Menopause Matters Forum
Menopause Discussion => All things menopause => Topic started by: mk94 on September 28, 2023, 05:27:42 PM
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Here I go again. Scared out of my mind of dying of cancer.
I was told yesterday that I need to go for a uterine biopsy because I've been spotting on and off for a few months now and my age (58). I should be in menopause but I still get heavy periods. Granted they are spaced out now. I can't tell you how scared I am. This is it for me I'm sure. I can't eat, sleep I'm crying none stop
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Hello
I need to say I do not have the same symptoms as you, I am sure someone will be along who may have experienced much the same. But you understandably sound terrified.
I believe I have seen previously that you suffer with health anxiety, many here will be able to understand your feelings.
You need to understand your courage in being seen by the medical profession, this is a huge thing for You to be able to do. You yourself have found the strength to do so, you have taken back some control over your anxiety.
I am age 57 and if not for the mirena coil I would still be getting 4 weekly bleeds, my periods have yet to stop. I still get pms symptoms so I know I am still getting the cycles, periods at out age is more unusual but not unheard of.
I think there are several women on here who have undergone uterine biopsies too. Helpfully they can postcode of their experiences.
Whilst I can't give advice on the proceedure, I just wanted to remind you that you have taken a good step to be seen, that takes some courage to do so.
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So you've been spotting for several months? Have U become any worse in that time? A biopsy will give a base line to keep an eye on your symptoms. If something is found, it's early so can be treated. Take a list of worries with you to the appt.. Take some1 with you to listen! Let us know how you get on.
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So you've been spotting for several months? Have U become any worse in that time? A biopsy will give a base line to keep an eye on your symptoms. If something is found, it's early so can be treated. Take a list of worries with you to the appt.. Take some1 with you to listen! Let us know how you get on.
Last period was January of this year followed by on and off spotting for months until 3 weeks ago I got a heavy period with clots. Lasted 12 days. I've only had spotting once since then.
The year before leading up to this year my periods were very heavy with flooding and clots and lasting longer than 7 days sometimes. But never ever spotted between periods. That all started after January of this year.😥😭
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I suspect that your hormone levels aren't enough to push the remaining 'period' out of the womb, hence the spotting. When I was menstruating I would have heavy, clotty periods for 10-14 days: a break of 2 days followed by two days of brown [old blood] spotting. When my periods waxed and waned they varied in days/consitency/length. Any spotting I took as The Change. Let us know how you get on! I don't think you need to be scared: worried mayB ;-).
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Sending lots of love. These things always make us go to worst case scenarios but you’re doing the right thing getting checked out. I hope all is ok and it’s just the final bit of your cycles. Take good care.
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mk94, I know it's easy for other people to say but what you are experiencing is not at all unusual. Admittedly it is late to still be having natural periods but we have had plenty of women on here who still bleed naturally at your age.
Doctors automatically send women over 50 (I think) for uterine biopsies if they bleed in the same way they automatically send people over 50 for colonoscopies if they pass blood in their stool. From what I have read on here, doctors very often don't take HRT use into account either.
You haven't said whether or not you are using HRT but if you are, then breakthrough bleeding is not unusual but if not and you are not post menopause, there's a very good chance that you are not producing anything like enough of your own progesterone and your womb lining has built up is not shifting sufficiently. That does not mean cancer. You have to have womb lining build up (endometrial hyperplasia) for quite some time for it to develop into something sinister and in the unlikely event that it has, it is extremely treatable.
I hope that helps.
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mk94, I know it's easy for other people to say but what you are experiencing is not at all unusual. Admittedly it is late to still be having natural periods but we have had plenty of women on here who still bleed naturally at your age.
Doctors automatically send women over 50 (I think) for uterine biopsies if they bleed in the same way they automatically send people over 50 for colonoscopies if they pass blood in their stool. From what I have read on here, doctors very often don't take HRT use into account either.
You haven't said whether or not you are using HRT but if you are, then breakthrough bleeding is not unusual but if not and you are not post menopause, there's a very good chance that you are not producing anything like enough of your own progesterone and your womb lining has built up is not shifting sufficiently. That does not mean cancer. You have to have womb lining build up (endometrial hyperplasia) for quite some time for it to develop into something sinister and in the unlikely event that it has, it is extremely treatable.
I hope that helps.
Thank you Mary ❤️
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Timeline 2020 (age 56) periods get very heavy
2021 is getting heavier and more prolonged with lots of flooding and huge clots and I become anaemic
2022 is still heavy but start skipping months
2023 period in January and I don't get another period until September
From January to September 2023 (8 months 😭)
I spotted on and off. Every few days. I just thought I was nearing the end and entering into menopause and the spotting was normal But I hear it was not normal and I never got it checked out
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U are reading too much in your symptoms: "I Hear it was not normal" - where did you hear/read this? Mary G has given good advice.
..... and breath. Spotting is 'within normal limits' for peri menopause. As hormone levels drop naturally there isn't enough to 'shift' - good explanation - all the blood. Do make a list of your worries to take to the appt..
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mk94, it sounds to me like you are at the very end of the menopause. You still haven't gone 12 months without a period so you are not post menopause yet.
When is your scan/biopsy?
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I'm so stressed I just can't calm down. My mind is going everywhere. Still haven't heard back from the doctors office to schedule my biopsy. I can't get the what ifs of my mind. So worried...what if it's ovarian or cervical not uterine. Omg I just want a hysterectomy like yesterday so I don't have to be so scared all the time. :o God I'm losing my mind :'(
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....... and breath. These appts take time to arrange, do check with the GP Surgery that the letter has been sent. R U able to take a cancellation appt at short notice?
