Menopause Matters Forum

Menopause Discussion => All things menopause => Topic started by: Kelrob12 on October 28, 2020, 03:54:14 PM

Title: preventing osteoporosis
Post by: Kelrob12 on October 28, 2020, 03:54:14 PM
Hi,
Does anyone know the levels needed to protect bones - The Menopause clinic told me 300pmol/l but mentioned to my GP who said she couldn't find any information and I can't either. Anyone told any different levels?
thanks Kelly
Title: Re: preventing osteoporosis
Post by: Joaniepat on October 28, 2020, 04:13:12 PM
That's what I was told at the meno clinic too. At the time I couldn't find anything published either! I doubt many studies have been done, but this figure must have come from somewhere. Hopefully someone here will have more info.

JP x
Title: Re: preventing osteoporosis
Post by: CLKD on October 28, 2020, 04:32:05 PM
Is this calcium levels?

MayB look at the UK osteoporosis support group/charity ?
Title: Re: preventing osteoporosis
Post by: CLKD on October 28, 2020, 04:33:30 PM
Royal Osteoporosis Society 2020

President: HRH The Duchess of Cornwall

Royal Osteoporosis Society is a registered charity no. 1102712 in England and Wales, no. SC039755 in Scotland, and no. 1284 in Isle of Man.

Registered as a company limited by guarantee in England and Wales no. 4995013, and foreign company no. 006188F in Isle of Man.
Registered address:  Manor Farm, Skinner's Hill, Camerton, Bath BA2 0PJ
Formerly the National Osteoporosis Society
Title: Re: preventing osteoporosis
Post by: Catcc on October 28, 2020, 05:18:00 PM
I was told it has to be at least 200 (private Meno specialist).  I wasn't absorbing enough estradiol from my patch so had to increase strength.  It's important to me having recently been diagnosed with osteopenia
Title: Re: preventing osteoporosis
Post by: Joaniepat on October 28, 2020, 06:12:40 PM
Is this calcium levels?

MayB look at the UK osteoporosis support group/charity ?
It's oestrogen levels.
JP x
Title: Re: preventing osteoporosis
Post by: CLKD on October 28, 2020, 06:30:32 PM
Tnx - not keeping up am I  ::)
Title: Re: preventing osteoporosis
Post by: Kelrob12 on October 29, 2020, 07:40:06 AM
That's what I was told at the meno clinic too. At the time I couldn't find anything published either! I doubt many studies have been done, but this figure must have come from somewhere. Hopefully someone here will have more info.

JP x

I agree, there must be some literature?! Maybe I will email the clinic but I asked yesterday if I could ask a few questions about my HRT and I have to pay £30 for a email reply so they might not answer  ;D
Title: Re: preventing osteoporosis
Post by: Kelrob12 on October 29, 2020, 07:50:46 AM
I was told it has to be at least 200 (private Meno specialist).  I wasn't absorbing enough estradiol from my patch so had to increase strength.  It's important to me having recently been diagnosed with osteopenia

I was just reading about supplements - did they tell you to take any? Ive ordered some calcium carbonate powder in a hope this would be good enough as I don't want to up my estrogen patch. x
Title: Re: preventing osteoporosis
Post by: Hurdity on October 29, 2020, 08:36:27 AM
There is not a lot of info about this I don't think. A while ago I read a paper where the firgure of something like 165 as an absolute minimum was mentioned but as always this would have to be qualified and will involve detailed measures of bone turnover over time etc. It's a complex issue. I have also heard that private gynaes suggest way above that minimum but maybe that's to allow for variation? Sorry I don't have time to look this up.

Hurdity x
PS It's always important to have a good diet with plenty of fresh foods and including calcium but beyond that you shouldn't need to take more of any vitamin or mineral than you need unless you have an gut absorption problem. Focus on diet first I would say,
Title: Re: preventing osteoporosis
Post by: CLKD on October 29, 2020, 09:02:00 AM
Why not up the patch?  HRT is known to protect bone density and heart muscle.  Have U read the info on the Osteoporosis web-site?
Title: Re: preventing osteoporosis
Post by: Catcc on October 29, 2020, 09:38:10 AM
Hi Kelly Louise

It was my GP who sent me for a DEXA scan and I had a shock when I was told I had osteopenia (was not expecting that!).  She didn't really discuss it with me (it was a phone consultation and she is always in a hurry).  She just prescribed me Adcal-Vit D supplements. 

Obviously I want to strengthen and protect my bones now, but I have read so much online about calcium supplements possibly causing heart problems and kidney stones that I do feel uneasy taking them.  Having spoken to another GP in my practice and my menopause specialist, I am trying to increase my calcium intake through a combination of food and the supplements (I believe that, because I have osteopenia, I need 1200mg a day, plus vitamin D). 

