Menopause Matters Forum
Menopause Discussion => All things menopause => Topic started by: Vicky81 on May 18, 2022, 11:40:03 AM
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Guys - me again ...following on from my previous post, i am suffering very very badly with extreme fatigue....i mean eyes dropping. Again, only been happening since the 100 patch...is this also another sign of the patch being too much in your experience? Plus nipples appear to feel a bit sore....Sorry for all the questions xxx
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Would you please consider just keeping to one thread? You have 3 here and that means other peoples posts get pushed back to the next page and some never get seen. It’s much better to keep it to one anyway, others can see the whole story then instead of separate posts on each symptom.
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ATB this is a forum for anyone who is need of help. I didnt think you were contacting me on here as previously stated. There are no given rules and i give respect to all on here as i realise people are in need of help and reassurance.
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I’m not asking you not to post. I’m asking as politely as possible for you to consider others on the forum and posting in a way that respects everyone’s needs. Unfortunately we can’t block each other here and you can’t control where I post. Im not adding any comments on your posts about your situation, I’ve added a comment because the constant posting is affecting other people, including my own posts. If you want to ignore that, it’s up to you, I kindly made a request. That is all. You are not the only person suffering, I am too, and you have been extremely unkind despite receiving lots of my time.
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In appreciate that you are also suffering as are alot on here. i am not an unkind person at all, far from it, and i value everyone's feedback and advice when it is in a nurturing and understanding/patient way.
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I agree - why 3 posts on similar topics? One can alter the subject heading to keep to 1 topic which remains current. Which is why I suggest that Members do a 'search' to see if topics have already been covered.
Fatigue can be for various reasons. Lack of hydration, alcohol, sleeping too heavily, not enough rest ....... worries, aches and pains. 4 me with busy, involved dreams I wake most mornings really really tired, not necessarily my body but in my head. It doesn't want to wake up!
Crashing fatigue can be hormonally linked even without HRT.
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Thank you. I’m not offering advice. I just wanted to ask you to keep to one thread on the same thing as I said, and I know I’m not the first to ask you to do that. Something to think about.
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Also - ask Emma to amalgamate all 3 threads? Is that the word that I require :-\
When I moderated a group in the days of dial up, any topics that were similar were merged. It kept current threads at the top for at least 3 days.
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CLKD - Many people here post similar topics, looking for advice. As i say there are no rules to what somebody can post/ask advice on. Thanks for your advice regarding the fatigue, could be the sleeping too much as you say...although i think the cause is hormonally linked
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Rules don't have to be in situ for members to be sensible about what and where they post. It is sensible to keep to one thread and alter the subject line, which keeps the member topical. If a member feels that they are getting lost due to a lack of responses, they can bounce their thread: :ola: :bouncing: I do love these and don't use them often enough ::)
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I believe I am sensible hun, bit that's ok. Thanks for your post
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Hi vicky, the extreme fatigue is likely too much estrogen, the sore nipples are a really good sign that the dose was too much, you should see improvement soon now you've lowered the dose.
ATB it appears you are targeting vicky, every post she puts up you seem to have this annoyed attitude with her, even though she asked you not to respond to her posts, if you are concerned about your posts being lost why not just bump them as CLKD suggests, please remember we are replying to some very vulnerable and fragile ladies on here it's about support not making someone feel unwelcome.
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Such a shame to see another negative back and forth on here with the same people. If you’re on here it’s for a reason - you’re perhaps not feeling the best. Does it matter if people post 100 times? Leave them to it and just focus on yourself . It doesn’t hurt or affect you. It’s
no-ones business. If the MM app moderators have issues with numerous posts then let them be the ones to say something about it . And being sensible doesn’t come into it neither . It’s not school. Let people do what they like. We each have our own lane .
Vicky hope you feel a bit better - sometimes when we feel very unwell or scared like you perhaps do - we can tend to feel desperate and reach out (or post!) more or repeat ourselves many times over even whilst not always thinking clearly (like oops, I’ve already asked this in 3 posts this morning!). I know that place well, been there many times before ! But that’s ok - you can do what you like . X
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Absolutely jmargaret, extremely well put, i too I'm disappointed to see those kind of responses, x
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Hi vicky, the extreme fatigue is likely too much estrogen, the sore nipples are a really good sign that the dose was too much, you should see improvement soon now you've lowered the dose.
