Menopause Matters Forum

Menopause Discussion => All things menopause => Topic started by: Maryjane on August 18, 2019, 07:39:29 AM

Title: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: Maryjane on August 18, 2019, 07:39:29 AM
As title really pleased with them they have been thoroughly checked by Dr Louise Newson so everything is correct.

I have had no sponsorship or been paid to print them ( 5,000) the sales from the book has paid for them, the leaflet also mentions VA due to breast cancer, breast feeding & some medications as it's not just menopause that can cause it.

They are very informative & overtime potentially they will be in 5 other languages I have had offer of help, this will take time a GP has offered to do & arrange this.

I now have medics saying my book should be “obligatory “ reading material & someone who works in elderly care said it should be part of the caring side of the learning as elderly care and VA issues are pretty 😢.

I will message Emma & see if I am allowed to put a link up, I hope so as we have been talking for years about the need for a VA leaflet.

The leaflet is downloadable to self print or I can send professionally printed ones for the price of second class postage.

Next will be a poster.

Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: Turkish delight on August 18, 2019, 07:57:45 AM
MJ, that's amazing!

You are moving mountains, giant vaginal one, I applaud you and thank you!

TD

Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: Dotty on August 18, 2019, 08:39:52 AM
Fantastic 👍🏻 X
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: jillydoll on August 18, 2019, 09:44:03 AM
Bloody brilliant MJ.... :foryou:
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: Maryjane on August 18, 2019, 12:54:12 PM
I'm trying 😊but it's hard work & requires a lot of social media PR but it's starting to pay off, and word is definitely starting to get out there.

The emails & messages I get from ladies are truly 😢it really is the silent hush hush of menopause & care homes for many 😏 who's doing the ladies local oestrogen ? Highly likely no one & it's not even on the radar of the care homes or medics, this must change.
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: CLKD on August 18, 2019, 04:18:19 PM
 :medal:

OK - care homes [tick]
GP Surgery [tick]
Vet Surgery [tick]
Dental Surgery [tick]
Librarry [tick]
Council offices, local Leisure centre, hair dressers ........... local gyms - could get to those too

I don't get to Hospitals [fortunately] and they are all over 15 miles away from my home but my sister works in a health care facility in Wales - working from the top of my head here, can you tell  :D

Any other ideas ladies? 
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: westie on August 18, 2019, 04:45:35 PM
Maryjane what an absolute star you are, I take my hat off to you.

A few months back I was in waiting room in hospital waiting to see my gynaecologist. The lady next to me, who told me she was 81, starting chatting to me and said she was here for a long awaited appt with a urologist to discuss the repeated UTI's she had been suffering with for over 20 years! She said she was at her wits end and sick of going backwards and forwards to doctors for more antibiotics. She had finally convinced her doctor to see a specialist.

I suggested that it might be VA. She had never heard of it and I explained the symptoms. She said her doctor had never mentioned it to her but had simply told her urinary problems were something you had to be used to in old age!

Anyway, I wrote a few bits down for her and suggested she questioned the urologist. When I told her it could be treated she nearly cried.

I will never know how she got on as I didn't see her again but I really hope she got the treatment she needed.

A few of my friends have mentioned their on going issues with burning, irritation and UTI's too and it is staggering that doctors just dish out antibiotics without even thinking it could be VA.

I know from bitter experience how debilitating this condition can be so big thanks to you for what you are doing.

W xx
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: dahliagirl on August 18, 2019, 05:04:34 PM
I remember when you said on here that you dreamed of doing this.

It is so exciting to see this dream of yours becoming a reality   :foryou:

So many women will be helped by this.


You are an inspiration.  What could we all do, if only we could harness that bee in our bonnet?  :)
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: Whatsupwiththis on August 20, 2019, 12:37:39 AM
You go girl.   What a great idea and such tenacity.  I wouldn't have the patience.  Let's hope your booklet will show the medical community what it's like from OUR side. 
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: CLKD on August 20, 2019, 08:41:29 AM
YIPEE - my leaflets have arrived  :thankyou:

Girl's on a Mission now  ;D
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: Lanzalover on August 20, 2019, 08:51:05 AM
Good morning Maryjane

This is great news well done, keep up the good work.
Where do you download the leaflet ?

