Menopause Matters Forum
Menopause Discussion => Other Health Discussion => Topic started by: babypink2807 on August 03, 2015, 05:26:11 AM
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I've noticed in last few weeks when I lift my right arm my nipple sort of sinks in, my other does not. No lumps etc not tenderness nothing
Now I know I'm getting older and boobs do sag which mine are and my right nipple has never been one to stick out that much but it is starting to sink in but only when I lift my arm?
Does anyone else have this? I am calling my GP today to get it looked at
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Any change with breasts should be checked out, so you are doing the sensible thing seeing your doctor. Let us know how you get on.
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I agree with Ju Ju. Let us know how you get on.
Taz x
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Any changes in breasts should be checked.
Hope it goes OK.
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One of mine started to turn, DH was horrified so off I went to see the Practice Nurse. Everything OK - age related apparently ::) but any changes should be shown to a professional: oozing particularly bloody, inversion where the nipple remains hidden when touched, 'tethering' - so being naked and looking straight on in the mirror is important, hands high above the head, arms low by the sides (not at the same time unless you are an octopus ;) ) and by the sides ………… every day, not at 'certain' times of the month ;)
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I've been this morning and just had a call to advise I am being referred to the breast clinic in Leeds. GP said there is something there it just needs a full and proper exam. So mammogram then MRI something else and possibly a biopsy
Very tearful today
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Oh Blossom it's not surprising you are feeling tearful but you have done exactly the right thing in seeing your GP. The sooner you are examined by an expert the sooner things can be sorted out. You will be in very capable hands. Please don't fret and get upset, easier said than done I know but it won't help you at all. Lots of hugs
:hug: :hug: :hug: :hug:
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Thank you
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Hopefully you will be referred quickly and have your mind put at rest. I have uneven breasts and nipples and was checked out years ago...it was just one of those things.
I could only breast feed successfully from one side naturally...on the other side I had to wear a shield type thing as my nipple was inverted.
Hopefully it will be something and nothing but always best to get checked.
Honeyb
X
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Write your concerns down to take with you to the appt.! Your GP is sending you somewhere that sees lots of breasts daily. Will the investigations be done as a 'one-stop shop'?
You will probably have an ultra-sound scan rather than an MRI :-\ …………..
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Hi Blossom22
Good luck with your appoint, your gp is doing the right thing for you, much better than being fobbed off.
Please try not to worry, like you ive had appoints like this to check various lumps etc and i understand you feeling tearful.
Ive also had mammos, ultrasounds and mri scans and consultants doing breast checks. All of these are necessary due to the different types of image produced and vital for correct diagnosis.
If you are at all anxious about confined spaces you might like to ask your gp to prescribe you something to use on the day of your mri.
Take care
Linsey
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That does bring me comfort thank you
Im ok with MRI scans had loads of them with my Crohns Disease, second nature to me lol
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Well, you have come to the right place for support along the way. Many of us have had breast cancer scares or have had breast cancer, so will be able to empathise and understand. So use us! Meanwhile, here's a virtual hug! :bighug:
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I've been ok and been at work, then suddenly I just dip into worry, I'm trying so hard to be positive it's bloody difficult. I'm worrying and it's making me tired and making me cross with myself.
I've even got my damn motorbike test Friday!
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Maybe postpone.
Will you have anyone with you. Does your son and his partner know. Maybe one of them could go with you to give you support.
The motor bike thing may have to take a back seat until you get results.
How's the horse....you are so active ....I'm jealous
Honeyb
X
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I don't hear from my son at all. I'm in a pickle as to what to do about the bike test its paid for and booked. Somehow I need to focus my head as I'm dipping in and out of worry then ok. Head spinning and just blergh
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I'm sure if you call then you can reschedule your bike test. They will be understanding.
It's a real shame about your son. This might be an opportunity to re establish contact as I'm sure he would want to be there for you.
Let us know how it all goes.
Honeyb
X
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How are you, Blossom?
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I'm just back from the hospital. 3x mammograms 2 x ultra sounds and ) x biopsies taken I'm sore and tired. Get results next week
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Now the waiting begins ::) - the scans have to be 'read' and reported on. Do you get the results directly?
Have a cuppa!
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Initial feedback from the Doctor and the consultant is they are not overly concerned based on that scans and mammogram taken today. They believe I have dense tissue in my breasts they took biopsies so results next week
The consultant did say I do have "lumpy" breasts which I knew anyway but my GP who I have never seen before I think was and rightly so just making sure all was or is ok
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Hi Blossom22,
I go to Leeds to have my boobs looked after too.
The team are great. I also have lumpy boobs, mostly due to spectacular cysts. Don't you just love mammo's and biopsies :o
Take special care of yourself - I found my boobs quite painful after all the poking and prodding, so keep some painkillers handy.
Gentle hugs
Galadriel x
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I've got a lovely bruise this morning, still quite sore too, so taking the day off. Not a nice experience but it's done now and Leeds were really good, no messing about, yes I was there four hours but they were very efficient and lovely staff
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I remember years back, probably early 90s, I was back and forth every month for scans. They didn't seem to know what they were looking at and ultra sound scans were nowhere as sophisticated as they are now. They eventually decided it was 'changed breast tissue', but not cancerous. I've had a more serious scare a few years later, where I got the impression the consultant was convinced it was cancer from the mammogram, until he did the needle biopsy. He said with relief that he was 99% sure it didn't feel like a cancerous lump. He was right, but it was a worrying time.
I hope all is fine, but like many of us, empathise with how you are feeling.
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All
I have been for my results of the biopsy and it is cancer. Don't know what else to say
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:hug:
So sorry to hear your news. Have they given you any indication of what happens next.
I cope much better if I have all the facts.
They are a few in the forum that have had this and are doing fine. The survivor rate is really really good these days.
When does your treatement start.
Keep posting , plenty of support for you here.
Honeybun
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There phoning me Thursday to discuss options available, they mentioned surgery and also asked if I was on Warfarin which I am
Head not quite taking everything in
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Not really surprised when you thought you were clear.
Have you someone you can take to your appointement with you. You sometimes need someone to listen for you.
Maybe start a new topic in case this gets missed.