ATB it appears you are targeting vicky, every post she puts up you seem to have this annoyed attitude with her, even though she asked you not to respond to her posts, if you are concerned about your posts being lost why not just bump them as CLKD suggests, please remember we are replying to some very vulnerable and fragile ladies on here it's about support not making someone feel unwelcome.
Now enough of this. I haven’t posted on her threads in ages. I’m posting a polite request as it is annoying to have a person monopolise this board. So is CLKD, is she also targeting Vicky? I will not be bullied here either. I have never said anything to Vicky others haven’t also said, I had loads of people messaging support to the last thread I did post on after you all had a go at me. Stop accusing me of things I have not done. I’m allowed to post wherever I want, as a courtesy and because of the meanness I stopped. Despite the fact I had 13 DMs from Vicky asking for help. Which I gave. The moment I responded in a way she didn’t like I was insulted. Stay out of it. I am ALSO SICK, and you are being mean. I politely asked her to CONSIDER keeping to one thread fgs.
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Sorry forgot to add - sounds like was definitely too much estrogen for you Vicky - and as Amazing Grace said - the sore boobs is a good sign. I was same on 100 and dropped down to 75 and after a few days found relief. Hang in there .
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Wow thank you very much amazing grace and Margaret. I feel like crying as I read them....not a good look when I. In my other job soon ...God bless you both xxxxxx
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Margaret thank you...and yep I am actually crying now ...jeez best get my mascara off before work ...and some ice cubes on my eyes xxxx
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You are so welcome vicky, stay strong this time will pass, me and others are here to support you whenever you need it x
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ATB, please don't try to humiliate vicky publicly on this thread about PMs, that's really uncalled for, no CLKD is not targeting vicky has her response was out of genuinely trying to help, I'm not interested in arguing with you and I certainly won't be told by you what I can and can't put, I'm entitled to show support to vicky, if her posts bother you ignore them, I won't respond any further with you regarding this.
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Thank you so very much xxxx
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Vicky81....I know how desperate you feel....I've been there and I remember posting lots of questions in the early days, just wanting someone to help me. x
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I think to go after ATB for a polite request isn’t really called for. However yes we all have our own Lane. And sorry I’m if I’m swerving out of mine to voice this. Maybe Vicky and ATB have not seen eye to eye previously and that’s also ok it is was it is.
It’s good advice about the one thread Vicky cos then you can really document it all doesn’t matter how many pages it goes on for! Nobody minds ❤️
I know things are tough for us all or we wouldn’t be on here so I’m hoping a line can be drawn under this and we can all stay in our lanes (I like that analogy Margaret 👍🏼) whilst occasionally stopping to help along the way IFwe can / want to. Disclaimer follows: my opinion- other opinions are available.😜
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Thanks dotty ....bless you
Cheers Louise for your message xxx
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I'm probably going to sound abit dense here but is too much estrogen bad for you?
I've just started everol sequi as my gynae thinks I'm perimenopausal. He didn't do any bloods yet as he said being perimenopausal, hormones can be high one minute, low the next so not really reliable & most Drs go by symtoms.
I have no sore nipples, like Vicky, it does sound awful for you but i do have fatigue.
I'm hoping its just because my bodies getting used to the estrogen.
Sorry, Vicky if I've high jacked your post & i don't want to take the emphasis of your problem.
I hope you feel better soon.
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Hi sheri, yes too much estrogen can be just as problematic as too little, it's a really tough balance to find for some people especially in peri, sore boobs/nipples can be a side effect on starting hrt and can settle but if it continues and other symptoms like fatigue and headaches, even hot sweats can indicate too much, it's hard too know sometimes as too much/too little has very similar symptoms, if you are new to it, it's probably just your body adjusting x
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Thank you. I'll keep a track of my symptoms & hopefully its just because I'm starting HRT. Hopefully, gynae will take bloods when i see him in alittle over 2 months.
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I appreciate you are feeling desperate Vicky and feel for you right now.
Time is what is needed, with either an increase or decrease in Oestrogen dose. You can’t just expect to feel A1 so quickly after changing doses so quickly.
The fatigue could be due to a number of factors. You are working two jobs? That must be tiring? How is your diet? Fluid intake? Overall sleep pattern?
You must give this 75 patch a chance to work, otherwise you are never going to know what is working and what isn’t.
I agree that it would be sensible to keep to just one thread, so that members new and old, can follow your story without looking for your previous threads. Otherwise it gets very confusing! If everything is in one place, you are more likely receive support from the wider MM community.
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Awww sheri thats fine! No worries at all. I hope you're ok?
