Menopause Matters Forum

Menopause Discussion => All things menopause => Topic started by: Katherine on June 15, 2023, 12:16:38 PM

Title: Internal vibrating feeling
Post by: Katherine on June 15, 2023, 12:16:38 PM
Hi ladies,

I increased my oestrogel dosage from 2 to 3 pumps about 1.5 weeks ago and was intending to be on 3 pumps in the week before and during my period to give me more energy and lift my mood during that time but last night whilst falling asleep I had a sensation that my body was vibrating.

I’ve seen a few posts about it on here and other ladies have associated it with lower oestrogen and anxiety yet I have increased my oestrogen and am feeling less anxious if anything. I have seen a post suggesting it is due to high blood pressure which concerns me. Does anyone know if increasing your oestrogel can cause an increase in blood pressure. I don’t remember feeling that the vibrating was distressing but it does worry me that it could be an indication of something serious.
Title: Re: Internal vibrating feeling
Post by: Flossieteacake on June 15, 2023, 12:20:45 PM
I am sorry you are feeling anxious. I would not think this means something serious as it seems to be common for many of us. I know I get this too. I have a blood pressure monitor and have not noticed it happens when my blood pressure is high. Perhaps it is one of those annoying meno things that are hard to explain. If it helps to reassure you then you could always have your blood pressure tested.
Title: Re: Internal vibrating feeling
Post by: marge on June 15, 2023, 12:29:40 PM
I’m not, and never have been, on any HRT, but the internal vibrating was by far my worst meno symptom. I think it’s all to do with dwindling oestrogen. There are lots of posts on this forum about it. Have a read. Personally, I don’t think it’s connected to blood pressure, but we’re all different and react to things in different ways.
Title: Re: Internal vibrating feeling
Post by: Katherine on June 15, 2023, 12:42:30 PM
Flossie that is reassuring, thank you. I have a blood pressure monitor but once it didn’t deflate by itself and hurt my arm - could you recommend a good one as it would be reassuring to check?
Title: Re: Internal vibrating feeling
Post by: Katherine on June 15, 2023, 12:45:47 PM
Hi Marge, that’s  interesting as I assumed it was due to an increase in oestrogel as I haven’t changed anything else lately. But I guess being in peri my hormones are fluctuating in the background. I forgot to mention I took ibuprofen and codeine last night as well for my period pain so I don’t know if that would have been a factor when combined with 3 pumps of gel.

Title: Re: Internal vibrating feeling
Post by: joziel on June 15, 2023, 01:13:12 PM
I feel like I’m an unwitting expert on this symptom as I’ve been battling it for a year. I’ll give you a summary…(!)

It can be due to too low or too high estrogen - or estrogen fluctuations. Don’t ask me why estrogen fluctuations cause this if our own bodies are constantly fluctuating pre-menopausally through our cycles but anyway….

My symptoms are getting a lot better just recently since switching from patches to gel.

My Newson dr says that in peri we often need quite high amounts of estrogen (100 or 4 pumps or even higher) to override our own fluctuations. That way what our ovaries make is a drop in the ocean.

I don’t know if that’s true because everyone seems to be different with this.

But all I can say is that this symptom is hell. For an entire year I haven’t slept normally because I shake internally all night with my heart beating hard and faster than usual. The lack of sleep is life destroying. I am hopeful I’m on the right path…

But if you are just feeling “slightly low energy” and increased estrogen due to that - maybe reconsider. I mean, this isn’t a symptom you want to mess with  ;D Some low energy might be preferable!!
Title: Re: Internal vibrating feeling
Post by: Flossieteacake on June 15, 2023, 01:40:25 PM
Flossie that is reassuring, thank you. I have a blood pressure monitor but once it didn’t deflate by itself and hurt my arm - could you recommend a good one as it would be reassuring to check?

Mine is an inexpensive one from Amazon by Sinocare. I have had it for a few years now and it works okay for me. :)
Title: Re: Internal vibrating feeling
Post by: JoannFran on June 15, 2023, 01:57:10 PM
Hi

I get this too!  It's awful.  Makes me feel so anxious!  I also don't think it's to do with blood pressure, or at least it isn't for me.

A good monitor is an Omron one (amazon).  This is what the cardiologist recommended to me and said don't use a wrist one as they aren't as reliable, use a cuff one.

I'm on 80mg slow release propranolol for palpitations and it's seems to have helped a bit with this too.  Also a bit better with HRT when things are balanced.

