Menopause Matters Forum

Menopause Discussion => All things menopause => Topic started by: Rosie63 on August 18, 2018, 07:27:03 AM

Title: Disappointing comments from gynae !
Post by: Rosie63 on August 18, 2018, 07:27:03 AM
 Morning ladies

Just felt compelled to share a comment I had from my gynae consultant this week.  I had dropped him an email with an update on how I was feeling after taking Femoston 1/5mg for 3 months (which still isn't great most of the time) and listed the symptoms/side affects that are still troubling me.  I was really disappointed that he said he wondered if we would ever find a formula that works for me  :'(
He sugggested I carry on with the Femoston for another couple of months and if I felt the same we could consider meeting again to discuss another strategy.



Admittedly, I have already tried about 5 different preparations over the last 10 months but I didn't think I'd be written off so soon.  I'm trying to have a break at the moment to see if I could come off hrt but feeling pretty awful this morning!  I have an appointment with gp next week too so will see how that goes and then try to decide, through brain fog, what to do next.

Wishing you all well.

Rosie xx
Title: Re: Disappointing comments from gynae !
Post by: Annie0710 on August 18, 2018, 09:28:06 AM
 :rofl: @ plank DDot!!!

Don't let him make you feel bad that you're not settling on what you've tried.  It's trial and error and I'm on regime #5 I think (could be 6) and I don't need progesterone so should be much easier for me!

Don't give up, there's so much you can try ie patches, gels etc x
Title: Re: Disappointing comments from gynae !
Post by: Jeaniewigs on August 18, 2018, 09:36:29 AM
 ::)😘
Title: Re: Disappointing comments from gynae !
Post by: CLKD on August 18, 2018, 11:36:53 AM
He may however be stating the truth.   Finding medication for many complaints can be Trial and Error and often compromises have to be accepted.. What did you hope for?

My ADs help my depression but I often wake feeling hung over.  But it's better to be able to get out of bed knowing that this will pass by mid-morning than not getting out of bed at all.

Have your symptoms been eased at all?  Maybe keeping a diary would help chart any progress or alterations?  It can be so tiring finding something that suits so browse round.  Maybe put the product name into the search box to see how others have fared?
Title: Re: Disappointing comments from gynae !
Post by: Rosie63 on August 18, 2018, 11:43:19 AM
This is why I love you guys 😊 Was feeling so deflated and then not only do you offer your advice and support but you make my laugh too😀 You are so funny DD !!

As you suggest, I'll stick to what I'm doing at the moment and keep my fingers crossed that things will settle in due course on this regime.

It's reassuring Annie to know that other ladies have tried several different options before hitting on ‘the one'.

Wishing you well.

Rosie xx

Title: Re: Disappointing comments from gynae !
Post by: CarryWarry on August 18, 2018, 11:53:00 AM
Poor you trying to still sort this as it really does feel never ending at times doesn't it?  And like you say, it's all such a huge effort with brain fog and feeling like pants!  I think the most frustrating thing is the long wait while we all see if something is going to work.  Sometimes we can feel diabolical on new meds and it's so frustrating just waiting week after week.  Have a good chat with your GP too, sometimes I wish we could just see these people once a week!!  I am seeing my GP on Thursday and although I am feeling much better I realise that in the two years of daily headaches that it's not been suggested ONCE that I change my Blood Pressure tablets.  Oh the joys of getting sorted. xx
Title: Re: Disappointing comments from gynae !
Post by: CLKD on August 18, 2018, 11:58:32 AM
I had background headaches on Propranolol so cut the dosage .......... now on 20mg at night, sorted.  Did it myself ;-)
Title: Re: Disappointing comments from gynae !
Post by: Rosie63 on August 18, 2018, 12:01:43 PM
Yes, I do understand what you're saying CLKD. I think a lot of my problem in accepting how I feel is that I was on Prempak for 12/13 years and I had hardly any side effects and it managed my symptoms very well most of the time.  So I guess I am comparing to that all of the time and just can't understand why I can't find something else that works as well.  If I had been trying from scratch I might find it easier to accept, perhaps !

When I first started Femoston I thought it was working to an extent and managing some of the symptoms which I would have been ok with but now it has gone downhill big time.  Coupled with this, I suffer with stomach problems which I think are to do with the HRT medication so I can feel pretty bloomin' awful some days. 

I have been keeping a diary over the last couple months so hopefully a pattern will emerge which might help.