I totally get where your coming from with the high or low
Oestrogen thing. I hope you manage to sort things. Let me know x
Hi nas yes I've decided to keep with 75 for now see what happens.
My diet and fluids are fine as is sleep x
Yeah I see what you mean although some posts are not usually the same ...I try to keep them so I'm not repeating...sometimes difficult when anxiety takes over x
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Keeping similar topics to 1 thread means that they are less likely to get lost. Merging would be advisable for the same reason. It also allows others to read through what has already been suggested, quite frankly I can't be bothered to try and remember what members might/not have tried if the topic is similar. I simply haven't the energy due to busy, involved dreams which leave me feeling knackered >:(. :-\.
There is a protocol on most Forums about how many threads members are able to start in a month and moderators will merge if topics are in a similar vein. Any1 remember dial up :whist: or mayB I am almost the oldest here ::)
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I'm sure the moderators are here to help if need be
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So confusing with Estrogen as both too high and too low can cause the crushing fatigue, as (in my experience) can a big change in E level (eg from changing your dose). I know for me the overwhelming fatigue is always a sign of low E but if you're having The Nipple Problem low E doesn't sound likely in this case. It may just be the change in your dose that's caused it and it will hopefully level itself out soon. :love:
In my early days (and still sometimes now ;) ) I too posted multiple threads so I can totally understand the panic and desperation that triggers it. However both ATB and CKLD have personally taken the time in the past to respond and given
me some really kind, helpful advice, and I'm sure everyone is coming from a good place! Everyone's going through their own challenges and it's inevitable at times on this (generally very supportive) forum that opinions will differ. Sending good vibes to you all :)
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Low VitD levels can cause fatigue, when I suffered I couldn't move for hours after 20 mins. housework or weeding in the flower borders :-\. As can thyroid function issues.
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Thanks gill- yes its hard to know sometimes isn't it??
Glad you understand about putting up posts,, we are all individual and are in need of advice.
CLKD- yes I thought about vit d....got it checked and it was 66 - normal range. I also had thyroid checks and again normal...its such a headache isn't it!!
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Hi Vicky, if there’s one thing that would benefit us all is that the symptoms of too high be completely different to too low! My advice would be to increase slowly and stay on that dose for 6 to 8 weeks at least, otherwise you could be increasing unnecessarily thus creating more problems. Hard I know when all you want is to feel well.
I am even doubting my levels at present, it’s sooo frustrating!
Perhaps go back to 75 mcg and give it more time. Sending you big hugs 🥰❤️
Ps have you had your levels of Estrogen checked? X
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Hi Sweettooth - I am actually having my bloods done twice, monday coming and the following monday.
Gosh, i woke up this A.M moody to partner, low mood, felt teary, my hands are still a bit shaky. I just dont know what to do! Plus just to add, i have been changing my patch every 3 days, as i saw on here that some women do this in order to get "more out of the dose" not sure if this is sensible or not??? any ideas??
I am at work now, feel really low, light headed a bit. Do you think i should stick at the 75?
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Hi the patch is designed to release the same amount of oestrogen every day, so changing it more regularly shouldn’t make any difference at all.
My advice is to stay on one dose for at least 8 weeks and don’t change anything in that time. You seem to have been on a lot of different doses and types of hrt in a short space of time. I can understand that as that’s what I did in the first couple of months but it really doesn’t help. Using a higher dose than what you need doesn’t help either. You need to build up your oestrogen stores slowly until you reach the right amount. Think of it as filling a tank . You fill it slowly and then keep it topped up.
I know it’s hard but it’s the only way to do it. xx
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Hi Vicky! ❤ I haven't spoken to you for a while and send my love.
I agree with Dotty and Sweettooth, I think the only way is to stick with one dose, for at least 12 weeks. I have been on one dose of Sandrena now for 10 weeks. I spoke to my GP about 2 weeks ago and she said it was still really too early to tell any difference..... but.... I do feel so much better mentally, more like my old self. 😊
I still have horrible symptoms of heart palpitations, sore throat, swollen glands, nausea etc. But I feel mentally better to cope with them. I must admit though, I'm quite scared about my recent blood results.... I have elevated white blood cells, high LFT's, borderline cholesterol and low folate, but feel better mentally! Stupid, I know 😆.
Anyway, sorry to hijack your thread sweetie, but I think the key here is to stay on the same dose for longer. And I was up and down still for a few weeks on the HRT.
