Menopause Matters Forum

General Discussion => New Members => Topic started by: nessyj on March 14, 2018, 12:19:36 PM

Title: Premature menopause from birth
Post by: nessyj on March 14, 2018, 12:19:36 PM

Anyone else never had a natural period?

Title: Re: Premature menopause from birth
Post by: CLKD on March 14, 2018, 12:23:00 PM

Nope.   But the condition is not un-known.  Have you looked at the 'daisy web-site' mentioned on here, though I believe you have to pay for information  >:(.

How old are you?

Title: Re: Premature menopause from birth
Post by: nessyj on March 14, 2018, 12:27:22 PM

I'm turning 40 but diagnosed at 27, well that's when I started hrt on the pill.  I will check that out thank you. 

Title: Re: Premature menopause from birth
Post by: Annie0710 on March 14, 2018, 12:30:29 PM

The only condition I know of when a female never has a natural period is Turners Syndrome,

Have you had children ?x

Title: Re: Premature menopause from birth
Post by: nessyj on March 14, 2018, 12:35:21 PM

Was tested for that one, it's a few conditions, hypogonadism hypo something, primary amenhhorea.  Sorry the spelling is off!  I believe anyways.  Something in my DNA that I was born with.  No, I can't have kids unfortunately. 

Title: Re: Premature menopause from birth
Post by: CLKD on March 14, 2018, 12:38:26 PM

How do you feel over-all?  Is there anyone else in your family with similar, or who had difficulty conceiving? 

I am SO nosy  :-\

Title: Re: Premature menopause from birth
Post by: nessyj on March 14, 2018, 12:45:19 PM

No one ever asks so I kinda like it 😀
Nope, it's very rare just a one off.  I've never met or heard of anyone in my situation.
Well I don't know any different but with a change in meds to femoston last year I noticed side effects I've never had since I started medication at 27. 
Now I feel crap, fatigue, headaches, nausea, etc which I've never had.  Had to change to hrt to help with my osteopenia but I have stopped it wasn't worth it. 

Title: Re: Premature menopause from birth
Post by: CLKD on March 14, 2018, 04:45:55 PM

Certainly isn't worth feeling worse!  Maybe have a chat with your local Pharamacist, most have private rooms these days.  Then let us know.

Title: Re: Premature menopause from birth
Post by: Emerald2017 on March 16, 2018, 09:27:11 PM

Hi! Is your general health good? Sorry to have to deal with it so young! Are you diagnosed with Turner's syndrome? Maybe it's not a good idea to stop your medication, it's better I think to find something to suits you. :)

Title: Re: Premature menopause from birth
Post by: CLKD on March 17, 2018, 06:54:15 PM

I think that there is no 'turner's syndrome' diagnosis  :-\

Title: Re: Premature menopause from birth
Post by: nessyj on March 19, 2018, 12:16:45 PM

There are tests but generally turners has physical attributes that I don't have. 

Most obvious being short stature.    And I'm almost 6ft 😀

Title: Re: Premature menopause from birth
Post by: CLKD on March 19, 2018, 12:28:38 PM

Oh come shopping with me so that you lift stuff of high shelves?  ;)

How are you otherwise?

Title: Re: Premature menopause from birth
Post by: Annie0710 on March 19, 2018, 01:21:59 PM

Quote from: nessyj on March 19, 2018, 12:16:45 PM

There are tests but generally turners has physical attributes that I don't have. 

Most obvious being short stature.    And I'm almost 6ft 😀

Hormone test would be the easiest, your X chromosome could be damaged for example? I had a stillbirth years ago, she had many problems but the post mortem revealed Turners x