Menopause Matters Forum

General Discussion => New Members => Topic started by: Nas on June 02, 2019, 09:27:35 AM

Title: Just had enough!
Post by: Nas on June 02, 2019, 09:27:35 AM
Still waiting for oncology to inform GP what HRT I can trial. But I'm so so tired and drained. Cannot sleep due to being permanently  hot and irritated. Anxiety is through the roof. Feeling generally incapable; even bottled a job interview on Friday due to feeling inadequate! Start a new job Tuesday, stressing about that now and the drive to the training centre. God when will it stop?? Life is just about grinding to a sharp halt! And my brain won't switch off, not ever. Why?

Sorry for the rant. Just exhausted and it's only  10.30am  :(

Title: Re: Just had enough!
Post by: jillydoll on June 02, 2019, 12:24:16 PM
Hi Nas
So sorry to hear you feel like crap! I know and all of us on here, know exactly what your going through. How long have you been waiting to hear? ....maybe give them a ring to see what's going on, and if they can get a shifty on? It's no joke having to wait!

Breathe! ......take a little time for yourself, try and calm yourself, do some deep breathing, is there anything you like doing? To distract myself from the dreaded anxiety, I play music, or watch films, getting out walking helps clear the head, anything, that takes the emphasis off the anxiety....it's the lack of hormones that's doing it......do you know where you are in this meno crap? Peri or post? .....
Take your time on Tuesday, focus on the job, ....and keep breathing, slowly....your be fine. 🤞
Someone will post whose got better advice than me, hang on in there, .......jd xx
Title: Re: Just had enough!
Post by: CLKD on June 02, 2019, 03:09:58 PM
Hi! how about reminding the Oncology Dept.? 
Title: Re: Just had enough!
Post by: jaypo on June 02, 2019, 05:00:04 PM
So sorry you're feeling so bad nas, I agree with Jill & clkd,give oncology a ring in the morning,it's no fun having to wait like that
Let us know how you get on
Title: Re: Just had enough!
Post by: Nas on June 03, 2019, 10:01:57 AM
Hi all,
Good to hear from you..
I have emailed the oncologists secretary, requesting that he send through the HRT info to the GP and have booked another apppointment for next week to (hopefully!) see a more experienced and knowledgeable GP.

Jilly, I am not sure where I am in in the meno crap TBH. I have just turned 48 and last period was August 2017, although the symptoms started around January of this year. I have requested bloods several times and they keep telling me that blood tests are inaccurate for menopause and you are either peri or post - great help!

I think the anxiety is by far the worst symptom and it really does impact on my life. However, it is probably compounded by situational stresses, such as new job and looking for a new job as new job does not pay enough, but something is better than nothing right now), kids who demand all my money and just general 'stuff'. I just feel what ever I do, it is wrong or not good enough. I try to be patient and do the right thing. I am kind and listen to others, but it feels I haven't achieved enough in life and time is running out! I constantly regret leaving teaching over a decade ago, because I could have probably retired by now, on a decent pension. Instead of which, I am now battling to find jobs which pay half decent. What is my point? I think I am just reflecting on life so far and dealing with the meno at the same time!

Okay,time to deal with HMRC, breathe and breathe again..

Thanks again :-)



Title: Re: Just had enough!
Post by: CLKD on June 03, 2019, 02:51:19 PM
When Dad was too ill to work Mum laid out the weekly income on the kitchen table.  She pointed out what was spent on food, comics etc. and what we would have to stop buying in order to make ends meet.  From having 3 comics each for example, we had to cut down to 1 each so we choose something different ....... the money we spent was removed from the kitty so that it was obvious what was left for food etc..

Maybe try this with your kids?  'demand'  ;D - who is the adult here  :-\.  Put the facts in front of them, the sooner children learn to budget the better - it's a Life skill rarely taught as parents seem afraid to put the truth of income/out-come in front of them  ::).  A simple 'there isn't enough money this week' should suffice. 

Cooking bulk and freezing can help too.

Let us know what the Secretary comes up with ;-).  Blood tests are reliably un-reliable - menopause is literally the last period.  Peri- is when periods wax and wane as well as other symptoms: flushes, tiredness, crankiness, dryness ........