Honeybun
X
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Sorry to hear this blossom but hopefully you have caught it early. They should have told you which type of cancer you have. It's also very remiss of them to only offer you a telephone consultation on Thursday - you should have been booked into the breast care clinic where there will be a team of staff waiting to explain things to you. As honeybun says it would be helpful to have someone with you on Thursday.
Taz x
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:bighug: I'm so sorry, Blossom. I hope you have support at home. Other forum people will be along soon, I hope, as they will know how they felt in your position and can be part of your support system if that's what you want. Love Ju Ju
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So sorry to hear your news Blossom.
Repeating what the others have said, at least it has been caught early.
It's good that somebody will contact you on Thursday, will you have somebody with you?
:hug: :hug: :hug:
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They offered the call as it was too much for me today. I wasn't in a position today to discuss further. I honestly didn't know what questions to ask. So think it's right at the moment
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Ah right. Sorry it must be a different system to here where you are given the initial news at the clinic and then you come back to breast care a couple of days later where your treatment options will be outlined and you are given as much time as you need to ask questions so that you can make a decision. It is a lot to take in at one time. Do you know which type of breast cancer you have?
Taz x
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I spoke to the Macmillan nurse today who was lovely and we had a good chat. My call is tomorrow about plans. Once I have the MRI scan then things can start to take shape
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Hi Blossom
Sorry to hear your diagnosis, such a shock for you.
Once you are aware of all of your options you can focus on your treatment and recovery. Keep us posted, im sure you will get great support on here.
Its probably best to stay away from google until you understand more about the type of cancer and options available to you.
Take care
Linseyx
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Been there, done that ::)
Making a list of questions is important. Making a note of the answers is important. Make sure that you know to whom you are speaking too.
Ask if they have sent a Report to your GP yet so that you can have a chat there too. I had a needle biopsy, bone scan, 2 operations, radiation treatment ……… my biggest worry was whether the panic attacks would stop me going to the daily radiation treatment ::)
Let us know how you get on!
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CLKD thanks for that
I am extremely tired and think its the stress of it all, I am in work this morning, felt a wave of panic when I got here. I am so tired. Leaving at lunchtime to go home, and take the call in private from the Hospital
Its difficult as I will come off the HRT, so all the menopause symptoms will return, Crohns also causes fatigue as does stress too, its a bit of a mess at the moment
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Hi Bloosom
Just caught up with your post and sorry to hear your
news. Hope the call with the hospital goes ok and you have all the information you need. Nowhere is power.
Sending big hugs
Westie x
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Don't stop any HRT until you have seen a Consultant again as this may not be affected by hormones . By which time you will be told a plan of treatment.
:bighug:
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.....sorry I meant to say 'knowledge is power'!
W xx
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I have an MRI scan for next Wednesday. The Macmillan nurse called me late yesterday and we had a really good talk, she told me the type of cancer I have.
I'm not googling anything, but do intend to go to a local breast cancer group recommended by the hospital.
My head is mashed at the moment, I went for my bike lesson today and stopped half way through as I wasn't in the right place with my head
Initial thought with the hospital are MRI scan, then Ultra Scan, Surgery, Radiotherapy then meds
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It will all seem a whirl at the moment Blossom but you will find that everything sort of slots into place. No chemo by the sounds of it which is good. My best friend has just finished her treatment for breast cancer. She had mastectomy with reconstruction at the same time, six sessions of chemo (one every three weeks) followed by fifteen sessions of radiotherapy (over three weeks) and she coped really well. It's important to do exactly as is suggested to you by the breast team. She found her lump in early January and was operated on three weeks later. She stopped work and is still on sick leave which has enabled her to concentrate on herself making sure that she is eating a good diet, exercising as advised etc. We were only saying today that if she had known what was to come this time last year there was no way she would have thought herself capable of dealing with it but it's amazing how strong you can be.
I'm surprised you haven't had your ultrasound already - didn't they do that before the biopsy? I guess each hospital is different. Do you know if your cancer is hormone receptive?
Taz x :bighug:
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They did, ultra sound and mammogram same day and the biopsy, it was the biopsy that confirmed everything
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You're head will be racing for a while until you get into the hospital routine of visits, advice, appts. and treatment. It will slot into place then. The focus will be on visits, advice, appts.; the important thing is to make a list of all your worries however small and ask, ask, ask …….. and if you don't understand, ask again. It is up to the medical staff to make sure that you understand and accept each step of what ever treatment you will required.
I had lumpectomy - twice with 5 days apart ::) - followed by a rest whilst the wound healed followed by radiation treatment. Let us know how you get on! I didn't have Macmillan offered to me but was advised that there were ladies who I could talk with but I didn't want to know …….. got on with the treatment etc. - I never felt as if I was being rushed into anything but the Surgeon was brief, supportive and to the point.
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Hi Blossom, I can totally understand what you are going through right now. I haven't been on here since end of Jan/beg of Feb, I think it was, when I was diagnosed with breast cancer. Symptoms the same as you - no lump as such just the nipple retracting. I got the confirmation of cancer the day before we were flying to Singapore. We decided to go ahead with the trip to tell our daughter face to face. It was a truly gruelling trip, I was absolutely devastated. I have always had health anxiety which manifested itself as a fear of heart attack/stroke etc which got worse during the menopause. Then something came along to really give me something to worry about!
Once you know your treatment plan and get started you will feel more able to cope. I had to have chemo first, then mastectomy and will be starting radiotherapy shortly. It is something that you can deal with - if I can anyone can! Feel free to ask me anything.
Best wishes
Linda
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:thankyou: for the update. It's a stiff journey at times but feeling supported by the Surgeon and his Team makes a huge difference. How much radiation will you need, I had 4 weeks.
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Hello Sparkle.
Thank you for thinking of me! It has been a long journey but in a strange way these past few months have flown by. Once you get on a treatment plan in is non stop appointments that keep you focused. It hasn't all been plain sailing obviously but now waiting for my last lot of treatment which is radiotherapy.
Hello CLKD.
You're right having an excellent team has made all the difference. I couldn't have wished for better support and care from everone involved. I will be having three weeks of radiation. I am started to get scared about it now - but obviously that is what has happened with every new treatment I started, chemotherapy and then surgery. It has really helped that I live so close to the hospitals involved in my care.
Will update you again.