You're not alone!! xx
Title: Re: Internal vibrating feeling
Post by: DottyD68 on June 15, 2023, 02:15:31 PM
Hi Katherine,

I think I've had most of the many menopause symptoms in the last 8-9 years but the internal vibrations didnt start until last Christmas. Very disconcerting especially waking in the middle of the night with it. To me it feels like internal tinnitus. It occurred at the same time when my anxiety, jitters and palpatations were through the roof. It was a time of high stress anyway and I think my own hormones were fluctutating yet again at the same time. I dropped the oestrogel pumps down to 3 and then 2 over a few months and it settled.

 I've recently had another reoccurance of it but not quite so bad along with huge, sore, tender breasts. I've dropped the gel down again to one and a half pumps and it seems to have eased. I'm still waiting for my breasts to reduce too but they definitely dont feel quite so tender. Im 55 next month so im hoping im getting to the back end of peri-menopause and my hormones are having their last hoorah!

I can but hope.

Anyway I totally sympathise. The vibrations have been one of the worst, most frightening symptoms for me and I'm so glad I had this forum to refer to in my scariest moments.

Sending you best wishes X


Title: Re: Internal vibrating feeling
Post by: Kathleen on June 15, 2023, 02:21:52 PM
Hello Katherine


Another sufferer here. I have had this symptom often and it was so bad at three years post meno that I started HRT. I still have episodes of this but it comes and goes at random these days.

Fortunately my trusty Meno book described this feeling so I knew what it was. Apparently although the sensation is perceived in the body it is actually the brain responding to changing Oestrogen levels.

A while ago I mentioned this to someone who recognised the feeling but said that after six months hers resolved so perhaps it does burn itself out at some stage.

Be assured that it is definitely hormonal and as JoannFran has said, you are not alone.

Take care.
K.
 
Title: Re: Internal vibrating feeling
Post by: Katherine on June 16, 2023, 10:01:59 PM
I feel like I’m an unwitting expert on this symptom as I’ve been battling it for a year. I’ll give you a summary…(!)

It can be due to too low or too high estrogen - or estrogen fluctuations. Don’t ask me why estrogen fluctuations cause this if our own bodies are constantly fluctuating pre-menopausally through our cycles but anyway….

My symptoms are getting a lot better just recently since switching from patches to gel.

My Newson dr says that in peri we often need quite high amounts of estrogen (100 or 4 pumps or even higher) to override our own fluctuations. That way what our ovaries make is a drop in the ocean.

I don’t know if that’s true because everyone seems to be different with this.

But all I can say is that this symptom is hell. For an entire year I haven’t slept normally because I shake internally all night with my heart beating hard and faster than usual. The lack of sleep is life destroying. I am hopeful I’m on the right path…

But if you are just feeling “slightly low energy” and increased estrogen due to that - maybe reconsider. I mean, this isn’t a symptom you want to mess with  ;D Some low energy might be preferable!!

Hi Joziel,

Thanks for your reply, and I’m sorry to hear you’ve been struggling with this symptom. Can I ask how you know it is a symptom of fluctuating oestrogen?

I increased to 3 pumps because I’ve been on 2 for over a year and I have still been having roughly 14 days a month where I struggle and I have been having to organise my life around my cycle, so anything that involves travel, any appointments or things that require a moderate amount of mental or physical energy I schedule for my good 2 weeks. It’s not just slightly low energy it’s more like dragging myself around and struggling and not being able to feel good at all. Since upping to 3 pumps I feel a lot better in the difficult part of my cycle, significantly more mental and physical energy although still a challenge even on a good nights sleep. I’ve only had the vibrating once so I’m hoping it won’t become a thing but if it does I might have to re think things..
Title: Re: Internal vibrating feeling
Post by: Katherine on June 16, 2023, 10:03:18 PM
Flossie that is reassuring, thank you. I have a blood pressure monitor but once it didn’t deflate by itself and hurt my arm - could you recommend a good one as it would be reassuring to check?

Mine is an inexpensive one from Amazon by Sinocare. I have had it for a few years now and it works okay for me. :)

Thanks for the recommendation Flossie  :) x
Title: Re: Internal vibrating feeling
Post by: Katherine on June 16, 2023, 10:09:08 PM
Hi

I get this too!  It's awful.  Makes me feel so anxious!  I also don't think it's to do with blood pressure, or at least it isn't for me.

A good monitor is an Omron one (amazon).  This is what the cardiologist recommended to me and said don't use a wrist one as they aren't as reliable, use a cuff one.

I'm on 80mg slow release propranolol for palpitations and it's seems to have helped a bit with this too.  Also a bit better with HRT when things are balanced.

