Menopause Matters Forum

Menopause Discussion => All things menopause => Topic started by: Champers101 on June 20, 2023, 07:21:41 AM

Title: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Champers101 on June 20, 2023, 07:21:41 AM
Hi

Wondering if anyone can help please - I have been on Blissel for around 6 wks now and it was really helping with itching and burning symptoms. However after using a canesten pessary overnight a couple of days ago, the burning has come back despite me still using the Blissel daily. Am panicking that I’m going to be stuck with this burning forever now!

I was previously on ovestin, which caused migraines, so moved to Blissel/
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Flossieteacake on June 20, 2023, 07:28:54 AM
VA can flare from time to time. Things like having thrush, a UTI, being stressed, being ill, all cause mine to flare. Please do not worry. It is likely the thrush had caused this and once things settle you will be back to how you were before. :)
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: CLKD on June 20, 2023, 08:38:34 AM
It is probably side effects of the canastan - when I thought that I had thrush but didn't, the product burned so much that I sat in a cool bath for 3 hours  :'(

Give yourself a thorough cleansing of the vulval area and begin VA treatment this evening.  Why did U think that you needed thrush treatment?  If there is a discharge it's probably the Blissel [reminds me of a brush  ::)  ;) ] leaving the body: what goes up etc..

If symptoms niggle I swallow 2 neurone 3 times a day until it feels less likely to need2P.

Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Champers101 on June 20, 2023, 01:11:43 PM
Thank you for the replies - very reassuring!  I knew I had thrush because everything suddenly went madly itchy - and I have thrush quite regularly since starting HRT patches.

I was a bit worried about using a canesten pessary and the Blissel at the same time!

I’m praying that the Blissel hasn’t stopped working. Health anxiety really doesn’t help…
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Minusminnie on June 20, 2023, 01:22:56 PM

I was a bit worried about using a canesten pessary and the Blissel at the same time!


You could try a one off oral Fluconazole 150 mg capsule bought at a pharmacy for thrush.  This then avoids another ‘product’ going in the vagina alongside the blissel. 
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Flossieteacake on June 20, 2023, 02:40:01 PM
The Blissel will still work. This is a flare and needs calming down. You can even increase the Blissel to twice a day in the meantime if it would help. That is what I would do.
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Ayesha on June 20, 2023, 03:11:15 PM
It's very normal for VA to wax and wane in any adverse circumstances, anything from hay fever to high humidity weather causes flare ups in me.
As Flossieteacake suggests, it's a flare up you are going through and will soon pass.

Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: CLKD on June 20, 2023, 03:47:23 PM
Don't treat 'thrush' unless a sample has been taken by your Nurse Practitioner.

1 of my symptoms of VA is intense itchiness, too high up to scratch ! and if there's a discharge, unless it's thick, creamy and smelly, it's likely to be residue from the VA treatment.

Thrush thrives on sugars.  So checking your diet for 'hidden' sweetners etc. may help regulate the incidences, though if they are regular, you need to get the candida problem sorted clinically.  Do U suffer with oral thrush?

Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Champers101 on June 21, 2023, 07:12:38 AM
Thank you so much for all replies. My health anxiety is causing such panic as I thought everything VA-related was sorted after many months of agony! I could not live through it all again.

I haven’t had thrush checked this time (it’s tricky to get it checked!) but in the last few months I’ve had positive swabs a few times.

I’m really hoping and praying that this is a flare up, as people have said. Got to keep my faith in the Blissel! Just have that worry because I know it’s a lot weaker than Ovestin, and not many women seem to use it.

It’s horrible at the moment, burning just inside the vagina, almost like a tampon is stuck there. With associated urinary issues. But it does come and go throughout the day
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Flossieteacake on June 21, 2023, 07:20:51 AM
VA flares are awful. Unfortunately, anxiety can make them worse. Please know VA can flare and it is perfectly normal.
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Dierdre on June 21, 2023, 07:56:53 AM
Hi

Wondering if anyone can help please - I have been on Blissel for around 6 wks now and it was really helping with itching and burning symptoms. However after using a canesten pessary overnight a couple of days ago, the burning has come back despite me still using the Blissel daily. Am panicking that I’m going to be stuck with this burning forever now!

I was previously on ovestin, which caused migraines, so moved to Blissel/
When using a Caneston pessary you shouldn't use any other product at the same time, so it may not have worked properly if you carried on with the Blissel.
I would use an oral Caneston tablet so you can carry on with the Blissel. If there's no improvement then definately get a swab done.
It sometimes takes a couple of treatments to shift thrush if you've had it a while, or if it's recurring you may need something stronger or for longer on prescription.
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: CLKD on June 21, 2023, 08:14:35 AM
Let us know how you get on.
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Champers101 on June 21, 2023, 10:01:13 AM
Thank you all again. How long do people find their flare ups usually last?