Linda xx
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My friend found the radiation no problem at all. She was, like you, rather nervous of what to expect. Moisturisation of the area is the key apparently. We too are lucky that we have a brilliant breast care unit - only opened a year or so ago - within five miles so we didn't have to travel long distances each day.
Taz x
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Thanks again ladies.
Taz do you know what moisturiser your friend used, I assume it has to be unperfumed. I have heard aloe vera is good.
Linda x
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I'll get back to you Lindy.
Taz x :)
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I was advised NOT to use anything other than Johnson's baby talc due to other products having zinc in which can upset the radiation. I was given a steroid cream once the area became reddened - it took me longer to get underessed/dressed than the actual radiation zaps ::). Have you been offered small tattoos rather than an ink splurge to guide the laser beam? I have 3 ………….
I was told by the Oncologist not to sit in the sun and when out and about to wear a straw hat 8). I had competitions with the Jamaican lady - we 'dressed' our hats each night to compare ideas the next morning ;)
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Hi blossom i had just typed a long message to post and somehow lost it!! I just want to say i am here if u eant to pm me at any time. I had my radio last Jan and had no effects other than red breast which healed v quickly....make sure you apply the cream provided....i applied 3 times a day!!
My problem has been meno symptoms due to no hrt and on arimidex, its a journey but we will get there blossom.
Take care, be kind to yourself and take it one day at a time.
St xx
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Had my MRI today seemd to go ok, back to hospital Tuesday
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Glad it went ok Blossom that's one more thing out of the way. Was it a full body MRI?
Taz x
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Glad that is out of the way Blossom. Been thinking of you.
Linda xx
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well done! now that you are 'in the system' you will have support - keep making that list and asking those questions :medal:
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It was the top half, laid face down, rather odd, lasted about half an hour, nearly fell asleep, which is amazing considering how loud it is
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Next appt. is?
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Next appt. is?
Had my MRI today seemd to go ok, back to hospital Tuesday
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Just thinking about you Blossom and wondering how you are today :)
Galadriel x
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I had my appointment today. I met with my consultant and was told I need a Mastectomy. Shocked
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Blossom22
Im sorry that this wasnt news you had anticipated, its just such a lot to cope with and take on board, your head will probably be buzzing with questions you want to ask.
Have they offered to do immediate reconstruction for you?
You are in my thoughts
Linsey x
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My Mum had a mastectomy at age 66, no further treatment required ;). Will you want a reconstruction? It can hide problems should they occur at a later date ……
Make a list of your next queries. Have you been given a dedicated Breast Care Nurse to talk issues with?
:bighug:
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I have a dedicated nurse. I can have reconstruction but not straight away. They want to take their time with me
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Hi Blossom
I would imagine they are delaying reconstruction to allow treatment to start as soon as possible after you recover from your masectomy.
Also you need lots of time to research all the different reconstruction methods. I know this from experience but not because I have had cancer and also through speaking to women who had different reconstruction types taking time to consider options is vital This isnt the sort of decision to be made while you are in shock.
The main thing is to focus on your treatment plan and recovery. I bought a friend a book that she found quite inspiring, PM me if you want to know the title.
Stay positive
Linseyx
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Let us know how you get on!
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It's not that they can take their time Blossom - some cancers and mastectomies are suitable for immediate reconstruction and some aren't. Your surgeon will have given your case a lot of thought. As Linsey says depending on the type of treatment you need i.e. chemo and then radio or possibly just radio then an immediate reconstruction may delay treatment. My friend had mastectomy and immediate reconstruction and she began her chemo two weeks after that. Her radiotherapy then followed the chemo by which time her reconstruction had healed brilliantly. She met women during her treatment who were having chemo before mastectomy and others who were having mastectomy, radiotherapy and then reconstruction and some women who didn't want a reconstruction at all. I'm sure you are being well looked after. Have you got a date yet for your op?
Taz x :hug:
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My Mum didn't get offered reconstruction and even I don't know which side is the operation side ;) so it really is a personal choice. I wouldn't want to go through further anaesthetic.
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I have been given a date of 1st October, but if a cancellation comes up I will be offered it. I was in hospital yesterday for Pre Surgical Assessment, ready to go now. I just cannot believe the last two years, I really cant!
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Hi Blossom
Been thinking of you. I was given a cancellation which was good as not too long to dwell on it. Have you had any results from scans etc yet?
Linda
xx
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That's quite a wait Blossom but maybe you will get a cancellation. Do you know which type of cancer you are dealing with yet? Is there anyone you can ask to stay with you afterwards as that can make a lot of difference to your recovery. A friend perhaps?
Taz x
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Yes I know what type it is.
I was only told on Monday about the Mastectomy after lots of scans last week, it is really quick. Its only four weeks away, the Macmillan nurse calls me regularly, I cant fault them at all. I have only known about the cancer for about 5 weeks, so all in all this is happening fairly quickly
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My sister in law chose not to have a reconstruction. She was not offered it immediately but had to wait until after her treatement was complete, she then decided just to stay the way she was.
Another friend had immediate reconstruction, so I guess it's all down to what they think is best.
Can I ask what kind you have. Perhaps too intrusive a question...if so just ignore me ::)
Just wanted to wish you all the best.
Honeybun
X
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I wont ignore your post, but would rather not mention the type, still have a long way to go in my head yet
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That's understandable.
Take care
Honeyb
x
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Hi Blossom
Been reading your posts and just wanted to give you a "HUG", a young lady in our village is going through the same thing :( she comes to see us regularly ( we own a business in the village) some days she's more upbeat than others but we have a cuppa and a chat, she says she finds the strength but where it comes from she doesn't know!
Keep strong, your inner strength will get you through this and out the other side :)
If your near Tadcaster hugs and a cuppa are waiting xxx
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HI Blossom
Just topping up the thinking of you vibes and to thank you for commenting on my post - really appreciated.
big hugs :hug:
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Thanks, I have had a few good days, especially Sunday, met up with a few friends at the local Biker Coffee Shop, had a fabulous lesson on the bike in the morning and the weather was fantastic. Struggling last couple of days, head is mush again. I thought I was ok, but I am forgetting so much and stuff isnt registering at all. Embarrassing really. One of my male friends has been great, he sent me some photos of women that have had the op and had some tattoos done, they look amazing. Not my sort of thing but at least his heart was in the right place
The date is getting closer, and I think subconciously im getting into a panic, with all this forgetfulness and I am soooooo tired
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:bighug:
No useful experience or advice here. Just thinking about you and checking in. Ju juxx
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You are in shock. My Surgeon insisted that I made lists over-night to ask him when he came to visit at breakfast. I think you'll find that the important stuff sticks ;)
Do you have a date to worry about?