Lanzalover x



Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: Katejo on August 20, 2019, 05:02:08 PM
Maryjane  I have sent you a PM today with an address to send me a few leaflets if possible.

Thanks

Katejo
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: CLKD on September 09, 2019, 11:24:16 AM
I have handed out leaflets to our GP Surgery, took some and a copy of the book to the Surgery that is involved at Mum's Care Home and who was her Practice until she moved.  I also gave the new Manager at the Home leaflets, explaining that there should be a copy of the book already in the Office which I left in the Spring.

I'm on a roll ;-)
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: Emma on September 09, 2019, 11:41:06 AM
For info: there are a few leaflets available to download from the Leaflets page (https://www.menopausematters.co.uk/downloads.php)

Vaginal atrophy - a change with the menopause.
Vaginal Health Leaflet.
Vaginal atrophy checklist.

And many others.
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: Kathleen on September 09, 2019, 12:01:50 PM
Hello Maryjane.

Congratulations! Your hard work is certainly paying off.

Do you think that VA is inevitable post menopause or do some lucky women escape this particular misery?

Well done again and wishing you well.

K.
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: CLKD on September 09, 2019, 12:11:40 PM
The leaflets I am distributing are those that MaryJane has arranged  2 be sent to me :-\ as well as her book about vaginal atrophy. 
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: Turkish delight on September 09, 2019, 01:45:49 PM
Sort of on the same subject,

MJ is it still the case that the patient information leaflet for vagifem is still a non specific one but is a general hrt leaflet?

I just can't understand how after having done laboratory test and so on to legalise this product that Novo is not obligated to form/print a specific one for vagifem, with the relevant side effect of vagifem on it and not a systemic hrt general patient info leaflet which is a whole other thing.

It's just that I'm trying to break the poo taboo alone over here, like your breaking the vaginal one, but not many ppl want to talk poo like I do lol!
I'm having the squitz and wonder if it could be due to vagifem, but how can I tell if it's a common side effect if I can't trust the leaflet and ppl won't talk on taboo subjects. I think you must be able to feel my frustration jumping off this page lol :angryfire:

TD
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: CLKD on September 09, 2019, 01:55:11 PM
'the squitz' - haven't heard that Norfolk expression 4 years  ;D

People don't want to talk about poo unless they have a baby or a dog  :D
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: Turkish delight on September 09, 2019, 02:26:42 PM
CLKD You do make me laugh!

Damn straight though, the poo taboo is alive and well. I don't have a baby or a dog so I'm an aberration.
Squitz describes it nicely, and another thing...why don't ppl use the word menstruation any more...? Is that now a non palatable word now.

Sorry to hi jack you thread MJ, I'll try and get back in my box now  :-X
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: Kathleen on September 09, 2019, 05:45:00 PM
Hello ladies

I'm a girl who mentions menstruation and I can talk poo too! I am all for including this bodily function in the menopause symptom discussion.

On the second day of my period I always had diarrohea and cramps and  despite being post meno I still seem to get 'power surges' and this can cause my bowels to move faster than I'd like.

Incidentally if you go on some of the Ulcerative Colitis and Crohns forums you will see poo discussed in all its glory! Nothing is out of bounds and it's worth  having  a copy of the Bristol Stool Chart to hand as well lol.

Take care and good luck with your quest.

K.
Title: Re: VA leaflets done & 3 hospitals & some GPs have asked for them.
Post by: CLKD on September 10, 2019, 07:04:41 AM
I don't talk periods even to the younger generation  :-\ but I will discuss atrophy until the cows come home ....... go figure  ::)

It's the age old question: does The Queen have someone who attends her toilet functions whilst she is elsewhere? :   ;)

I wonder as another aside how many rolls of loo paper and which Brand are delivered to The Palace weekly ..........