Thank you for your comments x
Title: Re: Disappointing comments from gynae !
Post by: Rosie63 on August 18, 2018, 12:18:15 PM
Yes CarryWarry you are so right about the time it takes to see if a particular med is going to suit. That's why it can take years rather than months to finally get sorted.  I hope your appointment goes well ne t Thursday. Let us know how you get on.

Rosie x
Title: Re: Disappointing comments from gynae !
Post by: Rosie63 on August 18, 2018, 12:19:27 PM
Thanks DD. I will do that xx
Title: Re: Disappointing comments from gynae !
Post by: CLKD on August 18, 2018, 01:40:17 PM
Is the HRT you found helpful not available?

Let us know how you get on!
Title: Re: Disappointing comments from gynae !
Post by: Rosie63 on August 18, 2018, 05:16:59 PM
No CLKD, sadly not.  It was Prempak C which has been discontinued  :(

Rosie
Title: Re: Disappointing comments from gynae !
Post by: Ladybt28 on August 18, 2018, 07:16:37 PM
Rosie 63 - Yep Prempack discontinued I was on it for a while when I was peri - but this might brighten your day - did you know you can get an alternative in 2 separate items? The same oestrogen is called Pemarin  and then they give you a separate progesterone.  The progesterone in prepack c is norgestrel.    Prempack came in 2 doses -  .625mg/0.15mg norgestrel  and 1.25mg/0.15mg norgestrel.  You can get premarin in 1.25mg because I was given, I dont know about the lower dose.  I dont know if you can get norgestrel separately for sure but I think so - why not ask your doctor when you go?  Levonorgestrel is also similar.
The Pemarin is the pregnant mares estrogen and is the same as the one in prepak-c.  I have been on it but my problems are with progesterone.

If you got on so well with Prempak why not ask your GP to prescribe the two separate items and run them on the same cycleof days as you took with prepack c?
Title: Re: Disappointing comments from gynae !
Post by: CLKD on August 19, 2018, 12:34:01 PM
 :thankyou:
Title: Re: Disappointing comments from gynae !
Post by: Rosie63 on August 20, 2018, 05:25:51 PM
Hi ladybt28.  Thanks replying.  I have actually tried Premarin alongside Utrogestan on the same cycle as I was on with Prempak. For some reason the Premarin didn't work for me which I found disappointing and difficult to understand because as you say, it is supposed to be the same as the estrogen in Prempak. 

Thanks again for your support.

Rosie x
Title: Re: Disappointing comments from gynae !
Post by: Ladybt28 on August 20, 2018, 06:17:47 PM
Oh what a shame - that's really bad news - were your dosages on the Premarin the same? I got given Provera (medroxyprogesterone) to go alongside my 1.25mg Premarin. 

You said you have stomach problems Hurdity on here talks about the utrogestan virginally because it bypasses the liver - oh and I have just re-read so does DaisyDot! Must pay attention.  I tell you what I have noticed is that as we go through peri into post, as the years go by, our symptoms and the way we react to stuff seems to change - what worked before doesn't any more? 

Maybe if you list some of your most bothersome symptoms someone will write and say what helped them with that? Sometimes it's not until things get picked apart and someone else says something, that there is a "light bulb" moment.
Title: Re: Disappointing comments from gynae !
Post by: Rosie63 on August 21, 2018, 08:01:24 AM
Hi ladybt. My gynae prescribed 1.25 dose and I tried that first of all and then because I felt so awful, I cut the tablet in half making it the same as my Prempak dosage but still felt rubbish so gave up on that one.

I've tried several different preparations now, gel, patches and tablets and some of them have dealt with my symptoms better than others but all have caused me stomach problems.  I thought I might be progesterone intolerant but things were the same even when I tried Estrogel on it's own before adding the prog. 

I've posted quite a lot on here asking for advice and the ladies have been amazing in offering support and advice which I'm truly grateful for.  I'm still hopeful that I will find something that manages my meno symptoms and then I can try to manage my stomach issues with otc medication. I'm going to ask if I can try Estrodot patches with a separate prog.  I'm intending to use on a sequi regime even though I'm well post meno as I've been getting a bleed on Femoston Conti anyway so would rather know when this is going to happen rather than it happening willy nilly.

I understand you are trying Estrogel and Utrogestan now. I hope you get on well with it.  I found it helpful to be in control of the amount of Estrogen I used with the gel.

Good luck and thanks again for your support.

Rosie xx