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It's about four weeks away CLKD
Taz x
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Hi blossom, u WILL b ok honestly. Re the reconstruction i would advise to take ur time...have ur treatment first as some meds say treatment can affect the recon if done before.
We are all different, i found i had positivity and strength i didnt know i had! but i am going through phases only now of worrying will it return! then that goes thankfully. Time is a great healer, talk to women who were diagnosed years ago and are flying today.....Clkd for example😉xx
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I found that once I was 'in the system' with support from the Consultant and his Team, procedures flowed without too much problem. My Consultant was honest about prognosis and his Team answered questions when he wasn't available.
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I'm sorry to hear your diagnosis but thankfully you didn't ignore how things looked and got on to it straight away. Good luck with the treatment, perhaps things will be different once you start it. It's the waiting which is the worst. Take care.
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Thank you everyone, really appreciate it. I did get a call yesterday to advise of the op for 17th September, and I had to go in today to be taken off my Warfarin and use Tinsaparin. It was way too short notice, my house is in uproar, my mum isnt available to help. I have nowhere for the dog to go, and havent had chance to organise someone to look after my horse. I was all planning for 1st October, as I was given this date to start with
THey will be calling me back today to discuss, talk about added stress
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Hi Blossom22
They did that to me too. I was expecting to go in for mastectomy at the end of July and they rang me on the 9th asking me to go in on the 13th! Not so long to worry about it I suppose, but as you say a lot of sorting to be done!.
Will be thinking of you.
Linda xx
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No one called me back, so I called them yesterday and apparently there are two people in the office, both thought the other had called me. Anyway, 17th has gone by missing my deadline for coming off my Warfarin. The lady that schedules the surgery is on holiday this week, so will give them until Wednesday if I have not heard from them, I will call them again
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where abouts do you live blossom??? if your near tadcaster north Yorkshire I will happily look after your horse :)
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bless you, I am in Rodley, Leeds
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Would full livery be an option for a very short while, or perhaps you know someone who would lease him for a while. We did that years ago and it benefited both us and the owner.
Anyway I'm sure you have already thought of that already.
Honeybun
X
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Have a word with your Vet. Practice, they may have Vet Nurses who will 'live in' and care for your dog and horse. Our Surgery certainly provides the Service …….. my friend had Students in to care for her 15 goats when she wanted to go away ;)
Or ask at your local Stables, pet supplies store, Countrywide etc.. There are plenty of animal care companies across the UK!
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Morning! You could also look at The Cinnamon Trust web-site as this Charity was set up for emergency pet care situations.
Do let us know how you get on.
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Hi all
Got a call yesterday, op booked for 28th September, and I am going for it
Dog is sorted and going to my dad, Horse sorted found someone to look after him. Whilst in hospital a friend is going to look after my cat.
Week before op I go to hospital to be taken off warfarin and put on Tinsiparin injections, two days before I come off that and HRT.
Mum coming to stay with me, my new carpets are down in bedrooms and look and feel lovely. Having new internal doors put on and so feel more like a home
I have two weeks of intermittent motorbike lessons and test on 25th, fingers crossed on that one. Im going shopping for new PJs and friends lending me DVDs and portable DVD player whilst in hospital
I am looking into a new way of a good diet, not dieting but getting rid of toxins and eating better, can anyone help me here? I have a nutrib tullet, make up smoothies using blueberries, raspberries, spinach, kale, banana, apples. Eat chicken, small potatoes, sweet potatoes, salad, carrots. its not much and it gets boring recommendations appreciated
thanks
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It sounds as if you have got everything sorted Blossom - not an easy thing to do but it's surprising how friends and family rally around at times like this. Hopefully your hospital stay wont be too long?
As for the diet - have you had a look at GeordieGirl's posts? She is following a really healthy diet.
Taz x
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Make sure that you can move both arms when you by the PJs because after surgery the whole shoulder/back/arms can feel stiff and sore ;). I think I bought button through jimjams because lifting a nighty up would have initially been impossible ::)
Put a few treats into your case too, i.e. nice soap or talc. Have you chatted with your contact Nurse recently?
buy even ;D ::)
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Spoke to the Macmillan nurse today, I have pre assessment booked now for 22nd September, then in 28th, stay in for 1 - 3 days then home for a few weeks
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Do you feel supported? Do you know the people caring for your pets?
:bighug:
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glad to hear you've got the pets sorted xxxx
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Hi Blossom22
I have only just seen this thread as I don't often look at this part of the forum - so very sorry to hear your news and just to say I will be thinking of you and wishing you all the best with your operation, treatment and recovery.
:foryou:
Hurdity xx
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I have some great friends and family too, its all organised. GOing to go shopping at the weekend for new PJs and things just to make things a little more tollerable. I have a mini DVD player, got some bluetooth headphones and lots of films to watch 8)
Not long to go but I am keeping as positive as I possibly can
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Blossom, just wanted to say I am thinking about you and hope all goes well on Monday for you.
Linsey X
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Will be thinking of you tomorrow Blossom.
Linda xx
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Good Luck!
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Hello everyone I'm here in my hospital bed to be fair not feeling too bad. Bit sore and tired but the staff have been fantastic. Hand on heart I've taken a sneaky look and thought I would be horrified but so far not. Could change who knows
I went into this with good support from friends and family and work. Hospital have been marvellous
Thank you all again off for a little snooze now
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:bighug:
For your recovery.
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Glad it went ok Blossom.
Taz x
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Thank you for your update Blossom, glad to hear you are starting your recovery. Very brave taking a peek.
Rest uo.
Linsey x
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Thanks for the update Blossom, I have been thinking of you. Hope your recovery continues well :bighug:
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Sending lots of hugs to you XXXXXHUGSXXXXX
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Pleased to hear all is going well, Blossom. Wishing you all the very best. xxx :foryou:
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Little steps. You'll be tired for a while, so make the most of being cared for!