You left teaching for a reason?  Think back? 
Title: Re: Just had enough!
Post by: jillydoll on June 03, 2019, 03:26:36 PM
Hi Nas
Been there, done that! In regards to life's just passed me by,.we can't go back, (wish we could. ) we are where we are, our lives are what they are now, not what they could've been.
Please stop beating yourself up, it's negative, and it's NOT going to change a thing!
Yeah life's a struggle, but you've a loving family, and that what matters, meno brings soo much unhappiness, it's hard to believe hormones can do that, and yes, reflecting is one of them. All you can do is your best, full stop, no one asks for more,most of all this is/was in our heads. It does get better, but I know it's a struggle.
I'm glad you got in touch with oncology department, maybe now they'll get a shifty on.
And ‘your point' is to be mom to those kids of yours, even if you had nothing, they'd still love you, no matter what. It's not what you buy them, it's you being you who they love.
Keep posting, get it all out, it does help. Try and get some ME time....and good luck for Tuesday. Remember.......BREATHE......xxxx
Title: Re: Just had enough!
Post by: Nas on June 05, 2019, 12:05:53 PM
Thanks jilly and CLKD, I really appreciate your replies.

Yesterday went okay (ish). I started to feel rather paniked driving home on the busy dual carriage way in the pouring rain and wind and had to take many deep breaths. Other than that, felt quite proud of the fact that I did day one of induction without being a complete wreck.

Your advice re; not looking back and only forward, is so true jilly. I am trying to 'embrace; this new stage of life, but it isn't easy. That said, you are righT, I can oly do my best. The kids need to realise this and appreciate the things they do have and get. I am starting to be far more blunt about our finances and remind them that while their friends may get what they want at the drop of a hat, this does not make them a better person!

CLKD, yes there was a reason why I left teaching.
Title: Re: Just had enough!
Post by: Nas on June 05, 2019, 12:07:46 PM
Whoops,sent too soon. I was sick of being judged and scrutinised. An OFSTED 'outstanding' teacher for so long, but the goal posts move all the time. Burn out hit me. The rest is history!
Title: Re: Just had enough!
Post by: CLKD on June 05, 2019, 02:45:00 PM
My Mum ranted when the Ofsted idea was muted :How dare they consider that I need to be watched whilst teaching, how can a non-teacher even guess what teachers actually do!"

Sit them down, make that list, get the pennies across the table so that they can see what is available - how old are they?
Title: Re: Just had enough!
Post by: LuLu71 on June 11, 2019, 12:42:17 PM
Hi Nas, I just read your posts in this thread and just checking in to say hello and I hope you are feeling better this week. I hope the anxiety levels are down and you are doing well adjusting to a new job  :D Here for you!
Title: Re: Just had enough!
Post by: jillydoll on June 11, 2019, 02:55:41 PM
Hi Nas
Just read your post about telling the kids about what their friends get doesn't make them better people! Couldn't have put it better myself! Tell them, tell them, tell them......
I'm fed up with this younger generation getting what they want and parading around like their gods gift or something! Money doesn't buy you happiness. If you look after the things you have, and BE happy, that's all you need!
God, I wish someone had told me that years ago. Instead, I worried ‘ what would people think' kinda thing!.....now in hindsight, it was worry for totally and absolutely nothing!
It is hard, but if I had my time over again, I'd change that aspect of buying for my kids at the drop of a hat! And I'd probably have more money now,!. 🤨
Hope your feeling better, and hope they get a shifty on for you at the hospital....they need a  :kick:

Take care....keep posting....jd xx
Title: Re: Just had enough!
Post by: Nas on June 12, 2019, 07:07:47 PM
Hi all,
Thanks once again for your lovely replies; they have cheered me up  :)

I went to see a different GP yesterday, in the hope that the oncologist had written to the surgery, but alas this was not the case  >:(
She proceeded to tell me that she did not feel that even the oncologist was the correct person to prescribe HRT and that I needed to see a meno specialist. Where do I find one? I am Cheshire based, so will start looking around I guess.  I cannot afford private right now though. GP prescribed setraline and asked to me come back in 4 weeks to review. In the mean time, I am still suffering and the anxiety persists. I don't know where to go from here? I have asked the oncologists secretaty to forward him an email from myself, outlining what they are saying at the surgery and have requested him to send over a prescription for me, but I doubt that will even happen.

