Menopause Matters Forum
Menopause Discussion => Postmenopause => Topic started by: Maltesers on July 06, 2024, 11:51:34 PM
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I’ve been using Vagifem twice a week for several years, due to vaginal dryness. Two months ago I developed vulval pain and a constant need to pee and I was prescribed steroid cream to use for a week, together with estriol for external use. I was also advised to wash and moisturise with hydromol. Things improved over a few weeks. However, it all flared up again and despite reloading my Vagifem and using estriol night and morning, nothing is helping. The vulval pain, the feeling of pressure and the need to pee are awful. I can’t sleep and can focus on nothing but my discomfort. Can anyone suggest anything that might help? I feel like I’ve been doing everything to sort this and nothing is helping.
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Have you been checked for UTI and thrush? Did the doctor examine you for prolapse? Did things improve with daily use but got worse when you reduced the dosage again, you may need to use Vagifem and estriol daily.
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Thanks, Deirdre. The doctor said there was no sign of thrush or prolapse. I’ve been continuing with daily Vagifem and estriol. I can’t imagine what my GP will think of that as she was very much of the “use it twice a week” school of thought, but I’ve realised from reading this forum that it’s sometimes needed. It just doesn’t seem to be helping this time.
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This sounds so uncomfortable for you. Does your vulva/vagina look inflamed and red or, despite the pain, is it normal to look at? If so could it be vulvodynia? https://www.nhs.uk/conditions/vulvodynia/
Taz x
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Morning. Twice a week is rarely enough application.
MayB try some pain relief - I use 'nurofen' 2 x 3 times a day.
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Nurofen has ibuprofen in which isn't good for the stomach and especially anybody who has gastric problems shouldn't use it regularly if at all.
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Whilst some may be unable to tolerate Nurofen, I've never had problems Jules. Paracetamol doesn't touch the sides 4 me :-\. We had 'anadin' in child and adult doses when I was growing up as well as ?? 'Panadol ?? :-\
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Thanks, Deirdre. The doctor said there was no sign of thrush or prolapse. I’ve been continuing with daily Vagifem and estriol. I can’t imagine what my GP will think of that as she was very much of the “use it twice a week” school of thought, but I’ve realised from reading this forum that it’s sometimes needed. It just doesn’t seem to be helping this time.
We had a thread by Ayesha recently regarding new guidelines for dosage and treatments for VA. Search GSM in the search box by Ayesha or Google
Position Statement for Management of Genitourinary Syndrome of the Menopause (GSM). Print this and take to your doctor, she needs updating.
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Thank you all. I really appreciate your replies. When I saw the doctor a couple of months ago she said my vulva looked normal and I think it still does. I’ve been taking paracetamol which barely touches the edge of the pain. I have a small Hiatus hernia so I’m reluctant to try nurofen, though I could take an omeprazole to offset it. I will try to get another GP appointment. Sitting and lying down are the worst so I’m exhausted walking about all the time!
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Ask about vulvodynia too as Taz suggested. VA is not usually relieved by walking around, I'd be worse with the chafing.
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Initially when I began with VA symptoms I would sit on the loo with a cup of tea and glass of water and relax. Anywhere else the need2P was intense. Plus 'nurofen' - GP eventually diagnosed VA after discussion on the 'phone, having read my notes. He was not pleased that a urine sample hadn't been sent for testing!
Did the steroid cream help at all? I've not had problems with chaffing fortunately - mayB put a dose of treatment up there this morning as well as this evening, I find an extra insert of 'ovestin' can help a lot.
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How old are you? Are you on HRT at all?
It looks to me that VA is a natural process of ageing resulting from decreased production of hormones..
There is that thing called HRT that helps greatly but for some reason more messy, insufficient products are more frequently recommended...
After eliminating any possible infections, etc. try! Estring works for me. It may for you too!
Best🤗
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I know some can tolerate ibuprofen. But nit everyone knows it's in nurofen. I was taking ibuprofen when I had flu with omeprazole on advice of a doctor even though she knew i have a hernia and IBS. I ended up with terrible stomach problems and permanent damage from the acid reflux it caused.