:foryou:
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Hospital took out chest drain. Plenty of pain relief. Warfarin. Now home to rest. In a bit of pain tonight
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Hi Blossom, pain might be due to the anaesthetic leaving your system as this in itself would have a bit of relief in the past 24hrs.
Prob very normal, dont hesitate to contact the hospital again should this not ease off in a few days.
Feet up and rest in between bouts of keeping mobile.
Linsey x
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I've got Codine and paracetamol had a good nights sleep. Need to keep arm mobile it's more arm and armpit than boob area. It's quite odd that the worst part of the whole thing was the news rather than the operation. That may change but so far I'm doing ok. Just need to book my bike test again lol
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Hi blossom,
Just wanted to send you hugs :hug: :hug: :hug: :hug: :hug: :hug:
Love Lindyloo xxxx
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When is your follow-up appt.? Were you shown gentle exercises for the arm before you were allowed home?
:foryou:
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Arm is ok. Been out and about gently. Been trying to be slowly active and keep positive. Have today though woke up on a downer which knew at some point would happen. I've left a message for my Macmillan nurse to call me
Had issues yesterday, last night and this morning with my crohns plenty of toilet trips and tummy ache. Felt sick a couple of days due to Codine which I've stopped. Also come off HRT. It's a bit overwhelming today
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You have my sympathy Blossom. I was on such a high after the op then the downer rears its ugly head. Also had stomach issues which I found very hard to deal with. Things have improved so much,but I take things easy as I think I tried to do too much at first.
Hope you have a better day today.
Linda
xx
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Also you were starved prior to surgery so your gut and bowel need to 'catch up' ;)
Did the Nurse ring?
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I'm back in hospital brought in early Saturday morning no sleep constant toilet trips and nausea. Had tests and X-ray done. It's either an infection or because of the surgery it can affect the guy and back passage with drop in blood levels. So I'm being monitored
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Where you should be if there are post surgical problems. Apparently 70% of patients are sent home too early and have to be re-admitted: there's a message there, somewhere ::)
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Results are back I've picked up C Difficile. If it's negative C Dif it will just go of its own accord. If it's positive C Dif I need antibiotics. Explains a lot
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Oh no you poor thing. Huge :hug:
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Oh No! go in for 1 thing, come out with others >:(
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It may be that you are just showing colonisation of C.Diff which is probably what you mean by "negative C.Diff." Fingers crossed that this is what you have Blossom.
Taz x
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Dear blossom, my thoughts and prayers are with you.
God bless xx
Stooth
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Thank you all. Now only going to the toilet every two hours instead of 20 mins, so we're getting there. Still stomach cramps and nausea but not as bad. Think my spark is starting to flicker again
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What advice have you been given re not passing the infection on? It must be a worrying time for you especially having your mum staying with you. Is it due to your having a stoma do you think? Not sure if that makes it more likely that you will pick the bug up.
Taz
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Hi Blossom, how are you getting on, you certainly have my sympathy. I didn't like to say before but I was readmitted to hospital too. Developed an infection at the mastectomy site. Was given oral antibiotics before they knew what type of infection, then changed them when they did know. Those ones made me so ill (they thought I might have had Cdiff, I didn't thank goodness). I went back into hospital and had IV antibiotics which eventually calmed everything down. They also told me to eat plenty of live yogurt to get the balance of good and bad bacteria right, have they told you to do that?
Unfortunately my daughter who lives in Singapore and had been home for 6 weeks had to go back during my stay in hospital. I think that was my lowest point during this breast cancer journey, but wanted to reassure you that it gets better!!
I am now coming to the end of my 15 radiotherapy sessions.
Sending you my best wishes.
Linda x
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after waiting 5hrs to be discharged yesterday i finally got home at 10pm. Had to go back to the hospital today for my INR taking so i can go backon to warfarin. Breast is actually ok, stil sore under the armpit, but much better than i thought
The C Diff, i now have antibiotics, for ten days, i am quite tired but its nothing new for me been in and out of the damn things so much its normal. Back at the breast clinic next Tuesday
Thank you all for the kind words
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Your own bed ……. and loo - nowt better ;)
Sleep tight!
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Glad you are back home blossom. I thought that you were having a full mastectomy which does take longer to recover from but it seems from your post that you had a lumpectomy which should make things a bit easier for you?
So sorry about the C.Diff. It's such a horrible thing. Have you been given advice about stopping the spread to other members of your family or close friends who may be looking after you?
Taz x
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Hope that you have felt better today …….. rest as much as possible. Are you getting up-dates on how the pets are?
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I had a full mastectomy in on the Monday out on the Tuesday back in on the Saturday out on the Tuesday
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Glad to hear that you are home. Nothing like the comfort of that.
Is it easier to contain Cdiff as you have a stoma bag, or was that reversed....sorry I can't remember.
Hopefully now you are on the road to recovery.
Honeybun
X
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Stoma no problem
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Oh well that's good. My step father had one latterly and found it quite difficult but he was elderly.
Have you discovered what your further treatement will be.
Honeybun
X
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Just catching up with this thread and wanting to give :hug: to Blossom and hope you are on the road to recovery now.
Also :foryou: for LindyLoulou for enduring your treatment which is now near or at an end?
Hurdity x
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Try to eat as healthy as u can to build up ur immunity and yes as lind said live yoghurt wud be good lovely with mashed banana.
St xx
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A good probiotic is always beneficial. Boosts the immune system.
How do things look now, I think you are very brave looking in the first place. My SIL had to wait two weeks before she could see anything at all. I remember her telling me that was the longest time. She chose not to have reconstruction when the time came. She thought long and hard and decided she was comfortable with things the way they were.
Of course we are all different.
Honeybun
X
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Thank you Hurdity, my last two radiotherapies Monday and Tuesday.
Linda xx
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I looked immediately the bandage could be lifted ::)
However: mammogram 1 day and out the next :-\ - I had drains for 7 days ……..
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Drain was in 24hrs didn't need pain relief as I do have a high pain threshold. I always compare pain now to my peritonitis. Which is a good benchmark!
