Menopause Matters Forum

General Discussion => New Members => Topic started by: Joy55 on January 22, 2018, 03:40:49 PM

Title: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 22, 2018, 03:40:49 PM
Bladder spasms and Vaginal Atrophy, I'm 62,  needing help in the worse possibly way, the bladder pain is horrible at times and so far all that has been offered to me is premarin or a new medicine called  Intrarosa Vaginal Inserts(prasterone) I am not able to use the meds vaginally as precribed because it causes me so much irritation and bladder pain and pill form makes me very ill.
I say no to anything with estrogen and I dont understand this new med, so I've not tried it ....Are there any other options please to rid this horrid pain that doctors call  bladder spasms. At times I feel like Im going through labor again, its thats bad. Im scheduled for an urologist later this weekto see what he can advise. My anxiety is off the wall! I also suffer with recurring UTI's , yeast infections, have had Bacterial Vaginosis twice , then right back to UTI's again, its a never ending circle of infections and antibiotics and my body is now resisting the antibiotics. I'm a total wreak and losing all hope of ever feeling normal again.
Does this EVER get better???  I asked my GYN that question and she said no..... I totally lost all hope at that moment.
This nightmare has totally ruined my life.  :'(
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Kathleen on January 22, 2018, 04:31:16 PM
Hello Joy55 and welcome to the forum.

I am so sorry to read that you are suffering and although I don't have your particular problem I can completely relate to the despair at feeling awful all the time and the fear that it will never end. Infact I believe many of the ladies here will also feel the same way.

Hopefully someone with more knowledge of your condition will be long to advise you and there may be other ways of managing the problem such as Pregabalin for pain relief.

Sending hugs and I hope you have some answers soon.

Take care.

K.

Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Daisydot on January 22, 2018, 04:51:30 PM
Hi joy why the no to oestrogen I’m wondering.I was in exactly the same situation as you so I understand your fear and pain and sadly one feeds off the other.I became so allergic to antibiotics I thought they’d kill me i not only had them for Uti.s I also suffered from recurring pleurisy so needed them for that until I found alternatives.
Here’s what I did.maybe boring maybe helpful you can decide.
First of all get the VA under control don’t be afraid of estriol cream or even vagifem vaginal tablets they will give you so much releif and it’s well known that VA is often mistaken for Uti,s,are your samples infection free? Mines were and only showed blood because of the VA,I was red raw with it due to antibiotics causing thrush and scratching myself raw.it was like the most painful paper cuts everywhere down there.my bladder was red raw inside and urethra pain was horrible when I peed like acid burning me.
You need to get your ph balanced as your probably too acidic so google bladder friendly food/drinks.stop all coffee tea fizzy drinks and calm your bladder with herbal teas and water with a wee bit of lemon in it to neutralise the acids in your urine.it can take months to heal your bladder so be kind to it as it’s a long slog but worth it to get pain fee,if your like me you’ll be terrified to go anywhere as you dread a bad flare up but that will also stop in time if you follow this regime.to get immediate relief you could go to Holland and Barrat and buy some cold pressed organic coconut oil and smear underneath it’s so cooling and antibacterial it’s only 2 quid for a small jar( it’s a blue colour).i found it a godsend in the beginning it’s antibacterial and very good for killing thrush.I think that’s enough info for you to absorb right now so when your ready fire away with any more questions There’s a  lot more knowledgable ladies than me on here but it’s a start for you.your gynie had no bedside manner what she should have told you was it can’t be cured but it can most definitely get better with proper management and advice.keep posting and updating then the ladies can help you more you can beat it.good luck xx
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 22, 2018, 04:59:33 PM
Good advice.  Sorry that you are suffering, 4 me it was like razor blades up there  :o >:(.  Over the Counter pain relief can help, i.e. Nurofen: I have taken 2 x 200mg and 90 mins. later another tablet which has helped me.

My GP recognised the symptoms in that none of the urine samples 'grew' any bacteria to necessitate anti-biotics though they did initially, ease symptoms.  However, locally applied Vagifem or the 1 which I use (name escapes me  :-\) really can help.  There are other products that ladies find helpful, i.e. Sylc - if you put the names of the products into the 'search' box you will see which combinations help.

Some ladies don't use any bath oils etc. or soap down there.  My Granny swore by bicarb of soda in the bath water  ::).  It is important to keep the whole area as supple as possible!!  Even LIVE yoghurt, applied gently - it is soothing, best done on a large bath towel ;-). 
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 22, 2018, 08:01:12 PM
Thanks everyone for your replies, Im new to forums and still dont understand how to reply to everyone individually, so please forgive me till I learn. BTW I'm in the U.S.
 
Daisydot, I dont want estrogen because when I tried just half a dose of what was prescribed for me I woke up at 3AM in severe bladder pain, completely doubled over in agony and since I live alone the only thing I could do was call the ambulance for the hospital ER.
They eventually got the pain under control and I was sent home. Every since that experience I'm now petrified of anything remotely related to estrogen.

 I'm hoping when I see the urologist this week he will have a better alternative solution for me.
I also have a 8cm cyst on my left ovary they are keeping an eye on. I dont know if maybe that cyst is causing all my issues or not. I say this because when I had a cat scan in August it hadnt changed in several years, yet the most recent cat scan shows it has grown from 6cm to 8cm, so as I said I'm not sure if that would have anything to do with this or not.

GYN did a blood test to determine how likely I was for ovarian cancer and it came back as low risk.


 (thats always been a fear of mine, ovarian cancer, we lost my maternal grandmother to it many years ago, God rest her sweet soul)
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 22, 2018, 09:53:18 PM
We do have several State-side members who hopefully will join in.

