Menopause Matters Forum
Menopause Discussion => All things menopause => Topic started by: Dorothy Gale on October 12, 2023, 05:10:43 PM
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So my new peri delight is a very high pressure/fullness in ears along with pretty bad pain and and tinitus....the pain radiates into my jaw, face neck, gums....very clicky noises in ears (eustation issues)
I have blocked up stuffy sinuses too...
I've always struggled with these symptoms prior to peri (never infection) just that muffled blocked feeling/sinus congestion/allergies....not pain tho or ever infection. Now it's due to hormonal change.. I feel powerless as usually I just deal with it with the usual stuff and it passes.....
I know peri makes all these areas dry up and be extra prone to these symptoms....
But the pressure in my ears and the pain is pretty unbearable.
Seems peri likes to go for your weak points...
I've definitely noticed I'm so much drier in my mouth, nose eyes etc...of late.
Had ears checked. Left one OK. Right one has otitis externa (ear infection) which at least accounts for some of my pain and misery....
But I just feel these head symptoms are a struggle. Getting me down trying to unpick why...I think TMJ might play a part too...
Anyone else? Advice? Suggestions? Will it ebb and flow?.....(NB. I'm bedridden so cannot go to specialists etc...a nurse came to my house to check my ears)
Can't cope with this for months on end.....
Cheers me dears xxxxx
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Hey.
I have this. Was one of my first peri symptoms. Full ears. Awful. Sometimes painful. Now ebbs and flows along with my ups and downs of my cycle, plus whatever I may be changing in an attempt to bring balance. :(
Also get sinus headaches, again, depending on what I try, I van I crease their frequency or decrease. I tried the mini pill in the summer - daily sinus headaches.
For me it's all hormonal. I'm sorry you're experiencing this too.
Perhaps when the ear infection clears, things will feel better. Xx
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'full' is a good description. As we age the Eustachian tubes may narrow, plus I've been told recently by an ear specialist that mine canals are hairy :o ::). Which made wax removal very difficult as he was unable to see into the drum.
I've had allergic rhinitis for many years and currently, have that irritating constant clearing-throat cough :(. It went for a few months this year after I cut out hidden sugars, now I have to go through my daily diet: again : to find out what I've added that might B causing it. I will start with cutting out dried blueberries .......
Does pain relief help at all? I get a sudden nip which makes me go 'ouch' >:(. ?? drops ??
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Thank you so much for taking the time to reply and support xxxxx
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How is the pain this morning?
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Thanks for asking.
It's really hurting in my ear where the infection is and radiating into my face, jaw, gums....hurts to chew/talk. Partner picked up the ear drops this morning that I've been prescribed.
I'm exhausted trying to work out what's causing what pain wise...
I got an inflamed gum 2 weeks ago where my wisdom tooth used be...
I'm worried it's a TMJ joint issue possibly causing pain too in that area of right side of face where all my current pain is? But I'm guessing
I've read so much about perimenopause causing all these issues, ear problems, infections, TMJ, oral health issues....that I'm in a total mess worrying 24/7........
I feel so out of control of my body now...is it perimenopause? Most things I get these days are....having had M.E/CfS for 30 years...I'm used to no one being able to help me or make me better as there is no cure.........and when I'm getting all these new symptoms now.....I feel powerless to work out why.....ad my body is so complex and I'm not your average healthy lady who's 'only' issue is perimenopause. It's so hard.
I'm dealing with so much. Having M.E, and not being able to nip to a dentist etc
When you tell medical professionals you think it's perimenopause related they look at you like you're an idiot. You try to explain but they dismiss it.
My partner/carer is busy dealing with his brothers recent sudden death. I can't bother him with my worries...he's at capacity and already feels guilty he has not been there as much for me but obvs he's going through a terrible time.
Really down :(
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Sorry to hear about the sudden death in your family. Always a shock, even if it's expected :foryou: Tell him that he needs to focus on immediate family matters, there's no guilt required.
Interesting that the wisdom socket was inflamed. Years++ after mine were removed, they would become sore then so painful that I was unable to eat for several days, always cyclical. Can't remember where in the cycle though. Some could have done a Thesis on my wisdom sockets!
A dentist would be able to diagnose TMJ issues. If U R housebound an appt would make it difficult. R U able to open/close your mouth without it locking? If you do, how painful is the area affected?
Not many medics are aware of how hormonal upheaval can affect us >:(. Unless they live with a perimenopausal woman ;-).
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Bless your heart for reaching out. I'm in bed here, alone as partner with his mum arranging funeral and someone there helps :love:
Thanks for your kindness for my lovely man. He's amazing.
That's so interesting you had an issue with your wisdom tooth socket too and makes me think. I had mine removed 6 years ago, but the roots were left in (coronectomy) I was wondering if the roots were migrating or such like....NEVER had any issues with it in 6 years......and thought it incredibly weird it suddenly got all inflamed and infected looking...then thought....must be flipping perimenopause!!........
But I don't want to umbrella everything under that......its impossible to know though.....
But that has given me some comfort.
Jaw doesn't lock. I had TMJ issues on my left side 4 years ago. I got a night guard and it's left me with a horrid permanent loud crunching noise when I open my mouth. No pain or anything. I've just got used to the crunching noise.
Maybe the pain in right jaw/side of face is refered from ear? It's all the right side causing issues....I'll see how I get on and re evaluate.
Thank you for being so kind.
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Referred pain can be a nuisance!
As we age muscles may recede so it is possible that the pain experienced in the socket may well be that: teeth as the long bones require something to 'work upon' to keep the jaw healthy. As oestrogen: the elasticity of the body: drops off, muscles may become lax and the body dry: inside and out. It's The Change >:(
I have probably asked B4 but menobrain here can't remember: what support do you get on a daily basis other than OH?
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Thanks.
No other support at home except my partner. But that's fine and all I need.
I am in touch with gp, nurses, mental health team if I need.
So all bases are covered.
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And U have us ;) :foryou:
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Yes thank you xxxx
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CLKD,
Sorry to bother you again.
Did you know your wisdom tooth issue was hormonal.....or did you first do the multiple trips to dentist thinking there MUST be something wrong......to be told everything looks fine?
I'm really beginning to be convinced my issue is hormonal in my wisdom tooth socket AND my ears.....as never had issue before and rather coincidental I'm in perimenopause.
