto this post as I have had a rubbish Christmas away from home feeling that I am only just keeping it together for the family.  Have struggled for 5 years or so with health anxiety and it always seems to get worse pre a holiday.  Noticed a twitching finger  about a week ago and Stupidly Googled so now convinced I have MS /Parkinsons etc. Thought of little else over Christmas. I get pins and needles in my feet/hands and mouth sometimes and crampy calves/internal shakes in bed but I always put that down to bad circulation and anxiety. I have been doing CBT via NHS weekly but couldn't get my head away from my fears long enough to practise it. Was up in hotel bathroom at 2am on Christmas Eve googling where the nearest ER was! Have made a docs appointment for tomorrow but they must be sick of my by now...I have had every Meno symptom going but they seem to just keep coming. :'( :'( :'(
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on December 27, 2018, 11:11:30 PM
Roseneath, I'm so sorry! I get the tingling and twitching as well! I've convinced myself a couple of times I have MS or ALS...but it comes and goes. I've recently increased my dose of B12 and magnesium, that seems to be helping. I've started getting an eye twitch when I don't sleep enough now as well. Zinc helped my mouth/tongue/lip tingling. Still deal with muscle tension...right now in the left side of neck and shoulder.

I hope the doctor goes well tomorrow! I felt like the doc was sick of me too but really what else are we to do? This is a mess! I've counted almost 30 symptoms of the menopause at this point so you aren't alone!

I have decided I am in need of a chiropractor now. I keep having nerve pains all over in my back, shoulder or arms...some down my legs. I don't go very often...but it just feels like everything is out of alignment.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Jodieh on January 01, 2019, 06:58:03 PM
I was so glad to read this as for a couple of months now I have been driving myself insane, I am convinced I am dying. Christmas has been a nightmare felt awful!

Slow sluggish, slow resting heart rate, internal trembling, numbness across shoulders and back, wobbly legs, feeling of complete and utter doom, crying, sitting staring into space! I wouldn't say I was fatigued but absolutely no inclination to get out and do anything! My anxiety is through the roof, convinced I have heart failure or a serious heart problem. I lost my dad to a heart attack when I was young so it a health anxiety issue for me.

My mum and sister both have under active thyroid however I get tested regular and told I'm within normal perameters.

I was to feel like me again, I made a list of everything and took it to my GP she said everything was a classic sign of peri/menopause and or anxiety. She said nothing spelled heart problems to her, but I accept that for a couple of days then I doubt and think they've got it wrong. I am literally driving myself insane.

I have started taking Menopace on doctors advice, I pray it has some effect. I would like to go down a herbal route if possible. I'm crying writing this. I had two easy pregnancies and text book births I feel this is my punishment.

I'm back at work after the Christmas break soon and I just don't know how I will function. 😌

Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on January 01, 2019, 08:47:20 PM
Maybe Jodieh make a separate thread so that you don't get 'lost'?  It is known that GPs think that when a thyroid function test is 'within normal limits' that the person isn't having problems, however, some can seem to have normal results but still require treatment.  It's a speciality seriously under-treated!

Have a look at the alternative room. However, some ladies find that when their hormones start playing up, any herbal remedies have less benefit.  After all, menopause is natural but some symptoms can be over-whelming.  Also, one can try treatment, gain benefit then stop in later years, it doesn't have to be: though can be: for Life ;-)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Jodieh on January 01, 2019, 09:18:09 PM
Thanks for the reply CLKD, It's just nice to know that I'm not alone in what I'm feeling, I also guess that things are changing and I have to accept a different kind of normal also.

I will persevere with the thyroid as my mum was symptomatic for a while before her levels dropped into the abnormal levels and they gave treatment.  Thanks again 😁
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on January 01, 2019, 09:54:26 PM
Can you talk to your Mum's care provider about the various issues around thyroid?

Browse round.  It's The Change - does what it says on the tin!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Roseneath on January 02, 2019, 07:40:20 AM
I just sent you a private message Jodieh as I've had a similar experience recently.x
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Jodieh on January 02, 2019, 08:52:40 AM
Roseneath thank you so much for the personal message, for some reason it won't allow me to send personal messages, I will look into it. I will keep an eye on the Menopace situation and mention to my GP at my next appointment. Xx
CLKD my mum and I are with the same gp practice so I may take her with me next appointment she's a force to be reckoned with 😁🤞xx
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on January 02, 2019, 04:17:11 PM
Good Idea.  Get her to put foot down with firm hand  :D
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on January 02, 2019, 04:45:20 PM
Jodieh,

Yes it is awful isn't it? I think "convinced/feeling like you are dying" should be the first peri/menopause symptom! Have a look at the 'Things I've diagnosed myself with..." thread is the funny side section. You'll see that many of us are in that same boat!