What does your doctor suggest to ease the bladder pain? 
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 22, 2018, 11:51:37 PM
Hi Sparkle, no one has said a word about removing the cyst besides me.  I'm hoping the urologist will agree with me and its taken care of it asap.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 22, 2018, 11:56:24 PM
Hi CLKD
 so far Ive only thing  given to me for the bladder pain has been Tramadol. I did not want to become addicted to it so I did some research on my own and found that baking soda and water along with a few ibuprofen and heat helps ease it. On my worse days, nothing eases it.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 23, 2018, 10:32:07 AM
Thank you Sparkle, I will try my best to locate this lady named Maryjane. Im still trying to learn my way around forums :-)
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Jenna on January 23, 2018, 11:32:30 AM
Hi Joy,

Maryjane's story is in this MM magazine starting on page 12.

https://menopausematters.co.uk/pdf/magazines/issue48.pdf
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 23, 2018, 11:48:26 AM
Tnx Jenna

VA mimicked repeated urine infection-type symptoms.  Once I began the correct treatment for VA symptoms eased.  PHEW!

Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 23, 2018, 12:14:55 PM
Thank you Jenna
   I see Jane Lewis is in this magaizine too , I belong to her group on Face Book for AV. :-)
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 23, 2018, 01:18:04 PM
How's your weather?  Deep snow?  ;)
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Jenna on January 23, 2018, 03:20:30 PM
Thank you Jenna
   I see Jane Lewis is in this magaizine too , I belong to her group on Face Book for AV. :-)

Yes, Jane L is Maryjane, so you already know her.  :)
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 23, 2018, 03:52:00 PM
Hi Jenna,
     I dont quite ynderstand your last response, are you saying once you stared treatment for the atrophy the UTI's ended?
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 23, 2018, 03:55:09 PM
Hi CLKD,
          So far we have only had a few inches of snow, but usually for this area February is the hardest hit when it comes to snow.
I myself am hoping it does not snow at all! I'm not a winter person  :-\
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Daisydot on January 23, 2018, 04:11:04 PM
Hi joy I can confirm that since I started the treatment for VA combined with the other steps I told you about I've had no Uti symptoms or problems for months.x
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 23, 2018, 04:33:17 PM
Thanks Daisydot  :)
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 23, 2018, 04:34:22 PM
Because VA mimics repeated urine infection-type symptoms, it goes un-diagnosed by GPs as prescribing anti-biotics is easier.  Once I began pessaries (which have been withdrawn) followed by Ovestin 1mg, my symptoms went but if I lax on using the product, the irritable feelings in the bladder return ....... so yes, for Life!
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 23, 2018, 04:38:12 PM
Thank you CLKD
May I ask once you started your treatment how long did it take to feel better and did you experience any side effects with your treatment?
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 23, 2018, 04:41:44 PM
Oh it was easier within 5-6 days.  I continued as recommended with the 2 week nightly 'load', now I use the product every 4th and 6/7th night.  Unless the bladder gets irritated, when I use it every night, the regime works for me.    When the symptoms first began I would sit on the loo with a cuppa in one hand and barley water diluted in the other, so that the spincter could relax.  Keeping it tight increased symptoms. 
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 23, 2018, 05:06:57 PM
Sorry CLKD, I don't understand what you mean by ''a cuppa in one hand and barley water diluted in the other, so that the spincter could relax.  Keeping it tight increased symptoms.''

 
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 23, 2018, 07:08:16 PM
OK - English is different over there ...... a 'cuppa' is a hot cup of Rosie Lee which is Cockney Rhyming Slang for a cup of tea.  I don't have milk in my tea, black two sugars.

Barley water: is a squash which is diluted with cold or hot water.  It supposedly eases the digestive system from top to bottom.  Made I suppose from barley ........

So I was sitting on the loo, to allow the spincter to relax enough to allow wee to flow.  If I tried to tighten up, the need to pee would increase symptoms of pain and burning.  So I would be drinking a cuppa and barley water whilst sitting on the loo .........clear as mud  :D
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 23, 2018, 09:47:15 PM
CLKD
Thank you for the explanation, so from what you said I am assuming you were having problems with urinating?

Thankfully thats one problem I don't have, I dont have frequency either that I have read some do.

If not for the bladder spasms I wouldnt have any issues in the bladder area at all.

I also have no burning as I have read on other's comments too, just a little itch every now and then, thats it!

The bladder spasms is the only thing that is causing me any type of pain at this time.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 24, 2018, 12:36:39 PM
Yep.  My bladder was so sore and irritated that sitting on the loo to relax and allow the urine to flow was the best way of getting any relief  ::).

Are the spasms you suffer as you empty the bladder or all the while?  If you have any itching, do try appropriate VA treatment  ;)
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 24, 2018, 12:45:29 PM
Hi CLKD

My bladder pain doesnt happen when I urinate or feel the need to do so. The pain comes on gradually at any time or place, its starts out as cramping and then increased flatulence then full blown to spasms...

Up until this last blow up in the last 3 days I had found drinking baking soda & water helped a lot to stop the pain, but this last bout, it did not help at all.

Today is finally the day I've been waiting many months for, I see the urologist today and I'm praying he will have answers and help for me today.

Physically and emotionally I'm exhausted from it all.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 24, 2018, 01:35:57 PM
Of course you are weary.  Take a list with you  ;)

Let us know!
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 24, 2018, 02:04:11 PM
at the moment I am so hungry yet scared to eat for fear it will bring on those horrific spasms.

It's horrible to live in fear and uncertainties as I have since this nightmare started for me 6 months ago.


