Menopause Matters Forum

Menopause Discussion => All things menopause => Topic started by: Peroxideblader on April 22, 2017, 02:35:44 PM

Title: Aching everywhere??
Post by: Peroxideblader on April 22, 2017, 02:35:44 PM
Hello I've read a lot on peri which is what I think I'm going through but does anyone suddenly get the body of a 90 year old. I'm active and quote fit but about 6 weeks ago I literally ache all over when I get up first ting I'm so stiff especially my legs hips and shoulders and if I sit and watch a film at night then get up I'm the same really back shoulder neck pain and legs.  It's been so sudden and it's daily it's not occasional or due to over exercise ??? Also my doctors who have zero tolerance for what they call the menopause 'excuse' says if I'm getting regular periods I'm not perimenopausal but most months I'm now every 3 weeks when I was 28 days on the dot but yes some months I'm only a day early...I have all the other symptoms..
Is that common too..thanks
Title: Re: Aching everywhere??
Post by: nearly50 on April 22, 2017, 03:29:23 PM
Yeah, that was the very first sign for me, but it was only when I joined this forum I realised! Spent a fortune on physio, osteopathy and now don't know if it was vitamin D I needed, iron tablets, or if it was just the first phase which eventually I moved on from. As sparkle says though, definitely ask for a blood test for these things first.
Title: Re: Aching everywhere??
Post by: Peroxideblader on April 22, 2017, 03:39:49 PM
Thanks for your reply..I'm on ferritin tablets maintenance dose from doctor for last 3 years since my life turned crap and insomnia moods anxiety sweats panic attacks started and for my restless legs I've had thyroid and full bloods about a year ago nothing found..I take meno pace multi vitamins so I get vitamin d in that and I'm trying magnesium again at night for sleep it doesn't help at all just gives me foul headaches but I only gave it a week ladt time I'll try longer this time. Nothing works for sleep I've tried it all and now after 3 years I've resigned myself to sleep time being 3 or 4 am every night just the way my life is. I'm glad the joint and body pains are peri as I thought it may be the start of arthritis I've got everything else lol...I have got hrt tablets to try have had them for about 4 months but I'm waiting to sort out anot her health issue before I throw hrt into the mix. Thank you
Title: Re: Aching everywhere??
Post by: Peroxideblader on April 22, 2017, 03:45:49 PM
I did ask my useless doctors for a vit d blood test but they said it's just all the rage right now with no symptoms and as I wall my dog he said that's enough vit d. I bought some tabkets but as I say my menopace has vit d in it so I'm not sure. I've been like this with awful symptoms for 4 years now so if it lasts another 6 I'll be hanging from a tree!! My mother who I don't have contact with for years didn't even know age was going through it it was that easy but my maternal nana had 15 years of torture basically lost the plot lost her job her marriage and then ended up in and out of psychiatric hospital for most of those 15 years..scary really..I can see the same pattern eith me it's awful isn't it
Title: Re: Aching everywhere??
Post by: Elizabethrose on April 22, 2017, 03:53:40 PM
I agree with the other ladies Peroxideblader, achey joints was one of the first peri signs for me. There is some debate as to what is late reproductive stage and start of peri, I've read comments on here about it too. The specialists I've seen always go on symptoms because every woman is different, so although a shortening of cycle length can be late repro stage it can also be early peri.

My fingers, hips and back were the most difficult areas, I was even finding lifting heavy pans tricky. I started taking Osteocare plus Glucosamine and Chrondroitin which is a mix of vits and minerals for bones and joints. I've never been a believer that  supplements are necessary if you eat well but I feel sure these have helped me. I've forgotten to take them when travelling a couple of times (for a few weeks) and the joints started becoming sore again. I have some bulging discs in my back and nothing seems to help that apart from appropriate exercise.