You're not alone!! xx

Hi JoannFran,

Thanks for posting and sorry to hear you have this symptom. It is reassuring that it’s maybe nothing to do with blood pressure. Thanks for the recommendation. I’m glad you’ve found things that help. It is reassuring to know other people sometimes have it and are still here to tell the tale!

It is such a weird feeling and i think I didn’t find it distressing because I was almost asleep but im a bit scared of it happening when im fully awake! It’s only happened once so far.

 I’ve had a couple of episodes of being very dizzy recently as well, one night I got up to go to the toilet in the night and it was like I’d been spinning around and trying to stand up straight, I had to hold on to things to walk. Maybe I should see my gp in case it’s something significant..
Title: Re: Internal vibrating feeling
Post by: Katherine on June 16, 2023, 10:14:37 PM
Hi Katherine,

I think I've had most of the many menopause symptoms in the last 8-9 years but the internal vibrations didnt start until last Christmas. Very disconcerting especially waking in the middle of the night with it. To me it feels like internal tinnitus. It occurred at the same time when my anxiety, jitters and palpatations were through the roof. It was a time of high stress anyway and I think my own hormones were fluctutating yet again at the same time. I dropped the oestrogel pumps down to 3 and then 2 over a few months and it settled.

 I've recently had another reoccurance of it but not quite so bad along with huge, sore, tender breasts. I've dropped the gel down again to one and a half pumps and it seems to have eased. I'm still waiting for my breasts to reduce too but they definitely dont feel quite so tender. Im 55 next month so im hoping im getting to the back end of peri-menopause and my hormones are having their last hoorah!

I can but hope.

Anyway I totally sympathise. The vibrations have been one of the worst, most frightening symptoms for me and I'm so glad I had this forum to refer to in my scariest moments.

Sending you best wishes X

Hi Dotty,

Thanks so much for your reply and sorry to hear you’ve had this symptom too. It does sound like it’s related to too high oestrogen in your case. I’ll keep that in mind, if it happens again I think I will see what my gp says. I hope your hormones settle down soon, you’re right maybe they’re having one last hurrah! Sending you best wishes too. Xxx
Title: Re: Internal vibrating feeling
Post by: Katherine on June 16, 2023, 10:18:10 PM
Hello Katherine


Another sufferer here. I have had this symptom often and it was so bad at three years post meno that I started HRT. I still have episodes of this but it comes and goes at random these days.

Fortunately my trusty Meno book described this feeling so I knew what it was. Apparently although the sensation is perceived in the body it is actually the brain responding to changing Oestrogen levels.

A while ago I mentioned this to someone who recognised the feeling but said that after six months hers resolved so perhaps it does burn itself out at some stage.

Be assured that it is definitely hormonal and as JoannFran has said, you are not alone.

Take care.
K.

Thanks Kathleen for your kind words. All of the replies I’ve received have helped me feel better, thank goodness for this forum and all you ladies are just so kind. I am just telling myself at the moment that it may not happen again but if it does at least I’ll know what is causing it. Xxx
Title: Re: Internal vibrating feeling
Post by: Witchinghour on June 17, 2023, 06:20:53 AM
Hi ladies,

I increased my oestrogel dosage from 2 to 3 pumps about 1.5 weeks ago and was intending to be on 3 pumps in the week before and during my period to give me more energy and lift my mood during that time but last night whilst falling asleep I had a sensation that my body was vibrating.

I’ve seen a few posts about it on here and other ladies have associated it with lower oestrogen and anxiety yet I have increased my oestrogen and am feeling less anxious if anything. I have seen a post suggesting it is due to high blood pressure which concerns me. Does anyone know if increasing your oestrogel can cause an increase in blood pressure. I don’t remember feeling that the vibrating was distressing but it does worry me that it could be an indication of something serious.

OP, have you had your B12 levels checked? Low B12 causes internal tremors.
Title: Re: Internal vibrating feeling
Post by: Katherine on June 17, 2023, 10:36:36 AM
Hi witchinghour

I haven’t had my b12 levels checked but I take a b12 spray every day as it improves my concentration. If it keeps happening I will go to my gp and get checked.
Title: Re: Internal vibrating feeling
Post by: Joodle on October 14, 2023, 11:24:51 PM
Hi all,
Very comforted to see other women with my weird symptom. Last year I had a mirena put in to help reduce heavier bleeding (has always been heavy) and improve iron levels. After that from time to time I began to notice what I thought was tiny little earth tremors as we had had a mild earthquake and I thought they were after effects though strange they lasted so long. I asked my friends if they noticed them. The Mirena caused continual bleeding. I took tranexamic acid to stop the bleeding. It worked and then restarted. I did not connect the tremors to the mirena. 5 months later the mirena came out. I had shocking back pain for 3 days. Ultrasound showed it was sitting in my cervix. The gp removed it. Ever since then I’ve had such powerful inner vibrations that I cannot sleep without 500 mg gabapentin per night. Even then there’s a bit of residual vibration. Has anyone rise had the connection to the mirena? Any options that work apart from HRT? Anyone try Chinese Med/acupuncture? I am so very tired…
Title: Re: Internal vibrating feeling
Post by: joziel on October 15, 2023, 11:10:00 AM
How old are you? It sounds like you might need some HRT.... The Mirena thing could just be a coincidence.