Much love to you xxx
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Hi Vicky,
I hope you don't mind me posting my issue here as I also suffer with fatigue which i think is due to not sleeping well. I have posted previously about not knowing whether my estrogen was too high or too low - i still had early morning flushes that were waking me up and fatique, my breast started being sore. I decided to try to use less of Sandrena (I am on 1mg and Utrogestan, post meno) and slowly tapered off for 10 days to 2/3 of the sachet. I started feeling quite hot and thought that hot flushes are returning. Spoke to my GP and they said that I probably need more estrogen (not offered a blood test) and prescribed Estrodot 75 for better release. This is out of stock everywhere so i started taking 1 and 1/3 of Sandrena instead. I hope I haven't done a major damage because i was on 10 days on lower dose and now I am on higher. I have problems with sleep, I feel like I am sleeping so lightly that it feels i am not asleep for most of the night. I also wake up so early.
I was just hoping for any comments, advice, and if it's OK to change to Estrodot when it finally appears in stock.
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Hi Dotty - thankyou so much for your message honey. well...oh my days....please nobody shout at me....BUT i have just taken the 75 off at work!! I feel AWFUL. my colleague came to have a chat with me privately about an issue we had and i felt in a dream and dizzy. Just had my blood sugar done, blood pressure and oxygen levels on the ward - all normal so i know its the patch.
Dotty - not sure but i think i need the 50??
Hi Unicorn!! awww nice to hear from you! i am sorry to hear about your blood results, anything that seems "abnormal" always a worry - please let me know how you get on. I am glad you feel better mentallly though thats so great!!!
Stella - thank you for replying.
Dont worry about posting here - i dont mind at all! So sorry that i cannot give any advice as i am too learning about all this!! I hope someone else can help advise you hun. keep in touch xxx
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Thank you Vicky, wishing you all the best. I see that Unicorn also responded regarding the length, I might have made changes too quickly.
It's so hard when you can't speak to the GP when you need them and they might not have the knowledge, and you can't afford private consultations and blood tests...I can see from other posts that even the private consultations sometimes cannot help as we are all so individual. Lucky women who don't have difficult time during this period.
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Stella i am feeling very very fatigued today.....not sure if this is due to high or low estrogen? anyone know please? and would the 50mg be more suitable?
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Hi girls, it's so confusing too when you have ladies that improve within 2 weeks and feel better consistently within that time too. I think it's fab that it works so quickly and consistently with some, but it can also make other ladies who are not feeling the benefit so soon very scared and confused, thus chopping and changing doses early on.... I get it Vicky, as it can send you into a panic and you will alter any drug quickly to feel better, even for one day, regardless of any advice given. I get where you're coming from totally ❤
It's a very scary thing this perimenopause/menopause as there can be so many bizarre symptoms and can worry the most laid back sufferer. I have had a multitude of horrible symptoms, and I do worry i have some sort of neurological disease/cancer/ swamp fever 😁 and my worries have escalated even more because of my dodgy blood results. I have to be retested in 3 months.
Also, Dr Google doesn't help as I worry my symptoms don't fit into the criteria of peri 😥.
Much love girls and hold on..... this rollercoaster is a rocky ride ❤❤
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Hi Vicky, I'm sorry you're feeling so awful. This was one of my first symptoms &I found hrt patches did help but it took a while to work.
Have you had your bloods done at Gp surgery to rule out thyroid issues,anaemia ? Best to get theses checked as well.
I also had insomnia and the hrt helped with this .
For me the progesterone side of things isn't great,as it gives me fatigue &low mood also, but I have 2 weeks feeling better .
I'm considering a mirena now ,as an alternative.
The only other advice I can give is if you use electronic devices at night ,try to stop a few hours before you go to bed,as the light from these can stimulate the brain .
I'm trying to take mine upstairs at 6 pm now,so I'm not tempted.
Hope you get something that suits you soon x
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Hi Vicky
Sorry you’re struggling so much.
The fatigue is one of my main symptoms. I could cry I feel so tired.
I’m not on HRT, and this fatigue started after my awful experience with HRT.
Just to be sure, I would recommend taking vitamin D every day, especially if you work inside all day. Maybe some gentle iron supplements like floridex or spatone.
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Awww thanks guys! all so lovely xxx
Yes i use every vitamin you can think of! i have used Vitam D for around two years now, recent blood test it was 66.
Suzy - which HRT gave you the horrid symptoms hun? and what side effects did it give you?
Friend of I - I had my bloods done a few weeks ago, all normal. I am getting another two done, one on Monday, and the following Monday via Medichecks.
