Menopause Matters Forum

Menopause Discussion => All things menopause => Topic started by: Nas on September 10, 2023, 10:53:06 AM

Title: In hell with pain
Post by: Nas on September 10, 2023, 10:53:06 AM
Well, I now know what being in hell is like.

The pain from this fibroid is indeed like no other.

Very intense strong period pains which radiate into my hips and down my legs.

Ibuprofen doesn’t work.
Paracetamol doesn’t work.
Naproxen doesn’t work.

I’m not taking anything which may cause constipation, as this b*****d fibroid is pressing on my bowel, causing issues all on its own in there!

Gynae wants to do an MRI of fibroid. I just want it out. I have never felt so ill and in pain in my life.

Any other pain relief types you can suggest, will be welcomed.

Frantically trying to work out how I can get a hysterectomy asap, even if private.
Title: Re: In hell with pain
Post by: Flossieteacake on September 10, 2023, 10:55:41 AM
So sorry Nas. :( I have been reading your posts but cannot offer any advice. I wonder if codeine may be any use for you as it can be bought over the counter.
Title: Re: In hell with pain
Post by: Nas on September 10, 2023, 11:11:28 AM
Thanks Flossie,
There nothing anyone can do really. It’s a god awful situation to be left in so much pain daily.

I will call 111 later, If I’m not dead!  :'(
Title: Re: In hell with pain
Post by: Dierdre on September 10, 2023, 11:13:33 AM
I've read high doses of Vitamin d help shrink fibroids, might be worth trying.
Title: Re: In hell with pain
Post by: Penguin on September 10, 2023, 11:15:14 AM
Paramol, which contains codeine, may work? Can cause constipation but you could take with magnesium citrate to counteract. I get excruciating period pains and paramol is the one otc painkiller that works. Can't take long term tho.

When is your appointment?
Title: Re: In hell with pain
Post by: Penguin on September 10, 2023, 11:15:49 AM
And big hugs, I'm so sorry you are still dealing with this and that it hasn't been removed as a priority.
Title: Re: In hell with pain
Post by: Kathleen on September 10, 2023, 12:33:50 PM
Hello Nas

I am so sorry that you are suffering.

I can't be of much help unfortunately but my favourite science nutrition site NutritionFacts.org has reported some research regarding fibroids. It sounds whacky but it appears that green tea has helped to reduce fibroids in trials. Maybe take a look at the site for more information.

I hope you get all this resolved soon and sending huge hugs to you.

Take care.

K.
Title: Re: In hell with pain
Post by: Peri2022 on September 10, 2023, 12:37:29 PM
This sounds awful, Nas. Remember you can always go to A&E if your pain is unmanageable. Hope you get some relief x
Title: Re: In hell with pain
Post by: suzysunday on September 10, 2023, 12:56:38 PM
So sorry to hear you are in so much pain.  You have been so kind to me on this forum I wish I could be more help.   I can only echo the sympathy from others here. I don't understand why you haven't had more support from doctors.  I really hope you get some proper help soon.  Sending love and hugs.
Title: Re: In hell with pain
Post by: Taz2 on September 10, 2023, 01:00:58 PM
Sorry you are still in so much pain. Could the fibroid be degenerating?

Taz x
Title: Re: In hell with pain
Post by: Katherine on September 10, 2023, 01:07:00 PM
Hi Nas

So sorry to hear you’re suffering. I’ve always had excruciating period pains and I used to use nurofen plus for which you can buy over the counter. I now get codeine prescribed and use with ibuprofen. You could get nurofen plus for now ( it can take a while to take effect but somehow lying down seems to help) and get a prescribed painkiller asap from your gp. I hope you feel better really soon. Don’t worry, there are painkillers that will solve this!
Title: Re: In hell with pain
Post by: Nas on September 10, 2023, 01:14:31 PM
Thanks all.
Death seems preferable right now, trust me.

I also think I'm low in oestrogen again. Anxiety has re appeared and I’ve forgotten how to drive!

I’m stalling the car, my brain and body are not connected at all. I can’t follow conversations and I generally can’t be bothered with life. Heart is beating continuously.

I only went to the local supermarket and my driving was appalling.

I can’t do this.
Title: Re: In hell with pain
Post by: Katherine on September 10, 2023, 01:26:04 PM
Nas I’ve felt like you and I just stay in  until it passes otherwise similar things would happen to me. Your pain is consuming all your energy right now and the fact you even managed to go out in the car is amazing. This WILL pass. Take the painkillers, if they don’t work call 111. Lie down, relax, you are coping really well. I believe in you. Xxx
Title: Re: In hell with pain
Post by: Nas on September 10, 2023, 01:35:56 PM
Thankyou Katherine

I think you are right. My pain is zapping the life out of me. I have so much to do at home.

This fibroid is pressing on my bowel. My oestrogen is low, I’m in pain, work tomorrow, I can’t cope  :'(
Title: Re: In hell with pain
Post by: Katherine on September 10, 2023, 01:40:33 PM
Nothing is more important than you feeling better. If I were you I would leave your house jobs and call in sick tomorrow and take your painkillers and lie down. I would call your gp surgery tomorrow as an urgent appointment, get some strong painkillers prescribed to use until you get the surgery or whatever the more permanent solution is. Right now just look after yourself.xxx
Title: Re: In hell with pain
Post by: Katherine on September 10, 2023, 02:54:00 PM
Are you feeling any better Nas?
Title: Re: In hell with pain
Post by: Nas on September 10, 2023, 03:46:19 PM
Hi Katherine,
Thank you so much for your kind and supporting words, they are very much appreciated  :thankyou:

Well, I looked at my box of HRT 'tricks' and saw I had some sandrena gel in there. I slapped on a sachet as I remembered from previous times, that it does give me a bit of a boost now and then. Sure enough, within half an hour, I was able to do another load of washing, put some laundry away, see to my house rabbits and book a GP appt.