One thing I discovered in late stage peri was that a sudden plummet in oestrogen would make me ache all over. Have you noticed it happening just before a period? x
Title: Re: Aching everywhere??
Post by: Peroxideblader on April 22, 2017, 06:36:54 PM
Trust me to break the rule...until 3 years ago I barely had pmt it's only got worse since peri ...I wonder if I should push for a vit d blood test then because it's true we have rubbish weather so even though I'm dog walking itsusually in rain or cloud....I just worry I take too many pills I take an AD escitalopram iron tablets menopace and magnesium when I used to think my diet was enough...but I'll try anything...have any of you tried hrt ? And none of my symptoms such as insomnia achey muscles sweats panic attacks etc are any worse before during or after my period just consistently crappy...I'm due to see a temporary locum lady doctor this Thursday that's why I'm asking this now in case I needed to ask for tests etc...won't hold my breathe as our doctors are all notorious for their curt manners and misdiagnosis I want to change doctors but I'm mid tests for another issue so don't want to swap yet..
Title: Re: Aching everywhere??
Post by: nearly50 on April 22, 2017, 06:53:04 PM
I take vitamin d, ferrous fumarate after every period (they're v heavy), calcium with magnesium, and vitamin c with zinc. I too used to believe diet should be enough, but I think we need a bit of help at this point in time. I can't see how vitamin d can do you any harm, I read the stuff on https://www.vitamindcouncil.org/ when I was told mine was low.

I too didn't ever get PMT but in retrospect, mine was quite bad for the first couple of years of peri. It isn't an issue now though (touch wood).

Haven't used HRT, have fibroids so don't want to make them grow plus i think most of my issues are from too much oestrogen, and because of hormonal imbalances. Who knows if that's the correct decision though.
Title: Re: Aching everywhere??
Post by: Peroxideblader on April 23, 2017, 02:58:04 PM
I'll get my vit d blood test done hopefully and my thyroid re done as 5 family members have thyroid problems undiagnosed for many years with the symptoms being so similar to perimenopause as last time my t4 was well below their scale yet they said I was normal no action taken. If I do go on hrt I'm starting on femoston as that seems the best one to start on if I have to. I have an ovarian cyst found about 4 years ago but it was just under the suize that they take action and never suggested a follow up would that be am issue starting hrt or is it just fibroid like you've said
Title: Re: Aching everywhere??
Post by: Peroxideblader on April 24, 2017, 04:53:20 PM
Thank you.  I was surprised they didn't suggest follow up once they found the lump but they seemed dismissive....got a doctors appt Thursday but I could only get a normal appt you can only raise one issue I've got 2 and cyst issue so maybe next time..
Title: Re: Aching everywhere??
Post by: CLKD on April 24, 2017, 05:25:20 PM
Why didn't you make a double appt.  :-\ or 1 with your GP and another with the Practice Nurse?
Title: Re: Aching everywhere??
Post by: Peroxideblader on April 24, 2017, 06:58:42 PM
I tried for a double appt this was booked 2 weeks ago just to get in this Thursday a double would be mid may....I have to prioritise a CT scan on this swollen lymph node then next time re check my thyroid then I'll mention the cyst...then hrt hopefully once all else is eliminated...with thyroid mimicking menopause and family history of it I want it rechecking it was low t4 two years ago so time to recheck it...can't see our practice nurse until you've seen a doctor and been referred its bloody stupid
Title: Re: Aching everywhere??
Post by: CLKD on April 24, 2017, 07:09:23 PM
It is BLOODY stupid - our practice nurses do the job unless a GP opinion is required then if he/she is in the Surgery, the Nurse nips in to ask.
Title: Re: Aching everywhere??
Post by: MicheleMaBelle on April 24, 2017, 07:20:41 PM
Peroxide blader- maybe if you could go private for an initial gyny consultation you could cut through all this crap and possibly get your follow up on the NHS. I paid for a private consultation recently and wish I'd done it ages ago. I just hot so fed up with years going backwards and forwards to GP and dismissed as some sort of neurotic nutter. " joint and muscle pains have nothing to do with the menopause " " have some ADs you're depressed"  " We can't change your HRT- they all contain the same two hormones " Last one, strictly speaking true but what utter twaddle. This site us a godsend x
Title: Re: Aching everywhere??
Post by: Peroxideblader on April 25, 2017, 03:18:14 PM
Our practice is useless full stop ..once I've had these tests done I'm going to change..any doctors must be an improvement..and who do I see privately I'm in Lancashire the ones I read of are in London so not possible..do I specifically look for menopause consultant or just endocrinologist? I canthink have blood tests for fsh etc as with me still getting periods I was told the readings are unreliable as your levels change constantly throughout your monthly cycle? Because I'd pay privately no problem I did it for my trigeminal neuralgia and sinusitis x
Title: Re: Aching everywhere??
Post by: Peroxideblader on April 25, 2017, 06:41:19 PM
Hi megamind...sadly no medication worked the consultant diagnosed trans mandibular jaw TMJ which is exercise wear on my jaw and grinding of my teeth but the neuralgia was caused by a dentist who messed up a root canal slipped and drilled into my nerves and left all my nerves damaged...7 years ago....this led to tmj as I had a breakdown with the pain and damage caused to my mouth but I was given many different pills to try they're the ones they use for Parkinson's disease but sadly I had too bad side effects from all of them and no relief from the pain..I have morphine if I tried gets really bad but for some reason the last few years or so it comes in cycles especially the TMJ mainly when I'm stressed and upset but since the peri has caused so many issues especially no sleep every night I'm grinding my teeth every night with the stress and the whole pain cycle comes back...I was told to try Botox in the jaw which relaxes the muscles and can be injected all round the trigeminal muscle but never got that far as I'd already had Botox in my bladder for a bladder issue and it made things worse not better so I darent try it..so sorry it's not good news but I did read up on the pills for trigem. Neuralgia and the reviews weee good just not for me...so if you can give them a chance..x
Title: Re: Aching everywhere??
Post by: MicheleMaBelle on April 25, 2017, 09:23:40 PM
hello pb- there's a list of specialists on this site according to geographical area.You'll be able to ascertain if they only cover NHS or do a Mix of private/ NHS x
Title: Re: Aching everywhere??
Post by: Peroxideblader on April 26, 2017, 10:23:36 AM
Hi that sounds more like tmj that affects your jaw teeth and ears the pain is all round usually when you're stressed you grind heavily and the pain affects the weakest tooth..I hope it'll go soon for you when you're less stressed it's such an awful thing to have
As for the private consultation is there I link on here I'd rather go off recommendation plus I don't know what I'm asking for??
Title: Re: Aching everywhere??
Post by: CLKD on April 26, 2017, 02:42:42 PM
Peroxide: trigenimal neuralgia symptoms can be eased by surgery.  My aunt had it done a couple of times.  A few Surgeons in the UK perform this delicate operation and your GP should be able to advise, as will the appropriate support group.  It is complicated but successful.  She had an injection into the painful area to see if that worked, after 9-10 months she was reviewed and added to the Waiting List.  She had good results on both occasions following intervention.