I will update after my appt CLKD... and thanks again for all your help  :)

Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 24, 2018, 09:40:57 PM
Urologist was a joke and a total waste of time!
He didnt even examine me! The nurse did a bladder ultra sound to see if I had left over urine in my bladder after I urinated, none was found. Then some young student nurse came in to ask me questions, I told her all your questions can be answered in my medical reports, I can not lay here in pain and give you dates to when certain things happened. She said okay, glanced at the computer and left... Wasnt long Doctor came in, pressed around on my stomach and back, then told me they would call with the urine culture in about 2 days and scheduled me for an ultra sound on my kidneys and ovary, soonest appt they can get me is Feb 12th at 4pm.  Then they sent me on my merry little way!

I told him how much pain I am in and how bad it gets and he acted like he didnt even believe me or care! Wouldn't even tell me how to manage this horrid pain!
What is wrong with doctors now days?
So I guess Im suppose to just learn to live with this pain cause I'm certainly not getting any answers from them!

I am so disappointed and frustrated I could scream! >:(
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Conolly on January 24, 2018, 11:41:07 PM
Hello Joy55,

I'm so sorry you are in such pain. I know nothing about bladder issues, just want to reassure you that the urologist is right asking for the tests but I agree he should have given you a strong pain killer prescription in the meantime.

See if this is of any help.

http://www.muschealth.org/urology/our-services/bladderhealth/healthinfo/interstitial-cystitis.html (http://www.muschealth.org/urology/our-services/bladderhealth/healthinfo/interstitial-cystitis.html)

Have you ever had any abdominal operation? Apart from the obvious stress that comes with the pain, are you under any other stressful situation?

I wish I could give you some useful information! I will meet a friend in about a week and he's a wonderful urologist. I will ask him about your situation and hopefully he will shed some light on this.

Have a look at that article regarding diet, stress, exercises and try to do your best until you have the test results.

My fingers are crossed for you.

Conolly X
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 25, 2018, 12:55:47 PM
Thank you Conolly for the link

Only surgeries I have had was a sterilization tubal when I was 36 or 37.

Only stress Im' previously under is this agonizing pain and no help.

I also have GERD/Acid Relux, so my diet is very restricted and very much like the IC diet.

Im new to forums and not having much luck in finding these articles you speak of.

Thanks again for your reply and link.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 25, 2018, 01:23:05 PM
Joy55 - if you click on any blue links that other post, it should take you there.

As for the appt., not a lot of help then.  Have you taken over-the-counter pain relief to help?
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 25, 2018, 04:25:42 PM
CLKD
Yes Ive taken OTC pain meds and nothing helps. I also drink baking soda/water during flare up's and that sometimes eases the pain but does not eliminate it completely.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Conolly on January 25, 2018, 07:01:43 PM
Hello Joy55,

Thank you. You are 62 and had the tubal op at 36-7 so it is not likely to be the source of your bladder symptoms, but it could have led to endometriosis. When did the bladder symptoms start? How old were you when your periods had stopped? Have you ever been on any HRT? All you can tell about your health history would help to explain your current symptoms.

 Conolly X
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 26, 2018, 01:20:38 AM
Conolly

Periods stopped at 55, Bladder pain started a few months ago in the wee hours of the morning after the night I had first tried Premarin cream, its the only estrogen I have been offered, no other HRT. The pain was so bad I ended up ER at the hospital, they got the pain under control and sent me home. Since that experience I have been absolutely petrified of any kind of estrogen and not tried any of it since! I am currently on a Replens vaginal moisturizer and thats it. I also have , IBS, gerd/acif reflux and severe anxiety. Also had fibroid tumors in the womb removed by a DNC (Dilation (or dilatation) and curettage (D&C) refers to the dilation (widening/opening) of the cervix and surgical removal of part of the lining of the uterus and/or contents of the uterus by scraping and scooping curettage)     just before periods stopped.

Thats all I recall Connolly


Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 26, 2018, 12:02:33 PM
It's Trial and Error at a time when we need answers  :-\

 :bighug:
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 26, 2018, 12:06:20 PM
Hi CLKD

Yes I need answers
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 26, 2018, 12:08:06 PM
R U able to send an e-mail to Dr Currie on here - which she charges for? 

How's the weather over there this morning and what time might it be?
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 26, 2018, 12:49:07 PM
Hi CLKD

Who is Dr. Currie?

Today's weather, Sunny, with a high near 51. Calm wind becoming south 5 to 8 mph in the afternoon.

7:48am
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 26, 2018, 02:44:15 PM
Just got my last blood culture back, URINE CULTURE   20000 CFU/mL Klebsiella pneumoniae ,  from all Im reading this is very dangerous especially with my body becoming resistant to antibiotics... I've not heard form the urologist yet but I'm praying they admit me in the hospital and do all the antibiotics by IV's.

Needless to say I'm scared out of my mind at this time.

 :'(
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 26, 2018, 05:11:55 PM
Dr Currie started this Forum, the magazine 'menopause matters' - there's info on the home page - right at the top in 'blue' press Home and continue.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 26, 2018, 06:49:47 PM
I dont understand , just how many more doctors must I see before I get answers and a cure for these UTI's and bladder pain!

A nurse called me and said I was being prescribed Keflex, she could hear how upset I was yet refused to explain anything to me, or even try to comfort me. Her words to me were, if I REALLY FELT I needed to be admitted then go to the ER and be evaluated!

Last time I was at ER they told me there was nothing more they can do for me and referred me to the urologist.  Im fighting a losing battle with this medical community in this town and I dont know what else to do ... I have been on Kelfex before and many other antibiotics, that is why I am now resistant to antibiotics.

I have another call in for another nurse that I'm hoping will take the time to talk with me and at least calm my fears. I simply dont know what else I can possibly do to end this nightmare. I honestly am falling apart here and beings I live alone I have to fight all this crap totally alone and I am not ashamed to admit I am scared to no end!