There are many causes of internal vibrations and it's good to get them all checked out but starting some HRT in the meantime is a good option too.

Causes include:

B12 deficiency
D3 deficiency
Thyroid problems (including high rT3 which I had)
Low calcium
Low potassium
Electrolyte imbalances
Withdrawal or Side effects from neurological drugs (inc gabapentin)
Side effects of antibiotics
Long Covid
Mold
And of course - low estrogen or fluctuating estrogen

And probably more I've left out.

Title: Re: Internal vibrating feeling
Post by: Joodle on October 16, 2023, 03:13:00 AM
Thank you Joziel, that doesn’t narrow it down much! 😆I’m 54. I don’t think the Mirena was coincidental at all. I think that’s when all of the vibration issues started. Before that yes very tired etc but the vibes only started after it was inserted and then very dramatically much more strongly  after the Mirena was removed so to me that’s a direct correlation. Which makes sense bc it changes our hormone levels.  Regardless I think I’ll try hrt. If it reduces it I’ll be eternally grateful as I’m living a half life and it’s a struggle. I can’t retire as I’m single and it’s hard when you just have no choice but to keep going to work, even when you feel dreadful and can’t perform as well.
Title: Re: Internal vibrating feeling
Post by: Joodle on October 16, 2023, 03:30:54 AM
Joziel, Ive tested some of these things which are normal. My thyroid is all normal except I have slightly low reverse t3 @101pmol/litre.
I do have some mould on the roof of my bathroom but I’m too tired to clean it(also have arthritis)and too challenged budgetarily to pay to get it cleaned. It’s nowhere else.
I feel like I’ve got the flu any time I stay up a little later when I have to get prep done for school next day and can’t just go to bed. It can be caused by inflammation so probably related to arthritis. Arthritis worse this year and I think that’s perimenopsuse. Has anyone had arthritis symptoms reduced by HRT? The specialist said it often helps. 
Title: Re: Internal vibrating feeling
Post by: joziel on October 16, 2023, 01:21:17 PM
Yes, one of my original symptoms was joint pain. I had bloods done for arthritis and they were all negative, including some cyclic peptide specialist test done...

Gradually the symptoms went when I started HRT and I'm now totally fine. But I also learnt I was iron deficient and started to take iron. (Low iron can also cause joint pain.) So I'm not sure which it was...

Low reverse T3 is GOOD. Are you sure you mean rT3 and not free T3? Low free T3 wouldn't be good - that is the active thyroid hormone. Low reverse T3 is a good thing. (Mine was high, which was the problem.)

With the Mirena, it could be that it changed hormones but... 1) it's not supposed to have a systemic effect, any hormonal effect is supposed to stay localised to the uterus. Whilst some people insist it does affect them in other ways, they are in the minority and must be extremely sensitive. Plus you've now removed your Mirena and are still getting the vibrations. And 2) Sometimes physical things can cause inner vibrations. For eg, neck injuries or pain, slipped discs anywhere, nerve damage for any reason... If your Mirena was sitting in your cervix and not in the right place, and if it caused back pain for you, it may have damaged a nerve somewhere round there... I mean, there could be a physical and not hormonal cause to your vibrations. Hopefully the nerve will recover now the Mirena has been removed. But it can take a while.

But HRT would be a good thing to try... for all the health benefits if nothing else.
Title: Re: Internal vibrating feeling
Post by: Joodle on October 17, 2023, 12:54:49 AM
Thanks, Joziel, yes it's definitely low reverse 3 - below the recommended range- and my other levels are all within range. I have been to a neurologist and he says my nerves are all working well and they are not responsible for the vibration. I've had MRIs and yes I do have disc bulges but physio, neurologist and GP say these are not responsible for the vibration. My meno specialist is a gynacologist and I told her about the mirena. I have had ultrasounds and no damage is visible. So I think it's the hormone levels. The vibration was very minor prior to the mirena being removed, then very intense after it was removed. It is very weird. Perhaps it was induced by all of the stress I went through last year and then this happened on top of it all. Will try HRT. Artritis is an inflammatory kind and I have had it for some time but wasn't aware. I have had flare ups for years but it has amped up especially on days when I don't sleep well.
Title: Re: Internal vibrating feeling
Post by: joziel on October 17, 2023, 11:05:47 AM
You can't really have too low reverse T3, so I wouldn't worry about that. It just means your thyroid is working really well and converting T4 to T3 and only minimal is getting converted to the 'waste of time' thing that is rT3. (Well it does have advantages in times of famine or when we need to slow our metabolisms down, but for most people in the modern age it has no useful purpose and can cause a lot of problems.)