I am feeling angry and frustrated, as HRT could make me feel better (it may not) but they are not giving me the opportunity to even try.
Title: Re: Just had enough!
Post by: CLKD on June 12, 2019, 07:37:40 PM
Oncology or who, does it really matter - getting advice is what is important.

Your GP should be contacting who she thinks is necessary, not fobbing you off!!  Menospecialists so often are not 'specialists'  >:( .......

What is 'setraline' supposed to do? 
Title: Re: Just had enough!
Post by: Nas on June 12, 2019, 07:54:29 PM
I hear what you say CLKD and agree. She says start 'digging' to see who you can find to help.

Sertraline? No clue. Helps with hot flushes?

I can't be bothered. Tired and drained from it all and have got nowhere. They don't care about my quality of life clearly.
Title: Re: Just had enough!
Post by: jaypo on June 12, 2019, 07:57:41 PM
I was given sertraline for anxiety,couldn't stomach it
Title: Re: Just had enough!
Post by: jillydoll on June 12, 2019, 08:09:28 PM
Sertraline is an antidepressant.
Surprise surprise. No change there then!
Google, meno clinic's in your area, might be of help....?
I'm so sorry your not getting anywhere quick enough.
If you find one in your area, phone your GP and tell them to refer you off to it.
ASAP! ......I can't think of anything else....good luck...xxxx
Title: Re: Just had enough!
Post by: Cazikins on June 12, 2019, 08:50:26 PM
She proceeded to tell me that she did not feel that even the oncologist was the correct person to prescribe HRT and that I needed to see a meno specialist. Where do I find one? I am Cheshire based, so will start looking around I guess. 

Hi Nas, click on this link to find a meno specialist in your area:
https://thebms.org.uk/find-a-menopause-specialist/

Hope you get the right help soon.
Cazi x
Title: Re: Just had enough!
Post by: Nas on June 13, 2019, 06:18:45 PM
Thanks all.
Just looked at the link Cazi, I've already seen my nearest specialist and she wanted to hear what the oncologist had to say, before prescribing me anything. I've been back in touch with her to ask whether she will prescribe, since the GPS are unwilling, I may contact a few more on that list also!
Title: Re: Just had enough!
Post by: CLKD on June 13, 2019, 06:20:10 PM
Ring the Oncologist's Secretary or send an e-mail?  Is there a PALS group at the Hospital who can intervene?
Title: Re: Just had enough!
Post by: Nas on June 13, 2019, 07:16:41 PM
The oncologists secretary emailed to say that the man himself is going to ring me on Monday!
Can GP's refuse to prescribe a treatment, it they know a person is suffering and this treatment MAY help alleviate the symptoms. I mean, it's a bit crap to say " There is evidence to suggest that HRT can help with many of your symptoms, oh but wait a minute, it MAY trigger your cancer again". You MAY not wake up from an operation, you MAY experiences dreadful side effects from antibiotics or other drugs. They can't say for SURE, HRT will trigger the cancer cells again; so why can't I trial it???
Title: Re: Just had enough!
Post by: CLKD on June 14, 2019, 08:29:05 AM
Have a look at some of my answers in recent days via my profile - I mentioned a Consultant in the US regarding his wife and daughter, both using HRT despite ......

Hopefully he won't keep you waiting too long on Monday!  Let us know.  "Quality of Life" is important, ask your GP should he be reluctant to drag out any research that states women have had recurrence?  After all, that bus might be along prior to the body growing more cancer cells!!!  ;) and yes, it is time that women took the risk or asked for double mastectomy if HRT is so dangerous?
Title: Re: Just had enough!
Post by: Nas on June 14, 2019, 01:18:38 PM
CLKD would you like to speak to him for me? 😀 You are right of course, that bus could come hurtling down the road, way before the cancer cells ignite! He is calling at 2.30 pm and I'm going to dig out some of your thoughts and posts, ready to have in front of me! I won't be told no no no, when I want to trial at the very least!
Title: Re: Just had enough!
Post by: CLKD on June 14, 2019, 01:27:42 PM
Ask him what he fears the most about prescribing appropriate HRT ?  Also ask what he would advise his Wife, Mum, Daughter ;-).