Will these infections and pain ever go away?  :'(
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 26, 2018, 08:43:09 PM
If you get treatment for VA.  How about Sylc - do a search on here for the product and see what others have used.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Conolly on January 26, 2018, 09:03:00 PM
Hello Joy55,


First of all, do you know if an antibiogram has been performed? It will show to which antibiotics this particular strain of Klebsiella pneumoniae is resistant/sensitive. Based on the antibiogram the gp/urologist will choose the best antibiotics. After your AB treatment is complete your docs will have to address the pain, if it continues. If it's the lack of local oestrogen that is disturbing your natural vaginal microbiota and immune system, then you'll have to try a low dose estriol or estradiol gel/cream. I know you're terrified of oestrogen but a low dose could benefit you without the side-effects.


Your rage against the docs/system is totally comprehensible but this attitude won't help you now. You have to keep on trying to find a doc that suits your needs/expectations. It's not an easy task, but you can't stop trying.


Feel free to PM me anytime if you need to chat/vent.


Conolly X
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 26, 2018, 11:26:18 PM
Conolly, yes antibiogram was perform and Keflex was one the preferred antibiotics.

Im feeling light headed, I need to sign off and lay down.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 26, 2018, 11:28:04 PM
CLKD, I need lay down, I will to sign on tomorrow and do a search for this Sylc you spoke of.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Conolly on January 26, 2018, 11:41:07 PM
Joy55, do you have someone with you now? Can you call a friend? I so wish you feel better! Have you already started the Keflex? Could this be a side effect?

Don't hesitate to go to the ER if it gets worse. 

Hope you feel better soon!

Conolly X
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 27, 2018, 10:05:35 AM
Conolly

No one is with me, I live alone and last time I was at ER last month they told me they could no longer help me.
No friends nearby to help either.

Side effect? From what? Sorry I'm not understanding what you mean.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Conolly on January 27, 2018, 11:18:53 AM
Hello Joy55,


I hope you're feeling better today.


I meant your light headedness could be a side effect of the antibiotic you have been prescribed.


I don't know where you are in Ireland. Can you go to another place to seek better Medical help? I have friends in Dublin. Maybe there are other ladies here who live nearby. You could open another thread asking specifically if someone in your area could recommend a great doctor.


Conolly X
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 27, 2018, 12:01:14 PM
I bumped a thread about 'sylc' etc..

How are you this morning, >:(  it's always worse at night or in the early hours  What ever 'it' might be .  As for the ER Dept., surely you could be referred to a Gynaecological Consultant directly?  Could you ring the local Hospital Gynae Secretary in the week (we don't bite ;-) ) to ask advice?  If we don't ask we don't get  ;)
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 27, 2018, 03:22:55 PM
Hasty, CLKD & Conolly

I'm in the U.S.

Thank you all for all the advice and support... Calling ER here in the states is useless unless you have been prescribed medicine from the ER then they will communicate with you.

Believe me, if I feel the need to go to ER I will but I'm praying I wont have too. Its always turned into a wasted trip for me.

I will sign in later if I'm up for it... Just so tired, nauseous , feeling a bit feverish too.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Daisydot on January 27, 2018, 03:45:11 PM
Hi joy can you try and get dmannose powder in the states it's very good for soothing the bladder and fighting ecoli infections it would certainly be worth a try also marshmallow root capsules from health food store put a kind of protective coating in the bladder which stops the bacteria sticking to it and getting embedded,if your having no luck getting help have you thought of trying a herbalist they can make up a concoction of these things to help with Uti bladder /problems I have done this myself very successfully in the past.xx
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 27, 2018, 04:47:28 PM
Do you have a Pharmacy/Chemist within walking distance for advice?  There may be products on the shelves which would help. Maybe 'google' the nearest and go to the appropriate web-site? 
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 27, 2018, 07:00:06 PM
I read all the comments and I thank each of you for your advice and ideas...

I'm feeling really ruff, so I'm not up to answering individually but will in a few days when I'm feeling better...

Seems I cant sit up very long without feeling like a truck ran over me, so I'm mostly laying around at the present time.

Hopefully tomorrow is a better day <got my fingers crossed>

Thanks again everyone
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Conolly on January 27, 2018, 07:14:13 PM
Hello Joy55,


Don't worry about answering, just rest and let the AB do its job. I'm sorry I didn't know you were in the US. It's a huge country so depending on where you live, things can be difficult. Once the infection is cleared you will feel better. Don't forget to take some probiotics to protect your gut after you have finished the ABs.


My fingers are crossed for you. Keep us posted.


Conolly X
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 28, 2018, 12:27:39 PM
You don't need to reply individually, an over-all response is absolutely fine.  Most of us read as we go along ;-).
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 28, 2018, 03:44:58 PM
Feeling a bit better today but far from being 100% yet.

I am doing laundry then back to bed for a few hours. Hopefully tomorrow I'm up to driving, I have my first appt with a therapist to help me deal with this entire mess and the fear of estrogen being the top priority.

What I dont understand, is I read a lot and from what I've read in this forum and also in the AV group on Face Book that Jane Lewis has,.... I see and read a lot and many women that are and have been on estrogen for quite a while and have atrophy like me, yet they are still having problems with infections and most are changing estrogen treatments a lot and they still are having flare ups with UTI's and yeast.

So how is estrogen really helping if women are still getting these horrid infections?

I want to be rid of this nightmare for good, not have to continue living on the edge as I am now. I want my life back, I want to be able to have a relationship again, but with these infections it seems to me I may as well give up on any kind of love life again and that makes me very sad  :'(
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 28, 2018, 05:10:29 PM
Maybe they aren't cleansing themselves correctly?

The woman is really badly designed, who would have put a vagina and bowel opening so close together!  The candida (thrush) lives in t he back passage and if transferred to the vagina because the lady doesn't wipe in the 'right' direction can get transferred.  That will set up 'thrush' in the vagina ......... complete cleansing down there after each bowel movement is imporantant.