I've had the slower heart rate (still do but not as bad...resting got down to low 50s and could even get it into the 40s at times!), anxiety, internal shakes, palpitations....muscles aches, spasms, digestion issues...oh my, the list goes on and on. And it all started quite suddenly when things were going fine and life was going good. It was almost summer...almost time for all that summer fun and I ended up spending the summer in fear and despair...very little fun. It was awful. I had 3 EKGs, a stress test and a 48 hour monitor on my heart...and it good. Thyroid, autoimmune diseases, vitamin, etc tests done...I honestly don't know what else they could check my blood for at this point! I am happy (but was really struggling with it as well) to report that I am incredibly healthy. But at the time is was devastating because it meant I felt awful for "no reason"!  ::) It was horrible just having my body suddenly not work like it used to!

I hope you can get feeling better!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on January 08, 2019, 06:09:36 PM
Ridiculously excited...I had a 5 day period without being on a contraceptive... (and much better than the 9-10 day ones I've been having!). I also had a 27 day cycle instead of the 20-24 day mess I was having. My body is adjusting to the new hormones and they are agreeing with me. Very thrilled. Had my first real headache/migraine in months though...but also started my cold at the same time as my cycle. I think the cold is responsible for the headache. Just working on getting over the cough now.

I feel like adrenaline is messing with me more lately. I wake up very shaky. I wake in the middle of the night...yes the cough but the hour I wake up is in the 1-3am range like when my cortisol is off. And I'm wide awake...can't go back to sleep for hours. Part of me thinks I would sleep through the coughing at night (possibly not even cough) if all that was figured out. I think the holiday diet has thrown my body off again. I'm going to try to focus on the adrenal fatigue thing....try to follow that protocol again and see if I start to feel better since I seem to have the hormones figured out for the most part now.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on January 08, 2019, 06:33:16 PM
I need to look it back up. I know cutting out sugar/junk was part of it, gluten too. I know supplements and vitamins as well. I can't remember it all though. I was focused on nutrition and rest mostly. I remember eating a lot of eggs for some reason.   ??? I have it saved somewhere...need to remember where??

Still piecing it all back together:
Ate more frequently-every few hours
More water...it felt like an insane amount
Increase salt- I honestly would just suck on a chunk of Himalayan salt each day in addition to what I had with food
Increased vitamin C, B vitamins, Magnesium and fish oil. And zinc.
Cut out sugar/sweets. Ate lots of veggies. I really liked salads. I still can't remember why the eggs so much?
Cut out gluten...or at least down
Relaxation/meditation each day.
Try to get to bed early.
Some simple exercise each day
My body didn't like the ashgawandha (sp?)
Epsom salt baths at least once a week.
Digestive enzymes

Some of that might be a cross with trying to help my digestion as well. But I think it's all connected some how.

I've slacked off on a lot of the stuff that was helping, especially diet. Some digestion issues are starting but they are minor. I think they could be connected to all the cough drops and medicine I've been using as well. My mouth feels funny too....almost like it has been numbed a bit. Tongue, roof of mouth, back of throat a bit. I think that's from all the menthol cough drops. Trying to avoid using any today and will do my best tonight as well.

I've read tart cherry juice can increase melatonin at night and help you sleep better. Anyone tried it?
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on January 08, 2019, 07:05:00 PM
Why Himalyan salt?  Sucking isn't the way to go with salt, but adding as a flavouring to food in small doses throughout the week is essential.  Of course, salt is mined in Cheshire as well as dried in Wales and in Essex.

I had a night of little sleep, tossed and turned.  Eventually ate 2 biscuits then read for 20 mins. B4 feeling sleepy.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on January 09, 2019, 10:10:01 AM
Sorry - salt is salt! !  ! ........... it is wrong to be importing salt from abroad when we grow our own. Air miles etc.!