But if you say to a dentist it's hormonal....would they dismiss it like most medics do?
I'm SO OVER THIS. Just beside myself every day.
Thank you x
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I never discussed the cyclical pain in the 3 wisdom tooth sockets, it was over 30 years later that I talked to our dental surgeon. He seems 2B aware of hormonal input and wished that he could have done the Thesis ::). 1 was removed in the surgery where we lived at the time, the other 2 pulled out under GA in Swansea, 1981-ish ..... due to the way my roots crawl around.
It was pre-period to the point that I was unable to eat. It was SO painful. So yes, certainly hormonally linked.
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Thank you so much for replying. Its very good of you.
I see.....I misunderstood that your issues were during your perimenopause or menopause.........but clearly, hormonal regardless.
All very interesting.
Thank you for your support. I'm hugely grateful x
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It was a while B4 I realised that every month, DH had to sieve my food as he had done following wisdom teeth removal. Being in a busy job I didn't think to offer my Big Gob to a Student, now some1 may have benefitted.
Hopefully the drops will give some relief. How about a warm hot bottle?
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The drops (otomize) are proving to make the pain worse...I've been crying in agony all afternoon.
I rang the pharmacist and he said this can happen. I might be sensitive to them, they might not suit or be causing a bad reation....and if this continues tomorrow to seek further help.
It's just typical. Nothing ever goes straightforward with me.
I'm in so much pain in my ear....into my side of face....into my wisdom tooth socket.....hurts to talk....literally had enough and poor partner came home to a mess of a girl.....when he's been arranging a funeral.
Its just so cr*p.
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I remember as a child when I got itching deep in the ears I would put a little water to try to ease it, then would get tremendous ear ache. I think that the water impacted any wax down there: perhaps making it harder or if softer allowing it to move impact on the drum ? : so I wouldn't use any more drops ..... nothing should cause more pain.
Hopefully a hug from OH helped a bit?
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Thanks.
I was awake most of night. Panic attacks coz I'm scared how this infection will get better? as it's clearly hormone related and I can't magic estrogen back. (Don't say take HRT. I can't go down that rabbit hole at moment)
I'm scared I'll be left with this awful pain?.....
I feel terrified constantly how issues I had before always resolved coz my body wasn't 'changing'.......now I think nothing can heal like it used to......or am I wrong?
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Probably wrong. Your brain has gone into panic mode. So logic flies out the window ::). The body usually heals itself though deep in the ears is a real germ trap.
Do the ears feel blocked? MayB blow your nose very gently to see if it eases any congestion in the Eustachion tubes. Is it better when laying down or propped up?
Ear ache is awful. What did U decide about continuing with the drops?
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Thanks for replying. You're so kind.
I always panic. It's my default setting which has got way worse since peri. I always think the worst. Worlds worst health catastrophiser.
I decided to stick with the drops just for today like the pharmacist said as its all I've got...I haven't the energy to start ringing 111.
It feels more blocked since the drops, slightly more fuller and painful....pain referring into my face/jaw and hurts to talk/chew...
I have no idea really what's going on. I just know it's mega painful and it sounds all clicky when I swallow so I know my eustation is blocked...in normal circumstances I always have this clickyness as I struggle with blocked sinuses etc but since I've dried up I think my weakness of this issue has been pounced upon..
I have ordered some natural sea water sinus wash. I was given steroid nasal spray to help reduce inflammation in eustation tube but I'm not keen on them.
Anyway....it can't last forever!!
Thank you kindly x
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If you have the steroid nasal spray use it for 24 hours. I find the 'beconase' helps my allergic rhinitis a lot, otherwise I am constantly scratching the roof of my mouth with my tongue [if that makes sense :-\]. Once a day is enough 4 me, you may find relief ; two squirts morning and night ; until the salt water arrives. Don't get hung up on the word 'steroid', it's a good medication when required.
I've lost my beconase spray which I used on Tuesday morning >:(
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OK just done it now. Its called Mometasone.
Thank you for your support. You've been so kind to me x :thankyou:
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That's OK. It's about making suggestions that can be used or put 2 one side for later consideration.
Still haven't found my Beconase so have a phial of something that was banned a few years back, can't remember the name ::). Oh 'Karvol' ;D. I bought lots B4 it went off the market ;-)
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Just needed to come back to get out my feelings.
Today I feel utter overwhelm. Total and utter overwhelm.
These new peri symptoms (blocked painful ears, infection and gum issues) aswell as a recent family bereavement, have sent me over the edge.
I'm bedridden with an already awful illness (M.E) and dealing with peri now is just too much. I try so hard to cope with it all...as each horrid symptom arrives....
I'm a very strong girl. I've had chronic ill health for 30 years and half of that bedridden.
I cope with it all ...I'm proud of myself for coping with all this....
But the last few weeks I've really started to dread waking up to face it all... I know blocked painful ears and infection...isn't the end if the world but its really distressing and too much now. When I lie down to rest or lie on my side, the pressure builds in my ears, I think it the draining of the eustation tubes? I suffered with this over the years but now its hormones making it worse, I feel powerless to it....the drying up of my membranes is making things I suffered with before...much worse now and I've had enough.
.....I'm literally thinking 'the symptoms just are relentless. I think it can't get worse and it does' I'm dreading my future, I dread every day...
I used to have somewhat quality of life before all this...........since I got covid in Feb then perimenopause....my quality of life, my ability, mobility, capability has all gone.
I'm doing all I can. I have all the help I can get. I'm not doing HRT I have my reasons so don't worry suggesting it.
All I wanted to do here is get off my chest that I'm struggling to see any future that's not just full of feeling awful and not myself anymore.
I'm sure some of you will relate? I just feel it's hard enough being bedridden and ill already without all this. I can't just nip for a walk, or meet my friends ..I have no life.
I feel completely out of control of my own body now, at the mercy of menopause and my body has been through enough in its life....I feel I cannot do anything as its out of my hands now I'm at this age...
Anyway. There's nothing more anyone can do medically before you ask.
Just needed to vent as my partner has enough to worry about
Thanks for listening xxxx
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Sorry late to this been out then fell asleep ::)
The feeling of being trapped adds to anxiety levels. Did U use the drops anymore? Hormonal upheavals can take the mat under our feet regardless of other health issues. Plus the sudden death that your OH is dealing with is new, full on and encompassing.
