Menopause Matters Forum
Menopause Discussion => All things menopause => Topic started by: rebel2 on November 29, 2021, 09:48:04 AM
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I have just been prescribed this by a private consultant (as a doctor’s appt is like hen’s teeth round here). Only two days in but have gassy indigestion and slight headache. Am doing 2 sprays a day. Anybody else using it? Am going to ask my GP for a repeat prescription now, as I guess it will take a month to get it sorted.
Any other users happy to share their experiences? I am 61 and haven’t taken HRT for 5 years, just can’t fa e a life of hot flushes and vaginal soreness.
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Hi , I don’t use it but try doing a search of the name , I think it’s been mentioned on here in the past .
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Hi … I’ve been using Lenzetto since May. Took quite a while to get the dosage right because I found one spray was too little and two sprays was too much for me personally. I am now prescribed two packs at a time…..one of them I tape over to close off the amount of spray I get. After a lot of experimentation I have found that one full spray and 1/4 of a spray Works really really well for me. When I first went onto Lenzetto my oestrogen blood level was only 98 which is apparently incredibly low and on Lenzetto it is now up to 240 which apparently is where it should be. I should add I am 69 and I had a hysterectomy aged 42 and I’ve been on HRT ever since then. I was on Oestrogel for many many years but when they changed the formulation last year it did not suit me hence why I have been changed onto Lenzetto I have to say now that I have the dosage right I absolutely love it….it’s so easy to apply and dries literally in seconds. Good luck….I really hope it works out for you too. Personal experience of it is the key thing is getting the dose right which can take awhile. I felt dreadful personally onto 2 sprays because it was too much for me and I felt like I was on the ceiling and really jittery with lots of headaches but now I have the dose right it’s really really good xx
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I'm using Lenzetto and my experience is very similar to Pippa's. It's been a life saver for me and I got on much better with it than alternatives (oestrogel or estradot) which didn't seem to work as well for me. But I have struggled to get the dose right and I'm still on that journey 8 months after starting it. Like Pippa I am taping over the dispenser and still trying to work out what the right dose is that doesn't cause me to be symptomatic, but also doesn't give me horrid side effects from too high estrogen.
If I could do it all again I would choose to start off on 1 spray and increase little by little as needed. But this is because I personally find it almost impossible to reduce my Estrogen - even when it's too high - because the act of dropping in itself seems to cause me to be unbearably symptomatic.
For me the effectiveness and the ease of use make it a great product, the only downside is not being able to really easily do smaller doses. Hope that helps!
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This makes me terribly sad. I don't understand why we're all having to cut up patches, guess gel in part-pump measures, tape up spray containers, gauge tiny amounts of testosterone from an NHS sachet meant for men, constantly experiment with regularity of topical treatments; the trial-and-error" method taking up months/years of our lives? This is progress? Isn't it all a bit surreal? Maybe I'm just on a "Bah! Humbug!" day, but it's all so time-consuming and frustrsting. Apologies if I've gone off piste, rebel2!
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Hi
I've just started on the lenzetto spray 1 week ago, previously being on evorel 25 patches.
I was prescribed the lenzetto spray from a NHS menopause clinic, she advised 2 pumps daily, try for 3 months, then up to 3 pumps daily with a maximum of 4 if needed.
After a few days I started to feel really bloated, legs and stomach, and then developed very sore breasts, particularly around the nipple area, so I've dropped my dose down to 1spray Monday, Wednesday, Friday, Sunday and 2 sprays Tuesday Thursday and Saturday.
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Post meno, I am TOTALLY with you!!
We have made no progress in my view. All this bloody trial and blooming error, well it’s taking over my life. In fact, no, that’s a lie, as I have no life!
My existence is spent, largely chasing scan appointments, bleeding, second guessing HRT types and doses, running a home, trying to work and clearing up after teen kids!!!
It’s utter uttter crap!!!
Why should we be chopping patches, taping down nozzles and waiting for flipping Chelsea hospital to call??
:(
Frankly, I’m sick of it all.
Bah humbug :(
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I couldn't agree more Post Meno - and that's not even taking into account the whole 12 months I lost of my life from being refused HRT completely by 4 different doctors because of my age (42).
When I eventually put myself on Lenzetto (I retrospectively had it confirmed by a Meno specialist that my E levels were low enough to be prescribed HRT) it literally saved my life. I am still angry at all those other doctors (including one so-called meno specialist) who didn't believe me when I knew exactly what was going on.
