Menopause Matters Forum

Menopause Discussion => All things menopause => Topic started by: Gilla999 on May 27, 2022, 07:02:00 AM

Title: Would like to hear of experiences of the Mirena coil
Post by: Gilla999 on May 27, 2022, 07:02:00 AM
Still early days at the moment but considering switching from Utro to the Mirena, for a few reasons. I've had 3 non-hormonal coils in the past so I know what to expect in terms of insertion, but I've always been nervous about the synthetic Progesterone used in the Mirena, as I generally don't get on well with these. The only synthetic Progesterone I've ever tolerated that didn't cause horrible mood symptoms was when I took the (newish) Zoely contraceptive pill - this has Nomegestrol in it, a 4th generation progestin.

Would love to hear others experiences of it!

 In case it makes any difference the reasons I'm considering it are:
- I can't take more than 1 Utro vaginally otherwise I'm a zombie the next day
- I've been suffering with terrible allergy symptoms during my non Utro days (still not certain this is connected, no one seems to know what's going on)
- I don't like the discharge you get all the time with Utro - it often wakes me in the night
Title: Re: Would like to hear of experiences of the Mirena coil
Post by: Perinowpost on May 27, 2022, 07:23:54 AM
Hi Gilla999 I feel your pain I am the same with utrogestan. I had the mirena and suffered persistent low mood/loss of joy whilst I had it. I persevered for 6 months but had to have it removed as it didn’t get any better. Within 48 hours my mood returned to normal, and interestingly so did my libido which had been completely non existent whilst I had the mirena.

The thing is you won’t actually know until you try it. + you could always have it removed if you hate it. I would say though that those with progesterone intolerance would be better not to go there.

Hope this helps x
Title: Re: Would like to hear of experiences of the Mirena coil
Post by: jayneaddo on May 27, 2022, 08:51:52 AM
Hi

I had the Mirena and had awful experience with it. Felt like an alien immediately and become very anxious. Only lasted a week. My daughter also had it and reacted badly too. Both of us struggle with progestagens.

It is currently an option for me with the bleeding I am having but I cannot bear the thought of it.

Title: Re: Would like to hear of experiences of the Mirena coil
Post by: Gilla999 on May 27, 2022, 12:26:51 PM
Thanks ladies - I totally realise that all of these things are very personal and unique to each lady but I suspect you're both right and it's very useful to hear your feedback... if I've had rubbish experiences with synthetic progesterone previously, I guess the chances it will happen again and at least with 1 x Utro vaginally I am coping on that. It's really the cyclical allergy problems that are the main thing and I don't know for 100% certainty that that's anything to do with progesterone. Back to the drawing board! Thanks for your replies xx
Title: Re: Would like to hear of experiences of the Mirena coil
Post by: Nas on May 27, 2022, 02:48:50 PM
Oh god, mirena sounds awful then. I’m having one fitted next week for bleeding caused by HRT. God knows what to do now, as utrogestan doesn’t work at all 😟
Title: Re: Would like to hear of experiences of the Mirena coil
Post by: Sid on May 27, 2022, 04:45:42 PM
Hi

I have found the Mirena really effective. Had some minor spotting and breast tenderness for a few weeks but it’s all settled now and no more bleeding. It might be worth a try x
Title: Re: Would like to hear of experiences of the Mirena coil
Post by: Teresa on May 27, 2022, 05:26:15 PM
Hi Nas,

I mentioned on my other post that I had my second removed after 7 years and over all I had a mirena for  12 years. It really helped me as at the time as I was having heavy periods and it stopped all that. I would have had another if it wasn’t for the fibroids as I don’t think the two go together, but I am going to try and find out if it’s possible. We are all different and what works for some, doesn’t for others but I do get affected by lots of medicines, but the mirena was no problem at all. I was sailing through peri menopause when I had one.

Teresa
Title: Re: Would like to hear of experiences of the Mirena coil
Post by: Gilla999 on May 27, 2022, 07:17:30 PM
My boss at work has a Mirena and has also sailed through Peri (which doesn't help my case...!). It really is so individual, you're right. A bit nerve wracking the thought of having to wait to have it taken out if you do react badly to it.

Thanks for sharing your experiences ladies, really appreciate it x
Title: Re: Would like to hear of experiences of the Mirena coil
Post by: Tinkerbell on May 27, 2022, 08:39:57 PM
I had a Mirena for HRT, had 4.5 months of spotting but that was all, no other side effects. I went to have it replaced but they couldn't see the strings, got an appointment with private clinic next month and hoping they can find them and replace it.

Now on no HRT as i can't tolerate Utrogestan and the Femseven patches have irritated my skin severly.
Title: Re: Would like to hear of experiences of the Mirena coil
Post by: Emo10 on May 27, 2022, 08:54:10 PM
I've had 2 mirena prior to menopause and have got on well with them.