As oestrogen levels drop so gums may recede = the loss of teeth. I was advised to use those Tip-pee stick things between my teeth as often as possible as well as making sure that I chew well, to give the jaw exercise = healthy bone. A complete nuisance but necessary.
This too will pass. Did U sleep at all?
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Hi
It's kind of you to help again. I wasn't expecting anyone to....I just needed to vent. So don't worry
You're so kind and very right in all you say.
The drops now seem to be helping. They don't cause extra pain when I put them in and I think are helping the infection.
I slept OK thank you. I can't sleep on my right side these days due to joint pain and all the pain in my infected ear means I cannot sleep on that side.
....But upon waking my left ear was blocked and painful as obvs I'm now only sleeping on my left....and I think my blocked sinuses etc are causing pressure build up when I sleep...(but am convinced peri now causing this issue to flare now) so I woke up blocked and this causes me to panic I can't bear my ears blocked and painful. I feel so claustrophobic and it throws you off.
I've been on my own all day as partner has so much to sort back in our home town (where we used to live 60 miles away) we moved last year to the countryside but all our family are back there..
So I've just been getting more anxious all day about these new ear issues and pain...I always get really really overly anxious when new health things happen as I can't cope with anything else.
It's all the unknowns....brain constantly trying to think what I can do, how long will these ear issues go on? Are they gonna be a daily issue now? how will I cope,...
Sorry............its just hard on my own
Xxxx
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Of course it's hard especially in the early hours or first thing. Has the pain become any worse? If the drops are helping to soften any wax that will help to allow more movement down there so that ti doesn't feel as blocked.
Could you try nuerofen [sp] type cream on the painful jaw area? To rub in gently?
My ears often feel blocked in the mornings as I have allergic rhinitis, made worse in the bedroom which probably requires hoovering more often ::). A change of body temperature can also block my nose and ears, especially at this time of year when the temps are up and down so suddenly. I have to put my little finger into the ear and wriggle. Hard. To clear any feelings of wax. ::)
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I also go straight into panic mode about health and it's really exhausting. I was prescribed optimize drops during lockdown because of long standing ear pain. They really made it worse and gave me a buzzing sound. Docs denies it was the drops but they do contain neomycin which can be harmful. The drum in that ear was perforated many years ago which I told them, so don't know if that was a factor. I stopped the drops and was supposed to have a hospital appointment but it never arrived. It still troubles me, pain in the ear down my neck into my shoulder. The other ear got tinnitus after syringing at specsavers. Never again. So you have my sympathy cos it's a continuous problem for me.
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Thank you CLKD. I appreciate your support and being there for me during this. You've been great x
Suzysunday, Sorry to hear if your ear struggles too and your experience of Otomize. It has calmed my pain level from agony...to a dull pain now...so I'll take that but it is leaving me with a blocked feeling....just have to see how it goes. Ears are such sensitive things. Never thought it would be a perimenopause issue.
It was kind of you to reach out. Thank you. It helps to know I'm not alone :hug:
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Recently I saw a man who looks into ears and he advised no drops for a perforated drum.
Have U tried the wriggling of the outer ear to see if it unblocks at all? I've got tinnitus both sides now >:(, it can be there for hours B4 I realise ::)
Having lived with a phobia from the age of 3 I can understand the sudden 'into panic' mode. :(
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Thanks CLKD.
Yes I read no drops for perforated drum.
I'm sorry to hear you're struggling with tinitus. Makes silence hurt! I don't know....all this suffering.
Thanks for your support. It's appreciated more than you'll know xxxx
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I've taken an antihistamine to ease the repeated irritating cough ::).
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I hope they help ease things a bit x
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So do I!
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Regarding perforated ear drums does anyone know of they heal over time? I had a perforation when I was a child so is it still not advisable to use ear drops like otomize?
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I have absolutely no idea. Think that's a question for a doctor or ear specialist.x
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NHS - How long does it take a perforated eardrum to heal?
Most small eardrum perforations will heal within three to six weeks. Other eardrums may heal many months after the initial rupture. This time frame varies depending on the size of the hole in your eardrum. Your ear may take longer to heal if you have an ear infection or other complications.
The advice is not to go swimming until the drum has healed nor get it wet as this may encourage infection.
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Okay thank you for that.
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:audiologist: is the word that I was looking for ..........
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Sorry to keep banging on about my recent peri symptoms of ear/sinuses etc. ::)
My health anxiety is just going nuts as I type my ears feel so 'full', tinitus, sore, blocked sinuses, feel so dry in all areas from neck up.
Literally no mucus or saliva or moisture anywhere....
To coin Peter Kay....."ast' tha nowt' moist?" (Only die hard fans will understand that ;D)
Being a life long blocked sinus/congestion/ ear issues girl.....I feel I'm being attacked here more so now.....already got the peri ear infection (never had actual infection in my ear) the other ear is now hurting, throat sore on that side, sinuses tight, ear pressure high.....just feel crap.
I'm really worried that this us now gonna be how it is every day this issue in particular....and have constant infections?......I can't cope with that. I deal with the anxiety, the joints pains, the everything else......but I struggle so bad coping when I have ear/sinus pain.
Doing all I can. Saline, water, steroid spray, drops.....
Just freaking out....it feels like I've got a bad cold but I obvs haven't....its just horrid peri.
I've seen googling, that lots of women suffer sinus/ear issues in perimenopause and menopause........figures seeing as there's no mucus there anymore to keep things healthy....
Just really low :'(
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Hello Dorothy,
Whilst I seem to have escaped these peri symptoms I have had had tinnitus in both ears since I was in my 20s. And it's horrible, so I have a slight idea of what you are going through. Although I cannot help with any practical advice, I just wanted to step in and say hello. Please try not to Google, we all do it and it scares us silly. Try to stick to well known respected organisations for info, I know we need answers and advice especially for someone in your position who is hammered with illness and symptoms from every side.
It's another set back and so am sorry. But I think you are pretty remarkable. Despite your own struggles, you use valuable energy to respond to others posts with advice and support,that's a strength within you to do so.
I cannot do much but as always, I wish you well. X
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Bless your heart SarahT. Means alot that you think I'm remarkable...
I spend most days thinking I have absolutely zero purpose to life now and all I am is a body that breathes.
It really does help me see I am worth being here in this world.