I had thrush after stopping The Pill and after elective Surgery.  Crikey, I couldn't get up there to scratch  :o and my Gynae gave me appropriate meds but I can't remember what it was, other than it worked.  LIVE yoghurt, eaten and applied can help the digestive track from top to bottom (literally  ::)) - important to keep the two pots separately  ;).  Next time I underwent surgery I ate LIVE yoghurt for 5 days prior to being 'starved'.

As for UTIs - this may be a deep rooted infection un-connected to atrophy or may not be diagnosed correctly.  The ONLY way to find out if an infection is present is for a fresh urine sample to be sent to a Lab. so that any bugs can be grown, therefore enabling the correct anti-biotic to be prescribed.  Because we are being over-prescribed ABs for anything and everything, bugs are getting resistant!

The best thing is to use what works.  If necessary every night.  If necessary morning and night.  To achieve a balance that eases symptoms.  If I get lazy  :-\ .......... as well as using some of the other products, i.e. Sylc. 
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 28, 2018, 06:52:47 PM
CLKD,
     All my urine tests are sent to a lab and I'm not prescribed a thing until the culture comes back saying I have an infection and what antibiotic is not resistant to what ever type of infection it may be. Only time I am prescribed an antibiotic without the culture is when I have ended up at the ER, but even then the urine is sent for a culture and when it comes back if it shows I need to be on another type of antibiotic then I'm notified and the new prescription is called into my pharmacy.


So are you saying estrogen does not stop UTI's?

 This is what I'm trying to find an answer too. I use Replens Vaginal Moisturizer, every other day, with exception of now with this infection I've not used it because I didnt know if I should or not (I will call GYN tomorrow with that question)

Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 28, 2018, 07:42:10 PM
If there is infection oestron won't stop symptoms.  However, VA mimics urine infection-type symptoms .......

VA isn't caused by infection.   The body dries as oestrogen levels drop, including internally and the vagina suffers.  For me it was like razor blades up there  :o
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 29, 2018, 12:27:27 PM
Still re-cooping from this horrible infection and still trying to find what will stop the infections completely!

I'm still not convinced that estrogen is the only way to go in my case. I seldom had problems with dryness, only one time I can recall, but I was under a lot of stress at that time and that was ages ago before these infections started.

Today is a busy day, lots of calls to make and therapy this afternoon.

Will check back later in the day.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 29, 2018, 12:37:42 PM
Please let us know.  Have you a pharmacy/chemist/drug store  :-\  close by?
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 29, 2018, 05:11:53 PM
Hi CLKD,
                   Yes I have my pharmacy only a few blocks from me.

May I ask why you were asking?
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Hurdity on January 30, 2018, 05:31:43 PM
Hi Joy55

There is a lot of information on this website, articles and blogs which explain about the effect of oestrogen deficiency on vaginal tissues and making women nore liable to infection. Do read these links and I am sure you will find them helpful:

There is information here:
https://www.menopausematters.co.uk/vaginalsymptoms.php
http://www.menopausematters.co.uk/dryness.php
http://www.menopausematters.co.uk/local.php
http://www.menopausematters.co.uk/vaginalresources.php

and magazine articles here:

https://www.menopausematters.co.uk/article-vaginal-atrophy.php
https://www.menopausematters.co.uk/pdf/article-gsm-issue44.pdf

and blog posts here:
https://www.menopausematters.co.uk/blogpost-vaginal-dryness.php
https://www.menopausematters.co.uk/blogpost-lube-or-hormones.php

Some of the info is probably the same!

Also do read the long-running thread in Personal Experiences known as "The Burning Club"! which has lots of info and advice on this problem! https://www.menopausematters.co.uk/forum/index.php/topic,22886.0.html

Hope this helps :)

Hurdity x
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on January 30, 2018, 07:13:47 PM
Because the Pharmacy may be able to give advice if you can't get to a Doctor  ;)
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: daisie on January 31, 2018, 08:36:37 AM
hi joy55 i had the same thing but since iv been on amitriptyline antidepressant iv noticed all those symptoms have gone ..i used to be in some right pain when going to the toilet   i take it for anxiety and depression but its also used for pain relief in smaller doses i have been on it for 9 years now could be worth  a try x daisie
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on January 31, 2018, 09:36:52 AM
Thanks everyone for all your responses, I will read up on all links Hurdity, thank you ......... and CLKD the only time our pharmacists offers advice or help is with prescriptions that they have recently filled.......... And Daisie I am familiar with Elavil (amitriptyline), I was given it many years ago for lower back pain, I cant remember if it helped me or not, but I am already on an anxiety medication, Im just not keen on adding more meds to my system right now, not to say I wont, if this is the treatment suggested to me after all else is said and done.

  I give another urine specimen the 9th and praying the culture shows this horrid infection is gone!

(praying hard with fingers n toes crossed) Have another pelvic/kidney scan the 12th, after that I have no clue what else will be lined for me, if anything.

I sometimes wonder if all this pain/spasms could be IBS and somehow that is causing these infections.

Yes I know I am grasping at straws, but some one has too, because I sure dont see where the medical community is doing me much good at this time.

 :hotflash:
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Conolly on February 01, 2018, 11:25:20 AM
Hello Joy55,


How are you doing?


Conolly X
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on February 01, 2018, 01:30:29 PM
Hi Conolly

    Still in pain and hoping to see a Gastroenterologist soon regarding IBS problems.

Still have the scans on Feb. 12th and leave another urine specimen on Feb 9th....