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I'm so stressed I just can't calm down. My mind is going everywhere. Still haven't heard back from the doctors office to schedule my biopsy. I can't get the what ifs of my mind. So worried...what if it's ovarian or cervical not uterine. Omg I just want a hysterectomy like yesterday so I don't have to be so scared all the time. :o God I'm losing my mind :'(
I was like you when I was referred to the breast clinic. I made myself ill, I had worsening pain down that side and into my neck by the time I got there. Id lost all logic due to fear. As soon as she said she couldn't feel anything worrying, the pain melted away. Nothing anybody says, stoos you from doing it if it's partly your personality. I'm sure you'll soon have answers but chase up your appointment
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The brain is a powerful tool >:(
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I know what I would do and that is book the first possible private transvaginal uterine scan I could get my hands on, even if it meant sticking it on a credit card.
As soon as you have the scan, you will know where you stand ie any fibroids, abnormalities and womb lining thickness. It's worth having that as soon as possible. I would ring round for an immediate appointment and if the NHS come up with an appointment in the meantime that is faster, you can cancel it.
It's always worth paying for peace of mind.
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Thank you ladies so much for all your replies. I've read them all. And I'm really trying to think rationally but I'd be lying if I said I was doing better.
I did really did think this was probably normal for the tail end of perimenopause.
Until I read the that it's not :o
Since late January of this year until September until I got my period I pretty much had colorful discharge everyday!!
One day it would red then a few days brown to a few days normal than it would start all over. That's 8 months of weird discharge everyday!!
If it's been 8 months with no intervention or treatment then what if the cancer is too far gone :'(
I'm so stupid for letting it go on this long
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Thank you ladies so much for all your replies. I've read them all. And I'm really trying to think rationally but I'd be lying if I said I was doing better.
I did really did think this was probably normal for the tail end of perimenopause.
Until I read the that it's not :o
Since late January of this year until September until I got my period I pretty much had colorful discharge everyday!!
One day it would red then a few days brown to a few days normal than it would start all over. That's 8 months of weird discharge everyday!!
If it's been 8 months with no intervention or treatment then what if the cancer is too far gone :'(
I'm so stupid for letting it go on this long
As someone has said, and if you can, I'd arrange a private appointment. I did recently due to a stomach issue. I'd been referred via NHS but I couldn't wait. The symptoms were unusual for me. I saw a doctor privately and though I couldn't afford the endoscopy privately, he took a full history and examined me and gave me some reassurance and noted the endoscopy had to be done within 6 weeks. Don't continue at length as you are. You will get symptoms related to stress too. Make a decision today and take control.
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Where did U read 'that it was not' :-\ ?
Health anxiety has no boundaries. If U can get an appt with the Nurse Practitioner at your Surgery to discuss, she may be able to check when any appt.s are likely to happen.
Unless U take 'action' your mind will continue to be troublesome with what ifs ! Phobias can be come all consuming :-\ :'(
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Hi mk54
I hope you got some answers for your problem in the end? Did you have the scan?
I'm fairly new to this forum but have been getting lots of brown discharge for the last month or so and this isn't usual for me. I'm 50 and peri and my last 'proper' period was in July but I'm now wondering If that was spotting as my period prior to that was in April. (So very irregular). I was on combined Hrt (2 pumps gel and progesterone for 2 weeks of the month) from November 2022 but in August I changed to patches for convenience, however since mid September I have had problems.... a terrible water infection and then more 'periods' close together with a week or so in between. So I spoke to doc and came off patches and nack on gel ( a month ago). Since then I've still had this discharge along with lots of tummy issues. I'm waiting on a transvaginal scan but feels like it's taking forever when these symptoms are every day...
Can anyone advise or help? I understand the change from patches back to gel may have aggravated things but it was the same volume of meds just a change of format.
Any advice would be much appreciated 🙏
Thanks
Em
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EmmaJane - at the end of each heavy painful bleed up to 10 days, I would have two days without anything then a show of brown staining for 24 hours. Normal for me. Probably due to not enough hormone to push any excess through the system. I would itchy high up too, normal for me.
Hormones ::). Cna't help with the HRT query, mayB start a thread of your own or put the product into the search box to see what pops up?
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You poor thing. I have extreme fear about my health so I can just imagine how terrifying this must be for you. I don’t know if seeking reassurance on the internet helps or not but I do know how horrid it is when your mind jumps to the absolute worst case scenario and will not budge. I didn’t want to just read and move on but please know you’re not on your own feeling scared xxx
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* UPDATE*
Hi Everyone:
I got a pap smear and uterine biopsy at my OB appointment today. Now I am terrified waiting for the results. God help me I'm going to go crazy waiting. I have convinced myself I have cancer 😢
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Hi. Im 54 now and started heaving bleeding in May 21. My scans in Nov 21 showed thickened lining and polyps so they were removed at the first biopsy which diagnosed simple endometrial hyperplasia with no atypia. This is the lowest of the 4 grades of abnormal cells. Complex with atypia is the highest. What you need to hold on to is even if it is complex with atypia, hyperplasia is treatable and also very slow progressing. I was also worried about the results but at our age the positive is things are sorted very quickly. Health anxiety is difficult to process but whatever the outcome, you are on the right path
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well said jorainbow ! pleased that you have had good results. Now mk94 - did U tell the Nurse how worried you are? How long will the results take to come back?
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mk94 - did you get your results? I hope they were ok? Xx
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Morning GoingDownHill - do tell us more about yourself: age, family, any health issues. Browse round. Make notes.