Menopause Matters Forum

Menopause Discussion => Personal Experiences => Topic started by: Roadrunner on August 21, 2017, 08:23:47 AM

Title: Utterly demoralised.
Post by: Roadrunner on August 21, 2017, 08:23:47 AM
 Hello

I've just come back from my GP. I'm really struggling at the moment, and have been since March. I think I'm not absorbing Femoston 2/10 properly and was hoping to change to gel or estradot patch and a separate progestogen. My GP (who is lovely) cannot prescribe a separate progestogen, just the Mirena.

She doesn't think we have a menopause clinic locally and says even if I went privately she couldn't prescribe a progestogen without agreement from the CCG. I had the Mirena in the past and I didn't get on with it and had to have it removed (hindsight suggests I was peri and didn't know it but I'm still not keen to go there again)

So I've left with a script for Femseven Sequi. I know these don't always stick that well but norethisterone makes me headachy so I thought preferable to Evorel Sequi. I'm gong to give these a go and see if i can get my head above water again and get a stable dose of hormones. Currently feeling like I could cry, I'm so fed up.

I've looked at the private option but the info seems a little out of date. My nearest clinic would be Bristol and I know Annie Evans has retired.

Any other suggestions ladies?

RR xx
Title: Re: Utterly demoralised.
Post by: Taz2 on August 21, 2017, 11:48:49 AM
Hi RR - did your GP say why she can't prescribe a separate progesterone? Mine prescribes utrogestan without any fuss. She did have to look it up in her big book though!

Taz x  :hug:
Title: Re: Utterly demoralised.
Post by: CLKD on August 21, 2017, 11:50:22 AM
Send an e-mail to Dr Currie on here?

Speak with a local Pharmacist, they have private rooms these days.  Take a list of your concerns and ask if he/she can give advice and if there are any Surgeries that support Menopause better than others.  Do you have a Practice Nurse who might be more willing to discuss in detail?
Title: Re: Utterly demoralised.
Post by: Roadrunner on August 21, 2017, 12:02:03 PM
Thanks Ladies

It seems that utrogestran is "specialist use only for the treatment of infertility". My GP is lovely and I think felt frustrated. The annoying thing is that even if I went to see a private specialist (which I'm seriously considering) my GP can't do any ongoing prescribing. I'm stuck.

RR xx




Title: Re: Utterly demoralised.
Post by: CLKD on August 21, 2017, 12:11:09 PM
Your GP probably 'wont' rather than 'can't'.    ???

Maybe find out where your local infertility clinic is and ask if that statement by your GP is true?  Also do a search here for 'utrogestran'  ?
Title: Re: Utterly demoralised.
Post by: dahliagirl on August 21, 2017, 12:34:13 PM
http://www.portsmouthccg.nhs.uk/Downloads/Meds%20management/Area%20Prescribing%20Committee/Area%20Prescribing%20Committee%20October%202016%20Notes.pdf

At this CCG, they say that utogestan 100mg are licensed for hrt but that uterogestan 200mg are not licensed for hrt and should be used only for fertility and started by a specialist.

As far as understand people use 100mg for continuous and 200mg for sequi.

Is this the problem?
Title: Re: Utterly demoralised.
Post by: Cassie on August 21, 2017, 12:46:35 PM
Thats nonsense loads of ladies use Utrogestan. How frustrating for you. >:(
Title: Re: Utterly demoralised.
Post by: CLKD on August 21, 2017, 01:45:23 PM
Tnx dahliagirl .........
Title: Re: Utterly demoralised.
Post by: dahliagirl on August 21, 2017, 01:59:33 PM
http://www.mhra.gov.uk/spc-pil/'subsName=PROGESTERONE&pageID=SecondLevel

There are
utrogestan 100mg capsules
utrogestan 200mg capsules
utrogestan Vaginal 200mg

The last one is the fertility product.  The other two are for menopause etc.

Do you think someone somewhere has their products in a muddle?

I think it may be worth taking up CKLD's suggestion of asking a friendly pharmacist as they might know which way is up (we could do with one posting  ;) )
Title: Re: Utterly demoralised.
Post by: dahliagirl on August 21, 2017, 02:24:20 PM
Blimey - just looked at the formulary for my own CCG - has Prepak-C Elleste-Duet and Cyclo-Progynova as first line , then 2 patches as second line.  No mention of the Femeston that I am on  ???

I hope no one ever reads that  :(
Title: Re: Utterly demoralised.
Post by: CLKD on August 21, 2017, 03:02:31 PM
How you doing on it though?
Title: Re: Utterly demoralised.
Post by: dahliagirl on August 21, 2017, 03:10:40 PM
Femeston is fine  :)  I do need vit D and vagifem as well though  ;)  And exercise  :bounce: and good food but I eat too much of it  :-X

 My list looks somewhat old fashioned, as if they haven't looked at it for 20 years  ::)
Title: Re: Utterly demoralised.
Post by: Katia on August 21, 2017, 03:23:43 PM
I struggled to get mine to prescribe it.  He'd never prescribed it.  I'd been to see a private consultant and I pointed out to him that it's in the nice guidelines.  It's not working out for me and I'm now struggling to get him to prescribe a synthetic as the consultant keeps saying to stay on it a bit longer.
Title: Re: Utterly demoralised.
Post by: Roadrunner on August 21, 2017, 03:35:28 PM
Hello everyone

Thanks for your support. I must admit I came home, felt really sorry for myself, and had a little cry. OK two little cries. It's really hard isn't it when you're feeling tired and emotional?