Our council bin was moved overnight - we don't remember pulling it to the kerb  ::) then I had a light bulb moment.  Someone else needed space for bags from C.mas/New Year and didn't wake us to ask ...........  8)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on January 09, 2019, 10:11:46 AM
Sodium chloride, also known as salt, is an ionic compound with the chemical formula NaCl, representing a 1:1 ratio of sodium and chloride ions. With molar masses of 22.99 and 35.45 g/mol respectively, 100 g of NaCl contains 39.34 g Na and 60.66 g Cl.
Wikipedia

IUPAC ID: Sodium chloride

Melting point: 801 °C

Molar mass: 58.44 g/mol

Boiling point: 1,465 °C

Density: 2.165

Did you know: Sodium chloride, or table salt, is an example of a substance that dissolves in water and is composed of sodium and chloride ions. sciencing.com
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on January 09, 2019, 10:13:27 AM
Himalayan salt is mined from the Salt Range mountains - an outer range of the Himalayan Mountains in Punjab, Pakistan.[1]

Although its salt is sometimes marketed as "Jurassic Sea Salt", this salt deposit comes from a seabed of the Permian and Cretaceous eras 100 to 200 million years ago.[2]
The first records of mining are from the Janjua people in the 1200s.[3]

Himalayan salt is mostly mined at the Khewra Salt Mine in Khewra, Jhelum District, Punjab, which is situated in the foothills of the Salt Range hill system in the Punjab province of the Pakistan Indo-Gangetic Plain.[1][4]

Mineral composition[edit]

Himalayan salt crystals

Himalayan salt is chemically similar to table salt. Some salts mined in the Himalayas are not suitable for use as food or industrial use without purification due to impurities.[1]

Some salt crystals from this region have an off-white to transparent color, while impurities in some veins of salt give it a pink, reddish, or beet-red color.[5][6]

According to one estimate, Himalayan salt is 98% sodium chloride, with 2% of it being minerals such as magnesium, potassium and calcium. This level of impurities is similar to that seen in common table salt,[7] and is considered to be too small to provide Himalayan salt with any special health benefits.[8]

Uses - see Wikipedia ..........
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on January 09, 2019, 01:05:23 PM
Interesting.  Where'd you learn that? 
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on January 09, 2019, 02:49:19 PM
That's it, Maldon  :thankyou:  My DH has family in that region but I've never been.   A relative lives on Anglesey.   Every day is a learning curve  ;).  One cannot have fish and chips without salt and vinegar  ;)  ;D

So pleased that I was able to find out about our Council bin earlier as it was beginning to fill my head space.  Emptied now.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on January 09, 2019, 06:09:53 PM
 ah ha lad - ye old salty sea dogs!...   although they didn't live to a great age as no Wikipedia to check on the right kind of salt!  ;D ;D ;)  ….. not you or your bloke Birdy obviously you are still alive...  :)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on January 10, 2019, 01:04:30 AM
hum...Johnny Depp in the Sauvage advert - does it for me!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on January 10, 2019, 11:27:34 AM
yep...I can see that too Birdy...he's a big bloke 6 foot something and he is funny....someone who makes you laugh regardless of what they look like is always sexy  ;)  hence I am married to a small-with-short-legs, round-like-a-bowling ball, bald Irishman with the wickedest sense of humour you could find!...basically he laughed me, with my sides splitting..into bed!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on January 10, 2019, 04:20:04 PM
 ;D ;D ops sorry Jaypo! - gorgeousness can be a strange concept!  ;D ;D  I have never felt like I do about him in my whole life - it was true love!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on January 10, 2019, 04:50:08 PM
oh goodness! I've missed all the fun it seems!  ;D

As they say "Beauty is in the eye of the beholder" and isn't it the truth.

I notice as I age my idea of handsome has changed as well....call it maturity..I don't know.

I remember a time when I didn't really find beards all that attractive but then, as a joke/dare, I got hubby to grow one...thought it would look as bad as when he tried a mustache
And wow, he LOOKED GOOD. Dark hair, piercing blue eyes....and he still makes me laugh...not always on purpose!  ;D And he keeps my crazy in check.  ;)
I'll be sad when that beard goes....

