Menopause Matters Forum
Menopause Discussion => All things menopause => Topic started by: edelweiss on May 03, 2017, 07:32:44 AM
-
Good morning everyone I hope you are all feeling better.
I'm at a loss - tinnitus is so loud, constantly. It dominates my waking hours. I have overwhelming internal shaking, anxiety, agitation, feeling of electricity pins and needles, no appetite, lack of concentration. All day, every day. I just cannot believe it and I feel like I'm in shock - this can't be happening...
How can I live like this? I look at Facebook and see what normal people do at the weekend. It seems like another world. Anyone been here and got through it? (My HRT isn't working - tried everything, literally everything including ADs, thyroid) xxx
-
you know I'm with you on this one. What are we going to do? Its impossible.
Sorry to be of no comfort xx
-
Hi Twoodie. I'm so sorry you are in the same position. What are you going to do today? xxx
-
My tinnitus is so bad lately that I'm convinced others can hear it >:(. I wouldn't have believed that hormones could cause so much distress and physical, mental pain. I'm 53and I feel 93 :'(. I just wish doctors would take meno symptoms more seriously. I often look at people and think it's not fair that they are leading a 'normal life' but you really don't know what others are feeling, some people are very good at hiding their true feelings, I still go on holiday and occasionally go out socialising but if you got inside my mind you would find an anxious, nervous wreck. I've just learned to hide it, well most of the time.
-
Im going to get up & take our dog for a walk. Im staying in a holiday cottage near my husband's work. I cant be on my own at home - 4 months ago I was a real homemaker and loved being there. This is crazy.
What are you going to do? x
-
:hug:
For all of you.
No great pearls of wisdom ladies sorry,just wanted to empathise with you. Hope you find something to relieve your distressing symptoms.
-
Same here today, Edelweiss! :'(
There has to be answers, surely? I'm not doing anything today except being with Hubby. God knows what I'm going to do when he goes back to work tomorrow but I'm trying not to think about it too much as it just makes things worse.
Sending you biggest hugs and sorry I don't have the answer for all of us. xxxxx
-
hi Dazned,
read a few of your posts and see you have had quite a journey. How long did it take for the AD's to start working? x
-
Yes, Twoodie! I think the same thing happened to Dazned as is happening to Edelweiss. HRT just stopped working. I mean, what the hell is going on here? Someone 'expert' must surely know for crying out loud!😢😢😢
-
No expert I've found knows the answer. I've tried all in UK and top ones in US. They all say they believe they can help, but sadly that's not been the case.
One of the US ones wanted $2000 for an initial consultation!!! :o Needless to say I didn't go for that (though I would in a heartbeat if I believed it would be the answer). xxx
-
I don't have a success story but honestly I was how you ladies are 5 years ago. I couldn't walk far, felt like wading through treacle, felt constantly faint and sick, felt so down, I even thought my mum was still alive sometimes and thought to call her, terrible horrible times. Couldn't sleep but was shattered. And no hot flushes. None of the typical-what-you-read-about-menopause-symptoms, my heart was racing all over the place, tinnitus, pulsating and high pitch, extreme gum recession which was damn painful. The list is literally endless
The only 2 reasons I can come up with that I feel a bit better nowadays is 1) I've got accustomed to it (which if true really saddens me 2) time, I'm now at least 2 years post meno and maybe, just maybe, my body is adjusting
What WONT leave me, and devastates me, is this acquired shyness/social anxiety/solitude malarkey and my lack of self confidence but just randomly I'll get a snippet of confidence back for a tiny bit then it's gone again
There HAS to be answers, half the blimming population are women for crying out loud so why is no one investigating the complex cases?