Uni - lots of love to you hun! I am sure everything will be fine, keep in touch xxxx
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You are dropping doses again Vicky, be careful. That’s a huge jump from 75 to 50.
What symptoms are you actually trying to alleviate now?
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Hi Vicky81,
I’ve new on here and recently started on HRT so thought it might be helpful to share some of my experiences as we are in the same boat in terms of timing I think? I’m 44 and in peri I believe with lots of symptoms I can trace back to my late thirties. I really feel for you as one of my main symptoms the last few years is panic disorder and sometimes I feel quite desperate for relief from it all…
I started Evorel 25 in March, increased to 50 in April and then 75 this month. I’ve had very tiny improvement in symptoms in that time (barely noticeable If I’m honest only that I keep a symptom diary and I can see from my notes that things have actually improved despite what my brain tries to tell me when I’m despairing).
Each time I’ve increased the patch dose I’ve experienced stronger symptoms and also new ones such as dizziness. However these have settled within about 1 to 2 weeks.
I’ve also experienced fatigue which I have attributed to peri the last few years. Since starting the HRT my symptoms diary tells me the fatigue has improved although I think it has been worse each time I’ve increased my dose.
I really liked Dotty’s analogy of slowly filling up our hormone tank and then just maintaining it. It seems to fit with what others say too. I feel that for me my body has been hormone depleted for so long it is going to take a while to fill it back up and only then can it begin to recover. Thank you for this Dotty! I actually took a screenshot of your post so that I can refer to it again in future days when I am despairing.
I do hope things settle soon for you Vicky81. I feel strongly that it will as there are so many positive stories out there.
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Hi Jjumper…I’m glad I’ve helped you. I can’t remember where I saw the analogy of the tank, but it makes sense and it works. When I first started on HRT I just wanted and needed a magic pill as I was so ill. I started on 1mg tablet and quickly went onto 2mg and then switched to patches but they made me feel worse. I saw a private specialist who refused to do anything until I’d been on one dose for 3 months. I don’t know how I got through those months as I was so poorly. Finally I got onto Oestrogel but even that didn’t work until I was on the right dose and then finally it began to work it’s magic. x
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Wonderful to hear - thank you Dotty ❤️
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Surely different threads are for different topics!
Let’s all try to be kind to each other - this is a difficult time for us all, we get desperate and need help from each other. So let’s not try and bad mouth each other on the forum, we can do better than that.
I’ve done 100mg patch before, and yes it has made me sleepy but so has oestrogel. Never had sore boobs or nipples with that dose though. I did enjoy the sleepiness especially after raging anxiety, so maybe you body is still having a cycle.
Keep going - it will all settle - take care xx
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thanks all!
Nas yes, i was only on the 75 for a couple days, so i am taking advice (for once) and re-starting on 50mg xx
JJumper - thanks 4 your message. good to hear it settles after 1 - 2 weeks, i too keep a symptom diary - have done since january. Keep in touch hun xx
Dotty - I too liked your analogy! very good! Can i ask - in what way did the patches make you feel worse? xxx
MIS71MUM- Hi again hun! Thanks 4 your message. I hope you are doing ok? Keep in touch honey xxxx
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Hi Vicky sorry late to the party but wanted to say I started on 100 Everol (from 6 pumps) and it was way too much it sent me crazy! Starting to settle a bit on 75, tried 50 but that was too low, I’m still peri so get lots of fluctuations, will increase slowly again as I’m sensitive to increases but feel I need a little more! Hope you find the balance soon x
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Hey Flan! thank you for replying. Hope you are doing ok?
Yeah the 100mg was way to much...i am on 50 now and STICKING IT OUT. I actually feel slightly better today, head not heavy or lifting. Just had a bit of hazy/hands shaky today...
How did you know the 50mg was too low? what symptoms are/where you trying to rid? xxx
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When I went too low my low mood returned and anxiety. Anxiety is the last thing for me too shift! Good luck, slow and steady that’s what they say 😄 xx
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Hi flan....awww ok thanks for replying..anxiety is the worst ever isn't it!? Xxx
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Hi Vicky xx
Thank you for your honesty.
I personally learn a lot from you and all the ladies on this forum,
So please keep posting here and anywhere else you like.
Any information that is shared here on this forum can be used in such positive ways by all of us in our journey to feeling better xx
Hope you are feeling better today xxx
Justyna
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Awwww thanks justyna!! Lots of love xxxx
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Fingers crossed you start to feel better soon. Love and empathy from a fellow new patch tryer as you know :) xx