Menopause Matters Forum

Menopause Discussion => All things menopause => Topic started by: sweettooth on May 13, 2022, 09:25:47 AM

Title: Need help please (covid)
Post by: sweettooth on May 13, 2022, 09:25:47 AM
Dear ladies,
I haven’t been on the forum as have been really struggling since covid (Not long covid) 7 weeks ago!  Hot flushes, v low moods, anxiety etc like my estrogen not working. I had this after vaccine and was only starting to feel better when I got covid☹️
Really need some positive reply’s please.  Can anyone tell me how long roughly after covid, they began to feel benefits of their hrt again?  I did look back at old posts but can’t see how those ladies are now after covid and I do hope you are all ok now❤️

Many thanks ❤️

Title: Re: Need help please (covid)
Post by: Flossieteacake on May 13, 2022, 09:30:46 AM
I am so sorry you are going through this, sweettooth. It is a horrible experience. I know it feels awful now but there is every chance this will pass and you will feel how you did before. I had long covid for a while and I am okay again. I am sending you a virtual hug.
Title: Re: Need help please (covid)
Post by: CLKD on May 13, 2022, 09:42:59 AM
It can take a while if hormones are upset by a virus, C-19 seems to be recorded as affecting hormone levels.  Some ladies have had a period after years without for example.  Is there a support/research web-site to find out more?

In the meantime, rest as much as your body wants!  1 cannot out-run a virus.  Keep hydrated, get a lot of VitD and gentle exercise so that the muscles don't atrophy.  That was a big problem for those hospitliazied with Covid in that due to being bed-bound, muscles quickly lost power so it took a while to become mobile during recovery.
Title: Re: Need help please (covid)
Post by: mandss on May 13, 2022, 09:47:40 AM
I am 6 weeks post covid, and was finally feeling good again, but this week is terrible, feel like I need to have a period as my groin and back passage feel heavy, flushes returned and my mood is low. I was also wondering if this is covid related ?
Title: Re: Need help please (covid)
Post by: sweettooth on May 13, 2022, 11:22:48 AM
Thank you all so much for kindly replying!
Flossi great to hear you’ve recovered after long covid❤️
CLKD great advice👍
Mandss that rings a bell, last week I felt good for first time and then last weekend it hit me again, must be part of the recovery🤞 Hope we both get back soon, I’m so so fed up after a year of post vaccine mess! then covid because of the effects on hormones!

It’s great to hear positive outcomes🌺
Title: Re: Need help please (covid)
Post by: CLKD on May 13, 2022, 01:33:55 PM
Viruses 'take it out' of the body.  Think in the 1980s, when after effects were called 'Yuppy 'flu'? but found later that they were real, the result of the body being knocked sideways due to have encountered a virus unknown to their immune systems.

Don't rush.  It's the 'best' time of year to recover from a Virus, as we get more daylight hours.  Let us know how you get on.
Title: Re: Need help please (covid)
Post by: sweettooth on May 13, 2022, 02:21:49 PM
Thanks CLKD I will certainly let u know. It’s like my estrogen isn’t working just horrid.

Flossie did you just keep your hrt same? X
Title: Re: Need help please (covid)
Post by: Flossieteacake on May 13, 2022, 02:34:51 PM
Thanks CLKD I will certainly let u know. It’s like my estrogen isn’t working just horrid.

Flossie did you just keep your hrt same? X

I did. I was only on oestrogen patches as they did not realise I needed progeterone. Clueless GP!
Title: Re: Need help please (covid)
Post by: Ecl on May 13, 2022, 03:48:52 PM
I had covid at end Janand early Feb. Have gradually noticed my symptoms returning since, had a gp appointment yesterday and have upped my oestrogen. I will never know if it was covid or if it is my own hormones reducing further ( peri). Could you see about increasing your dose and see how you go?,
Title: Re: Need help please (covid)
Post by: sweettooth on May 13, 2022, 04:07:42 PM
Flossie did virus affect your hormones?

Mandss this week for me has been awful too and that’s about beg of 7th week so similar in time frame to you!

Ecl I increased after vaccine and didn’t do well, I am post menopause. Just don’t know what to do tbh☹️
Title: Re: Need help please (covid)
Post by: Flossieteacake on May 13, 2022, 04:57:35 PM
I do not really know as I cannot be sure if the symptoms were long covid or 'normal' for menopause. I think you should talk to whoever prescribed your HRT. Are you with a menopause clinic? They will be able to advise you. I am sorry you are feeling so poorly. It is horrible.
Title: Re: Need help please (covid)
Post by: Gilla999 on May 13, 2022, 08:23:21 PM
Sorry to hear you're still suffering Sweettooth. I just looked at my diary and it took me 3 weeks after testing positive to feel good again (felt much longer!) suffering from basically my symptoms of low E and I had to increase my HRT to 4 sprays (from 3) in order to feel well and I haven't been able to get it back down again, I feel that's the level I need now. I'll never know if needing to increase was related to covid or not but I had a similar situation after the booster jab in Dec (was fine with the first 2 jabs) but equally that could have been unrelated - we'll never know!