Thanks xxx
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Dorothy Gale
Just wanted to say I feel your pain, I often suffer with sinuses and neck pain, have done since peri, I’m now 56 and 2 yrs postmeno and it still hounds me, have tried all the stuff you are, sometimes it helps and sometimes it doesn’t! I’m suffering at the moment too, since Fri. I had horrible flu and then cold a few weeks ago and it’s now left me with sinus pain and horrid neck pain and sore throat etc. I sometimes think it’s worse in wet cold weather but who knows.
But I agree I think it’s partly hormonal, and wanted you to know you’re not alone. I wish I had the answer but I’m still looking for it myself :-\ one thing I find is the less I stress about the latest symptom the more it fades into the background ( and then another one will def pop up ::) )
Anyway you have my sympathy and keep doing what you’re doing, although I did give up on the steroid spray as I thought it made it worse after a while, but that may just be me.
Take care
Lesred x
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We are all in this one way or another Dorothy. Some days we feel weaker than others, heaven knows I have been in some dark places this year. But what helps is knowing someone understands and can give genuine support when needed.
I realised when I first joined this forum I would mostly just reaching for advice or reassurance, it was a bit one way. But now I can hopefully return some of that much needed understanding back to others,and it shows me that I have come a long way. It may dip down again, but am more stable than a few months ago.
So maybe, you can see yourself that you have also come some way as well, in being able to respond to others? Not worthwhile? I don't think so,you sharing yourself with others. And that can make a huge difference to someone scared or worried. Xx
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There are sweeties to help with dry mouth, many years ago I would buy them for my Aunt who complained of a lack of saliva etc..
Ice lollies? Sips of water ? MayB a humidifier in the room if you have dry heating?
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Lesred
Thanks for reaching out. I'm sorry to hear of your struggles and recent misery. It does help to know I'm not alone and I think a really good bit of advice to not stress too much.
I hope you improve a bit soon from your recent flu and cold and thank you again x
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SarahT thank you. It means alot. I appreciate a different perspective and I think we are both amazing considering we are struggling so much with an already debilitating condition. :medal:
CLKD thanks. I sip water lots...we don't have a humidifier....I have an air purifier on most of the time....dunno if that's a bad thing but it's to help my allergies.
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Could it be drying out the air = aggravation of the ear drums? Did U continue with those drops? I keep getting ear nips in the left side >:( enough to go 'ouch'!
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Yes maybe you're right. I asked Alexa and she said air purifier can dry out air so I will turn it off and see.
Yes the drops have helped calm the agony pain, infection and the pain in my face it was causing....its not solved it entirely but its definitely improved currently. Still painful but copeable....Still fullness but I'll see how it goes.
Now issues in left side......tut
Sorry your left ear is ouchy too. Sucks.
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It's part of my peri journey, as the Eustachion tubes have narrowed and apparently: according to the audiologist: I have particularly hairy ears ;D, nips are likely.
Have U tried the little finger in the ear with a Big Wriggle technique which sometimes works to clear the ear: briefly ::). With a liquid in situ there will be a sensation of fullness too.
Night night. In bed with a round of freshly made bread and butter 8) ......... B4 I tackle another salt mouthwash :-X
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What do you mean 'nips'?...just like little feelings of pain?
Is it worth seeing an audiologist when experiencing perimenopause ear issues?....or would they not really be able to 'see' anything as its hormonal....even though we definitely feel there's issues.....
Sorry you got a gum infection by the way. Always flipping something. X
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Yep always something - The Change - does what is says on the tin. Yep, nips deep in the ear, occasionally - enough to make me yell!
I went to the audiologist because I thought that I was getting deaf[er] ::). within normal limits for my age. Apparently ;D
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Right I see.....OK.
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Now I've got an 'over the rainbow' ear worm ;D. A song I sang many years ago when I had the range.
My music teacher told me that not many people breathe correctly so singing should be essential whilst growing up. Now I can't even hold a note [long story short]
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Sorry about the earworm lol
Just thought I'd personalise my profile a bit.
I've e been completely obsessed with The Wizard of Oz film and Judy Garland since I was tiny. Lifelong love x
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Same here - the way it changes from B/w to colour 8) early technology then.
Snow White [I played her in the days when I could sing]
Fantasia
Sound of Music
West Side Story - now if those don't start ear worms ::)
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Hi
I'm not asking for help....rather just a listening ear coz I just feel thoroughly fed up and really 'claustrophobic' by the perimenopause invading my body when I didn't ask for any if this (none of us did) and that's how unfair it is on our lives.
There's literally no escape from it is there....and I feel so hopeless.
I think my new clogged ear feeling, infection, ear pain, stuffy dry sinuses and horrid new tinitus is really getting me down...all these head symptoms are a total blind side and I feel absolutely sick of it.....but literally at a loss....
If it's hormonal due to dryness etc which I'm realising is more of a common symptom...then I'm stuck with it. And I don't know how I will cope with this constant fullness I my ears, pain and hissing....I know there's worse things....but this is my nemesis.
At night I like to listen to podcasts via my ear phones (so I don't wake my partner) and now I can't because the pressure in my ear is so high, my hearing has become so sensitive and the sound through my buds literally hurts. Noise in general hurts. Little things I like to do are even ruined now.
Just feel really really down and like there's no way out.
:'( :'( :'(
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Could a mobile audiologist attend U at home to give your ears a thorough look at and advice? Tinnitus is also common as we age and there are ways to combat this.
Have u tried 'Vick' vapour rub on the chesticles [as Wogan would say], which will infiltrate the nostrils, a friend of mine puts it under her nose :o at night. Not a good look but it helps her dry nostrils. Mum used to sit over a bowl of Friars Balsom in hot water which steams, she had a cloth over her head.
R U using the drops into the ear/s?
Ear phones won't help if the ears are aggravated. Ears need to 'breath'.
U feel stuck right now? Also if OH is dealing with his families grieving, he won't be on hand as often.
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Thank you for replying. You're so kind.
Yes there is a private hearing company in our local town I've used before that I saw do home visits so it's an option. I just wanted to get the infection under control first really before they go poking around....
I only use my earphones for a bit at night only. I take ages to fall asleep so it helps me feel less anxious than lying there in the dark silence.
I might try olbas oil in a tissue. I think we have some. I've continued with the drops as they have helped and I'm seeing out the course which ends today....the pain and fullness have flared sgain today in the infected ear so....not happy about that. Will get intouch with nurse if need to.