Title: Re: Just had enough!
Post by: CLKD on June 14, 2019, 01:28:44 PM
Here we are!

From MaryJane recently:

Read oestrogen Matters book by Avrum Blumin his own wife & daughter have had breast cancer and BOTH are on HRT.

There is an awful lot of media propaganda, & medical evidence that proves that we have been lead down the wrong path.

He is a top US breast oncologist.

Title: Re: Just had enough!
Post by: Nas on June 17, 2019, 02:44:58 PM
The Oncologist phoned the GP, not me! The jist is, that they still want me to try the anti d's, which I do not want to do.
I have emailed the private meno GP whom I saw in April, to see if she will prescribe based on the contents of the letter, but I cannot really afford her. When the GP rings tomorrow, to let me know the exact outcome of the telephone conversation, I will ask them to refer me to a meno clinic I think. More waiting etc etc and in the meantime, quality of life goes down the pan!  >:( >:( >:( >:(
Title: Re: Just had enough!
Post by: CLKD on June 17, 2019, 03:19:51 PM
I would make an appt 2 C the Oncologist and ask for more concrete information as to why ladies can't have HRT?  Would he prefer to suggest double mastectomy if HRT is so dangerous?  Also look at the book by Avrum Blumin and suggest that your Oncologist reads it!  We have to take responsibility sometimes rather than trusting on hear-say.  If ladies are prepared to take risks in order to feel well during menopause then that's the way it should go, we shouldn't be treated like children  :bang: :bang: :bang: after all, until someone takes the risk and this would be a great Thesis topic ;-) we will never get passed the 'no' situation.
Title: Re: Just had enough!
Post by: Wrensong on June 17, 2019, 05:56:10 PM
Hi Nas, I'm so sorry this is dragging on & on for you.  It's a really difficult situation for patients & doctors alike.  The medics (GPs, Menopause specialists etc) who have it within their power either to prescribe HRT for women who have had breast cancer, or to give their blessing (Oncologists, Breast Surgeons etc) for another medic to do so, also have a duty of care to ensure they do nothing to cause harm.  In addition to the ethical position, the thought of giving the go ahead may be personally horrifying - they will care about what happens to their patients. 

I really feel your frustration & anger, which is why I think I flagged up on your earlier thread the Avrum Bluming book CLKD is also referring to.  I imagine you read this but can't remember for sure.  His views are very encouraging & in theory somewhat liberating for breast cancer patients in need of HRT, but it may take years for them to filter down to other medics & there may still be many who are resistant to the idea that HRT can ever be safe after breast cancer.  I really hope you manage to thrash this out with a medic who knows your history & can help you reach the right decision, but just wanted to say that the reluctance you've come up against is almost certainly due to their feeling they have your best interests at heart.  I'm not saying they're right - I just want you to feel less bad about the hurdles you are facing.