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I will be really cautious with the nurofen, Jules. I did take 2 tablets earlier (with an omeprazole) but I will try to stick with paracetamol. I’m 63 and not on HRT. I wish now that I was. I’ve made an appointment with a post menopause (& HRT) consultant but that’s not until august, which feels like a long way off. From my reading over the past two months, HRT may still be a possibility. The steroid cream does seem to ease it a bit, CLKD. I used it for the prescribed week (twice a day) when this first happened, 2 months ago, and I started it again with this flare up. I am definitely at my most comfortable when I’m walking or standing.
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Maltesers, the link to the thread Dierdre referred to hopefully it will help you somehow.
https://www.menopausematters.co.uk/forum/index.php/topic,69936.msg949995.html#msg949995
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On the subject of drugs like Ibuprofen and their other namesakes, its not a good thing to recommend them on a forum that is mostly about women suffering from the symptoms of aging. They are possibly the worst drug you can take for an aging body and I don't think we should be recommending them here when we give advice, they can be very damaging to your organs as we age.
My little rant over!
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Nurofen has ibuprofen in which isn't good for the stomach and especially anybody who has gastric problems shouldn't use it regularly if at all.
Absolutely, awful drugs to take and will do no good in the long term.
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I will be really cautious with the nurofen, Jules. I did take 2 tablets earlier (with an omeprazole) but I will try to stick with paracetamol. I’m 63 and not on HRT. I wish now that I was. I’ve made an appointment with a post menopause (& HRT) consultant but that’s not until august, which feels like a long way off. From my reading over the past two months, HRT may still be a possibility. The steroid cream does seem to ease it a bit, CLKD. I used it for the prescribed week (twice a day) when this first happened, 2 months ago, and I started it again with this flare up. I am definitely at my most comfortable when I’m walking or standing.
Are you doing any pelvic floor exercises? Do!!! ..otherwise all drops and stretch..
Good move with that Consultant appointment!
Best🤗
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and there we are:
'GSM is a chronic complex syndrome of multiple changes in the genitourinary tissues in response to the loss of oestrogen with menopause. The experience of atrophic symptoms varies and ranges from mild to debilitating, with effects on genitourinary function, sexual function, relationships and quality of life.'
https://www.racgp.org.au › july
Genitourinary syndrome of menopause - RACGP
“Studies have shown that around 70% of women have symptoms of GSM, yet only 7% receive treatment.'
Why?!
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Because they don't ask for it! They don't come forward and why there is so much ignorance of the condition by medics across the board. I have read research papers from here and the USA saying that women will come up with excuses not to present when suffering symptoms, the main being too embarrassed, its private, my business etc.
Personally I don't know how they can live with symptoms of GSM, it can be crippling as it was in my case and when I presented I was given three courses of antibiotics over three months and all the nurses who I knew well, didn't have a clue what was going on with me. And all I needed was oestrogen!
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I know. It's beyond my comprehension but there we are..sadly.
Well, I do not wish to have to have wear diapers, and burn like hell, so I do expect my GP come up with bit more than antibiotic after I show up with bad UTI at age of 64..! and..65...67...
:-\ >:(
:-*
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orria, thanks for the link, it didn't work but I've managed to find the article on GSM and it was good to read the Australian view on the condition. I really feel we are getting to the stage that when a mature woman presents with symptoms she is not sent away with antibiotics and those more intimate questions need to be asked.
Reading the article it seems to me medics across the world are singing from the same hymn sheet when discussing GSM.
https://www.racgp.org.au/afp/2017/july/genitourinary-syndrome-of-menopause
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Ibuprofen is what is recommended by my GP and Pharmacists. I'm 70 and never been told otherwise and it's not as though the drug needs to be taken often. What would *U* recommend Ayesha - I could take a bottle of Paracetamol for example which wouldn't relieve symptoms but would kill me :-\ and why not recommend pain relief: members recommend and give advice about other medications/experiences.
It is up to each to decide which advice may/not work at that time.
Certainly walking/standing will ease pressure .
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When I started to have muscle pain in my fifties I always took Ibuprofen until my GP told me to stop because it can cause kidney disease and stomach problems. What I take now is one paracetamol and one co-codamol to ease any painful flare up, which is not that often these days.
But even then codeine can be addictive and one needs to be aware of that but if I was giving advice here to a member I would also say take a painkiller that suits not actually mention a product name.
Why would you even mention such a thing as taking a bottle of paracetamol, that's not a very grown up thing to say and downright dangerous.