I feel stuck in lots of ways. I'm bedridden so stuck physically (no choice. I have M.E) Stuck health wise. Stuck with perimenopause. Stuck on my own.....and yeh, partner away most days dealing with the bereavement....stuck not knowing how to cope with all this extra illness....dreading what's coming next.....stuck in life.......
Just feel pretty useless. And that I'm basically now just existing.
Xx
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Hi Dorothy
Forgive me if you have answered this before. I know you are extremely sensitive to medications, but have you ever had the opportunity to speak to a professional as to how you are ( understandably) feeling and all that you are going through?
I have had ridiculously stressful year, both with health and other matters and have just begun a talking therapy with a counsellor. It does seem to help me talking through things with an ' outsider ' someone who is away from my day to day life. I just feel it may be an option to consider which you may benefit from.
But do keep posting on here, whenever you need to, some can offer practical suggestions, but even if we can't all know how to help, so know that people are hearing you x
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When your partner is more available is your mood better? How do you spend your time together? Do U have bird feeders close by to watch the antics, would your OH be willing to refill regularly?
I do cross word puzzles: watch a lot of TV: read .......... DH loves jigsaw puzzles but I find them a great big yawn ::).
What do you like on TV? Music?
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Hi Sarah
Thank you for your reply x
It's exactly what I've been thinking of doing......
It's just finding the right counsellor....I'd only go private as NHS is too long a list and I've always gone private for counselling in the past.
My past counsellor was absolutely amazing but unfortunately no longer practicing.
It's so hard to find that connection of someone who really gets you and knows exactly how to help....
I think I've put it off for so long as finding the right one seemed too difficult....after having had the right one before.
Where did you find yours?
Thanks for being there. I appreciate it sooooo much x
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When your partner is more available is your mood better? How do you spend your time together? Do U have bird feeders close by to watch the antics, would your OH be willing to refill regularly?
I do cross word puzzles: watch a lot of TV: read .......... DH loves jigsaw puzzles but I find them a great big yawn ::).
What do you like on TV? Music?
My mood is pretty much the same if he's here or not. He's very active so even when he is home, he's busy out mowing or helping in the community or doing shopping etc....he has alot to do.....because of my M.E I struggle to do much that requires any mental or physical activity...even watching telly is incredibly depleting of my energies...and leaves ne exhausted. Even typing on here is exhausting...
I mainly listen to LBC or podcasts on my smart speaker.
Since perimenopause my joy has gone. I suddenly realised today that I never play music anymore. Before all this, I had music on ALL the time. Now I can't bear it. I don't know why? I used to sing. I don't anymore. Its like all joy has gone from me. I'm not the same girl.....its so sad.
We are fortunate to live on the edge of a nature reserve and woodland so I see deer, squirrels, birds....I'm blessed in that respect xxx
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Hi Dorothy,
I have gone to counselling via the NHS, they did a sort of triage after a couple of weeks but it has taken 5 months to get to the actual sessions.only runs for six sessions too. Not moaning, NHS is so stretched.
I am wondering if anyone in the ME community ( forum?) Knows of a counsellor that works with ME sufferers. It would seem to make sense as I suspect the ME has such a bearing on other health issues. It is helping me to know it's ok not to feel ok sometimes if that makes sense.
I think many women on here can associate the feelings of losing joy in life. Whilst I am improving in some aspects, I am no way near the happy person I was a couple of years back. I think it's hard when you seem to get a little better with a symptom, then wham, something else muscles in to bring you back down again. I think I have learned to move my goalposts... I can't have very good days right now, so settle for the ok days. I don't know if this is right or wrong but I have to try. Acceptance of how we are in this given time is hard.
Why not try slowly to have some background music?.a new radio station that covers chat and discussions with a little music maybe? Nothing too taxing as I understand the physical and mental fatigue. I get my peace from being near nature too. Our bird feeders give so much enjoyment, we too are lucky to live rural and have the privilege of seeing wildlife around.
Take care x
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Nature heals. It's there. It doesn't take any effort.
When severely depressed in the 1990s it was Terry Wogan and Jimmy Young that brought me back from the brink. I would wake very early with a bad cortisol rush that left me terrified; I would dress, then sit. Staring at the lounge walls. I was unable to eat, focus, walk the dog :'(. After a few weeks of appropriate medication I realised that I was smiling at things that Terry was suggesting: keeping a pet stone for example. As if.
Personally if I knew that I couldn't get out of bed to enjoy 'stuff' I would be at a loss. During those depressive years I couldn't watch TV, read a magazine or follow a story line in a book.
:foryou: :foryou: both.
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SarahT I'm glad you managed to get some counselling via the NHS and glad it's helpful. I think the fact the wait it long and sessions limited is why I'd go private.
I am a member of a truly wonderful ME forum and have been for 15 years. No one has anyone to recommend or know but I will have look myself for counselling.
I'm glad you have access to nature too. It definitely is excellent for wellbeing. Nature and animals are my number 1 passion in life. Always have been. We moved to our dream home in the countryside last year and it's beautiful. My partner retired last year and it was always our plan to spend this chapter of our lives, his retirement, in the countryside.
CLKD
I'm sorry to learn how much you've struggled in life with depression etc. Thank you for sharing. May I ask what meds you took then that helped? So glad they did. Terry was a lovely man from what I recall from TV and radio. I don't know Jimmy Young.
I'm very used to being bedridden and unable to enjoy life. I got sick with M.E in 1992 and spent probably about 50% of the last 30 years bedbound with it. Doesn't make it anymore easier and now I don't even get any better days like I used to as the perimenopause (and getting covid in Feb) have rendered me totally incapacitated as it has done for many people with M.E. so I know I'm not alone.
Thank you both for being so kind. You've got me through some tough weeks lately and I can't thank you enough. Xxxx
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My first bout of depression was in 1988-ish. It took 5 meds B4 I was able to tolerate an AD, as they made me so sick within 24 hours :-X :'(
Each AD did me well in that they lasted 5-6 years without my brain pooping out. As well as Valium as necessary to ease panic attacks followed by Propranolol to help any anxiety surges, life began manageable. Early mornings until mid afternoon were the worst, I had to learn not to say 'yes' to anything in the evenings because by morning I would be floored by panic. I now take Escitalopram 5mg in the morning and 10mg at night: should I wake for more than 3 mornings straight with my brain feeling low, I add 5mg at breakfast for at least 5 mornings.