As of now thats all I have to update with with the exception that I'm still not 100% and tomorrow is my last day on this antibiotic.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on February 01, 2018, 02:37:39 PM
Has there been any improvement with the AB therapy?
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on February 02, 2018, 02:24:03 AM
The last appointment was our first....She's setting now up a treatment plan and we should be able to start it this Monday. Hopefully I wont be in pain that day
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on February 02, 2018, 01:17:07 PM
Let us know how you get on?

 :foryou:
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on February 02, 2018, 02:34:12 PM
I sure will CLKD

and

I thank everyone who has reached out to me...

God Bless Each and everyone of you!

I will update when I have any new news.

 :hug: :bighug:
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on February 02, 2018, 04:30:06 PM
Good idea.  Every experience shared helps someone else .........
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on February 07, 2018, 09:36:34 PM
Clindamycin vaginal cream for BV......

I've had this medicine before and was horrid on the IBS...... Anyone else used it or have any advice how to make this medicine less harsh please?   :'(
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on February 07, 2018, 09:56:30 PM
I did a search for it, but seems no one in this forum has used it.... Strange to see that :(
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Conolly on February 07, 2018, 11:14:49 PM
Hello Joy55,


I'm a bit confused... what happened to the Klebsiella diagnosis? Clindamycin is ok for BV but not for Klebsiella infection.


I've read about a 100 mg Clindamycin ovule to be used intravaginally for only 3 days. Maybe that would cause less upset to your guts?


I have no personal experience with this. Hopefully someone will come along soon.


How are you feeling regarding pain and anxiety?


Conolly X
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on February 10, 2018, 02:38:31 AM
Hi Conolly,
   
  I'm being teated a second round of antibiotics for the Klebsiella diagnosis, apparently the Keflex was not strong enough or something because my most recent culture that came in yesterday shows I still have it so now Im on Cefdirin 300 twice a day ans suppose to be on Clindamycin for the BV my PCP diagnosed this week from a vaginal swab test. But I cant start the Clindamycin until all my upcoming appts are done, Clindamycin makes me very sick and unable to drive for a week or more. She never prescribes the ovule, its always the 7 day cream.

Anxiety is still a mess and pain comes n goes, as it always has... Nothing has changed as of yet.

I have a GI now but he cant see me till April 4th, so he's asked my PCP to evaluate me and then he will instruct her on how to care for this IBS pain until he can see me. He said he did not want me in pain any longer than I have already been.

First doctor so far with a bit of compassion.


Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on February 25, 2018, 03:42:04 PM
Hello everyone, Ive not forgotten you all. :bouncing:

Urologist kidney ultra scan results came back all good, I dont meet with him till March 9th to discuss everything, So had a brief call from his nurse regarding my scan results....

Evaluation with my PCP for the GI that I cant see till April, she sent in the evaluation and so far all are under assumption now until the GI can actually test me is I have IBS C & D. A stool test was done and all came back negative for bacteria in that. At the present time PCP has me on Bentyl twice a day for the IBS pain and of course a soft bland diet.... the Bentyl helps but it does not eliminate it completely.

On March 8th I am scheduled for a pelvic scan for my GYN, a 'BMC Ultrasound with Ultrasound A CHI'' ad I need to go to the lab one day this week for Hormone level panel test.

I have a question for anyone that can answer it please?  Is it possible to have uterine tumors 8 years later after menopause? If so, would a ''BMC Ultrasound with Ultrasound A CHI'' show uterine fibroid's?

I had uterine fibroid tumors when I was 54, they removed them without anesthesia in the doctors office exam room, the procedure, I called it was a DNC but the doctor had another name for it. Regardless it was very painful and I cried thru it all, screamed a few times if memory serves me right, felt like she was pulling my uterus out of me, I will never forget that procedure and pray I never have to have it done again without anesthesia ..


So thats all I have to report at this time.... Still a waiting game till all these tests are done. :-\
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on February 26, 2018, 01:16:53 PM
Let us know!
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Conolly on February 27, 2018, 06:32:36 PM
Hello Joy55,


Thanks for the update, it's good to know you're in a better place even if things are not great yet.


I've no idea what BMC Ultrasound with Ultrasound A CHI means...


Uterine fibroids removed without anaesthesia? Are you sure? Most procedures require at least local anaesthetics https://www.nhs.uk/conditions/fibroids/treatment/


Maybe you had a cervical polypectomy instead? http://www.ouh.nhs.uk/patient-guide/leaflets/files/12806Ppolyp.pdf


Pain is very common in IBS, but I don't think the UTI's are related.


Hope you feel better soon.


Keep us posted.


Conolly X
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on March 13, 2018, 11:16:06 PM
Just a brief update:

Urologist did blood, urine and kidney scans. All tests turned out to be normal. He has released me as his patient unless I have more urinary issues. All my pain is intestinal and not bladder, so I now have an appt April 4th for IBS help.

My regimen too avoid estrogen and the side effects,  I started using Rephresh vaginal moisturizer , it is ph balanced and I've not had an infection for over a month now (certainly dont want to jinx myself so I'm not bragging, but hoping this will be my answer to ending the infections for good) Plus I am also taking probiotics daily and eating live culture yogurt as my nightly dessert. I also tried the organic coconut oil as a moisturizer but it did not relieve the dryness nor occasional itching I would experience, but the Rephresh takes care of it all and best part is no side effects or infections. Its OTC in the U.S. its pricey, $16.00 a box with only 4 applications in it that you use every 3 days, so to last me a month I'm spending $30.00 plus a month. Ive asked my GYN if she can possibly have this made into a prescription for me but she says she cant :\

Now for the GYN:
Had the Hormone blood panel done and my gyn ordered another pelvic scan. I already have the results to both... I dont understand a thing the Hormone Panel says but on the pelvic scan I read the ovary cyst is no longer simple but is now complex.

I discuss all this stuff with my GYN in 2 days, Its times like this I wish I had some medical knowledge under my belt to understand all the results.