CLKD - I'm aware of your history from your past posts & am pleased you have done so well, but not sure from your comment about bilateral mastectomy whether you know that such radical surgery still doesn't guarantee breast cancer will not recur.  The choice between lumpectomy & mastectomy will depend upon a number of factors, including size, type & stage of tumour, whether there is more than one cancerous area present, breast size relative to tumour size & in some cases the patient's preference.  Even after mastectomy there can be local recurrence in skin flap, nipple (if spared), chest wall or scar tissue & possibly distant recurrence elsewhere in the body if the original cancer was invasive.  These days the trend is for breast conserving surgery where possible - i.e. lumpectomy with/without or Radiotherapy &/or Chemo & possibly hormone blockers, where these various adjuncts are appropriate.  Mastectomy is a bigger operation, possibly carrying more risks & may also require more time in hospital than lumpectomy.  So in addition to clinicians wanting to conserve as much as possible of the breast in a smaller procedure, for a better cosmetic outcome & less trauma for the patient, there are cost considerations as to why mastectomy may not be recommended.  This is a bit of a meander, but there is sometimes the assumption that mastectomy guarantees a future free of breast cancer & sadly this is not always the case.  I wasn't sure from your comment whether that was what you thought.
Title: Re: Just had enough!
Post by: CLKD on June 17, 2019, 06:01:25 PM
I know that - but so many 'experts' refuse HRT to those of us who have undergone treatment for breast disease.  So if it's so dangerous then double mastectomy should be considered.  Has any Research been carried out as to the % of recurrence caused by HRT ........ it shouldn't take time to filter down to ladies who are prepared to take the risk!  Quality of Life is surely important?
Title: Re: Just had enough!
Post by: Wrensong on June 17, 2019, 06:21:40 PM
Yes CLKD - I know they do & I agree that quality of life is very important, which is why I recommended the Bluming book some weeks ago - to point anyone reading who is in this position towards an open-minded expert's opinion & the relevant research he cites.  I simply felt Nas's pain again today & wanted her to feel that her medics care what happens to her & that this is probably behind their dilemma.  It's a horrible situation to be in for everyone concerned.  There is simply not enough definitive research on HRT after breast cancer, so it's something of a catch 22 isn't it?
Title: Re: Just had enough!
Post by: CLKD on June 17, 2019, 06:45:18 PM
What did we say B4 'catch 22' was written  ::)

But how dangerous is HRT in reality against 'that bus' appearing ?  :-\. why won't Consultants get together with ladies after surgery to discuss?  Probably because oncologists have NO idea how awful menopause symptoms can be?
Title: Re: Just had enough!
Post by: Wrensong on June 17, 2019, 09:30:12 PM
Quote
But how dangerous is HRT in reality against 'that bus' appearing ?
  I wish I could answer that CLKD - none of us knows what's around the corner & we can only take what feels the right decision for us at the time & this is a very difficult one for any woman after BC.

Quote
why won't Consultants get together with ladies after surgery to discuss?
If the patient wishes & her symptoms are bad enough to seriously affect her quality of life, sometimes the MDT - consisting of those clinicians involved in her care e.g. Breast Surgeons, Oncologists - will discuss whether it's reasonable for HRT to be prescribed, providing the patient is fully informed about & accepts the related risks.  But if the need for HRT arises years down the line, after the patient has been discharged, then the team of medics originally involved in her care may no longer all still work together & it may be more difficult for their successors to make a confident decision if all they have to go on is medical records, rather than first hand knowledge of all the detail of that patient's circumstances. 

You could well be right that some Oncologists' decisions may be affected by their having no idea how bad menopause can be, but those involved in breast treatment do come up against this situation & some of them are open to the idea that HRT is sometimes something their patient really needs to take a chance on. Their approval will also depend on the circumstances I think we talked about in Nas's original thread - the nature of that patient's particular cancer, past treatment etc.

It is a horrible situation for any woman to be in & can be a huge worry.  I do hope Nas can get the expert help she needs, that her symptoms can be managed one way or another so she can get on with her life all these years on & not have this hanging over her.
Title: Re: Just had enough!
Post by: CLKD on June 18, 2019, 08:34:00 AM
Maybe 'they' should listen to the patient?  Surely the further down the line the less chance of HRT triggering cancer and would it be the 'same' cancer ?  Another Research Grant may be ;-).  But it seems from what ladies say on here that they get a straight 'no', use anti-depressant medication, 'not open for discussion'  :-\
Title: Re: Just had enough!
Post by: Wrensong on June 18, 2019, 09:02:56 AM
Agreed CLKD, it's very important that the patient's needs be considered. 

I'm sorry I can't answer your question about likelihood of recurrence long after initial treatment.  In answer to your other question, it is possible for a new primary cancer to develop & women who have had an incidence already are considered at increased risk of this.

In Nas's earlier thread on this topic some weeks ago, Hurdity posted a link to The British Menopause Socy . . .

https://thebms.org.uk/publications/consensus-statements/the-diagnosis-of-the-menopause-and-management-of-oestrogen-de%EF%AC%81ciency-symptoms-and-arthralgia-in-women-treated-for-breast-cancer/

the relevant para of which says:-

"Lifestyle measures and non-hormonal interventions should be first-line management for estrogen deficiency symptoms but if these are ineffective systemic hormone replacement therapy or low-dose topical estrogen may be considered but only after taking specialist advice."