I can’t help worrying I’ve suddenly developed vulvodynia!
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Flossieteacake on June 21, 2023, 10:14:12 AM
Thank you all again. How long do people find their flare ups usually last?

I can’t help worrying I’ve suddenly developed vulvodynia!

I am currently experiencing a flare up that is lasting about 3 weeks. I would say it is different for everybody though and hopefully yours will not be as long.
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Champers101 on June 21, 2023, 12:02:17 PM
Thank you Flossie - and is this something you’ve had before so you know it will pass? Do you just keep up your treatment as it was and wait for the storm to pass?

And is it mostly a return of burning you get? So so sorry for all the questions
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: CLKD on June 21, 2023, 12:04:23 PM
U ask away.  4 me it was initially like razor blades  :o up there with increased need2P.  Appropriate treatment has helped a lot, occasionally I have to do a 2 week reload as well as taking Nurofen 3 times a day.

Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Flossieteacake on June 21, 2023, 12:07:39 PM
Thank you Flossie - and is this something you’ve had before so you know it will pass? Do you just keep up your treatment as it was and wait for the storm to pass?

And is it mostly a return of burning you get? So so sorry for all the questions

Do not be sorry. :)

Yes, I get mainly flares. If I am poorly, anxious, stressed then I will get a flare. They do pass. What I do is carry on with the Ovestin but on bad days I use it twice a day rather then once a day like I usually do.

When I get a flare I get soreness, constantly needing the loo, pain, irritable skin. All the VA symptoms. They just come back. It does pass though so please try not to panic.
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Champers101 on June 21, 2023, 01:08:11 PM
Thank you so much to both of you for your support! Do you mean CLKD that it felt like razor blades during a flare up? That’s EXACTLY how it feels for me right now and it’s incredibly hard to live with and just get on with my normal days!

And by suitable treatment do you mean just sticking with topical HRT and adding some nurofen?

Thanks Flossie, your words are really reassuring. It’s just such a shock after things have been fine for so long! I have been taking Blissel every day but could try upping to twice daily
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Flossieteacake on June 21, 2023, 01:09:39 PM
Thank you so much to both of you for your support! Do you mean CLKD that it felt like razor blades during a flare up? That’s EXACTLY how it feels for me right now and it’s incredibly hard to live with and just get on with my normal days!

And by suitable treatment do you mean just sticking with topical HRT and adding some nurofen?

Thanks Flossie, your words are really reassuring. It’s just such a shock after things have been fine for so long! I have been taking Blissel every day but could try upping to twice daily

You are so welcome. I often get shooting pains going up there and a sensation like there is glass so I understand how horrible it is. A flare can come out of the blue and be scary but it will pass.

I think you will feel better taking Blissel twice a day until the flare calms down.
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: CLKD on June 21, 2023, 01:16:58 PM
Initially it was like razor blades then intermittent urine infection-type symptoms.  Treated with 'ovestin' as well as Nurofen when necessary, seems to keep VA under control.

So yes - continue with the Blissel and pain relief when necessary.  As well as a mositorisor for the vulval area to keep it soft and less stingy.  It really is Trial and Error  ::)
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Ayesha on June 21, 2023, 04:11:53 PM
I think the use of a moisturiser is vital to go along with the other VA treatments, I just would not be without it.
 
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Dierdre on June 21, 2023, 04:29:18 PM
Thank you all again. How long do people find their flare ups usually last?

I can’t help worrying I’ve suddenly developed vulvodynia!

I've been suffering with the worst and longest flare up in seven years, I've had it since the beginning of May, so 6 weeks. Started when I took Benocol for 3 months and we now think the plant sterols in this caused the imbalance and competed or blocked the local estrogen. Then I used an old box of Vagifem, still in date but 2 years old, maybe degraded in the hot weather last summer at the back of my wardrobe, so it was as if I hadn't taking anything for weeks. To top it all another 2 cases of thrush, treatment didn't clear it first time then I mistook it for another flare up, burning was awful. Had swabs, result positive, took two more Caneston oral tablets plus a pessary to clear it. The pessary made it worse as I couldn't take Vagifem for a few days and I was so dry the Caneston pessary wouldn't melt!! Doctor sent me for a scan as my bladder was burning so bad but no UTI and pelvic scan clear.
I've now started CBT therapy as my health anxiety was off the scale and making my atrophy worse.
This week for the fist time in 6 weeks I'm starting to get through the day on one a day Vagifem again, been taking two some days but that then causes cramping and a weird surge or kind of wave in my stomach.
Anyway, I'm hoping this is the end of it. I had VA so under control so it was a shock, I never thought it would get so bad again after all this time.
The problem is the symptoms of a VA flare up are the same as thrush and lichens so I never know which it is for a while so just have to treat all three just in case.
Once we know the triggers and avoid them it helps but sometimes things like stress can't be avoided. My worst fear every flare up is that it will not get better but it does, it just takes so long...
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Champers101 on June 21, 2023, 04:53:46 PM
Thank you all. How many times a day do people tend to use moisturiser?