Have you had a blood test to check your E level?

My sister has diagnosed long covid (is under the care of a clinic) and it took her 12 weeks before she had a big upturn - I've seen a few people give that timeline.

Sending you much love!
Title: Re: Need help please (covid)
Post by: sweettooth on May 13, 2022, 10:34:16 PM
Flossie I did have levels checked just b4 covid so perhaps if things don’t pick up I need them redone.  It has taken me ages to improve from vaccine regards to hormones.

Gilla I don’t think my symptoms are of long covid, last week I felt good then it just flipped back to the horrid hormone issues, sleep disruption with palps racing heart, anx, low mood, even hot flushes, the weakness in legs I had pre hrt and it cured all this but it all kicked off after vaccine.  It’s been such a horrid journey!  My understanding it’s the receptors that be affected after vaccine or covid hence why I’m getting meno symptoms back even though my levels were good.
I hope not to have to increase estrogen as I had bc in the past.
Thanks again x

Title: Re: Need help please (covid)
Post by: sweettooth on May 14, 2022, 10:10:42 AM
All you lovely kind ladies who have replied, I just wanted to say thank you so much❤️❤️Means a lot!!

Felt dreadful this morn so very low & anxious I think it’s an immune response affecting my estrogen.  Chatted to a lady who sailed through menopause without hrt and after covid is having hot flushes and tearful so it is def a thing! 
I will get my levels checked this week and let you know the outcome🌹
Title: Re: Need help please (covid)
Post by: Flossieteacake on May 14, 2022, 11:08:13 AM
You are very welcome. I am sorry to hear today is a bad day for you. Hopefully you can get an appointment soon and see if your HRT needs to be adjusted.
Title: Re: Need help please (covid)
Post by: sweettooth on May 15, 2022, 08:07:02 AM
Tks Floss, I’m taking care and resting atm.  How are you?  How did you feel when you had covid? X
Title: Re: Need help please (covid)
Post by: Flossieteacake on May 15, 2022, 08:31:46 AM
Tks Floss, I’m taking care and resting atm.  How are you?  How did you feel when you had covid? X

I am glad you are resting. I had such deep fatigue. I was exhausted all the time and had to stay in bed. I cannot really remember much else as I have some memory problems. I really hope you improve soon.
Title: Re: Need help please (covid)
Post by: sweettooth on May 15, 2022, 09:36:21 AM
Sorry to hear all that Floss, it must have been awful for you❤️ Did u say you are on Testosterone?  It is said to help brain fog etc. XX
Title: Re: Need help please (covid)
Post by: Flossieteacake on May 15, 2022, 09:37:42 AM
Sorry to hear all that Floss, it must have been awful for you❤️ Did u say you are on Testosterone?  It is said to help brain fog etc. XX

No I was never offered it. I am still waiting to find a progesterone I an tolerate. I am waiting for an appointment with the menopause clinic.
Title: Re: Need help please (covid)
Post by: sweettooth on May 15, 2022, 01:27:55 PM
Oh I see, so best to sort one thing at a time👍  Well I hope you get your apt v soon❤️❤️
Title: Re: Need help please (covid)
Post by: sweettooth on May 19, 2022, 09:51:36 AM
Hi dear ladies,  had my Estrogen bloods back and they’re 600 on 2mg oral so I’m def absorbing. I have been on this since Dec 20 and I felt great after 8 weeks then got vaccine last day of March 21 and have really struggled -severely at times! Sky high anxiety!
Increasing only made me worse so I’m on 2mg daily again since Jan 22.  I was seeing some light again until covid 7 weeks ago.  Mornings are just cruel my legs are so weak and I’m so low then my mind spirals ‘will I ever be well again?’  I just feel so desperate like I’m clinging to a cliff.
Sorry for long post just needed to get it out and if anyone can give me a little positive word today. 
Do I need to change my hrt (Estrogen only) but then my levels are ok!  I’m just lost.  I was attending a specialist Endocrinologist and he said that jab affected the receptors, is this a matter of time?  Ps don’t have thyroid issues I just attended Endo re menopause.  Had a full blood check and only thing low was folate which Iv been taking since.
So so grateful to have this forum, I just wish I was better to help others❤️❤️
Title: Re: Need help please (covid)
Post by: Flossieteacake on May 19, 2022, 09:55:30 AM
Hi dear ladies,  had my Estrogen bloods back and they’re 600 on 2mg oral so I’m def absorbing. I have been on this since Dec 20 and I felt great after 8 weeks then got vaccine last day of March 21 and have really struggled -severely at times! Sky high anxiety!
Increasing only made me worse so I’m on 2mg daily again since Jan 22.  I was seeing some light again until covid 7 weeks ago.  Mornings are just cruel my legs are so weak and I’m so low then my mind spirals ‘will I ever be well again?’  I just feel so desperate like I’m clinging to a cliff.
Sorry for long post just needed to get it out and if anyone can give me a little positive word today. 
Do I need to change my hrt (Estrogen only) but then my levels are ok!  I’m just lost.  I was attending a specialist Endocrinologist and he said that jab affected the receptors, is this a matter of time?  Ps don’t have thyroid issues I just attended Endo re menopause.  Had a full blood check and only thing low was folate which Iv been taking since.
So so grateful to have this forum, I just wish I was better to help others❤️❤️

Please do not apologise for posting or think you are not helpful to others. This forum is for support and I hope you will always post when you feel able too. I can understand your confusion as your oestrogen seems to be okay. In my experience, the fatigue of long covid can take time to go. I feel like it went on for months with me. I know there are now support groups and apps for people who have long covid. I am not sure if that is something you would find helpful.