The range will just be 'what most normal people are', which seeing they hardly test anyone with rT3 anyway, who knows how many people that sample is based on....

There are many people on FB groups for internal vibrations who've had endless neurologists tell them that the cause isn't disc injury, then miraculously be healed when the disc injury was fixed... so I remain a bit sceptical about totally writing that one off!
Title: Re: Internal vibrating feeling
Post by: Joodle on October 17, 2023, 10:35:12 PM
Could you please share one of those groups with me? I’ve been told to be very careful with my neck due to arthritis there and lots of constriction. Told not to get chiro bc it’s too forceful and tbh I don’t like chiro for that reason. I’ve just found a good physio who is working on mobilising my neck through gentle pressure manipulation which I think has freed it up somewhat. As the sensation moves around my body I still tend to think it’s likely related to estrogen, also direct correlation to the mirena which alters our hormones. But who knows! I’m willing to check everything out to get it to stop. Except chiro… 😆
Title: Re: Internal vibrating feeling
Post by: joziel on October 18, 2023, 12:02:04 PM
I was ina group called 'Internal Vibrations' but the problem is it was completely unhelpful because there are so many different causes of this symptom, so really it's just a group of people complaining about how bad their symptoms are without much help or direction in fixing it - so I left that one. Same goes with the hypnic jerks FB group. The FB groups which are useful are those with an actual diagnosis in the title rather than a symptom... the problem being we've all no idea what causes this.

I've been so much better with my internal vibrations at night for a few months now, on 4 pumps of gel and on T3 - and for some reason I had a really bad night last night with 3 hours sleep, just like it used to be. It terrified me that I might end up back there again. With the blessing of my Newson dr I've increased my estrogen - she said I could do 5 pumps of gel but I have some patches left over and zero skin to apply gel to, so I decided to add half a 50 patch instead. (On 4 pumps my estrogen was only 283pmol on day 16 of my cycle. Assuming my own body is contributing SOMETHING, even something low like 80, that means I'm maybe getting 200pmol from 4 pumps of gel. Geeze..... I seem to be absorbing testosterone gel just fine, as my T levels are at the top end of the normal range!!)
Title: Re: Internal vibrating feeling
Post by: Maggiestone5 on May 23, 2024, 04:49:05 AM
I know this is old but Joziel are you actually saying the vibration decreased when you increased your gel? I know you wondered if it was to high in the beginning.  But then you found your gel was actually to low?  I’m currently in a quandary about my patch.  And if it is causing my buzzing or I need to go higher. 
Title: Re: Internal vibrating feeling
Post by: joziel on May 23, 2024, 09:43:21 PM
Ha ha, gosh this was a long time ago  ;D  I'm now on 11 pumps of gel  ;D ;D ;D

My sleep is getting much better. I increased to 11 pumps last week and I got 7.5 hours last night, which is excellent for me.

I last tested at 6 pumps and was around 330pmol. My Newson doctors say most women need to be 400-600pmol for symptom resolution. I think because during peri you have fluctuations. I would recommend testing during your period if you still have periods, as your own estrogen will be low then so you can see what you are getting from HRT. Whatever you get, it is probably cutting in and out... Mine was around 190-250pmol up to 75 patch or 3 pumps of gel. It was 330pmol at 6 pumps. I would hope it is now around 500 or something... But I need to test again now and get an update on levels.

And the starting T3 thing has been both very interesting and a nightmare. I am now on 50mcg T4 and 45mcg T3 and I feel good as far as thyroid stuff goes - except I don't need to be on thyroid meds. These night time symptoms were estrogen related, not thyroid.

But I am using this time to sort out my metabolism by doing a slow reverse diet and gradually increasing my calories. I can't come off thyroid meds whilst my metabolism is this slow, because there will be a hypo period for a few weeks and it will slow me down even more, which could actually be dangerous if I reduce calories loads so as not to gain weight. It's a metabolic mess. The current plan is to get back up to 2200 calories with a reverse diet and then to come off the thyroid meds. I'm really really anxious about it all.