So sorry to hear you’ve had such a long flare up Deirdre! It’s such an added complication when you don’t know if it’s thrush or VA causing symptoms

I’m still praying the Blissel will come good again! It’s just strange to think that after everything was plumped up, that dryness could recur
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Dierdre on June 21, 2023, 05:00:39 PM
Use moisturisers as and when needed. I use YES water base, it's the only one that don't irritate or burn and I've tried a lot over the years and spent a fortune  :(
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: CLKD on June 21, 2023, 05:03:17 PM
Diedre - mayB use 'extra' - 1 in the morning the other at night?  So that the vulva doesn't get too much all at once?

Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Champers101 on June 21, 2023, 05:10:52 PM
Thanks Deidre - does Yes make a big difference? It’s not cheap! But relief would be priceless.
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Minusminnie on June 21, 2023, 05:34:29 PM
It’s not cheap! But relief would be priceless.

Yes enclosed a sachet sample of waterbase in the box with my latest order with them. It might be worth asking for some samples before any purchase or trying a travel size.

If you register with them for emails they have offer weekends every now & again which helps.
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Champers101 on June 21, 2023, 06:50:28 PM
Brilliant, thank you
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Dierdre on June 22, 2023, 09:48:59 PM
Thanks Deidre - does Yes make a big difference? It’s not cheap! But relief would be priceless.
It helps on the days I'm feeling dry and burning as vagifem doesn't moisturise. You can get the YES Water base in the tube on prescription.
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Jules on June 23, 2023, 06:35:06 AM
I don't get internal pain. My main issues were only related to sex. If I stayed celibate I was ok. But otherwise was getting UTI each time I had sex. They eventually prescribed a profalactic antibiotic which did the trick but as I got older I started getting irritation after sex so tried vagifem. Just lately I've been getting external sensitivity like a twinging sensation. I don't know if it's since I started using Ovestin. It's annoying. I've said before but I didn't expect any of this, nobody tells you, particularly the change in how you look down there. Not everyone but some of us. I hate this aging.
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: sheila99 on June 23, 2023, 08:03:04 AM
I had recurring thrush some years, doctor said when it's in your bloodstream using pessaries won't be a proper cure. I got it most months just before a bleed. I was given oral fluconazole, I think 3 some days apart but can't remember exactly. If you look up persistent thrush or recurring thrush it should tell you. You can buy generic flucanozole cheaply from the Internet, usually 3 doses cost less than 1 caneston you buy from a chemist.
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: CLKD on June 23, 2023, 08:07:37 AM
Interesting.  MayB because Candida thrives on sugars.   ???
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Minusminnie on June 23, 2023, 08:22:40 AM
Thanks Deidre - does Yes make a big difference? It’s not cheap! But relief would be priceless.
It helps on the days I'm feeling dry and burning as vagifem doesn't moisturise. You can get the YES Water base in the tube on prescription.

You learn something everyday ! i knew Yes VM was available on prescription but didn't realise that waterbase is as well.

Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Dierdre on June 23, 2023, 10:01:16 AM
I used to get the 5ml applicators on prescription but about a year ago when I requested it I was told I can get it OTC!
I could have the 75ml reusable tube but the presevatives in that irritated and made me sore so now I buy them from Amazon £9.99 for 6.
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Dierdre on June 23, 2023, 10:28:02 AM
I think the use of a moisturiser is vital to go along with the other VA treatments, I just would not be without it.
Which moisturiser do you use Ayesha, maybe it's one I haven't tried?
Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Ayesha on June 23, 2023, 11:21:39 AM
I use Sylk, it's what I started with and have kept with it and not needed to try any other. It was recalled recently and not sure yet if its back on sale.

Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Minusminnie on June 23, 2023, 05:44:50 PM
I used to get the 5ml applicators on prescription but about a year ago when I requested it I was told I can get it OTC!

Not good to give it to you and then take it away.  They could of phased that in with new patients if necessary.



Title: Re: Is it normal for VA symptoms to wax and wane on topical HRT?
Post by: Champers101 on June 26, 2023, 06:58:38 PM
Just catching up on this thread - thanks to everyone for your posts. All noted!