So as of right now this is all I have to report....I will update after my GYN meeting in 2 days.... :cheer:

Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on March 14, 2018, 12:29:16 PM
How do you feel generally?

Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Conolly on March 14, 2018, 06:17:46 PM
Hello Joy55,

Thank you for the update, it seems things are being properly addressed now, that's good news.

Maybe your complex cyst is the culprit after all. Fingers crossed for your Gyn appt.

Conolly X
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on March 16, 2018, 12:09:17 PM
UPDATE:

 Saw my GYN yesterday and Im scheduled April 2nd for removal of the left ovary with the cyst that has now went from a simple cyst to a complex cyst, this concerns because ovarian cancer is in my family history (my maternal grand mother) my doctor is also doing a  Hysteroscopy and a D&C at the same time while under anesthesia. 

I'm curious if anyone had any new problems develop after the removal of an ovary?
 
I read so much online of issues that happen  to some when an ovary is removed that I no longer know what to believe, such as heart palpitation, chest pain, joint pain, etc etc... My gyn seemed surprised to hear all this when I asked her about it yesterday and according to her I should not even notice it is gone....

Also I did find out yesterday from her that we do indeed have an estrogen gel here that can be applied to the inner thighs. So if it gets to this point for me at least I have another alternative now.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: LAC1969 on March 16, 2018, 12:56:46 PM
So sorry to hear you are feeling so much worry and anxiety. Although I don't have any first hand experience of the symptoms you describe I do know about anxiety, but panic and fear around these 'medical concerns'.

I'm not a practitioner but I find the Dr Bach individual flower essences invaluable. They really work for me. It's very easy to read a little about them- and as you recognise yourself and the way you feel against each of the remedies you can select the ones you think you need. I really would recommend going to the Dr Bach website. I'd say gorse and mimulus will help you now. Maybe rock Rose?

Don't mean to sound like an evangelical hippy but these are worth a try for sure. They help you cope and restore balance and perspective.

I really do wish you well.  :)
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on March 16, 2018, 06:57:12 PM
"Rescue Remedy" mouth spray might be worth trying.

Why didn't the Consultant talk through what might happen  :-\
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on March 17, 2018, 03:18:42 PM
CLKD, I'm not understanding your question regarding why the consultant did not talk through what may happen?

Also what is ''"Rescue Remedy"?   What purpose would it serve for a complex cyst on an ovary?
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Conolly on March 17, 2018, 03:42:27 PM
Hello Joy55,


My sister was diagnosed with cysts and during surgery the docs have found both ovaries needed to be removed. She also had her womb removed. She's on Estrogel and had no other issues.


I don't know if a complex cyst could be related to cancer. I hope not.


Keep us posted!


Conolly X
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on March 17, 2018, 06:48:04 PM
 :-\. "Saw my GYN yesterday and Im scheduled April 2nd for removal of the left ovary with the cyst that has now went from a simple cyst to a complex cyst, this concerns because ovarian cancer is in my family history (my maternal grand mother) my doctor is also doing a  Hysteroscopy and a D&C at the same time while under anesthesia. 

"I'm curious if anyone had any new problems develop after the removal of an ovary?  ..... "   


Your GYN should have discussed the pros and cons of such surgery!  You shouldn't need to ask.


Rescue Remedy can ease anxiety symptoms.


 
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on March 18, 2018, 01:54:43 AM
CLKD

I have a pre- surgical consultation with my surgeon/OBGYN on the 26th. I'm sure all pro's and cons will be discussed then.

Regardless the cyst on the ovary has changed to a complex cyst now and I lost my maternal grandmother to ovarian cancer many years ago, I am in no position to hang onto an ovary that could possibly turn cancerous if it hasnt already.... Im trying not to think about anything negative at this point.... Just hoping all goes well with the surgery and praying no cancer.

Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Conolly on March 26, 2018, 01:04:22 AM
Hello Joy55,


My fingers are crossed for a good appt tomorrow!


Conolly X
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on March 27, 2018, 11:23:19 AM
Hello Conolly,

this is all I know at this time:

Tumor marker test was elevated by 3 points, it should be 5 or less and mine is 8 so they re-did it again today., I dont know the results of that yet.
 
She will proceed with surgery regardless if I have a UTI or not.

She will do a hysterectomy is she sees cause for it while shes in there.

Wont have results for 2 weeks after surgery on the cyst and the biopsies.

She cant guarantee me that these procedures will end the UTI's even if a hysterectomy was done.

Surgery will be April 2nd, the office will call me Friday with the time of surgery. Post op exam on April 18th at 10:15.

 4 weeks for complete healing.

She cant tell by looking at the scans if the cyst is cancerous or not, she says when she gets a better look at it and removes it she may be able to give me a better idea then if it could possibly be cancerous.

Praying No Cancer is found.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Conolly on March 29, 2018, 11:33:30 AM
Thank you for the update Joy55. My fingers and toes are crossed. Thinking of you, good luck 🍀🍀🍀


Conolly X
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on March 29, 2018, 02:02:57 PM
Thank you Conolly

Im just sitting here counting down the days till surgery and praying for a good out come.


I will update later next week once I am feeling better after the surgery.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Dotty on March 29, 2018, 02:14:15 PM
Hope all goes well x
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on March 29, 2018, 02:39:16 PM
Thank you Dotty
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Daisydot on March 29, 2018, 02:43:34 PM
Good luck joy55  :bighug:
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on March 29, 2018, 02:58:10 PM
Thank you Daisydot
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on April 03, 2018, 01:18:19 PM
Update on surgery:

Hello all...

