Menopause Matters Forum
Menopause Discussion => All things menopause => Topic started by: pricey on May 21, 2021, 06:03:58 AM
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Hi ladies,
So I had the hysteroscopy, polyp removed (benign), biopsy on uterine lining came back as showing disordered proliferative endometrium. After initial panic (GP didn't really understand the results), I was told by the nurse hysteroscopist who explained my results that I am booked for a follow up biopsy in 4 months, really as a belt and braces approach since I'm still perimenopausal at 56. I could have opted for a Mirena during the procedure but as the polyp was removed and I'd finally missed a couple of periods the doctor doing the hysteroscopy agreed it might be worth seeing how I went with the option of my GP inserting a Mirena at any point. Fast forward to a month after the procedure and I had sore breasts and then a period started. It was heavy but not as bad as previously and without the horrendous clotting. However 12 days later I'm still spotting and my breasts are still sore. I would now say go for it, let's try the Mirena as discussed, but when the nurse hysteroscopist spoke to me she suggested I wait now until after the next biopsy. The thought of another 3-4 months of this is really getting me down, especially as everywhere I read the best choice of treatment for disordered proliferative endometrium or the next stage, simple hyperplasia, is a Mirena. I'm tempted to call my GP but feel like I'll be fobbed off as she didn't seem to understand the lab results anyway, and she's the practice go to for women's health! I'm not on HRT by the way. I stopped it last August.
Any advice welcome. I feel so low.
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Hello Pricey,
My heart goes out to you because I know how this feels.
The disordered profilerative endometrium is common during perimenopause and is due to anovular cycles. It should calm down soon as you reach the change. I was 58!
Being 56, as I was, going through the menopause transition makes you feel very vulnerable as you are tending towards the minority. However my consultant said he is seeing more and more women in their late fifties and that was reassuring.I am now 61.
I think the worry over results and the chaos of it all is overwhelming plus trying to get answers.If it was all explained in detail you wouldn't worry. I am in a similar boat at the minute as I have a polyp with an area of thickening which is due to be removed on 29th under GA. The stress is horrendous plus all the Covid thing with testing and mandatory isolation and my husband is banned from the hospital on op day. I think it is absolutely normal to be anxious, and as you said in your previous posts we are juggling so much in our lives we don't need this on top.
My husband always says that catastophising, as he calls it, is silly and that all this will come and it will go. He does say though that if he was in my shoes he would be shaking in his boots which I am by the way!
I had this op in 2019 for a cervical polyp, but it was nowhere near as stressful as the wait was less and there was no Covid isolation.I even went to a concert the night before the op to calm down. None of that this time I am banned from leaving my home.
You are normal - this situation you are in will pass I promise, and you will soon have a summer meadow ahead with happy carefree days. I am a qualified nurse and it makes my blood boil when the communication between the medics and the patient is so patchy. We were trained to show empathy and kindness and also to be honest.If you are given all the information and what it all means then you can deal with it. Lack of information causes worry and imagining the worst, it is horrid.
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Thanks so much, Machair. I'm sorry you're still going through the mill!
I was shocked and upset by how badly my GP handled my results. She made me think I had atypical hyperplasia and mentioned an MDT meeting. When I spoke to the hysteroscopy nurse she said that was literally just that the results had been run past the consultant to review. I have been trying to get some resolution now for 10 months (not that it was great before that, but things got a whole lot worse). I work full time in a stressful job, think I also have long Covid but it's hard to distinguish perimenopause from that, although some of my symptoms are undoubtedly from the virus. I feel like I'm falling through two nets now. And I just keep going. It can be so debilitating, can't it?
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