Suza for me the painful boobs are my personal diagnostic radar alert of when my E is too high and I definitely had it on 2 sprays, particularly as you say around the nipple area which was unusual for me. I don't like to give advice here but if it were me starting again, I would indeed start smaller and work my way up, as I've found it very difficult to reduce my dose once on it (but that's probably just me).
Good luck x
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Hi Gilla
Thanks for your advice.
I think 2 sprays was probably too much too soon, so hopefully alternating between one and 2 sprays might be the best for me
It's all about trial and error I suppose
Just seems strange, before on patches I used to get sore.breasts but more down the síde under the armpit
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How strange.... I am exactly the same. The sore boobs were down towards the armpit but on Lenzetto there is a distinct nipple soreness... I think I even posted on here about it when I started Lenzetto months ago. I wonder why!
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It's got me puzzled too
The consultant did say I might get breast soreness but not specifically in the nipple area
I'm hoping after 3 months my body might get used to it
Apart from that I like the lenzetto spray so far
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I did well on Lenzetto a few years ago but it was slightly too weak (even using three pumps) and my symptoms returned.
I tried it again last year and I had gastrointestinal side effects and migraines so I'm afraid I had to ditch it and go back to gel. It's a great product and very user friendly but it didn't agree with me. It's strange because I didn't have gastro issues last time but perhaps they have changed the formula?
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Hello!
Gilla you and I were on another thread re Qlaira together. Really happy that things are looking better. I’m struggling the Estradot didn’t work and my symptoms are getting worse. I’m nearly 43 and can’t believe I’m still trying to get better after nearly 5 years.
The specialist says try oestrogel but I hear that there are all sorts of issues in its quality. I’m thinking about lenzetto!
Any advice is really appreciated. X
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Hello ladies.
I sympathise with you all regarding how frustrating this journey can be. I am post meno and still trying to get it right!
I noticed that no one has mentioned another Oestrogen gel called Sandrena which I have been using for the past few months. I like it because it dries faster than Oestrogel and doesn't require as much skin surface area. Sandrena comes in sachets so it can be easily tweaked, for example I am currently using two and a half sachets daily.
I hope this helps and take care everyone.
K.
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Thanks Kathleen for your supportive message. It means a lot. I’m thinking maybe it’s worth trying Sandrena. I didn’t realise how long this hrt journey would be. Xx
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Hello Angelasurrey
You are welcome. Unfortunately none of us know how long this journey will be so you are not alone there.
I think Sandrena gel is definitely worth considering, my meno specialist uses it herself which tells you something.
Wishing you well.
K.
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Thanks Kathleen, that's really interesting on Sandrena. Out of interest, would there be a way to measure out a smaller / accurate dose in one Sandrena sachet? (for example, half a sachet).
Side note: While Googling Sandrena just now I noticed that Dr Newsom has updated her fact sheet about the dose equivalents and in it it now says 2 pumps of Oestrogel is equivalent to "1-2 sprays of Lenzetto" where has previously it had said 1 spray.
So this would seem to agree with what other forum members have mentioned previously - that it is perhaps not as strong as the manufacturers make out. No idea why I have got on so well with it then, but it worked better for me than Estradot at the same dose ;D
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Gilla,
Would you be able to link me to Dr Newsons fact sheet on HRT types and dose comparisons please? I can’t find it anywhere.
Thanks. :)
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Nas that might be because the previous link on her website (which I had bookmarked) has now been removed. So I searched and found this one - and noticed the "1-2 sprays" of Lenzetto vs the 1 spray it used to say on the old link!
https://balance-menopause.com/uploads/2021/10/Equivalent-doses.pdf
Hope that helps!
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Thanks Gilla,
That’s exactly the information I wanted!
Lenzetto is going to be my next trial if I can’t get on with lowering my 75 patch to 50 ( to stop bleeding!)
In my head, 2 sprays was the equivalent of the 50 patch or two pumps, but then was sure I read somewhere that lenzetto was a weaker product and more may be required. Either way, I will start low on the spray if I do trial it.
Thanks again 😀
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Hello Gilla999
I am using two and a half sachets of Sandrena at the moment. The gel is quite thick and I simply bend the sachet in half before cutting off the end and squeezing out the contents. How accurate this is I don't know but it's the best I can manage lol.
I hope this helps you and take care.
K.