Earlier today I thought of U as I wriggled both ears: middle finger with a curly movement followed by pulling the lobe downwards which helped clear the mugginess inside.
Has your painful ear eased with the drops?
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It's just finding the right counsellor....I'd only go private as NHS is too long a list and I've always gone private for counselling in the past.
One way I found to find a counsellor was by looking on
psychologytoday.com where you can enter your location & several come up with their photos and type of counselling descriptions.
It does take a bit if time going through each individuals specialities to rule ones out but I think you quickly get a sense of the person that may be okay.
Many now offer online appointments which may suit you.
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It's just finding the right counsellor....I'd only go private as NHS is too long a list and I've always gone private for counselling in the past.
One way I found to find a counsellor was by looking on
psychologytoday.com where you can enter your location & several come up with their photos and type of counselling descriptions.
It does take a bit if time going through each individuals specialities to rule ones out but I think you quickly get a sense of the person that may be okay.
Many now offer online appointments which may suit you.
That's so kind of you. Thank you very much. I really appreciate you taking the time to help me xx
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My first bout of depression was in 1988-ish. It took 5 meds B4 I was able to tolerate an AD, as they made me so sick within 24 hours :-X :'(
Each AD did me well in that they lasted 5-6 years without my brain pooping out. As well as Valium as necessary to ease panic attacks followed by Propranolol to help any anxiety surges, life began manageable. Early mornings until mid afternoon were the worst, I had to learn not to say 'yes' to anything in the evenings because by morning I would be floored by panic. I now take Escitalopram 5mg in the morning and 10mg at night: should I wake for more than 3 mornings straight with my brain feeling low, I add 5mg at breakfast for at least 5 mornings.
Earlier today I thought of U as I wriggled both ears: middle finger with a curly movement followed by pulling the lobe downwards which helped clear the mugginess inside.
Has your painful ear eased with the drops?
Thank you so much for sharing your life story a little and the medications. So much suffering...its kind of you to tell me your experience of life....and that somehow you got through the difficult years you've had but continue to have struggles... finding ways to manage it. You're such a wonderful help to us on here. As many are xxx
My painful ear is now less painful but still definitely not right....but I shall see how it goes. Thank you x
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Tnx. How's it been? Mine feel clogged up until I give them that wriggle ::) several times a day. Tinnitus background all the time.
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Hi
Thanks for asking.
It varies all through the day...sometimes it feels almost normal...then clogged and hurting.....hissing.....then not hurting just clogged......the hissing is pretty much constant....definitely something not right......probably just peri.
I am however gonna get it checked when I can deal with it. I'm just exhausted from it all!
How's your gum infection? X
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Same old. Not as sore. ABs have been difficult as I've reflux due to stopping the omeprazolol ::)
How R U spending your afternoon?
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Oh I see...sorry you struggle with that too 😏
Just the usual for me. In bed resting. Will probably have a browse on Amazon....Partner gone back to our home town to deal with more funeral arrangements.
What you up to?
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Light lunch to hand followed by sorting yet more laundry then driving to collect the camper van after it's service.
Sometimes I watch: Bargain Hunt; Escape to the Country; followed by what ever takes our fancy including tipping point.
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Lovely you have a camper van. Do you go off on adventures?
I love property programmes.
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I began a 'look what we have bought' thread I think it's called. We were 8 years choosing ::). We don't overnight anymore, it's great for day trips.
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I'll check it out :toff:
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I bumped two threads about campers, it took ages to find either :D
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I had a look at the you tube link of your van. It's really nice. :great:
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We love it. It was 1 of the VIP people carrier vehicles at the 2012 Olympics - they all went into storage for different companies to buy them, Wellhouse in Yorkshire did 5 conversions. Ours was the 1st off the line ;-). Bought locally we viewed it in the morning so the family going to look were put off.
3 years later we met them by chance, miles away from here. They were wandering along and asked to have a look, mentioning the above: that they were due to see it. I don't think that it would have been suitable for 2 adults, a growing child and a small dog. They agreed.
Talk about co-incidence!
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Wow! What are the chances!!
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We were all amazed. I kind of knew as they walked towards us ........ due to my reluctance to a) use showers and loos where others may be listening and b) not wanting to wander to those facilities in the dark ..... we no longer camp . When we do Hotels we drive the camper which is useful if we find a beach with a long walk as there is a 'porta-potty'. And a kettle. And spare clothes if we should get wet ......
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Camping.....its a no from me too.
Sounds absolutely perfect! X
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update
So, right ear definitely less agony pain but still definitely not right. Low level constant pain, muffled blocked feeling.....
Nurse came to house today. Said ear drum red and inflamed and suspected middle ear infection and possible eustation tube disfunction (just been treated for outer ear otitis externa)
Loathed to have ABX so he said to see how it goes...if it improves or if no better in couple weeks he will refer me to ENT.... ::) (how did I know that's where I'd end up being sent?!) .....
The goose chase continues...all perimenopause obvs!! But try telling them that. :bang:
Anyway. As you were.
D xxxx
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Tnx. How will U get to the Hospital for an appt. :-\
?? continue with drops ??
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There are times when leaving the house is necessary. As long as it only once in a while I have to just cope. Bundled in car and wheelchair to get about the hospital....then spend a month recovering from the exertion!
I'm Loathed to keep using drops. Nurse said I could but thinks it wouldn't do much more than it has. I'm doing saline rinse etc.
Just see how it goes.
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Does the finger with a wriggle help at all?
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Not really....it hurts doing that actually.
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Mine are buzzing on both sides but feel less blocked.
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:-\ ...the things we go through!
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Hi Dorothy Gale I’m sorry you too are having these issues.
I went through this for quite sometime I thought it was grinding my teeth, then thought it was a tooth (even had a root canal) and it still it persisted.
It has turned out to be chronic migraine, it’s atypical in that it rarely goes to a headache but it’s good old migraine!
Might be worth looking into in case it’s that.
Hope you get it sorted.
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Hi Dorothy Gale I’m sorry you too are having these issues.
I went through this for quite sometime I thought it was grinding my teeth, then thought it was a tooth (even had a root canal) and it still it persisted.