As far as Johnny Depp goes....take it or leave it for me really.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on January 10, 2019, 05:10:24 PM
I liked Depp until his aggressive history emerged  :-\ - now I'm onto Rowan Atkinson  :D

Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on January 10, 2019, 05:16:14 PM
 ;D ....... we saw him on Stage in the 1990s.  He walked on and simply stood.  The audience was in uproar for about 10 mins.!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on January 10, 2019, 05:25:57 PM
yes BlueButterly,, Jaypo has been spluttering her tea about the place courtesy of moi!  :) oh no...this current beard fashion, really not for me.  I think it makes the majority of younger men look much older than they are.  Why would they want to do that?  ...some older men it definitely suits and makes them look "distinguished" but by and large I'd say there are more men it doesn't suit, than it does.  The only man I can think of where just about anything goes is David Beckham!.. although I think he has gone too overboard on the tattoos.  A few sprinkled about can be nice but filling every available space nah not a good look.
My nephew is an extremely talented artist exceptionally good a portraits of anyone including famous people and he is now in business as a tattoo artist. He is so good with his pictures he can transfer the portraits onto skin - which is no mean feat!  I love some of his stuff but just one or two at a time - some of his clients are nearly covered head to toe!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on January 10, 2019, 05:28:27 PM
At last some one who agrees with me about male facial hair, what's with Matt Baker on The 1 Show  :o.  Makes men look at least 10 years older 
:-\.  If DH even considered going more than 2 days with shaving  :beat:

Crikey that's a meander  :-X
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on January 10, 2019, 05:40:19 PM
ah well...if we were talking facial hair I reckon we would get to tattoos eventually??  Thought it was better than a conversation about husbands and tongues…(cue another Jaypo splutter  ;D :-X) - I mean how witty they are with them ;)

Matt Baker is great presenter but no I'm with you on facial hair CLKD  and yes meandering...one of my many symptoms!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on January 10, 2019, 05:40:56 PM
What was the question  :-\  :-X
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on January 10, 2019, 05:50:56 PM
no question..just chatting...in the wrong thread ;)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on January 10, 2019, 06:13:54 PM
I do wonder if we laugh often enough  :-\ - certainly DH and I rarely do, we might have the occasional giggle.  Jim Davidson and The Big Yin also made us laugh ......... but more recent comedians don't have the same effect.

Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on January 10, 2019, 06:26:51 PM
I love Michael McIntyre and Micky Flanagan but the rest are really not funny at all and I don't like any of the so called comedy sitcoms except the family one with Lee Mack - Not Going Out.  I used to like the one with Hugh Dennis - outnumbered - it reminded us of the antics of our family and how absurd family life can be. 

We laugh here every day cos hubby and I sit in our cupboard under the stairs supposedly working generally taking the proverbial mick!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on January 10, 2019, 06:35:44 PM
sorry.. Jaypo can't stand him.. I find him irritating and not funny at all. In fact when he comes on I turn him off!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on January 10, 2019, 06:46:08 PM
McIntyre is top of my list - can you remember seeing the dentist story in his stage show and the one about the "drawer in the kitchen" you know the one we all have where stuff goes to die!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on January 10, 2019, 08:16:50 PM
Beards, tatoos...comedians....Love it!!

My hubby has a baby face...he NEEDS to look older...at least he can look around my age with it.  ;)

My hubby is going to wonder who all these men are I am googling!!  ;D Being in the states I don't recognize a lot of the names...but thanks for the entertainment!

(no such thing as the wrong thread...this works with losing our mind doesn't it? ;) ;D)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on January 10, 2019, 09:19:29 PM
Anyone remember the 'jobby whicker' sketch by The Big Yin  ;)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on January 10, 2019, 10:09:28 PM
Nope.. it definitely didn't get past you Jaypo  ;)
Oh BlueButterfly see if you can find some of Michael McIntyre sketches on YouTube... Losing my mind, that the present tense isn't it... sorry lost it years ago...and have no idea where...
so did you catch yourself a toyboy BlueButterfly? (moving right along to next interesting subject...!) my Irishman is 3 years younger than me.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: AgathaC on January 10, 2019, 10:27:45 PM
Tim Vine. If you feel like you're losing your mind, and need some light relief, watch Tim Vine. Love him.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on January 10, 2019, 11:56:39 PM
Thanks for the names to look up!