I think my GP would be willing to approach the CCG and request special funding, but it will take months to get approval so I would need something in the interim. Also, what if utrogestran doesn't suit me? Like you Katia? All that fuss and effort ... I suppose it might offer up opportunities for the next patient?

I don't think there is confusion between 100mg and 200mg - in my area it looks like only 100mg is available. Here's what the formulary in my local area lists for progestogens:

6.4.1.2 Progestogens
Medroxyprogesterone acetate
Tablets 5mg, 10mg
Endometriosis, dysfunctional uterine bleeding
Medroxyprogesterone acetate
Tablets 5mg, 10mg
Treatment of infertility
Norethisterone
Tablets  5mg
5mg preparation is not licensed for HRT.

Progesterone
Pessaries 200mg, 400mg (Cyclogest)
Vaginal gel 90mg per application (Crinone)
Injection 50mg in 1ml, 100mg in 2ml (Gestone)
Capsules 100mg (Utrogestran)
All specialist use only for the treatment of infertility


Dydrogesterone
Tablets
All specialist use only for the treatment of infertility
Ulipristal acetate
Esmya® tablets 5mg
For the pre-operative treatment of moderate to severe symptoms of uterine fibroids in adult women of reproductive age. Duration of treatment is limited to three months.
Ulipristal acetate
Esmya® tablets 5mg
For the intermittent treatment of moderate to severe symptoms of uterine fibroids in adult women of reproductive age.
See Shared Care Guidelines.
NB intermittent treatment includes 3 months cycles of treatment and 3 months of no treatment.   
Levonorgestrel
Mirena®
Intra-uterine system releasing 20 micrograms of levonorgestrel per 24 hours
Mirena is effective for 5 years.
Prescribe by Brand Name.
MHRA Drug Safety Update 21st January 2016: Levonorgestrel-releasing intrauterine systems should always be prescribed by brand name because products have different indications, durations of use, and introducers.
Licensed for use in HRT

RR xx

Title: Re: Utterly demoralised.
Post by: dahliagirl on August 21, 2017, 03:54:18 PM
 :(

You'd better get the hairdryer out to get those patches stuck down.

It is very demoralising.  I had wanted to get patches or something transdermal, because they are supposed to be better for your liver and if you have a history of gallstones (my mother died of them, and my sister has had her g bladder out) but I haven't managed to prove the tablets don't work so have ended up counting my blessings as I can actually manage fine on Femeston 2/10.
Title: Re: Utterly demoralised.
Post by: Katejo on August 21, 2017, 04:04:09 PM
Send an e-mail to Dr Currie on here?

Speak with a local Pharmacist, they have private rooms these days.  Take a list of your concerns and ask if he/she can give advice and if there are any Surgeries that support Menopause better than others.  Do you have a Practice Nurse who might be more willing to discuss in detail?
would a pharmacist be willing to say whether 1 practice were better than another re. menopause (even if they knew)? Mine isn't good on it but I haven't heard any recommendations of another which might be?
Title: Re: Utterly demoralised.
Post by: Roadrunner on August 21, 2017, 04:15:48 PM
Dahliagirl - lol I know!

I was doing really well on Femoston 2/10 too, and actually I prefer the ease of taking a tablet and not getting the hairdryer out plus having a daily reminder or my wretched hormones or rather lack of them plastered to my skin! I would have liked to try Estrogel in my ideal little world. I'll try Femseven Sequi. Maybe I'll get better absorption, get in a calmer place, my stomach will settle and I can go back to Femoston 2/10. Trying to be positive.

Toying with the idea of a private consultation ... clutching at straws???

RR xx
Title: Re: Utterly demoralised.
Post by: dahliagirl on August 21, 2017, 04:20:18 PM
I usually find looking at the practise lists, qualifications and number of women on the websites is a start.

Unfortunately for me the only practice that would take me on was the local village one.  It has one part time female doctor, one who used to work in a field a million miles away from anything meno and has said he does not do women's stuff and a new one who was a partner elsewhere and likes to be an all-rounder.  And a prescribing nurse a bit older than me.  Its demographic is such that expect a lot of hrt is prescribed, though  ;)

I saw the website of someone who went to school with me and would probably not touch a woman with a barge pole given the chance.  All the menopause stuff is delegated to the nurse's clinic and he seems to be busy with the business side, taking over running other practices/clinics.
Title: Re: Utterly demoralised.
Post by: dahliagirl on August 21, 2017, 04:25:28 PM
RR - I would give the patches a chance, but keep researching the options.  I have only done it before for my prolapse op and saw the same person I would have seen on NHS.
Title: Re: Utterly demoralised.
Post by: Roadrunner on August 21, 2017, 04:49:58 PM
Thanks everyone.
 At least with a patch I can rip it off. Assuming I can get it to stick.
Now where's my hairdryer  ...
 ;D
Title: Re: Utterly demoralised.
Post by: Katia on August 21, 2017, 06:33:08 PM
The 100mg Utrogestan are on that list. You would take two if you did it cyclical. It seems people either love them or hate them. For me that cause insomnia, I'm groggy and feel cloudy and they just don't seem to agree with me. They are a very good diuretic though