Starting a low dose of T3 was one thing (15mcg) because it didn't suppress my TSH and just topped me up. But then the doctor I was seeing freaked out because that small amount of T3 dropped my T4 to below range. So then she convinced me I needed 50mcg T4 as well - and boom - my thyroid was suppressed. Then, with a suppressed thyroid, 15mcg T3 wasn't enough and I increased to 30 - still not enough... It's just a slippery slope. I was really desperate to try anything and I don't think I appreciated what it would mean to come off.

Body builders come on and off it all the time, but they are very metabolically flexible....  ::)

Anyway, I'd suggest you get bloods done during your period and if they are not 400-600pmol, increase... And if you get to 4 pumps of 100 patch and the GP refuses higher, Newson or any private clinic will prescribe higher. And be very very careful about trying thyroid meds.
Title: Re: Internal vibrating feeling
Post by: Joodle on May 23, 2024, 11:17:38 PM
I agree with getting levels tested. My estrogen was really high so I’ve cut right back. I think taking progesterone is helping but the biggest things for me are 1 swimming 2/3 times a week and 2 getting enough rest. Also get upon the morning, don’t lounge in bed too long, no matter how tired you are. My buzzing has reduced but worsens when extra fatigued. Good luck, it’s a nightmare.
Title: Re: Internal vibrating feeling
Post by: Joodle on May 23, 2024, 11:20:06 PM
Check progesterone levels, I suspect it’s to do with the balance between the hormones. No one knows. So frustrating.
Title: Re: Internal vibrating feeling
Post by: Maggiestone5 on May 24, 2024, 02:08:58 AM
Thanks for the feedback.  So when you say 400-600poml is that your estrogen? 
I no longer have a uterus but I do have horrible endo so I talked my doctor into prescribing me a progesterone anyway.  I’m on a patch and I live in the states so it may be different but I’m on a very low dose .0375.  My doctor wants to raise to .5 but I’m nervous because like you in the beginning of the post I have internal buzzing and realized I only started noticing it  the time I started HRT. so I don’t know if it’s a menopause symptom or an HRT symptom.  I’m so concerned on what to do.  🤦🏻‍♀️
Title: Re: Internal vibrating feeling
Post by: joziel on May 25, 2024, 11:11:52 AM
Yes, this is exactly the same for me Maggie.... I had zero internal vibrating and zero sleep problems (hypnic jerks, heart beating hard and fast etc) until I STARTED HRT. It actually got worse/more intense with each dose increase.

Starting HRT fixed all my 'typical' low estrogen symptoms almost immediately - but 3 weeks after beginning HRT, I got hit with these awful internal vibrations/tremors and all the night time symptoms.

Like you, at first I thought it was the HRT itself. I spent ages slicing up patches to increase incrementally (I was only on a low dose then, 50mcg at the most). When that didn't help, I stopped HRT altogether for 6 months. This didn't fix the night time symptoms/inner tremors and I also got back all the usual low estrogen symptoms.

I introduced progesterone/utrogestan by itself for a few months. No change in these symptoms.

Then I re-started estrogen, and this time things didn't get worse with each increase - in fact there seemed to be no change in how I felt with these inner tremors. (Other than the low estrogen symptoms went again.)

It was then I realised that my estrogen levels in bloods were never very high. They were actually pretty low. On one occasion they were 400pmol-ish but that was because my ovaries produced some then. When I consistently tested during my period to rule out what I was contributing, it was low.

So as I'd tried no HRT and I'd tried the regular doses of HRT and as my levels were never that high, I decided to go in the other direction and get my estrogen to between 400-600pmol as recommended by the Newson Clinic doctors. At this point I discovered that I absorb transdermally very poorly and need a high dose to get enough.

And yes, 400-600pmol is my estrogen level I am aiming for. If you are in the US, that is around 115 in your numbers. There is a great group on Facebook which is US based called 'Bio-identical Hormone Replacement Therapy' if you are on Facebook...