Nas, a charity called Breast Cancer Care has a forum where the topic of HRT after breast cancer has been discussed if you'd find it helpful to speak to women in a similar position.
Wx
Title: Re: Just had enough!
Post by: LuLu71 on June 18, 2019, 11:30:42 AM
HI Nas,

I've just read through all of your posts in this thread and so sorry that you are still suffering and not getting the help you need. I can't imagine how exhausted you must feel with everything.

I'm not living in the UK but am wondering if you can ask your GP to put a rush on a referral to a menopause clinic you mentioned in your recent post? Hopefully if you explain at length how you've been trying to deal with this with the oncologist he/she spoke to and all of the symptoms you are having and that the antidepressant isn't what you want, the GP can step up and put a rush on a referral? Sorry you are going through this and I really hope you get the right treatment soon.
Title: Re: Just had enough!
Post by: CLKD on June 18, 2019, 11:58:17 AM
" .......... but if these are ineffective systemic hormone replacement therapy or low-dose topical estrogen may be considered but only after taking specialist advice."


I haven't seen anyone here being offered HRT after treatment for breast disease  :-\.  The last words my oncologist said to me was "No HRT for your my Lady" and fortunately, I haven't required anything other than for VA. 
Title: Re: Just had enough!
Post by: Nas on June 19, 2019, 07:41:01 PM
Hi all,
I just want to say thanks once again, for listening and sharing your thoughts  :thankyou:

The subject of HRT for the medics, is indeed an ethical dilemma, but unfortunately I cannot see beyond my debilitating symptoms and would rather have my quality of life NOW, than look at the bigger picture of the 'what ifs' later on.  I am sure there are many ladies in the world, who would not even be considering HRT in my position. However, when you are driving down a dual carriageway and are panicking and sweating, forgetting basic information, trying to learn a new job (got another new job for September, which will be demanding) trying to run a home and raise pre teen and teen kids; all whilst experiencing these godforsaken symptoms (which many of you know so well) it isn't easy! Then the carrot gets dangled and I am being told no no and more no. I feel angry and frustrated. But oncology remind me that I will be even more angry, if the cancer returns. It may return anyway, or I may have an accident on the road, due to lack of sleep whilst experiencing panic attacks, all because of the menopause! They haven't considered that have they, when they speak of ethics and moral codes of doing no harm!!! :beat:

The GP with whom oncology spoke with on Monday, has now gone on holiday and has left the task of sharing the outcome with me,  to another GP. I no doubt will have to chase that up next week! The private GP who saw me in April seems to have forgotten that I have asked for a private prescription (if she is willing) and I now need to get myself referred to a meno clinic (I am thinking the Chelsea and Westminster hospital). If they dare say no, I will scream!

Lulu, yes I am exhausted. What was the point of surviving the cancer, if this is the life I am condemed to for who knows how long?
As if losing the breast, hair, surgery, more surgery, chemo and more surgery, wasn't enough? Now they want me to suffer some more!


Nas, a charity called Breast Cancer Care has a forum where the topic of HRT after breast cancer has been discussed if you'd find it helpful to speak to women in a similar position.
Wx (http://Nas, a charity called Breast Cancer Care has a forum where the topic of HRT after breast cancer has been discussed if you'd find it helpful to speak to women in a similar position.
Wx)

Wren, yes I did use the BCC forum a few years back, I will return to see how other ladies have coped in this situation.

But if the need for HRT arises years down the line, after the patient has been discharged, then the team of medics originally involved in her care may no longer all still work together & it may be more difficult for their successors to make a confident decision if all they have to go on is medical records, rather than first hand knowledge of all the detail of that patient's circumstances.   (http://But if the need for HRT arises years down the line, after the patient has been discharged, then the team of medics originally involved in her care may no longer all still work together & it may be more difficult for their successors to make a confident decision if all they have to go on is medical records, rather than first hand knowledge of all the detail of that patient's circumstances.)

This is indeed what has happened, ten years down the line.