Nope, not a boy toy...he's actually 4 years older...just young looking. Full head of hair, very little grey...good genes I guess.
The beard just helps him look closer to his age.  ;D
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Angel1964 on March 08, 2019, 01:28:33 PM
Hi ladies. I thought I would tag onto this post as I have had a rubbish Christmas away from home feeling that I am only just keeping it together for the family.  Have struggled for 5 years or so with health anxiety and it always seems to get worse pre a holiday.  Noticed a twitching finger  about a week ago and Stupidly Googled so now convinced I have MS /Parkinsons etc. Thought of little else over Christmas. I get pins and needles in my feet/hands and mouth sometimes and crampy calves/internal shakes in bed but I always put that down to bad circulation and anxiety. I have been doing CBT via NHS weekly but couldn't get my head away from my fears long enough to practise it. Was up in hotel bathroom at 2am on Christmas Eve googling where the nearest ER was! Have made a docs appointment for tomorrow but they must be sick of my by now...I have had every Meno symptom going but they seem to just keep coming. :'( :'( :'(

Hi Roseneath just done a search on pins and needles and calf cramps. I am no better and now getting these symptoms on top of everything else. Docs won't do bloods, am sick to death of them telling me just up the Citalopram. I feel like I am slowly dying each day. Can I  you please?  XX
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on March 08, 2019, 01:47:21 PM
Cramp etc. is often due to not enough salt in our daily diet.  Granma would also say 'not enough salt' when I complained whilst growing up.  Also, MinL had problems: her GP kept telling her not to eat much salt but in fact, she was dangerously short.  Admitted to Hospital, the Consultant couldn't understand how she was still upright  :o.  Regardless of what we read, we need both sugar and salt in our body ! 

Restless legs have been cured by eating bananas daily. 
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Angel1964 on March 08, 2019, 02:24:23 PM
Angel,don't think roseneath is on site anymore

Ah thank you jaypo. That's a shame. Wanted to ask about pins and needles and calf cramp. xx
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on March 08, 2019, 02:29:12 PM
 :-\. I answered you above  :-\
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Angel1964 on March 08, 2019, 03:57:41 PM
:-\. I answered you above  :-\

So so sorry CLKD I didn't see your post.  I am getting daily left calf cramps sometimes right. But pins and needles hands arms legs toes driving me insane. I will up my salt as don't really add it to anything. Thank you xx
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on March 08, 2019, 06:28:03 PM
I used to get "restless legs" not so much cramp as "jumpiness".  I believe it is a vitamin deficiency - if bananas help then they are full of potassium - I think magnesium helps too. CKLD is right about salt too - everyone is always banging on about salt being bad but we do need it and spend all our time trying to avoid it cos we are told a low salt diet is good.  Too much is bad but too little is just as bad.  A really concentrated multi-vitamin might help.  I was on Amyltroptoline, citilopram, pain med called arthrotec and when I gave them all up it stopped?? ???   I had had it for year's but I had been on AD's for years - maybe a link can's be sure.  Those with "restless legs" often get given them.  I wonder which came first the chicken or the egg?

Angel refresh us about how you are dealing with your meno symptoms?
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Angel1964 on March 08, 2019, 06:48:28 PM
I used to get "restless legs" not so much cramp as "jumpiness".  I believe it is a vitamin deficiency - if bananas help then they are full of potassium - I think magnesium helps too. CKLD is right about salt too - everyone is always banging on about salt being bad but we do need it and spend all our time trying to avoid it cos we are told a low salt diet is good.  Too much is bad but too little is just as bad.  A really concentrated multi-vitamin might help.  I was on Amyltroptoline, citilopram, pain med called arthrotec and when I gave them all up it stopped?? ???   I had had it for year's but I had been on AD's for years - maybe a link can's be sure.  Those with "restless legs" often get given them.  I wonder which came first the chicken or the egg?

Angel refresh us about how you are dealing with your meno symptoms?