I didnt get home from the hospital till after 6pm last evening. I was there from 9:30 till after 6pm.   Im not clear on all she did because she spoke with me in the recovery room when  I was still half out of it. I remember something about fibroids, ,  endometriosis, a large polyp and the ovary of course,  all of that stuff was removed, and if I remember her correctly I think she said that she thinks everything looked okay but we need to wait for results of the biopsies and the ovary, that could take up to 2 weeks,  I see her in the office on the 18th.

Im extremely sore, I didnt realize till this morning that have 3 incisions instead of the 2 I was told I would have..

I woke up from surgery in a lot of pain and was very nauseated, then it took me from 12:30 yesterday just before surgery, till this morning at 6am to finally urinate, surgery sometimes does that to me because my bladder will go a shock like stage or something to that affect.

Needless to say I'm sore.

I will update more when I know more.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on April 03, 2018, 02:14:41 PM
 :foryou: sorry, I'd lost track of your journey.

As for atrophy - localised treatment should make NO difference to any effects of surgical intervention.  It is so localised, i.e. into the vagina.  It is the ONLY treatment which will ease atrophy.

Have a read round when you wake up properly i.e. 'my bladder etc.' thread and other vaginal atrophy threads here.  Make notes.  Discuss with the Surgeon and press the point that it is into the vagina so there is little likelihood of infiltration which will cause any problems ;-).

Feet up!
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Conolly on April 05, 2018, 06:04:51 PM
Hello Joy,


So glad to hear from you, now you have to rest and let your body heal. Keep us posted.


Conolly X
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on April 05, 2018, 06:23:01 PM
Hello CLKD,

   OBGYN wants nothing applied inside the vagina for 4 weeks.

We have discussed the option of the estrogen  (as much as I really dreading the idea of any type of estrogen) we did discuss the type that is used externally instead of internally.

More will be discussed on this idea or hopefully another alternative after she feels I have healed completely and all depending on the out come of the surgery biopsies.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on April 05, 2018, 06:27:09 PM
Day 4 post op Update:

Still sore, but better than it was. Still dealing with that horrid gas pain in my shoulders and between my shoulder blades. Im still not able to drive my car yet due to it sits so low, its too painful to even try that yet.

Saw the GI for the first time yesterday (took 3 months to get that appt) so I wasn't about to miss it, my son and his wife took me to that, thank heavens because as it turned out to be a very chaotic event. Next month on the 3rd the GI has ordered a colonoscopy and endoscope, hopeful that will be the last procedure for this year, I HOPE!

Still waiting on the surgical biopsy results,So far all I have received is blood work results showing abnormal red and white cells ( CBC WITH DIFF[202426653] Abnormal ) whatever that means... So I'm still waiting for answers.

I thank everyone for all the well wishes  :thankyou:
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on April 05, 2018, 07:28:13 PM
You are very welcome!
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on April 18, 2018, 05:49:56 PM
UPDATE:

All biopsies BENIGN!!! Praises to my sweet Lord!!!
I'm still a wreak, but so grateful for the outcome, My doctor said the cyst was a size of a medium sized lemon and was in the tube, not the ovary, plus it was so heavy it caused the ovary to drop and cause pressure either on the bladder or the bowel, I cant remember which is was now. I was so relieved I went into a stupor. She also removed a good bit of scar tissue (sorry I cant the spell the correct name for it right off hand) plus a large polyp and fibroids ...... Now to breath a sigh of relief and try to get life back to normal now. Having some issues with palpitations but doctor feels thats all due to the stress and anxiety I have been under since this past August. All heart tests were done and all were normal, next a echocardigram that she says is routine to rule everything out.

Many thanks to everyone for tolerating me through all this madness.

Celebration time!!!  :thankyou: :ola: :clapping: :cancan: :bighug:
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Daisydot on April 18, 2018, 06:13:03 PM
Fantastic news joy I'm so pleased for you,onwards and upwards now a nice new chapter in your life is beginning xx
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on April 18, 2018, 06:30:32 PM
 :thankyou:  for the update

 :bighug:

not too much of this  :cancan: or  :hapij: yet but plenty of  :drunk: ;-)

I can feel how relieved you are! 
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on April 18, 2018, 10:08:19 PM
Thank you everyone and yes I am very much relieved  :foryou: :clapping: :cheer:
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: CLKD on April 19, 2018, 10:03:26 PM
What next on the Agenda?
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on April 19, 2018, 11:15:00 PM
Nothing more with GYN unless I have any issues..... Next month is GI's turn, I'm scheduled for both the endoscope and colonoscopy .... But here's something I got in ''My Chart'' online today. Its the first time since this mess started back in August that I show no infection Amen!
 GYN says its likely the hanging ovary that was putting pressure on either the bladder or the bowel (really wish I could remember which she said,) but anyway she said that might of been what was causing my pain and infections.... Guess time will tell
<got fingers crossed>  URINE CULTURE  No Growth 18-24 hrs.  :banana:    
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Lanzalover on April 20, 2018, 08:30:09 AM
That's good news you must feel so much better


           :ola: :ola:


Love Lanzalover x
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Joy55 on April 20, 2018, 08:52:44 AM
Thank you Lanzalover,

I do but will feel much better when I get these palpitations to stop. They started occasionally on and off about a week before the surgery, then a week after the surgery they have been going nearly non stop and its getting very aggravating to live with. All heart tests have been done at the ER and thankfully all was good and my PCP has an order in a routine echocardigram just to be sure there are no problems with my heart, but scheduling has yet to call me on that.

I so want these things to go away so I can start enjoying life again as it should be.
Title: Re: Really Scared, ''Atrophy - Cant take Estrogen - lots of Bladder Pain''
Post by: Conolly on April 20, 2018, 08:46:00 PM
So glad with your good news, Joy55!

Regarding palpitations, maybe it's just stress and anxiety related but it could also be your individual response for the sudden drop in oestrogen.

Take care!

Conolly X