CLKD, Wren -  thank you so much for your valuable contributions. I shall keep on battling as I do not want to take anti D's. I want my depeleting hormones replaced.

Bye for now
Nas







Title: Re: Just had enough!
Post by: CLKD on June 19, 2019, 07:43:42 PM
One shouldn't have to battle though ....... I've thought about this topic a lot in the last 24 hours.  Time medics came up with some actual facts about the actual risks ?

 :bighug:

I was talking to a lady of 89 last week and she had breast disease in her 50s treated successfully; lumpectomy and chemo.; - it's returned in the last 6 months ... she never had HRT but it's returned, well they tell her 'it' but I do wonder if the same cancer would return after all that time? 
Title: Re: Just had enough!
Post by: Nas on June 19, 2019, 07:59:49 PM
Indeed, we should not have to battle through I agree.

If 'it' returned, it may be a new primary in the other breast, or secondary in an organ?
The GP is of the opinion that once diagnosed, you are never cured. Instead, the cells lie dormant, until it they decide to re ignite. I disagree. I believe I am cancer free right now and at the same point as any woman who has never experienced breast disease. Annual mammograms confirm this. Therefore why is HRT a 'risk'. As you say CLKD, until they start doing some hard accurate research into this, it will remain a dilemma for them. I was told that the cancer would return within 5 years.Did they have a crystal ball?? I had small children at that time. A decade on and I remain cancer free. I want HRT because by their reckoning, I should probaby be dead now anyway!  :o
Title: Re: Just had enough!
Post by: CLKD on June 19, 2019, 08:57:53 PM
5 years is the 'magic' time?  Probably backed by Research.

Tamoxifen made me ill.  Almost killed me and did encourage cancer of the womb from which my friend died  :-\.  She had taken it for 15 years, stopped for 5 then re-started when she had further breast problems.  Followed by womb cancer.

Quality of Life.  Would men put up with symptoms?  We get all the adverts about prostate cancer on TV right now but nowt about HRT v breast disease  :-\

Why would cells lie dormant?  That's the whole point of intensive, invasive treatments, surely?  Otherwise why offer chemo and/or radiation?  My Surgeon and Oncologist told me that as the lymph glands were clean radiation treatment would zap any left over cells in the breast.  I also had annual mammos but wasn't told that there was probably more risk of those triggering recurrence or poisoning me  ::).  I stopped annual mammos after 15 years ......... still here.
Title: Re: Just had enough!
Post by: Nas on June 19, 2019, 09:13:09 PM
They recommend tamoxifen for ten years now. I stopped at 3 years. Also didn't agree with me.

Men wouldn't put up with this. There isn't enough being said publicly about HRT and breast disease. Only a few women bring it up in the telegraph or mail occasionally  ;D on the whole, its a quiet topic. Well I want to bring it out in the open, I'm a working mother and I want my quality of life. I don't want to be zombiefued by anti d's!! I'm not having it.

So battle on i will. My thinking is though,they by the time they have made a decision, I will either have had an accident on the road or the meno will be Over! If the former, I will hold them responsible and they will be negligent!
Title: Re: Just had enough!
Post by: LuLu71 on June 19, 2019, 11:34:53 PM
Hi Nas,

Thanks for sharing all of what you're going through and up against. Again, how exhausting and frustrating this must be you. Have you looked into other alternatives, besides antidepressants? Above this forum, under Treatments, there is a description about phyto-estrogens and other types of therapies. Are there specialists in naturopathy in the UK that you can connect with ou'for a consultation? Just a thought and perhaps you've already tried this route.

I hope they connect you with that meno clinic, and fast...please keep me posted. I hope you get a nice rest tonight.
Title: Re: Just had enough!
Post by: Wrensong on June 20, 2019, 09:28:20 AM
Hi Nas,
You said "There isn't enough being said publicly about HRT and breast disease"  (sorry can't get the quote function to work properly today).