I am really happy that I recently started HRT (I now wish I'd started it sooner - hindsight is a wonderful thing  :)). 

The Royal Osteoporosis Society have lots of fact sheets and info on their website.  They don't seem to favour supplements, except in specific circumstances, which is what really concerns me. 

When you look more into supplements it gets complicated.  I've read that you need magnesium and vitamin K too in order to absorb.  I am still trying to work my way through this minefield to try and work out what's best.  I have just read that prunes are full of vitamin K so I've added them to my diet too.



Title: Re: preventing osteoporosis
Post by: Kelrob12 on October 29, 2020, 09:45:11 AM
Why not up the patch?  HRT is known to protect bone density and heart muscle.  Have U read the info on the Osteoporosis web-site?

My Gp won't as she says 100mg is high enough and it to worried about cancer and I have a fibroid (never had one before Hit and estrogen cause it to grow whilst on 50mg so she worried it will grow more). Plus Im sure my internal scar tissue pain increased when I upped my estrogen - I think I read about nerve and estrogen so don't want to just rush upping just yet unless Im sure I will feel better on it. I'm not against it just want to make sure x
Title: Re: preventing osteoporosis
Post by: Kelrob12 on October 29, 2020, 10:17:29 AM
Hi Kelly Louise

It was my GP who sent me for a DEXA scan and I had a shock when I was told I had osteopenia (was not expecting that!).  She didn't really discuss it with me (it was a phone consultation and she is always in a hurry).  She just prescribed me Adcal-Vit D supplements. 

Obviously I want to strengthen and protect my bones now, but I have read so much online about calcium supplements possibly causing heart problems and kidney stones that I do feel uneasy taking them.  Having spoken to another GP in my practice and my menopause specialist, I am trying to increase my calcium intake through a combination of food and the supplements (I believe that, because I have osteopenia, I need 1200mg a day, plus vitamin D). 



I am really happy that I recently started HRT (I now wish I'd started it sooner - hindsight is a wonderful thing  :)). 

The Royal Osteopathic Society have lots of fact sheets and info on their website.  They don't seem to like supplements, except in specific circumstances, which is what really concerns me. 

When you look more into supplements it gets complicated.  I've read that you need magnesium and vitamin K too in order to absorb.  I am still trying to work my way through this minefield to try and work out what's best.  I have just read that prunes are full of vitamin K so I've added them to my diet too.
Oh no wish id not ordered the calcium carbonate now 😂😂
I will look into this too.
I already take vat d and mg but not vitamin k. x
Title: Re: preventing osteoporosis
Post by: Catcc on October 29, 2020, 12:20:43 PM
You maybe need some proper advice on what to take.

A neighbour of mine recommended Viridian Calcium/magnesium and zinc powder (she has osteoporosis but is not on HRT).  I like Viridian supplements and emailed them for advice. They have excellent customer service.   

They recommended, for my situation, their calcium/magnesium/boron powder (and vit D) and mentioned vitamin K, but she did say not to take a vitamin K supplement without checking with my meno specialist first as there could be an interaction with my HRT.  She told me the amount of vitamin K in my multi-vitamin is fine (it's just higher doses that might be an issue). 

I've decided just to eat more prunes  ;D.  I know that sounds crazy but apparently they are good for bones and contain vitamin k. 

At the moment I'm consciously working out how much calcium I eat a day (both from the supplements and my diet - I don't want too much or too little), I'm making sure I take vit D, and I also take magnesium anyway as it's been helpful for a lot of things.

If you're going to take supplements I think I would try and get some proper advice from someone who knows what they're talking about. I'm not an expert.  In fact I'm in the early stages of trying to work this all out for myself.
Title: Re: preventing osteoporosis
Post by: CLKD on October 29, 2020, 01:34:00 PM
Brisk exercise protects bone health.
We are a Mine of Info aren't we  8)
Title: Re: preventing osteoporosis
Post by: Catcc on October 29, 2020, 03:44:08 PM
You're so right CLKD.  That's why I'm so upset about the arthritis in my big toe, ironically caused by lots of exercise. 
Title: Re: preventing osteoporosis
Post by: Kelrob12 on October 29, 2020, 05:34:27 PM
You maybe need some proper advice on what to take.

A neighbour of mine recommended Viridian Calcium/magnesium and zinc powder (she has osteoporosis but is not on HRT).  I like Viridian supplements and emailed them for advice. They have excellent customer service.   