It has turned out to be chronic migraine, it’s atypical in that it rarely goes to a headache but it’s good old migraine!
Might be worth looking into in case it’s that.
Hope you get it sorted.
Hi Madge
Thank you for taking the time to reach out. I appreciate it very much.
Wow that's interesting.....never heard of that. I'm glad you finally found an answer.
I'll see how things go....always something isn't there?!
Xxx
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.......just out of interest....anyone know what current wait times are for an nhs ENT referal in north West England?
Ta x
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Hi Dorothy, I'm in the NW, my Gp referred me back in about June/July as I was having a feeling of blockedness.Said couldn't see any infection at the time.
I had a letter which said on NHS waiting list and couldn't make appt, but if you don't hear anything by Oct 3rd to ring back. I did, but to be told I was still on waiting list and to ring back in a few weeks, as they were trying to put more clinics on.
I'm still waiting ??? I shall ring again next week.
My ear is muffled and when I burp it sounds like wind is bubbling through it!! Really weird.
Failing this I shall go private if the wait is too long, which I think is what they want you to do! So annoying.
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Hi Julia
Thank you so much for your help. I appreciate you taking the time.
Sorry to hear you're struggling with ear issues too. They really do affect quality of life.
So you've been waiting since the Summer?.....I suspected as much.
I enquired about going private and it's £250 just to be seen at the hospital here in Lancashire. That's before any procedures or tests....
And I think...if it's hormonal which I suspect mine is......Will there be a satisfactory outcome after all the expenditure?
Soooo annoying...you're not wrong.
I wish you all the best. Be nice to hear how you're doing on this thread if you'd mind at all xxx
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Julia - could you take a cancellation appt at short notice?
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Just needed to vent coz I'm so sick of this plugged feeling deep down in my right ear and continuing pain. My ear hurts if I put my finger in it...and there's the continuous high pitch tinitus....interspersed with pulsitile tinitus...
Im just sick of it now....it bothers me 24/7......and been going on for over 5 weeks.
I just knew it was not going to be straightforward. Nothing ever is with me due to my rubbish health. Nothing is ever as simple as taking the prescribed meds and it all getting better again. I knew it would not. I said as much.
The initial agony has disapated since using Otomize drops......now is a pain that's not agony but hurts none the less and feel really plugged. Not in the outer ear but deep down.
Nurse kindly came back to my home to inspect last Friday and said ear drum is red and suspected middle ear infection....he didn't quite know what to suggest.....I was on antibiotics 3 weeks ago for something else and they didn't help my ear....so he said maybe more wouldn't help.....I dint want to carry in with Otomize. Not entirely happy with them long term use.....
He said see how I get on and maybe it will get better but I don't think it will. I'm convinced its hormonal and due to the drying up....its no coincidence. But I just get the roll eyes look when I mention it is due to that. They just want to give more drops or antibiotics or a referal to ENT where I bet you anything, hormones will not be taken into consideration.......that's after probably months of waiting for an appointment. Can't afford private.
I'm so weary so sick of it. Having sore blocked ears really affects you.....I know there are worst things but it really does affect you.
I just haven't the stregth to get back intouch with the nurse or gp coz they just don't listen and it's that awful 8am race for an appointment....and I'm really worried this will not get better and I'll have this pain and plugged upness all the time now due to the drying up and hormone crap.
I've done all I can myself. Feel totally stuck. How does anyone treat problems going on behind an ear drum??! I can't remember what it's like to have normal feeling ears.
:'(
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Spoke to my lovely gp as ear pain is so bad.
I'm being fast tracked to ENT.
That in itself will be a hurdle as having severe M.E and being bedbound, getting to necessary outside appointments is beyond hard and takes weeks to recover from.
However I am grateful that she has got me an urgent referral.
I don't know if it will prove helpful seeing as I suspect its all hormonal but I need to see them as I can't cope with the pain. It's not normal.
Xx
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Got my ENT referal appointment next Tues.
Im hoping something will come of it. I'm sure you're all bored to tears with this thread.
Lots of pain in right ear still and an increase in tinitus, pain in face, jaw, plugged, pressure feeling. Left side pressure feeling.....
I'm sick of it.
X
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Of course you are fed up. Especially as the finger-in-the-ear-wriggling doesn't help U. MayB make a list to take to the appt.. Hopefully it's not too early which may compromise travelling etc..
My tinnitus is background most of the while. My ears itch, deep down. I need to find my drops!!
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Thank you. You've been so kind to me. Thanks for putting up with me.
Appointment is 11.30am and partner and wheelchair at the ready! It's only a 20 min drive.
Good thinking re notes.
It's the constant pressure fullness feeling that is so uncomfortable and I have so many various of tinitus now, pulsitile, 2 tone hum, high pitch whistle, white noise sound which I cannot describe, wooshing......so noisy in there.....
Oh the itching is evil. I sympathise.
Who knew ears would be so bothersome in perimenopause. Boy did I underestimate all this.
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It's often due to dryness.
I have different kinds of tinnitus including whooshing when laying down ::)
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Thanks
I absolutely agree and totally think/know this is all due to dryness.
It only started when all the mucus literally dried up in my nose, eyes got much drier, mouth got much drier and then all the ear problems/infection..
Hence I'm a bit scared this won't go away.
8)
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As oestrogen levels drop etc..
Let us know what the Consultant suggests.
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Will do.....
Thanks for your support and replies. You're very kind to be there and it's hugely appreciated x
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Chronic conditions can be tiring! There mayB an on-line support group that could be helpful?
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For my M.E....or ears? :stupid:
I'm a member of a wonderful M.E forum.
X
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Tinnitus, deep ear pain ........
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Ooooooh right.
I'll end up being a member of every health forum going soon lol
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Does that matter - there's nowt on TV again this evening ::)
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Hi Dorothy
Sorry to read that you have been having problems with your ears-you are not alone. I have had this issue now since turning 50 years old. 7 years later I still experience it although it has eased. I have seen countless GPs and ENTs and not one has told me it is due to hormones or menopause but I am convinced it is. I have been put on various medications which have not helped. Like you my initial symptom was the blocked ear sensation-left ear and pressure feeling. I too suffer from tinintus buzzing and also a blowing sensation like someone is blowing into my ear.
I hope your appointment goes well
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Thank you Fedfan. I appreciate your post. Sorry taken a bit to reply. I've been too poorly.