I have just had one inserted as part of my HRT regime after a 8 year break. It is working out well so far for me. It's been 5 weeks and it's really helped with my very heavy and very long (up to 3 weeks) periods. This months period has been very light and I'm hoping they might disappear altogether. No adverse symptoms at all since fitting but to be fair I was/am suffering terribly with peri symptoms.
Title: Re: Would like to hear of experiences of the Mirena coil
Post by: Sarahjaynexo on May 28, 2022, 09:00:19 PM
I'm waiting to get a mirena fitted with there's a waiting list in my area. Will try anything to reduce or stop my bleeds, fed up of taking iron tablets and misdibg out on social events etc due to heavy bleeding.

Does it help with period pains? I'm thinking if it can stop periods will it stop the horrendous back aches, thigh pain etc?
Title: Re: Would like to hear of experiences of the Mirena coil
Post by: PeriWhat?! on May 28, 2022, 11:54:26 PM
Hi, it's working for me. I couldn't tolerate the progesterone in Evorel Sequi or - especially - in Utrogestan at all, it took my peri mood swings and magnified them to terrifying proportions, not good at all.
The continuous progesterone in Mirena seems to be helping a lot and I'm in a much, much better place. Bleeding from the coil wasn't heavy but annoyingly did drag on for roughly the full six months they said it might. Bleeding now seems to have stopped, hopefully for good, so I'm happy.
Title: Re: Would like to hear of experiences of the Mirena coil
Post by: Gilla999 on May 29, 2022, 06:55:01 AM
Thanks for all the feedback ladies. I read that the Mirena prevents ovulation in 85% of women in the first year (dropping to 15% in the second year) which means it's a write off for me. Prior to starting HRT I tried the contraceptive Pill (2 different kinds) and the prevention of ovulation made my hormone fluctuations even worse (I had blood tests done which showed my own hormones were still fluctuating wildly underneath) and I was highly symptomatic as a result. I think perhaps when you're either not ovulating or it's become erratic it could be a good option to balance things out, but as I'm not at that stage yet (long story) I'll hold off for now. Nas good luck with yours! xx
Title: Re: Would like to hear of experiences of the Mirena coil
Post by: LilyValley on February 16, 2024, 11:38:26 AM
Hi everyone,

I wanted to share my experience with Mirena. It was always presented to me as an end of all my issues with progesterone at each visit to menopause clinic. At the end I felt guilty to keep saying no and while I was having a few polyps removed, I got it fitted. I'm happy to say that I got the Mirena removed now in a walk in clinic just 3 weeks after it was fitted. They do not make it very obvious, so I did not fully know that it takes UP TO 6 MONTHS to settle. If knew it, I would not have got it. I suffered physically and mentally for 3 weeks. Cramps, non stop bleeding, bloating, constipation, sadness, anger...

I live with an autoimmune condition and l already suffer from aches and pains a lot. Even though my GP told me to be patient, it was awful and I am so relieved that It is out now. I hope this helps and I hope, if you have no choice but to try it, do not suffer alone and talk to your doctors about it if your experiences happen to be a negative like mine. All the very best.
Title: Re: Would like to hear of experiences of the Mirena coil
Post by: ASB70 on March 05, 2024, 08:30:57 AM
Hi LilyValley,

I’m so glad I’ve read your post and thank you for sharing, I hope you are feeling better now and things have settled down.

I’m suffering from constant bleeding from hrt. After being referred to a gynaecologist, she is intent on fitting the mirena coil despite me making it clear at the fist consultation that I’m strongly opposed to it. Yesterday, she performed a hysteroscopy and removed a polyp. Before surgery and twice after surgery (literally as I came round in recovery!) she reiterated that the mirena coil was my only option other than a hysterectomy! I’m going to research my options, but the coil will definitely not be for me!

Take care and good luck on you journey.
Title: Re: Would like to hear of experiences of the Mirena coil
Post by: Bupster on March 05, 2024, 04:10:16 PM
I know lots of people love the Mirena. My experience was horrific - I wanted to die. Luckily it also slipped and caused bruising, and an infection, so I was able to have it removed without having to argue with my GP about it. I started to recover mentally and emotionally within days once it was out, though I'm still not back to normal.
Title: Re: Would like to hear of experiences of the Mirena coil
Post by: Scampidoodle on March 05, 2024, 06:22:17 PM
How long did you have it for? And how did it make you feel?
Title: Re: Would like to hear of experiences of the Mirena coil
Post by: Bupster on March 05, 2024, 08:17:35 PM
Less than a week. It made me so unwell. I wasn't in a great place emotionally anyway, but it tipped me over from sadness to absolute despair, hopeless, desperate. There's a definite difference between feeling very sad because you're having a shitty time, and wanting to die because you're a ball of pain and can't see any way out. Two days after removal I could feel myself very gradually feeling better. Still not there yet.