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Sorry CLKD but i was about to say the same thing re your comment about a bottle of Paracetamol. Can you withdraw it please.
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Ibuprofen is what is recommended by my GP and Pharmacists. I'm 70 and never been told otherwise and it's not as though the drug needs to be taken often. What would *U* recommend Ayesha - I could take a bottle of Paracetamol for example which wouldn't relieve symptoms but would kill me :-\ and why not recommend pain relief: members recommend and give advice about other medications/experiences.
It is up to each to decide which advice may/not work at that time.
Certainly walking/standing will ease pressure .
I commented on it because you say that same thing a lot so it gives the impression you take it regularly and it sounds like youre recommending it. I can only I only need 2 doses and I get stomach pain.
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Paracetamol can be very dangerous if too many products are taken with it in the mix. many people are un-aware of the risk. I know a girl who died, when she had 'flu she took several products including paracetamol. Her temp was high so was confused. This drug should not be available OTC.
As for anything with 'co' in the title, the 1st pill is great for me, any more and I'm :sick02: so no benefit at all ::)
I am recommending it as with many other drugs mentioned here. 4 me 2 Nurofen 3 times a day when I get the need2P eases symptoms. I have never given the impression that I take it often! I may suggest it when ladies have symptoms but that doesn't mean that I take it a lot!
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Sorry CLKD but i was about to say the same thing re your comment about a bottle of Paracetamol. Can you withdraw it please.
CLKD let’s hope someone in a fragile state hasn’t acted on that information you’ve given on a public forum this afternoon.
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orria, thanks for the link, it didn't work but I've managed to find the article on GSM and it was good to read the Australian view on the condition. I really feel we are getting to the stage that when a mature woman presents with symptoms she is not sent away with antibiotics and those more intimate questions need to be asked.
Reading the article it seems to me medics across the world are singing from the same hymn sheet when discussing GSM.
https://www.racgp.org.au/afp/2017/july/genitourinary-syndrome-of-menopause
Try and browse, go onto NHS Inform pages about UTI and bladder issues, and you'll get all sorts of causes listed eg bacteria, infection, cystic fibrosis, etc., but not single one mention of role of hormones!!!
!
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Thanks again to all of you for your support and for the benefit of your experience. I have read everything you have linked and referred to and it is all really helpful. I keep thinking of the generations of women who must have suffered from this awful condition without help. Hopefully information and solutions will continue to improve for us all.
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Paracetamol can be very dangerous if too many products are taken with it in the mix. many people are un-aware of the risk. I know a girl who died, when she had 'flu she took several products including paracetamol. Her temp was high so was confused. This drug should not be available OTC.
As for anything with 'co' in the title, the 1st pill is great for me, any more and I'm :sick02: so no benefit at all ::)
I am recommending it as with many other drugs mentioned here. 4 me 2 Nurofen 3 times a day when I get the need2P eases symptoms. I have never given the impression that I take it often! I may suggest it when ladies have symptoms but that doesn't mean that I take it a lot!
Any drugs taken whilst confused are harmful and anybody mixing drugs without checking must know its harmful. And Im sure we all can recall a tragic story of people self medicating. I think you are going way off the original point now. I dont see anybody recommending a specific brand of drug on here. I have an irreversible condition caused by chronic acide reflux which culminated in me having taken ibuprofen 3 times a day when I had flu. My son got a stomach ulcer from taking ibuprofen. I just didnt want anybody else who didnt know the effects on the stomach, to end up with the same. I do know you take 2 Nurofen 3 times a day when you get the need2P.
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I've had this too I've been threw lots of tests nothing was found so I decided to not use anything in the bath but feminine wash and only a very little from super drugs own make unscented I use it on my body too and I never wash my hair Wen I'm washing my body I use sensitive washing powder and conditioner make sure I rinse really well I still have it occasionally but it's much better I think I was sensitive and because I was becoming dry it was making it much worse sometimes I've gou d certain foods flare me up too so I don't know if it's all connected like me but anything is worth trying because I know it's awfull living eith it
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Hi Tracy. Which foods have you identified as causing flare ups for you? I’m very careful with shower products and use only gentle washing powder. I’ve been doing strange leaning and stretching to try to avoid shampoo touching my body but maybe I should try hair washing at the basin!