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Lindy Lou that's good news
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Glad to hear your home Blossom :) Hows the horsey? sending you lots of hugs xxxxx
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Thank you so much for your good wishes ladies. So pleased to hear you are home again Blossom, onwards and upwards!!
Linda
xx
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Finally been waiting for it and the menopause symptoms are returning the lethargic times just wanting to sleep. Bad memory and foggy head no more please! Give me a bloody break
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Hi everyone I've been for my results of my mastectomy and I'm trying to come away positively. Removal of breast has got rid of the cancer. They noted a few cells on joth lymph nodes so the next appointment is with the oncologist with my options
The cancer is slow stage 2 and plan is not to remove the other nodes but use radiotherapy on breast and arm pit. Also give me tablets too. In addition if necessary chemotherapy. All of this is a belt and braces preventative treatment.
I'm trying so hard to be positive and think Good things and really be come on sort of thing but am in limbo. The chemotherapy has upset me but won't know if it's necessary until I go back
It's time in my life I'm actually scared
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:hug:
You can't get enough hugs! You will get through this, bravely, because you can't be brave if you're not scared. I hope you have plenty of family and friends around.
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sending you lots of huggggggssssss xxxxx
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Thank you. Today I've booked to see my nutritionist see what I can do with my diet. Which is a start. Restart my power walking but only a few times a week. Keep on top of things and busy
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Hi blossom. Thinking of you. Yoga and mindful meditaton may be useful to you just now.
Linsey x
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Hi blossom, sending u hugs, such a stressful time but it will pass, questions will be answered, treatments finished and you will look back and wonder how you got through it! Until then take one day at a time try not to look too far ahead.....not easy all of the time! Are there any cancer charities in your area for you to avail of free therapies such as massage, reflexology or counselling if u want it? Also the charity Breast cancer care have a support line that u can ring and arrange to speak to someone who has had a similar breast c to yourself OR if you just need to talk.
Take care x
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I have an appointment next week with the oncologist for a discussion on treatment options
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I've just read an article in the DM about Anastacia who was ten years ago diagnosed with breast cancer also suffers from Crohns and then had secondary cancer and mastectomy. What an inspiration there is someone out there with Crohns and had breast cancer like me
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Hi blossom, there are probably more women than you can imagine. Is there Crohns forum that you could ask that question?
How are you today?
Linsey x
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Hi
I dip into tired then a burst of ok. My chest is driving me nuts with the nerve sensation coming back it's like continuous pins and needles. My armpit and arm are still sore but nowhere near as bad. I think I'm subconsciously stressed but trying to manage my way through it
I am at the IBD clinic tomorrow and Oncology Thursday afternoon and Thursday morning Anticoagulant clinic
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Guys I start my chemotherapy on 13 November, quite a hurdle to get over but it will be done. Been busy sorting out medications and wigs, and all other hospital visits etc
Today was a good day and I passed my Mod 2 motorcycle test so now I can wear the big pants and ride the big bikes, I'm grinning from ear to ear
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Well done blossom. X
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Congratulations on passing your test! So pleased you have some good news in amongst the not-so-good
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Thank you. A little grit and determination goes a long way
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"Hi everyone I've been for my results of my mastectomy and I'm trying to come away positively. Removal of breast has got rid of the cancer. They noted a few cells on joth lymph nodes so the next appointment is with the oncologist with my options
The cancer is slow stage 2 and plan is not to remove the other nodes but use radiotherapy on breast and arm pit. Also give me tablets too. In addition if necessary chemotherapy. All of this is a belt and braces preventative treatment. "
Chemotherapy or radiation treatment :-\.
From what you initially said, you were going to have radiation treatment which is how I was treated, as a preventative measure. My lymph nodes were clear ……… fortunately. I was never offered chemo because it wasn't necessary. I did have 4 weeks radiation treatment - initially the Ongologist measured where I would need the laser beam to guide the radio-beam and I was given 3 small tattoos …….. and a steroid cream as the area became sunburnt. Not badly but required treatment. I went every week day at the same time. It took longer to get undressed than to have the treatment ::)
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Have you had your radiotherapy already?
Taz x :hug:
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No I start Chemotherapy on 13 November with 6 sessions followed by radiotherapy then hormone treatment that's all I know
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Oh well done, did riding a bike not hurt your wound site. Be careful you wouldn't want to do any damage.
Honeyb
x
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Hopefully you wont get too many side effects from the chemo. The nausea is always talked about but you will be given anti sickness medication to help counteract that. It's important to rest as much as possible and to keep away from bugs too. Will you be able to stay off work during this time? At least it will be spring and better weather by the time it's finished. It's also good that you can have hormone treatment.
Taz x
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Why did the Oncologist suggest chemo. :-\ ……… I had precautionary radiation to swamp any cells that might have been let lose during 2 lots of surgery. Followed by Tamoxifin.
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What stage was your cancer CLKD? Blossom's is Stage 2 which often needs both approaches following a mastectomy.
Taz x
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To be honest I can't remember ::) ……. I always said that I wouldn't have chemo due to awful side effects :-\, that Tamoxifen was bad enough :-\
There are cold caps which can stop hair loss Blossom - your Support Nurse or Oncologist should have suggested that to you.
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The cold caps are certainly worth trying although they do lengthen each session. Worth a go though.
Taz x
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I have been offered cold cap and going to try it or at least give it a go. My oncologist strongly recommend the chemo as it increased the chances of it returning in my favour. For the sake of six months I'm willing to take it on.
I've had a lot of pain and plenty of bad side effects last two years. This is going to be much the same I'm used to it
I will be working I live on my own bills have to be paid
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I think that you are entitled to sick pay etc. Blossom. My friend got a lot of help from CAB - they sorted out stuff for her. She had the whole of the eight months off. You may find that as the chemo goes on you will not be able to work for some of the time due to the extreme fatigue. Find out as much as you can re what you are entitled to as nobody will come looking for you to hand it over!http://www.cancerresearchuk.org/about-cancer/cancers-in-general/treatment/chemotherapy/living/everyday-life-during-chemotherapy
Taz
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You may find that you are unable to continue working :-\ ………. there will be days when you are tired and others when you are in treatment …….. followed by the need to sleep. I think you need to talk to the Breast Care Nurse or Macmillan about what to expect ………
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That's true but I'm going to carry on as normal as best I can. Maybe naive on my part but I will soon find out
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Not naïve at all - it's good to stay positive. (Though it would be sensible to have contingency plans available for tough days) I know a couple of people who have breezed through their treatment so well that no one has even known they were having it! And others who have only felt slightly unwell. So it doesn't automatically mean a terrible ordeal - like anything, different people have different reactions to the same process.