When I saw your comment (& I completely agree), it reminded me of the dismay I felt during the recent BBC breakfast coverage of menopause, at the unfairness of the situation for women needing HRT after BC.  Generally I thought the programmes were very valuable, but there was a comment from one contributing medic who simply said something like we don't give HRT to ladies who have had breast cancer, but most women can safely take it.  Given 1 in 8 of us will develop breast cancer at some point in our lives I felt that was dismissive of the potential needs of quite a large number of women.  It is also not strictly true.  Some women are prescribed HRT after breast cancer depending on their circumstances.  They may have covered HRT after BC in another broadcast in the menopause series as I didn't see them all, but that rather sweeping statement got to me.

If you are in Cheshire, Chelsea & Westminster is a long haul for you & if an NHS referral, there may be a long waiting list, but have you thought of approaching the Newson Clinic in Stratford on Avon?  Again, not that close to you, but closer than London & it's private, so I know that may mean it's beyond your means, but I can recommend a doctor there via PM if you'd like me to.  I never identify medics on the open forum for confidentiality reasons, but would be happy to give you a name privately if it helps.  Alternatively, to prevent you wasting money if they cannot help in your circumstances - you could perhaps ring or email to get their view before making an appointment if somehow you can get the cash together.  Just a thought.
Wx
Title: Re: Just had enough!
Post by: CLKD on June 20, 2019, 01:28:03 PM
Girls  :thankyou: we are a Mine of Info.  :foryou:
 
But Tamoxifen can cause womb cancer  ::) ...... my Surgeon at the time told me that 'none of my ladies have developed it'. 

I thought of this thread a lot in the early hours  :-\
Title: Re: Just had enough!
Post by: Wrensong on June 20, 2019, 02:31:38 PM
So did I CLKD - the issue is really emotive.
Wx
Title: Re: Just had enough!
Post by: CLKD on June 20, 2019, 02:34:12 PM
You should have rung me ;-).

I would love to have a chat with my Oncologist, long retired  ::) .......
Title: Re: Just had enough!
Post by: Wrensong on June 20, 2019, 02:38:12 PM
Too busy doing breathing exercises CLKD & flinging the duvet off the furnace that is my body in the small hours!  You'd have thought you had a heavy breather on the line  ;D
Title: Re: Just had enough!
Post by: CLKD on June 20, 2019, 02:42:11 PM
I would be that lucky  ;D ....... I could have taken it down in medical short-hand  :D
Title: Re: Just had enough!
Post by: Wrensong on June 20, 2019, 06:40:53 PM
And then charged me for a phone consultation?   ;D
Title: Re: Just had enough!
Post by: CLKD on June 20, 2019, 06:43:08 PM
 :rofl: ........ probably couldn't read it back these days  ::)

How R U today Nas?
Title: Re: Just had enough!
Post by: Nas on June 20, 2019, 08:47:44 PM
Once again, I want to thank you wonderful ladies for your support and valuable contributions to my thread  :thankyou: :foryou: I do appreciate that it may be controversial for some and perhaps even upsetting. But I also feel strongly that women who are post BC, going through the memo, should be considered HRT case by case ( if that is the route they wish to take) and not just be told ‘no'. Research will soon tell us why ‘no' so the medics need to start addressing this very real issue, sooner rather then later. Wren,you are absolutely right. Given that sadly, one in eight women will receive a diagnosis, where does that leave those women when it comes to tackling the meno? I may get in touch with the Newson clinic Wren, just to get an idea of their stance on this issue. Chelsea is a long way, but I hear the consultants know their stuff down there  :)

I've given the natural remedies a fair old go now, months and months of sage, red clover and femarelle, sadly they have not worked for me ( wish they had!) I do lots of deep breathing when I have to drive and just deal with it, the same as many other ladies.

CLKD, I'm not doing badly today. Have felt much better since you and the others have been around  :)
 
I also feel quite emotional absurd this issue. Only because I feel she's msby other ladies will be in the same boat.

Bye for now ladies x
Title: Re: Just had enough!
Post by: Nas on June 20, 2019, 08:52:48 PM
That last sentence was meant to say “ emotional about this issue' and “ many other ladies in the same boat”   ;D
Title: Re: Just had enough!
Post by: CLKD on June 22, 2019, 04:27:33 PM
Predictive text then  ;D  ::)

I don't know where we can go with this need for HRT regardless ..........  :-\