Long story short, ENT was as I feared, was no help. He did all the tests. 'Normal' :bang: I knew it would. Ears clear and perfect. No blockage.
But my ears pain, pressure and tinitus are anything but normal and I'm in tears everyday.
Having M.E/CFS I need to lie down most of the day. This has become so painful and unbearable since pressure, fullness, plugged pain and tinitus in my ears arrived 2 months ago.
Lying down increases pressure.....if you already have awful plugged, blocked pressure feeling ears, lying down makes it feel like your eardrums are going to explode....it also increases the tinitus lying ďown from pressure....and the anxiety and stress I feel because I cannot rest properly feeling such discomfort increases the pressure too.
I'm struggling so much. Even if I'm propped up, the pressure builds as my neck at an angle puts pressure on neck and ears. I cannot rest sat up. Its too exhausting.
The pain radiates to my face, jaw, gums, teeth, neck and no one can offer any help. As to them nothing is wrong. My face was literally throbbing today as we're my teeth...huge pressure in my face with muscle twitching in my face.....just feel suffocated.
Clearly its hormonal.
I cried all day today as how can I rest as I need to every day...when this hideous symptom has now come? I'm really frightened. It's such a distressing feeling that pressure build up. Muffled hearing...noise is painful!
Plus the million other peri symptoms I have.
For the first time since Summer, I thought today for a moment that I can't go on.
Feel utterly stuck. Terrified of what's next.
Dorothy x
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At least there's no obvious blockage that would cause concern. What did the Consultant suggest?
That feeling of pressure becomes constant. U mayB clenching your teeth/jaw = pain. Stress also causes similar tension. The brain, as with tinnitus, switches on to anything out of the ordinary ......... have U looked at the Tinnitus Support Group ?
Also, ligaments in the cervical spine which may become stiff and sore, can radiate throughout the spinal column especially if the neck isn't supported correctly. I had to sleep sitting up recently due to reflux but it was so difficult the body automatically slid down the bed!
Is your OH home to support now, funeral over and done?
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Thank you.
He just said it might be jaw related. That was his only conclusion. He said a mouth guard might help but I'm too ill to go to dentist. The ENT appointment wiped me out. Takes weeks to recover. Also wants me to have an MRI due to my pulsitile tinitus. That will be a big fat waste of time if I can even get there.
That's what I was scared of...that the pressure would be constant now and never go.....I can't cope with that. My life is spent lying down. I don't know how to cope now. What causes all this ear pressure in perimenopause?
Partner is home more now thanks for asking. But he's absolutely wiped out after weeks of grief and sorting things etc.
The tinitus I can sort of cope with.....
It's the pressure and plugged up feeling and pain I can't.
I'm very vigilant of trying not to keep tension in jaw.
Thanks
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Years ago 1 would go to the various appts necessary on the same day is possible. To save travelling.
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It's absolutely terrified me that you said this pressure will be constant now.
I'm lying here at 1am in the dark...ears feel so full of pressure that they feel they will explode and I am absolutely full of panic and am on verge of panic attack....
How do I ever lie down now or sleep with this horrific pressure? 😢
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Do the symptoms become any worse in different positions?
What do U plan to do - the MRI would be a good step, could you be admitted for 2-3 days to avoid the travelling aspect of an appt.?
Could it B that you are so stressed that tension in the muscle groups mayB causing those feelings? What do others suggest on the groups that you dip into?
My ears feel full a lot of the time - difficult to explain. Tinnitus the same, variable.
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I don't know. I've done everything possible I can do...to the detriment of my M.E no idea can suggest anything as they don't know either..how could they.
I'm exhausted trying to figure out why this is happening when I will never know. No one can tell me which is typical of it all so I'm done. It's clearly hormonal causing all this....and all the mri scans and tests will show nothing. Everything keeps saying normal. So I know its hormones.
I've just had enough. I'm too ill to deal with it anymore
Thanks for replying you seem to be the only one. Don't worry. I'm only on here coz I've no outlet. I know no one can do anything
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Please can someone tell me this unbearable pressure and pain in my ears will ebate....even a bit?
Never felt anything like it...its like my eardrums will explode. Tinitus going absolutely bonkers. Alsorts of different tones.
Even did a covid test. Neg.
Never experienced this. Every minute is torture.
Been checked. All 'normal'. Done all I can. Not ringing gp again. I've been checked a thousand times.
Surely one of you must have ear issues? :'(
Sorry. I'm just struggling
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Contact the tinnitus support group?
I've been trying to redescribed 'constant' - I think that the brain tends to focus on tinnitus, blocked ear feelings, the possibility of a lump in the throat .......... tinnitus can be relived by listening to music, bird song, water running ....... to over rule the background nuisance.
Have U any relaxation tapes?
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Thanks.
I cam cope with tinitus
It's the extreme pressure in my ear drums.feels like red hot pokers
Don't worry. It's impossible for anyone to know what it is.
Xx
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Mine are not as bad as yours but my right ear always hurts, mild pressure in both, worse in the right and pain from right ear, down my neck into my shoulder. Some days worse than others, it's horrible. Doctors no help, otomize drops made it worse 3 years ago.
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Thank you Suzy appreciate it xxx
I'm sorry you have pain in ear too. It's the pits. I think I'd rather have the anxiety or any other symptom over ear pain/pressure etc.
Xxx
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Thanks.
I cam cope with tinitus
It's the extreme pressure in my ear drums.feels like red hot pokers
Don't worry. It's impossible for anyone to know what it is.
Xx
Have you suffered any sudden hearing loss as well? I have had symptoms very similar to yours which were part of a sudden sensory neural hearing loss.
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I haven't had a hearing test (I will get one when I can. I'm not well with M.E) but I can tell that my hearing is not as it used to be particularly in my right ear. Ear feels plugged and full all the time so I feel there is slight hearing loss. (It's not actually plugged physically as had it checked. It just feels like it is which apparently is common for us in perimenopause/menopause)
Hearing is also now extremely sensitive and noises that once wouldn't bother me eg. hairdryer, TV, bangs things dropping, some people's voices, shops, music... just can't cope with...makes my ears hurt. I need it quiet........so I can enjoy my tinitus ;D
Hearing loss is definitely a menopause thing. Lots of ear issues actually are. Who knew.
Thanks for your post xx