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Thank you Dorothy
It's my last day in the Isle of Skye back home tomorrow such s beautiful place here weather has been fantastic too. So relaxing and tranquil with a view so lovely too
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It sounds lovely! You really needed a good break - sounds as if you have had one.
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Hi Blossom, hope things are going well for you. Anastasia was interviewed on Radio 5 Live this afternoon. I didn't get to listen but will do so on playback or whatever it is called. I know you said what an inspiring lady she is having gone through two bouts of breast cancer and also copes with a heart complaint. Thought I'd let you know in case you missed it and wanted to listen.
Lindyloulou
xx
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I saw her on breakfast TV she was really good, she has had Cancer and also suffers from Crohns. I think she has had a double mastectomy as well, brave lady
I start my chemo on Friday
I was back at work yesterday so we shall see how things progress
Oh and I passed my motorbike test and bought my new bike which arrives Saturday
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Good luck for Friday and well done you!! :clapping: :clapping: :clapping:
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First lot of chemotherapy today and tried the cold cap. Been awake since 3:30am today so rather tired. Slight nausea but think it's just the enormity of the day. Managed the cold cap for 3.5hrs not pleasant but did it. Whether it works is another thing
Next lot three weeks time I hope I cope for the next three weeks and get my head back on track
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Hi Blossom, was wondering how you got on. Hope you sleep tonight, keep us posted on you cope with your treatment cycles.
Linsey x
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Well done,that's one down and over,sleep well .
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Well done Blossom, look after yourself, and good on you for managing the cold cap! I couldn't cope with it!
Lindyloulou xx
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Lindylou how are you getting on?
Linsey x
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Saturday was ok went out for a bit of fresh air had a couple of nausea waves but it passed. Saturday evening and Sunday morning proper nausea and Crohns kicking in as the meno too it was tough. I rested but it wasn't going away and then the vomiting started and runs to the toilet. I was shattered.
This carried on most of the evening until I dropped off. Took my medication and doubled up in it. Waking every two hours with hot flushes and sickness in to Monday. I was shattered again. As I was going through Monday it was easing a bit and I ventured out I was damn well hungry too. Made a chicken dinner as I barely ate yesterday. I am quite happy with today compared to yesterday that was horrible
It's early days and still a long way to go.
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:hug:
Sounds like your weekend was horrible for you but great to hear you are picking up again now :foryou:
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Hi Dazned, sorry you had such a horrid weekend, hopefully you will pick up quickly again.
Linsey x
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Sorry you had such a rough time Blossom - glad you are feeling a bit better.
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Hi Dazned, sorry you had such a horrid weekend, hopefully you will pick up quickly again.
Linsey - Did you mean to type Dazned?
I'm sure she appreciates your thoughts though :)
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Blossom - over the next few days you will hopefully start to pick up again. Have you watched Victoria Derbyshire's video blog about her first chemo?
Linsey - Thanks for asking. I am doing ok thank you. Still very tired after the radiotherapy, but that is all the treatment done, apart from the three weekly herceptin injections for a year (which seems to make me very low for a few days) and anastrazole which I will take daily for 5 years!
Spoke to my dr today about going back to work on 12 January! Eeeek, has made me feel a little unsettled, but I know I want to go back and see how things go before making any big decisions on my future.
Lindylou
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Sorry meant to type blossom. Had read dazned post just before i started to type. Meno brain and blocked sinus.
Lindylou, think carefully when you return. My friend returned to work after BC treatment and has gone off again, too much going on and she got stressed. She was much more tired than she thought she would be. Her treatment finished 5 months ago. Initially her desire to get back to normal drove her to returning but her body hasnt kept up.
Everyone is different and you may be ok, take it easy.
Blossom hope you are better again today.
Lunsey x
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Hi ladies. Picked up a bit yesterday took my steroids and anti sickness which eased things. I only woke twice last night so went into work as I felt OK. Stayed until 1pm then went home. Started to feel tired and a bit sick also my Crohns was gaining me a bit of grief. Rested a bit then had a small dinner left it about an hour and finished the rest. Feel ok which I am pleased about
Tomorrow could be very different
LindyLouLou hope you are ok
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Well done Blossom pleased to hear you are feeling a bit better. I admire you for going into work, you must be made of sterner stuff than me!!
I'm feeling ok thanks, very tired still, and already thinking (worrying!) about return to work in January! But as advised I will take things slowly.
Lindylou
xx
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I don't know about that. Think it caught up with me yesterday had it pretty rough. Anyway tomorrow is another day
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How you doing Blossom?
Lindylou
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I'm back in hospital I picked up an infection and developed massive ulcers and a high temperature. Been struggling to eat and drink. Think I will be in a few days then home
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Hope you recover soon Blossom. Maybe you could rethink the idea of working through this? It really is time to just be kind to your body while it is undergoing the treatment. Concentrate on you. Rest. Eat healthily etc. I've seen enough friends go through this to see that the ones who did that fared better than the ones who carried on working and put their body under additional stress let alone the exposure to different bugs while their immune system was not so good. It's not giving in it's giving yourself the best possible chance to get better.
Taz
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Oh dear sorry to hear that Blossom. I agree with TAZ, you need to look after yourself. Hope you are out soon.
Lindylou
x
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Thank you ladies. There keeping me in a couple more days. Not in as much pain but still uncomfortable. Still on injections with anti biotics now taking protein and calorie drinks. My food is mushed up lol. But boy am I hungry
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Hope you are feeling better soon - it's good that you are so hungry - I've had some friends who find it hard to eat during their treatment as they lose appetite so keep that hunger going!
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It's now Monday and I'm still here. Fingers crossed I can go home today. Chemotherapy put back a few days was due 3 December. If I went ahead this Thursday it's likely I will end up where I currently reside
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Hope you managed to get home Blossom22 and good luck with the treatment whenever it starts?
Hurdity x
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Hi Blossom, wondered how you were doing now?