I would add that I don't think this is about 'low' estrogen and certain women doing better on 'higher' estrogen - because I have a history of endo and after my laparoscopy in 2014, I was put on the desogestrel POP to keep my estrogen low. This worked and I had no endo flares for the 10 years I was on it. So - my body is *used* to having relatively low estrogen and certainly not estrogen in the 400-600pmol range for the last 10 years. So these inner tremors etc, in my eyes are not about LOW estrogen - they are potentially about fluctuating estrogen, ovaries spurting out some and then none with no pattern or cycle or regularity to it. Taking a higher dose of estrogen overrides these fluctuations and smooths things out.
Title: Re: Internal vibrating feeling
Post by: Maggiestone5 on June 15, 2024, 09:23:50 PM
@joziel thankful for this thoughtful reply.  What are you on now? And can I ask your age?  I am 49 and also have endo.  I use a hysto 6 years ago so I am not exactly sure on where I’m at except FSH showed 21 with 26 be low level of meno.  While wearing a .0375 patch I was a 112 on Esteogen.  p was extremely low but I’m having a hard time tolerating oral P so I haven’t tried it often.  I’m not sure where to go from here as the “vibrations” started the day after I started the patch I have wondered about going off of it and seeing what happens.  Or trying a different E delivery method. 
Title: Re: Internal vibrating feeling
Post by: joziel on June 16, 2024, 01:27:55 PM
I am 46yo now. When you say you were 112 on estrogen, is that in pmol or ng? In pmol that would be very low and not therapeutic levels. In ng, it would be pretty decent although could be higher. That will give some indication about what it's best to do.

I started with patches (Estrodot) but wasn't getting very high with a 75 patch (190pmol) so thought I might absorb better if I switched to gel, once I'd decided to try to get my levels up. But it looks like I also don't absorb gel very well because I'm now on 12 pumps of gel a day. TWELVE PUMPS. Which seems ridiculous. I put 6 pumps on my left leg and butt cheek in the AM and 6 pumps on the right leg and butt cheek in the evening. It takes ages to dry and is really impractical.

I haven't tested my levels since 6 pumps, when I was at 350pmol. I have bloods booked for 2 weeks time so I have some kind of reference point if I switch products. But I have no symptoms of high estrogen, my boobs are not sore and I'm not bleeding at all - my periods seem to have been stopped by this higher dose of estrogen.

I've heard that many women get the internal vibrations from low P as well, so you might want to try increasing that - especially if that estrogen result is in ng because that would mean you have a lot of estrogen to low progesterone. If you can't tolerate it orally, you can take it vaginally or even rectally. If you join that FB group I mentioned there are a lot of women using it vaginally or rectally with success. I've been taking 400mg each night to help with sleep although really it's no better than 300mg so I'll decrease again I think...

 
Title: Re: Internal vibrating feeling
Post by: Loulou08 on June 17, 2024, 06:25:04 PM
I have had a strange vibrating sensation in my vagina that lasted for appx 10 mins. I've had it a few times over last few years. I didn't even know this was a thing! Is it the same as you're describing?
Title: Re: Internal vibrating feeling
Post by: Tumiza on July 02, 2024, 10:30:01 PM
Hi … Im replying about the internal tremors and to let all you ladies know your not alone. My blood pressure is always normal to slightly lower.
I remember the day they started . It felt like butterflies in my stomach for the first few days then in the chest area & Then it progressed into this internal tremor vibrations all over that no one else can see. That was about 2 years ago. My periods completely ended 18 months ago. I’m 54and was 100% majorly active &well until this. Now it’s like chronic arthritis & stiff joints and these horrible  tremors. Im not on HRT due to family history of breast cancer.  I have lots of other annoying symptoms too .. too many to list!. I’ve had so many tests&scans …all normal. I thought I might have had Lupus … but tests showed normal or negative. Now I wake up every morning and just get on with life.. I just push on through and pray that this will all one day subside.  This Forum has been a blessing in my worst moments of worry and  feeling depressed. Thank you everyone!
Title: Re: Internal vibrating feeling
Post by: Cass63 on July 03, 2024, 12:13:33 AM
I too deal with these internal vibrations. I have experienced them on and off ever since the journey began for me in 2009. They will come and go and seem to affect different areas of my body. The last year and a half they have been with me daily. There are days they are so bad I notice visible shaking.I am convinced that I have had a fluctuation in what hormones I have left. I do not take oral HRT, only use topical estradiol cream. These internal vibrations are definitely unnerving, regardless of how long I have suffered with them. So sorry you are suffering from them also  :'( :'(
Title: Re: Internal vibrating feeling
Post by: joziel on July 03, 2024, 11:56:53 AM
Tumiza, you might want to check out the HRT situation again - because a family history of breast cancer isn't a reason to not have HRT. My mum had estrogen receptor positive breast cancer and I've been on HRT since the age of 42. (Now 46.) It has totally fixed all the obvious low estrogen symptoms, including arthritis and joint pain. I was referred to rheumatology for advanced blood tests for arthritis but they all came back negative. After a few months on HRT, they all went. Google 'balance menopause breast cancer HRT' to see the risks. Most cases of breast cancer are due to environmental factors. My mum is an alcoholic, for eg, and also overweight - and those two risk factors in themselves predispose her to it.