Just for the record, I've tried quite a few of different regimes of hrt
-
Hi I'm with you all on this one. Plus a fuzzy feeling out of my body feeling. It's just so exhausting mentally and physically. I try to walk with my phone of course. I hate being home alone too I get alsorts of stupid thoughts going through my head. Pins and needles. Tingling. Weight loss. Feelings like creepy crawling under my skin. I must admit I'm in a better place now than I was last year . So maybe it gets better with time.the night sweats are my biggest pain in the bum at the moment. It's either that or a snoring bloody husband. I have been Peri for 4 years now and went 10 months with no period so am hoping it's not too much longer. I'm sending a massive hug to you all cos this is the worse thing any woman has to go through I would rather have monthlys for the rest of my life. But just excepted it's a natural process. Xxxx
-
I can totally empathise with you, as just a couple of months ago, I was in the same position. But now, tentatively, I am feeling better. I have been left with several issues, like fear of the night, slight burning mouth syndrome and slight anxiety. However, I feel fairly normal and can now function. My problem had been triggered by low hormones even while taking hrt. I refused the prescriptions for ads, sleeping tablets, and beta blockers I only used for a short time but which gave me the side effect of acid reflux. My hrt has been increased, and after the GP put me back on a regime which kick started periods, which I thought was nuts at my age, I'm 60, I am now on the conti regime and although I have a period currently, I can live with that in preference to the dark place I was in and which you are in at the moment. Has your GP looked at what level of hrt you are on, and checked your hormone levels? It has taken four months to get me to where I am, and it looks like I cannot function without the added hormones, but quality of life is more important. I work in a fairly stressful job, and I have to identify what is normal anxiety, and what is hormonal anxiety so it can be challenging. But you can, and will get better. From not being able to sleep, I now get 7/8 hours a night. Up once for a cup of fruit tea and biscuits, and can get back to sleep. Amazing. Keep your chin up and you will improve. Take the better days and acknowledge them. You will find they become more an every day occurrence and less bad days.
-
Hi everyone and thanks for your replies and comments.
Susan, thank you, but if only it were that simple. My hormone levels are fine, I just still get all these symptoms (physical changes as well as psychological, in case you might think it's anxiety/depression). No-one knows why or can fix it.
Wishing you all the best day you can have - and wishing for much better days to come xxx
-
Twoodie they took about 10 days to stabilize. Since those dark,dark days I've managed a holiday to the States,sold house and relocated to a new part of UK ! When a trip from sofa to kitchen seemed like a Herculean task. :'(
I really hope you all find your individual answers soon. I also found that stopping looking for " the old me " helped enormously ! I decided that I had wasted enough time trying this that and the other. I am what I am now and that's how I learned to move on,not the old me,a new me ,it's all I can run with,life is moving on and I needed to move on with it. Good luck all. :)
-
Wonderful, encouraging news Dazned! May I ask which AD you settled on please? xxxxx
-
Contact the UK Tinnitus Group?
Sometimes I ask himself if he can hear my ears thumping, ringing, whistling >:( but it isn't a problem at night unless I lay in a certain way on my ear.
-
Edelweiss in your position, I would try an AD. You will have to persevere with them as you feel worse before better and need to give them at least 8 weeks to see any improvement.
Life's too short to be unwell.
I take them and although I wish I didn't have too, I realise right now I need them along with HRT.
-
Thank you Marchone, you are so kind to think of that suggestion, but I do take an AD. I'm on max dose for 4 months. No help at all. Sorry it sounds like I am being so difficult, but I have and would try anything. Thank you again for thinking of me. xxx
-
Hello, Edelweiss. I'm just popping by to see how you are today? I hope you're ok ish considering? Much love & hugs. xxxxx
-
Hi Tempest, thank you so much for thinking of me. Wish I could say otherwise but I feel absolutely terrible. How about you? I read that you had an awful night. I'm so, so sorry.
Did you manage to speak to Diane yet? xxx
-
Oh Edelweiss! I'm so very, very sorry that you're feeling so terrible!!!! I wish I could reach out and give you a hug at least!
No - Diane hasn't returned my call as yet. Did I pick this up right, did Twoodie e-mail her? If so, has she heard anything back at all? xxxxx
-
Can I pm you? You can pick it up OK? xxx
-
hi yes I emailed her and then she emailed me back with an appt time forme to call her. hope it helps xx
-
I've still not heard from Diane and was hoping to speak to her before my consultation with Professor Lumsden next Tuesday. :-\
-
Thank you Susan it's so good to hear someone is feeling better, it gives us all hope for better days to come :)
Love Alesia xxx