Linda x
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Had second lot of chemotherapy and boy was I sick the same night. All weekend and most of this week. Went to work yesterday and today. Unfortunately my mouth is starting to get sore again. I've just had a good old cry I'm so down its such a struggle. I've not felt great all day, mouth sore, nausea, tiredness, emotional, many trips to toilet with my crohns and bag leaks three times so changing that. It's too much some days. Sleeplessness too
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Ooh Blosom no wonder you have cried, its so much to cope with. :foryou:
If it was just chemo that would be bad enough, but crohns and meno on top of that, im really feeling for you.
My friend said bananas on toast were her comfort food, like you she had a really rough time and took reactions to chemo. The way it was delivered changed, she got smaller doses every week instead of a big dose every 3 wks and coped much better. Have the hosptal suggested anything to help. Are the anti nausea tabs not doing any good at all?
Do you need to go to work or are you glad of the distraction. With all the bugs going round its maybe not such a good idea, your body has enough to cope with.
Linsey x
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Sorry to hear you've not been too good on the chemo plus the digestive problems as well. Being sick is horrible, I was violently sick this morning with the gallstone saga so I do sympathise.
Sounds like a good idea to ask about smaller doses which you maybe able to cope with better.
I think distractions are good otherwise the mind just focuses on feeling unwell. Hope you get some relief soon. Take care
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New year eve is my last large dose I then go on to smaller weekly ones. I had a rotten night last night. I feel hungover this morning. Head banging and mouth sore too. I've taken some additions meds for the sore mouth this morning and paracetamol for headache. I admit headache is due to my crying last
I'm not having a good day. Been pretty miserable and my mouth is becoming sore again. I've been in the bathroom using a medicated mouth wash to help ease it. I looked in my big mirror and didn't recognise the person I saw. It saddened me. I look dreadful. I looked at my stained pyjama top one of many because of bag leaks. And saw just one breast. I then saw an inflated bag that needed changing. I then saw a bruised tummy from all the injections I have. I then looked at my pyjama bottoms that don't match and they too were stained. I don't have matching pairs because I have had to throw so many away. I looked at me in the mirror and thought I don't see me anymore it's just a thing. A skinny, tramp mess scarred and slipping into mentally fragile. I then ask why me? What have I done? I take another slurp of mouthwash. Go back to bed. Have another injection and add to my bruised tummy. Hoping my bag don't leak and I get at least three hours sleep
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:bighug:
Keep hold of this thought. This too will pass. It is temporary.
You are still there, that essential, beautiful you. This is a journey, a journey that at times is horrible, but you will get through it.
Keep posting. We are here cheering you on. I send you love. Ju Ju xx
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Hello Blossom22.
I've only just caught up with this thread and I wanted to agree with everything Ju Ju has said.
Sending hugs and warm thoughts.
K.
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Thank you I will
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Blossom, I have no personal experience of this so can't be of much help but I just wanted to say I had a friend who had a very similar diagnosis and treatment as your 15 months ago and she has come out the other end. So do hang in there and know there is light at the end of the tunnel and there are a lot of ladies on this site thinking of you x
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Hi
Just wanted to send you a hug, you are having to cope with so much at the moment. A friend had bc a couple of years ago and now she is back and bouncing around, so hang in there.
With the nausea did they give you anything for it? The doc gave me some wafers which you just dissolve in your mouth and apparently it disappears within minutes, the pharmacist said they were a pretty amazing drug. If you want the name just send me a message.
Take care...
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You are going through the mill but ladies on here are so right you will come through and probably stronger for it! Nusy wantrd to say you are in my thoughts x
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Hi Blossom - just wanted to say how sorry I am that you have been through all this and I hope you will soon be feeling much, much better. Thinking of you. Jenna xxx :foryou:
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Sending you loads of love and hugs blossom
Xxxx Lindyloo
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Oh Blossom, so sorry to read your post. My thoughts and prayers are with you and I really hope you feel better soon.
Keep posting xx
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So sorry to hear you are so low Blossom. I cried buckets during and after my treatment - sometimes that is all I felt like doing. I used to look at myself in the mirror and wonder what had happened to the person I was. I still have bad days and reading your posts brought tears to my eyes as it does bring it all back. But however dreadful it all seems at the moment you will get through it and it does get better!! I know how difficult it is but try to hold on to that thought!
Lots of love and hope you will pick up again over Christmas.
Linda xx
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Hi Blossom, any improvent in how you are feeling?
Just to add to what lindy lou lou said, my friend had a hard time accepting the ravages of chemo to her appearance. This is temporary.
This will pass, so please try and not focus on the short term but say to yourself in 3 months time my hair and eyelashes etc will be starting to grow, just in time for spring. Focus on the future, my friend said this helped her a lot.
Maybe try fever tree ginger beer which has a bit of a kick or the milder ginger ale, might help,your nausea.
Take it easy
Linsey x
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Hi Blossom
Sending you loads of hugs xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx ;D
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Thinking of you Blossom as you go through your final big dose - hope all goes well and the smaller doses in the new year are easier to cope with.
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Apologies it has been awhile but I have been so poorly over the last few weeks since new years eve it's been quite a traumatic time. I have found it difficult to just cope with the everyday things on the mundane things. Just as I thought I was getting on well my ulcers have returned so can barely speak or eat or drink.
I hardly sleep and suffered a bit with anxiety. Roll on end of March
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So sorry Blossom - sending you big hugs. Hope you feel better soon & get some sleep. Hang on to how far you have come - you are doing amazingly well, even if you don't feel like you are.
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:foryou: and well done you !
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:foryou:
Thinking of you.
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:foryou: Hang in there Blossom22
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It will come Blossom, it seems such a long journey at the time, but then suddenly its over and you can't believe where the time went. I went on a phased return to work this week, just Mon and Tues morning. I find it incredible that nearly a year has passed since my diagnosis, 2015 is a year I would like to erase from my memory, but strangely I can also think of it as an achievement that I got through it all, especially with my health anxiety! Of course we will still have the check ups etc as a continual reminder, but I never thought I would ever get back to some sort of normality, (whatever that was!), but I have and you will too.
Linda xx
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Hello Blossom, been thinking of you and hope everything is going ok for you.
Linda xx