Unfortunately these tremors seem to be one thing which not everyone can get rid of even with HRT. Although I live in hope that there is some magic dosage which will help them. I just had bloods done on 12 pumps of Oestrogel so it'll be interesting to see if my estrogen is sky high or if I'm not absorbing. I am kinda hoping I'm not absorbing because then there will still be hope... if I switch to a different product.

Last night I had about 3 hours sleep, for about the 10th night in a row. I am like a vegetable. Even trazodone, melatonin, apigenin, taurine... none of it does anything.

I was then hopeful that when I get into menopause proper and the fluctuations stop, these symptoms will go - but then there are women like you in post-meno with these tremors. It's basically destroying my life in a lot of ways. I've avoided psych meds of all kinds so far (except for occasional trazodone) but if this is going to continue, I'm going to have to reconsider that.
Title: Re: Internal vibrating feeling
Post by: Dierdre on June 21, 2025, 08:38:37 AM
I've suddenly noticed a buzzing vibration that goes down my right buttock  down to my pelvic floor. Feels like I've got my phone in my back pocket on vibrate. No pain and not on systemic HRT just local for VA. It's not constant but just the same as a phone ringing. What is it? Anyone know please?
Title: Re: Internal vibrating feeling
Post by: Minusminnie on June 21, 2025, 09:02:01 AM
Can you turn it the other way round Dierdre ? And say that it is coming up from your pelvic floor to your buttock.
Worsening VA maybe acting on nerves.

Just my thoughts.
Title: Re: Internal vibrating feeling
Post by: Dierdre on June 21, 2025, 09:49:11 AM
It depends if I'm lying down or sitting, feel it only in pelvic floor when lying down but noticed it this morning more in the buttock when sitting. It's very faint so not sure how long I've had it as I'm on holiday at the moment and been very busy. My VA is very good at the moment, the rare stage where you forget you have it.
Wondering if it's laying on a sunbed alot or change of mattress that's irritated a nerve. It's very weird, never heard of it before until I googled it. I don't think it's hormonal.
Title: Re: Internal vibrating feeling
Post by: Kathleen on June 21, 2025, 11:33:49 AM
Hello Dierdre


The internal shaking feeling can be a menopause symptom.

 It is mentioned in my  trusty menopause book and several ladies here have reported it so you may want to do a search on the forum.

My internal shaking was in my abdomen and  it felt like I had swallowed a mobile phone that was stuck on vibrate.
I was post meno at the time and I honestly can't remember how long this symptom lasted but I think it usually resolved in the evenings.
Fortunately I don't have this problem anymore but now I have come off HRT I suppose there's a chance that it will come back. Obviously I hope it doesn't!

I hope this is helpful and I wish you well.

K.

Title: Re: Internal vibrating feeling
Post by: Dierdre on June 21, 2025, 11:58:15 AM
It never ends does it, another delight of menopause just when I thought I was doing well with VA and no other symptoms. If it is menopause it's a strange one. I can't actually feel it at the moment so it's intermittent. I'm hoping it's a trapped nerve as that hopefully will get better.
Title: Re: Internal vibrating feeling
Post by: Kathleen on June 21, 2025, 12:16:14 PM
Hello again Dierdre


My meno book talks about subtle sensations such as trembling, fluttering, unease and discomfort. Apparently the centres in the brain that control our sense of wellbeing are responsible for this symptom and this system is impacted by oestrogen.

When I had the internal shaking sensation it was quite intense while it was there but it would stop in the evening. I could never attribute it to anything I had done so in my case I believe it was hormonal. As far as I recall it just stopped happening and hasn't returned.

Other ladies may be along to report their experiences and advise you on how to cope with them if you suspect hormones.


Wishing you well and take care.

K.
Title: Re: Internal vibrating feeling
Post by: LittleClaire on June 21, 2025, 08:58:49 PM
I also have this symptom too on and off. It tends to be when I’m due to change a patch so I’m guessing low oestrogen rather than high and I only notice it when I’m laid still in bed. It’s in my middle/stomach area as if my organs internally are shaking. It doesn’t bother me and is one of the milder symptoms but yeah I believe it’s peri/menopause and hormones causing it
Title: Re: Internal vibrating feeling
Post by: Dierdre on June 22, 2025, 08:09:27 AM
Not noticed it at all since yesterday. I'm 14 years post menopausal so doubt there's much estrogen left at all. Most my problems are lack of it but not enough to warrant going on HRT. I'm on local for VA and managing well at the moment. I'll just have to wait and see if it comes back.
There's other worrying causes of these vibrations on Google, MS,  diabetes, parkinsons disease, vitamin deficiency and damaged nerves, the list is endless.