Hi Ladybt I'm not dealing with anything at the moment. I'm on citalopram and propranolol since 23rd January after my partner finished with me after 8 yes as he couldn't handle my anxiety and not feeling well each day. Got to have a sigmoidscopy and endoscopy as blood in stools. Major lower abdominal pain. Tingling feet continously. Pins and needles arms hands feet legs, which is a recent thing. Nausea and vomiting bile most mornings. Stomach pains and bad stomach heartbeat.  Was on hrt but doctor pulled me off as BP was high. Had BP done a couple of times at doctors. On little machine always high. They then do it on manual machine and it's fine?? So don't get that bit how it can fluctuate massively within minutes. Feel lousy everyday and getting worse. I am definitely depressed but this is due to how I feel and unable to do anything as poorly. I am at my wits end now and had enough. Xx
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Angel1964 on March 08, 2019, 06:49:58 PM
:-\. I answered you above  :-\

So so sorry CLKD I didn't see your post.  I am getting daily left calf cramps sometimes right. But pins and needles hands arms legs toes driving me insane. I will up my salt as don't really add it to anything. Thank you xx

Try magnesium malate or threonate or taurate, and double the recommended dose. Don't use mag citrate as it'll give you the runs.
I get restless legs, twitchy eyes and lip and pins and needles when I skip my magnesium for a few days.

Hi Birdy I'm using magnesium oil spray.i have just started taking menopace plus again and vit d3. Is that not enough xx
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on March 09, 2019, 03:45:25 PM
I get the cramps and such, same as Birdy, if I miss a few days if taking magnesium. Potassium is great as well. And definitely yes on the salt. When I get the "bubbles popping under my skin" feeling in my calves, I use some Himalayan salt to add some extra to.my diet and they go away.

As for the tingling...B12 could help. It's a nerve issue. But many things could cause that. I get nerve compression that seems to cause mine. Yoga and massage has helped a lot. My arms aren't tingling everyday anymore. Still get it in my legs if I sit wrong for too long. I had a lot of muscle tension (probably the anxiety, not sure) that was pulling and twisting my body every which way. That messed with my spine and nerves. I still need to see the chiropractor to get my body balanced back out but I'm getting there at least.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on March 09, 2019, 03:51:30 PM
Salt is salt.  Why buy salt from abroad when we have it in Cheshire or Anglesey, as well as Malvern Sea Salt ;-)

Tingling can be caused by trapped nerves  ::)
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Angel1964 on March 09, 2019, 06:59:47 PM
Thank you Bluebutterfly. Today my pain is in left thigh very badly so now I'm panicking. A friend has asked do I have fibromyalgia? But my symptoms can be numerous things i suppose. Just fed up everyday of not feeling good. Xx
Title: Re: Sick of feeling like I'm losing my mind...
Post by: CLKD on March 09, 2019, 08:18:58 PM
I have pain in the thighs sometimes.  Like cramp ........ intense.

A few years ago I had deep, intense pain in the thighs which would wake me in the night.  So bad that I would scream without making a sound.  It turned out that it was postural.  I spent a lot of time leaning over cabinets [long story short] and I had pulled the muscles connected to the thighs.  Which would contract at night and cause intense pain!!

Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on March 10, 2019, 11:44:32 PM
I'll just throw in my 2 penn'ith… I think we feel so ill for so long...which just puts the body under extreme stress for so long I am pretty sure that it takes a long time for your body, your muscles, and your brain to work out if and when it's not under the same amount as stress as before and adjust.  It has been 3.5 years since I gave up all my pain meds and AD's and 8 months since I got my HRT right and I think my body has only just worked out what it is "supposed to do". 

These things take a long time work themselves out or re-adjust and then your brain has to catch up - if you have felt rough for years I would say your body is reacting almost in a "learned response" way - it needs to "unlearn" and I'm no expert but I bet it takes longer than a few months to "unlearn" years of stress response.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on March 11, 2019, 04:40:08 AM
Thank you Bluebutterfly. Today my pain is in left thigh very badly so now I'm panicking. A friend has asked do I have fibromyalgia? But my symptoms can be numerous things i suppose. Just fed up everyday of not feeling good. Xx

Not too long ago I had the most awful pain in my right inner thigh... shot from my knee up to my groin...stabbing, so painful. Some pain behind my knee as well. Went to the doctor, no idea why. Sent for ultrasound because I have genetic clotting stuff-never had a clot but every leg pain is a red flag it seems. Anyways, no clot, still pain..lots! Go back to doc, see a different one. He tells me the pain doesn't sound like structural issues or muscle, etc. Sent for another ultrasound....still clear. Went for massage (it had been scheduled for awhile). She was amazing. My whole right leg was a giant knot, especially the thigh. I couldn't even feel them until she found them with massage. My body was just in knots...a zig-zag pattern from legs to shoulders...right thigh, left hip, right waist, etc.

