Menopause Matters Forum

Menopause Discussion => Personal Experiences => Topic started by: Kathleen on June 17, 2017, 02:25:43 PM

Title: Calling a Halt to Tibolone
Post by: Kathleen on June 17, 2017, 02:25:43 PM
Hello ladies.

I am post meno and have been experimenting with Tibolone/Livial for just over three months but I may need to call time on it and try something else.  As I've mentioned before no HRT preporation has eradicated my flushes but  over the last week they have ramped up again and my anxiety is through the roof! Oddly before this latest episode I had a spell of feeling calmer and more optimistic that lasted for days and I thought I'd cracked it but now I'm back to square one. I am not sure what to do next but I thought I'd report my happy spell and subsequent crash as other Tibolone users may be experiencing the same and wondering if it's just them! Oh the frustration of it all. I had actually written " mood good" in my diary the other week and believe me that has never happened before, I may need to rip out the pages and frame them.

Take care ladies.

K.
Title: Re: Calling a Halt to Tibolone
Post by: Tempest on June 17, 2017, 03:29:37 PM
Oh, Kathleen!

This is how it's gone for so many of us on Tibolone - i'm sorry! Goodness knows why.

Sending you biggest hugs! xxxxx
Title: Re: Calling a Halt to Tibolone
Post by: Hurdity on June 18, 2017, 10:14:34 PM
Sorry to hear this Kathleen! How annoying that your flushes are worse. I know I have suggested several times before but really a cyclical preparation with a 50 mcg patch, taking a progestogen cyclically to bring on a bleed - ideally on a slightly longer cycle under supervision of your doctor, may well do the trick. If your flushes were not controlled then the oestrogen dose is not high enough and/or the progestogen (as with the Evorel conti) could be interfering with the beneficial effects of the oestrogen. This is unless you have some other health condition which could cause flushes eg a degree of thyroid malfunction?

I would give it a little longer and then try something else -control of flushes is the most basic of requirements of a successful HRT!

Hurdity x
Title: Re: Calling a Halt to Tibolone
Post by: Kathleen on June 19, 2017, 08:04:28 AM
Hello Tempest and Hurdity and thank you both for your responses.

Hurdity - I am coming round to the idea of a cyclical regime, it's one of the few things I haven't tried lol. I very much doubt that my GP practice will sanction it so I suppose I will have to look elsewhere. If anything I'm feeling worse these days with constant anxiety and internal shaking, lots of mild flushing with huge surges through the day, breast tenderness and now nausea thrown in. My mood is low but who wouldn't feel depressed  under these circumstances! I think in the back of my mind I always hoped that I either wouldn't need HRT or that I could just power through using only a minimum dose but I can't go on feeling like this.

Thanks again for your comments and I'll keep the forum updated.

Take care.

K.
Title: Re: Calling a Halt to Tibolone
Post by: warwick01 on June 19, 2017, 10:23:38 AM
Hi Kathleen,

Sorry Tibolone has not worked for you. I stuck with it 4 months but stopped due to dizziness. All other symptoms did improve.......

I have been on Angelique conti along with a pea size amount of Testogel for almost 8 weeks and upto now all good. Not 100% but feeling less agitated/dizzy and anxiety 70% better. I'm not sure I'm getting full benefit as some nights I get mild sweats and feel a bit anxious so I just add half a pump of oestrogel for a couple of nights and things settle. Hopefully at 3 month things will settle.

I will update the group at 3 month mark

Wxx