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Hey Kathleen how are you feeling on the gel? I'm up to 6 sprays on Lenzetto with Meno specialist support, Androfem and Utrogestan. Ive been trying to get some relief pretty much all year and can't believe how rubbish I still feel. Wasn't absorbing on the gel do moved to Lenzetto but tbh nothing transdermal has worked as well as when I first started on a tablet. I'm just exhausted by the emotional side of this situation and sick of the trial and error. Xxx
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Hey Sazzle, was thinking of you the other day.
Sorry you are still struggling; I am too and beginning to wonder if this is life forever!
Could you revert back to tablet?
The trial and error of this journey is unbelievable isn’t it?
This is my third whole year of pratting about, trying to find relief, trying to work, trying keep the house tidy etc etc. Trying to keep my head above water essentially.
What does your menopause specialist say? Mine is good at chucking different Hrt products at me, but then leaves me to fathom it all out by myself!!
Anyway, I REALLY hope next year is a better year for all of us who are struggling with this nightmare.
Xxx
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Hey Nas
She is very nice and a on a mission to help women. I just can't believe how long it takes. I have ordered some elleste conti duet which was my very first HRT trouble is I think this helped at first but then my own levels dropped more and I started with the anxiety. Interesting today O have not taken any estrogen or T and actually feel a bit bette???? I saw you stopped cold turkey I'm half tempted to stop completely. I know it's called the change but I don't actually want to become someone else which is what I feel like. DD called me miserable yesterday that just about sums it up. All the while Davina is everywhere saying how marvellous she's feeling ...0 months later I'm still here. Here's hoping to a better 2022.....??xxxx
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Sazzle, unless you are feeling brave, i wouldn’t recommend going cold turkey. I did this two weeks ago. Well, it was hell. By Christmas Eve, I was so full of anger and rage, it was scary! I couldn’t string a sentence together and Christmas Day was very hit and miss! You may be different though.
Personally, I don’t think Davina has done women any favours. Largely because she failed to mention just how long the whole process can take!!
I am the same. OH asked when this was all going to be over and DD 17 said she never wants to get the menopause and is there a vaccine against it!!
Oh well... here’s hoping we get some respite soon.
I’ve got femeston conti and BIJUVA ( both oral) but sacred to trial either!
Xx
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Hello Sazzle42115
I actually prefer the Sandrena gel because it is thicker, dries faster and doesn't require a large amount of skin.
At one point I was using so much Oestrogel that I thought I was greasing up ready to swim the channel lol. Also bending the sachets in half has helped me to reduce my dose from three sachets to two and a half. I also use Androfeme every day.
I am post meno and my only remaining symptoms are the emotional ones of frequent low mood, the jitters and tearfulness. I don't have any difficulty with absorption and my meno doctor told me that my hormone levels are now good. I am to monitor how I feel for another month and then email her to discuss further.
I have never tried Lenzetto but if you want to try a different formula of gel, Sandrena may be an option for you.
I am also exhausted by it all and the occasions when my moods actually settle and I feel back to normal are absolute bliss.
I hope this helps you in some way and take care.
K.
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Great post! I was on Oestrodose which was blooming brilliant. I started at half a pump and then quickly moved to a full pump, whilst it’s not much it was just AMAZING! Life was good again after so many years of hell. Then it all went to shit when my second prescription was Oestrogel not Oestrodose and a number of symptoms came back - plus the gel was taking 20 mins to absorb. My GP said Lenzetto would ‘change my life’ and that one spray was the same as 1.5 pumps of gel.
I”ve been on Lenzetto for about a week now and the first few days were good but now my horrendous skin itching, brittle hair and fatigue/lack of energy is back. I don’t know whether it’s because the spray is too much, too little, not right or what! I’m taking Utrogestan cyclically which I don’t really like - nightmares, waking up early in the morning, drowsy and sore boobs - the first month (this is my second month).
I’m on private meno waiting lists but my GP is v hard to get hold of to talk to about it and the itching is driving me crazy!!
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I have now read three different dose equivalents on three different supposedly informed websites - including Dr Newson and the bms. One says the one pump of Oestrogel is equivalent to 1=2 sprays and another says 2-3 sprays (unless I’m reading it all wrong with my brain fug)? I’m on one spray but fear two may be too many. Can I use gel and spray together? I’m wondering whether to try one spray and half a pump of gel
https://thebms.org.uk/wp-content/uploads/2021/03/HRT-Equivalent-preparations-28.4.21.pdf
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If you discover the winning formula, do let us know Dotty!