Seriously stress messes your body up! I was starting to wonder about fibromyalgia too! But only two of the test points hurt. It's strange now to NOT be in any pain because it is so rare. I think like Ladybt28 said...it takes awhile for the body to get right again after dealing with all the stress/anxiety/changes that seem to happen so much faster than I was ever told about and all at once!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on March 11, 2019, 03:35:15 PM
The NOT having pain or symptoms stuff is weird isn't it Bluebutterfly - it takes a while to get used to the fact it's gone!  I was actually diagnosed with Fibro but I have written before I was pretty sure that I didn't have it and that it was hormonal and stress pain and also when I was on my painkillers I think after a while your body gets used to them and just creates pain in a sort of vicious circle!

I have always had major problems with my "trigger points" plus aches and pains in my joints. The aches have subsided due to the improvement in the hormonal balance like I said before but I still get problems with the triggers though not as bad as before, but now I know what it is an what to do.  Nearly 4 years and I'm still unwinding... No wonder they say "stress kills".  The real frightening pains are the one you get under your ribs or in your throat I found - but these too were stress - gone now!
A really good masseuse is a godsend BB.  To be honest I think the NHS would save a fortune if they paid for 6 sessions of proper massage than years and years of painkillers!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on March 11, 2019, 03:48:52 PM
For me calf pain, under the ribs and my neck/shoulders are the worst...at least most noticeable pains. I used to get headaches/migraines almost constantly. Once I stopped birth control those went away and I rarely get them now. It was the strangest feeling not having a headache for several days in a row. It has taken awhile to just get used to that. Now when I get a headache or migraine it really stands out because it is so rare! It just reminds me of how seldom they are now. I love it! Just waiting for my body to follow suit and stop being in pain every day. Some days, it really is amazing...because I can actually tell/fell less pain. I don't know what I'll do when I have several days in a row of no pain. I'm grateful for a few hours without it. Today is not one of those days. Life has been stressing me out lately so I've been tensing all over. I can feel how off my body is, I'm sitting in a "C" shape and I can feel it. Yoga for sure and I should really look at scheduling another massage!

And yes I agree! I think if massage was covered, there would be a lot less pain killer usage as well. Its the alternative therapies that have given me more relief from the pain than anything the doctors have given. 
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Ladybt28 on March 11, 2019, 03:58:44 PM
So glad you are feeling a bit better in the scheme of things BB.  Can't do Yoga I'm afraid - I tried but my left arm and shoulder I hurt in a car accident just can't cope - you need to be able to raise it to balance and for it to take pressure to "downward do" and it just wont work!

The best massages I ever had were in Turkey.  We have been the same place 3 times and the last 2 times I have gone for a month at a time! (It's so cheap there, it's the only place I can afford to go - 2 of us £1500 for the month!) and I always to go the real proper Turkish bath and every time I have seen the same masseuse as part of the scrubbing, sauna etc etc.  It is so cheap to go for the massage I went twice a week for 4 weeks the difference was amazing.  Haven't been on hols for the last 2 years so now I'm a mess - it's just not the same here somehow!
Title: Re: Sick of feeling like I'm losing my mind...
Post by: BlueButterfly on March 11, 2019, 05:02:08 PM
Sounds like you are due for a holiday in Turkey.  ;)

I have a few issues with my body so I just do the yoga that I can that doesn't cause me pain. Hoping one day it'll get better but I think doing whatever I can is better than nothing.
Title: Re: Sick of feeling like I'm losing my mind...
Post by: Skylo Jones on August 28, 2019, 01:13:10 AM
I tested low on vitamin D a couple winters ago. During the summer months, I have great levels. I'm not a fan of sunscreen unless we'll be out on the water all day. I just try to remember to start supplements about a month before winter hits and I'm usually okay. It still isn't the same as the actual sunshine for me. I don't think the supplement can totally replace what our body can make.

Been up since 1am. Went to bed before 10 as I was falling asleep anyways. No reason to be up....no anxiety, no sweats....just up. Really looking into the light therapy. Reading a lot of people getting help with sleep as well with it.

I am also looking into light therapy, have you had any success? I got some info on light therapy (https://redlightclinic.com/red-light-therapy/) from this site and it looks promising.