They recommended, for my situation, their calcium/magnesium/boron powder (and vit D) and mentioned vitamin K, but she did say not to take a vitamin K supplement without checking with my meno specialist first as there could be an interaction with my HRT.  She told me the amount of vitamin K in my multi-vitamin is fine (it's just higher doses that might be an issue). 

I've decided just to eat more prunes  ;D.  I know that sounds crazy but apparently they are good for bones and contain vitamin k. 

At the moment I'm consciously working out how much calcium I eat a day (both from the supplements and my diet - I don't want too much or too little), I'm making sure I take vit D, and I also take magnesium anyway as it's been helpful for a lot of things.

If you're going to take supplements I think I would try and get some proper advice from someone who knows what they're talking about. I'm not an expert.  In fact I'm in the early stages of trying to work this all out for myself.

Prunes would probably be good for me as Im prone to getting bunged up 😂.But they taste bloody awful to me! I have no idea actually my calcium intake - I have no gallbladder and milk just plays havoc with me! I do eat kale, spinach every day but no sure if they have calcium! Im going to log it all I think like you. I tweet my vitamin d levels every 3 months along with others I can afford at the time! Sometimes I just wish I was famous or loaded and it would be
easier as we could just pay to get it all sorted! 😂
x
Title: Re: preventing osteoporosis
Post by: Kelrob12 on October 29, 2020, 05:35:53 PM
Brisk exercise protects bone health.
We are a Mine of Info aren't we  8)

Thats actually good to know! Its the only thing I don't worry about causing bloody muscle pains 😂😂
Title: Re: preventing osteoporosis
Post by: Catcc on October 29, 2020, 07:01:15 PM
So agree with you about wishing I could afford the best one to one treatment and advice, on call whenever I need it.   I've said those exact words to my partner so many times over the last few years.   Just imagine ...  a personal trainer, nutritionist, and all the specialists you need as soon as you need them.  As it is, I've spent a fortune on private appointments with Meno specialist, physio, vulval dermatologist, podiatrist, trichologist, you name it ...  :)
Title: Re: preventing osteoporosis
Post by: Noheroicsplease on October 29, 2020, 07:10:19 PM
This is all really interested. Without seeing this post, I simultaneously posted about my osteopenia worsening since last DEXA scan in 2017 and how I've been advised to go back onto HRT.

During a call with my doctor today, she said that however great my diet was, I wouldn't get enough calcium to help. That I should take supplements.

I was thinking about seeing an osteo consultant rather than a meno consultant...
Title: Re: preventing osteoporosis
Post by: CLKD on October 29, 2020, 07:53:50 PM
My Mum has been prescribed calcium tablets ........ also VitD is important so adding a good capsule won't do any harm.  Some supplements however can cause more problems than they solve.
Title: Re: preventing osteoporosis
Post by: Catcc on October 30, 2020, 08:09:50 AM
Hi Noheroicsplease

So sorry to hear that.  I can't really advise as I'm new to all this.  Any information I do get I'll be happy to share,

As we were saying earlier it costs a fortune seeing all these different experts.  It'd be great to have all the correct advice"on tap" x
Title: Re: preventing osteoporosis
Post by: Kelrob12 on November 02, 2020, 09:21:57 AM
Hi Noheroicsplease

So sorry to hear that.  I can't really advise as I'm new to all this.  Any information I do get I'll be happy to share,

As we were saying earlier it costs a fortune seeing all these different experts.  It'd be great to have all the correct advice"on tap" x

Great thanks. I agree its so costly, Im struggling to get to see the private meno clinic based on coat its like £90 minimum a video call and £30 to reply to an email! that why this site is so good it arms you with as much info as possible. Ive spend so much on private's bloods too - found my B9 was low yet not one of the people I saw even mentions to check it.
x
Title: Re: preventing osteoporosis
Post by: CLKD on November 02, 2020, 10:24:59 AM
Morning.  1 needs to be aware when paying 4 blood tests particularly if using a private company not connected to the health service.  Often they sell products so will find something that is slightly 'off' in order to, well call me a cynic.  Moi  :D
Title: Re: preventing osteoporosis
Post by: Kelrob12 on November 02, 2020, 02:42:47 PM
Morning.  1 needs to be aware when paying 4 blood tests particularly if using a private company not connected to the health service.  Often they sell products so will find something that is slightly 'off' in order to, well call me a cynic.  Moi  :D

😂 I know I think sometimes Im a bit of a sucker - I have to stop myself a lot! 😂
x
Title: Re: preventing osteoporosis
Post by: Brit66 on November 05, 2020, 06:45:23 AM
My consultant said to avoid osteoporosis,  as well as heart disease,  alzheimers, vaginal atrophy etc, the necessary dosage is 1mg of sandrena, so whatever that converts to in your choice of HRT i guess.