Menopause Matters Forum
Menopause Discussion => All things menopause => Topic started by: Sweaty68 on September 12, 2021, 09:08:37 AM
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Hi,
I’m starting this as a new discussion as I’m quite desperate for some answers and not getting many responses, I wondered if there was a doctor who accesses this site?
Please please help, I been laying in bed all morning researching and googling due to stomach cramping and Very Heavy Bleeding which appears to be getting worse with each passing moment 🥲🥲I’m now changing every 1/2 and hour and bleeding into the toilet before even removing my tampon which is then covered in very dark slithers/clots.
This has been happening for a week now since I started on Evorel 75 and 100mg Ultrogestan. As mentioned, it’s getting heavier and more frequent with each passing hour .
I just read an article on netdocotor.co.uk which mentioned that the Doctor should be aware when taking Ultrogestan if you have fibroids, which I do and they are?
Please could someone give me some advice as I feel I can’t even leave the house at the moment due to being so heavy and in pain. I can’t call the Doctor on a Subday and I’m worried 🥲🥲😩
Please please, any advice welcome x
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You could try writing to Dr. Currie who champions the site. There's a charge, but is well worth it if you can. Just press "Contact" at the top on the black menu band. You won't hear from her till tomorrow at least, but sometimes just making a step where knowledgeable help can be found and putting it "somewhere else" can take some pressure away. I'm so sorry this is happening to you. Sounds awful. Good luck!
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Can you not go to A&E
Maybe they could give you somthing to stop the bleeding ?
How long as it been since your last period ?
I know in peri they say our periods change and can become lighter or heavier
How do you feel in yourself apart from the worrying
I would if you are worried maybe call
111 if your in U.K. and get some advice
Keep us updated and I hope your ok xx
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Thankyou for replying and for the empathy 😊 Its really getting me down now 🥲I will definitely try that, do you know what the charge is?
Thanks again x
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Thankyou Michelle,
I experienced heavy periods like this before during Periods but then have net had a period since Feb 21 and Oct 20, so thought I was beyond that?
This has come on since changing HRT last Saturday, but as mentioned is getting worse and worse. I think I may call NHS direct as it can’t be right to be housebound and be so heavy??
Thanks again for the response.x
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I would make that call. The charge is £30.
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Call 111 or go to a+e. They should give you something to stop the bleeding. I had this when I first started evorel 75. Every two weeks. Awful.
Take good care x
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Hi, I’ve just called 111 and waiting for a call back.
Out of interest NAS, what was your outcome? Did you stay in Evorel 75/Ultrogestan? Did the bleeding stop eventually? How long did it take?
Thanks again for the responses !
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Sweaty, I hope you get a call back soon.
Well, I kept coming off the evorel during bleeds as I swore I couldn’t face another bleed. But then symptoms would return, so the patch would be put back on again! Totally messed with my body.
As it happens, I’m not absorbing much of the 75 anymore now and wondering what to do next.
The intermittent bleeding stopped in June and I started the patch a year ago.it was at least 4 months on the patch before the bleeding began.
Anyway, I hope you get sorted today.
Xx
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I hope you get your call back soon & I hope they give you something to help with the bleed
Could it be because you haven’t had a period in so long & that’s why it’s heavier
But I see Nas as also had problems with bleeds on same patch.
I do truly hope you get a call back soon & I hope they can advise you or give you something to help slow down the bleeding
Keep us informed sweaty Xx
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Thankyou both very much. I’m still waiting for 111 to call back, they said an hour but they’re obviously busy. Trouble is I darent use my phone incase I miss their call.
The bleeding has calmed a bit now so feel like a bit of a fraud ☺️But then I also do need to get this sorted.
If anyone else reads this thread and has the same issue, how long did it take to settle? Or did you come off Evorel/Ultrogestan?
Nas, I know you said you had the same issue, did GP offer an alternative?
I didn’t have this issue as bad when in the 50 combo??
Thanks
Sweaty x
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So…… I’ve just had a call back from 111 to apologise for the delay but to apologise also that there was still no clinician available to talk to me.
I said that I would call my Gp in the morning now!
Feel like I’m banging my head against a brick wall as I know it will take an hour to get through to my GP (as it always does), which is difficult when trying to work, but alas there is no other option.
I think I just want a magic wand which I know doesn’t exist with HRT.
This is why I joined this site to a least be able to chat/vent to others in the same boat.
Thanks again to those who have responded so far 😊😊
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Oh sorry your no better off sweaty
But if it becomes worse then take your self to A&E and let them give you something to help.
Hrt is a magic pill for some, they find the perfect regime first time around and never look back .. and others suffer for years before eventually finding their magic pill
It’s a rollercoaster ride & unfortunately we have no choice than to ride it
I hope your bleed doesn’t cause you too much bother , but if it does go straight to A&E
Other than that , I hope you get through to your doctor early in the morning ( good luck with that )
We do a online request and then get a call back when available.. which sometimes can be same day
Keep us updated
Xx
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Sweaty, I’m under a specialist but she did say I could either double the utrogestan to 200mg or switch to norethistone to see if that helps with bleeding.