I have lenzetto in my box of products, but clueless what dose to use, as so scared of mood dropping or becoming angry. I’ve cut my 75mg to 50mg, following episodes of bleeding. Currently awaiting scan.
At, present mood, is relatively stable, but not great. Can feel a few crampy pains, so no doubt the lower dose isn’t going to stop the bleeding either!
It’s all a huge effort all of this!
No idea what this lenzetto compares to. I doubt even the manufactures know!
🙂
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I had found my winning formula - one pump of Oestrodose. It was my ‘magic gel’ as I called it but because it’s a parrallel important I can’t get it again amd im just so gutted.
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Kathleen,
What’s the most effective way to apply the Sandrena? Where on the body absorbs the best? Do you apply morning and evening?
Does one 1mg sachet cover approx one palm size of the thigh?
Thanks
Angela
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Hi all
I changed from Femoston 2/10 to utrogestan and Lenzetto about a month ago. My GP prescribed 100mg utrogestan daily and 1 spray of Lenzetto.
I want to stay on a cyclical regime at the moment as it gives me a better basis to check for any changes or improvement, so I take 200mg for 12 days (or something like that!)
On the utro I find I feel very calm and have quite a steady mood, but one spray of Lenzetto outside of the utro didn't seem to be enough, so I upped it to two after about two weeks. I had also heard about Louise Newson's correspondence with the manufacturers which established it's not as strong as they suggest.
All generally seems ok for me, though I'm feeling a general increase in vaginal soreness, though not sure if that's related to the regime change.
I use Yes WB and am seeing (yes, actually face to face seeing!) my GP on Wednesday as she has had a reply from the gynae clinic. No idea what that will mean, but I'll be asking for topical oestrogen cream at least.
It is a minefield and I'm grateful that my symptoms are generally well controlled. Also don't have kids at home any more, so that's got to help!!
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I had also heard about Louise Newson's correspondence with the manufacturers which established it's not as strong as they suggest.
Thank you for posting this I heard Liz Earl mention something about this the other day but wondered where the info came from :) I’m really liking the Lenzeto but wondering if I need to increase to 3 pumps to try and combat joint pain hip in particular! I’m going to try and request a blood test at the GPS I think, fingers crossed I can get one!
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@postmeno I was thinking exactly the same thing this week! This isn’t progress!
It shouldn’t be so difficult.
I’ve been prescribed various different treatments over the last couple of years which has also had an effect on my job.
I have decided to stop all of it for now, and although I don’t feel 100%, I’m happy to feel 80% back to my normal self.
I did use Lenzetto for a couple of months, but it made me sleepy in the day and I couldn’t sleep at night! :-\
So I stopped using it
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Sleepy, are you off Hrt now? If so, how do you feel without? I tried to come off, but the symptoms were brutal 🥴
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@Nas - when you say you went cold turkey what happened exactly. I have been on Lenzetto for 3 months now - upped to 3 sprays over the last month. Last week symptoms started to come back pretty violently and I’m now feeling so unwell - mentally as well as physically. The GP and the meno specialist think the spray was faulty and I’ve gone into a sudden oestrogen withdrawal but I also wonder whether I’ve been taking too much? Wondered what happened when you stopped taking it suddenly.
I’ve also just hear that a friend of a friend says if she doesn’t take Lenzetto at exactly the same time each day she feels horrendous, as if she’s overdosed.
I just want to work out whether I’m over or under and get back to the relative ‘ok’ i was before. This is so so awful. My anxiety is through the roof .
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Not sure if this is relevant, but, as a Lenzetto user, it appears to deliver differing quantities with each spray. There are times when the skin is clearly wet on the surface, filling the whole areas it targets. Other times, the skin is barely wet or the target area doesn't seem full. It may just be that absorption varies and it is going in quicker on some days than others. I do love the practicality of it, ease of use and fast drying compared to gel.........🤔
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@Gill99 how do you guys tape up the spray? I’ve just had an awful time the last week on Lenzetto (have been on it for 3 months). We don’t know if the spray stopped working (ran out of oestrogen) and I was sent into a sudden withdrawal or I was getting too high a dose but I’m hesitant to go back to the three sprays I was on but two isn’t quite enough. I’m looking at the spray dispenser and wondering how on earth you guys are taping it to get a half dose?