I know you want to know when this fatigue will go but I think it is different for everybody. I am sorry that is no help. I would take each day as it comes and try not to think too far ahead.
Title: Re: Need help please (covid)
Post by: ATB on May 19, 2022, 10:01:40 AM
So sorry to hear you’re feeling so unwell still, it’s awful that these things can go on so long. It seems likely to be your body and hormones settling after covid jab and lots of women have had a similar experience, so I think you can feel confident it is a matter of time and you will feel well again. In the meantime, what tools can you use to help with the anxiety? Even though hormone related there are things we can do. I like meditation and sometimes magnesium can help.
Title: Re: Need help please (covid)
Post by: sweettooth on May 19, 2022, 11:04:13 AM
Flossy and ATB thank you so much for your kind replies I so appreciate any bit of advice and support atm.
Flossy I’m not sure but is long covid not when you have had symptoms go on for after 3 months?  I feel it’s stealing my estrogen atm but I’m so praying it let’s go soon🙏🏻🙏🏻 Yes you are right it differs in time for us all, what a abs curse🙄
Are you ok now? What were your symptoms?❤️
ATB you too have lifted me a bit, it’s just hearing others it’s such a comfort.  Re anx if it’s really teaching a head I take a low dose diazepam, deep breath and I listen to meditation.  Hormones are cruel little blighters never mind covid on top!  How are you? ❤️❤️
Title: Re: Need help please (covid)
Post by: sweettooth on May 19, 2022, 11:08:12 AM
For all you lovely people….
💐💐💐🌷🌷🌷💗💗💗 my virtual thank you with hugs on top :bighug:
Title: Re: Need help please (covid)
Post by: ATB on May 19, 2022, 11:18:05 AM
Yes, hormones are an absolute nightmare sometimes and not fun when you have other illness. I’m hypothyroid also and figuring out what is menopause and what is thyroid is a struggle! I wasn’t on HRT when I got covid but I had long covid and that was affecting my meno symptoms a lot, I just felt floored with my energy and fed up. I had to move location in the middle of the pandemic feeling like that too!
Do you have a supportive partner or family? My husband is my rock and I would be so much worse off without him. I could take time off work and everything. I’m overall massively better after 8 months. My energy is the most improved thing, I was a super fit person and spent 7 years frustrated not being able to be as active so mentally it’s helped so so much being able to get back to that- I think the testosterone helped the most with that. The only things left for me seem to be this GERD type issue which only just recently triggered palpitations during the Utrogestan phase. It’s awful but because I’m stronger overall I am coping ok. I’ve had anxiety for years so that’s my real battle left, and the therapy I have is moving that along really well. I still have my cry days now and then not nowhere near as much. I now believe I will be normal again, whereas before HRT I thought this is it, I’m going to be tired anxious and a waste of space forever! I can get real down like that. But things are looking up. Believe it can happen for you. Take it one day at a time, as Flossie says, and atm each day I get to the end and think about 5 small achievements of my day. When I was more poorly I would include even making the bed as a big deal, something I learnt from a depression campaigner, make your bed if nothing else so every day you achieve something and feel good about it. Little things like that can be helpful.
Title: Re: Need help please (covid)
Post by: Flossieteacake on May 19, 2022, 11:23:03 AM
Long covid can go on for a while. It is one of those things that is different for everybody. I think I have recovered from it. I currently am low on energy but that could be a number of things causing that. I am glad you have diazepam as that is very helpful when feeling anxious.

Virtual hugs back. :)
Title: Re: Need help please (covid)
Post by: sweettooth on May 19, 2022, 12:31:55 PM
Gosh I’m so sorry to read your story ATB but also relieved for you in that you are now in a much better place!  It certainly helps me to see there is light even though it can be horrid along the way. It probably didn’t help you not being on hrt when you got covid but you still got there, be proud of yourself❤️
Yes like you my husband is my rock and I count my blessings every single day.  I do a little bit here and there when I’m able.
I did have bc few years back got early🙏🏻 but this hormone hell sure is challenging mentally!! 
Flossie really glad you have recovered and I really hope whatever else is not quite right gets sorted for you. 
I sent off for a supplement called NAC it was recommended and it reads pretty good!  Also Q10 with ubiquinol is good for energy.  I just take Vit C, D & B with folate, magnesium glycinate plus now NAC.  Rattling not the word😁 💗🥰💗