It’s very much a rollercoaster unfortunately as Michelle said. Some strike lucky first time whilst other poor souls have to struggle on for ever before striking a balance.
Good luck with your gp tomorrow x
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Thankyou both so much, it’s just makes you feel a bit better knowing your not alone going through it. And as you say some just Hit gold first time with HRT and I guess for others we don’t 🥲this is my fourth different lot of HRT but is definitely the worse with regards to side effects. I feel so tearful too which I didn’t before.
I’m so worried that my GP will say there’s nothing more they can do for me , which is what they said last time and then my referral to a specialist came through for February. I certainly would’ve able to tolerate this bleeding until then 😒so fingers crossed they can help me tomorrow 🤞.
I’ll update this thread as it may help others too experiencing very heavy bleeding/losing clots with Evorel 75/Ultrogestan combination.
Thanks again for people’s support x
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Sweaty, I an am sure the bleed will slow down soon enough. You could try asking the GP to double your utrogestan or try the norethistone?
My specialist did say to me that utrogestan wasn’t the best at controlling bleeding.
What about the mirena coil for the progesterone? That’s meant to be good at controlling bleeding.
What other regimes have you tried?
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Hi,
Unfortunately I can’t have the Mirena coil anymore, just had the second one removed in April and was told by gynae no more due to the position of my Fibroids.
I had Premarin for a couple of weeks but it was for post menopausal women and when read what was in it too 😩
Then had Evorel 25. - Oestrogen only due to still having the coil
Then Evorel 50 combined sequi
Now Evorel 75/Ultrogestan 100mg tablet daily
Thanks again x
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Okay, you have fibroids?
Oestrogen stimulates fibroids and this may be why you are bleeding so heavily? X
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Surely the Doctor would be aware if this???? I always used to have very heavy periods in the past hence having the Mirena coil!
HELP! Now what??
I don’t know where to turn!
Really appreciate yiur input though NAS and others who have answered , it would be nice to be armed with some information before J call the Doctor tomorrow ☺️X
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Try not to worry.
It might be that they lower your dose of oestrogen to prevent the bleeding ( whilst controlling your symptoms at the same time) and to keep the fibroids at bay.
Definitely talk it all through with your GP though. Can fibroids be removed?
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Can women with fibroids still have HRT?
The vast majority of women with fibroids can safely take HRT without any problems. The doses of oestrogen in HRT are very low so they are not usually high enough to stimulate the fibroids. Occasionally having HRT can cause fibroids to grow or bleed. Women taking HRT can still have effective treatments for their fibroids.
Women who have had Uterine Artery Embolisation can safely take HRT after their menopause as the fibroids will have shrunk by the procedure and are therefore are unable to grow or be affected by oestrogen.
Many women find taking HRT very beneficial, so having fibroids should not alter your decision regarding taking HRT.
Sweaty I found this on the Newson site
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Thankyou so much NAS, I will certainly talk this through with GP. Apparently my fibroid isn’t a fuse for concern with regards to removal but the position would prevent another Mirena.
If Oestrogen aggravates fibroids then I’m wondering what the best option would be as I asked for increase ld Oestrogen due to hot flushes still continuing, albeit not as bad.
Thanks
Sweaty xx
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I love how doctors tell you that a fibroid isn’t any cause for concern when heavy bleeding isn’t exactly fun either.
You could ask for tranexamic acid to take on heavy bleed days which can reduce amount and clots. Or, if they are not prepared to remove the fibroid, you could ask them to be referred for UFE to stop it growing/shrink it.
I’d also ask them to actively monitor its size. Mine was ok,ok,ok and wait for menopause until suddenly it wasn’t - and was too big to do anything other than a hysterectomy. ::)
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Thankyou, I will beat that in mind as I hadn’t even considered that.
Update - I had call with GP who advised they will seek advise from GYnae to either
Increase Ultrogestan to 200mg
Change to Provera (progesterone)
Change HRT
Or another option to be advised
In the meantime GP has prescribed Tranexamic acid to reduce blood flow and resume some quality of life whilst remaining on HRT.
GP did mention we could come off HRT but would prefer to wait to see what Gynae say rather than keep coming on and off.
GP advised if blood loss is that heavy again to go to A&E rather than 111.
I will keep you all updated, especially for those experiencing a similar issues.
Again thanks for all the support especially the suggestion regarding Fibroid x
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Hi all,
Incase anyone else is experiencing V. Heavy bleeding, the Tranexamic Acid tablets really did help, took a couple of days to take effect! I actually feel ‘human’ again 🙂 However this is not a long term solution, so now waiting for my appointment with gynae 🤞Fingers crossed it will be sooner than Feb!
Will keep you all posted with the aim to hopefully help others in the same boat (see my original post)
Xx
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reading this with great interest as I have just gone through a similar experience. Have seen a consultant to day who did a scan and took a couple of biopsies, now waiting for the results. Good luck Seaty68 xx
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Might also be a good idea to request a blood test to check for anemia as when I had similar experiences I got anemic. I ws given mefenamic acid and that helped to control the bleeding. It is frightening, I thought I might bleed to death but apparently the blood loss looks more than it actually is.