So, I am low in oestrogen it seems, along with a hideously painful fibroid, which is impacting bladder and bowel now.

Somehow, I MUST get this sorted. How, I do not know.
If I can get my pain under control, I will be okay until all these results are through. If I can't, I am just going to have to show up at A&E again. They cannot expect people to just live in pain, surely? GP appt. is two weeks time, but If I feel as hideous tomorrow, I will have to go sick. I went sick before the summer break, for two days, with pain, so it is probably best for me to get signed off now. I will disucss this with the GP when I speak to her/him.

Taz, I am not sure if the fibroid is degenerating. It was the size of a pip last September and now 6cm x5cm!
It is just on the outside of the uterus and causing majpr pain.

Just taken nuromel and am hoping for the best!

Thanks again all x

Title: Re: In hell with pain
Post by: Katherine on September 10, 2023, 03:51:30 PM
I’m so glad you are feeling better! And you have a plan now. I’m having one of those ‘feeling knackered’ days myself which may be pmt, but you’ve just inspired me to go and apply my oestrogel which I still haven’t got round to doing, then hopefully I can tackle my mountain of dishes! Keep us updated of how you’re getting on, we care about you!
Title: Re: In hell with pain
Post by: Ana21 on September 11, 2023, 03:40:53 PM
Hi Nas!

Haven't been on for a while and catching up.  I'm so sorry to hear you're going through this.  An MRI sounds like a good next step.  I hope they're able to get it out of you ASAP.

A couple of links that may help others understand what you're going through.  There are many different types of fibroids.  I hope I'm allowed to post links.

Subserosal Fibroids
https://atlii.com/subserosal-fibroids/


Picture of Fibroid Locations in the Uterus
https://innovativegyn.com/wp-content/uploads/fibroid-uterus_5.jpg
Title: Re: In hell with pain
Post by: Nas on September 11, 2023, 04:17:22 PM
Thanks Ana  :)
Yes those links say it all and I have all of those horrid symptoms. They are really awful how they impact on the body and I can’t stress enough how they are often swept under the carpet by many medics and classed as “ something women get”! No! Once they begin to affect the bowel and bladder, trouble lies ahead.

IF ANY part of my bladder or bowel is affected, when I finally get to this monster out, I won’t be happy at all. 

As it is, I’m having to eat a ton of prunes, kiwi and figs; in addition to laxatives and stool softeners, just do keep things “ moving”  It’s totally exhausting!!
This damm beast is causing all of this ( check out where the uterus is in relation to the colon and bowel) .

Katherine, how are you today? X
Title: Re: In hell with pain
Post by: discogirl on September 11, 2023, 05:28:01 PM
Hi Nas

I just wanted to offer my support. You're really going through it at the moment sweetheart I'm so sorry.

Just to say I'm thinking of you xxxx
Title: Re: In hell with pain
Post by: Nas on September 11, 2023, 06:22:36 PM
Thanks disco.
Relentless for sure.

How are you doing? Xx
Title: Re: In hell with pain
Post by: Katherine on September 11, 2023, 08:54:22 PM
Hi Nas,

I’ve had a better day thank you today. I think sometimes at the weekend I just need a really good rest. I think we sometimes forget to rest don’t we. I hope you’re feeling better. I hope you get sorted soon.  I find breakfast cereals like special k are good for fibre you know. Xxx
Title: Re: In hell with pain
Post by: lillith112 on September 12, 2023, 07:26:25 AM
I'm so sorry you are going through this. My mum had massive fibroids equivalent to a 6 month pregnancy. The consultant told her they grow from oestrogens and when she goes through menopause the drop in oestrogen will make them shrink. And it did as she had no problems with them and they all shrank to nothing.
Are you on any HRT particularly oestrogen ?
Title: Re: In hell with pain
Post by: suzysunday on September 12, 2023, 11:56:11 AM
Hope you are getting some relief from your pain.  Are you going into work?  It just takes your life over, nothing else gets a look in.  Sending love and hugs to you x
Title: Re: In hell with pain
Post by: discogirl on September 12, 2023, 01:01:46 PM
Hi Nas

Not too bad at the moment.

I really hope you can get this fibroid sorted soon. I really feel for you xxx
Title: Re: In hell with pain
Post by: SarahT on September 12, 2023, 01:15:33 PM
Hey Nas,
Sorry not been on forum for a few days.

Bloody he'll girl, you need urgent help. What plans have you for the immediate future? Sometimes we are able to accept ( albeit reluctantly) some pain and symptoms, but when it affects our day to day lives severely then action is surely urgent? It can be hard to get the medical professions ( who I hasten to add are generally amazing) to understand when we feel so defeated by pain,it can feel exhausting so much so I sometimes lose the ability to fight my corner.

When I had physio for osteoarthritis on my hips, I asked if so could continue exercises whilst other pain is investigated,  the physio said that they use a 4/10 guide. In other words do the exercise unless your own pain threshold reaches 4/10 or above.

How many on here have daily pain close to the maximum?