After I had the 1st implant procedure after the titanium pin had been inserted I had neuralgia and it took a while to put 2 and 2 together.  Fortunately the painful spasms did go.
Title: Re: Aching everywhere??
Post by: Peroxideblader on April 26, 2017, 03:17:11 PM
I saw the consultant but he advised against the operation with the nerve pain being in random teeth and the mouth guards actually made my tmj worse..I spent over 600 quid getting them made as I'm private and all just moved the pain around and in some places worse...the dentist will refer you to maxillofacial unit at your hospital but there was a 8 month waiting list hence why I went private...it was worth every penny to get seen so quick even though it's not cured anything...I wouldn't go for any operation either until I get my sleeping sorted as in the few hours sleep I do get I'm grinding twice as bad and the constant sresss is making things worse. If u  an get my sleep sorted I'll see what condition my jaw is left in. I might go down the botox route in my jaw muscles first then take it from there
Title: Re: Aching everywhere??
Post by: CLKD on April 26, 2017, 03:32:11 PM
Trigenimal neuralgia is a specific nerve root.  It floored me  :-\ I'm sure that people thought I was drunk when I walked the  :scottie: in the late 1980s.  It was non-specific in that cold/heat didn't make it happen but would hit so suddenly .........  :'(.  I think the dental surgery aggravated the nerve, it was a mystery for a few weeks.

I couldn't bear the thought of anything in my gob - I can't watch the rugby players nor motorcycle riders removing their guards  :sick02:. 

Have you tried altering the angle at which you sleep?  Does the grinding wake you?
Title: Re: Aching everywhere??
Post by: GypsyRoseLee on April 26, 2017, 09:06:50 PM
Flipping ignorant + arrogant GPs, who only know a very little, about a lot  ::)

One of my first peri symptoms was really achy ankles when I woke up. I used to limp to the bathroom when I first got up. Since being on HRT my ankles are now fine, but I do sometimes get painful wrists and fingers.

I see Prof Studd, and he confirmed that my achy joints was a peri menopause symtpom. I think I can sagelt say he knows rather more about the menopause than your useless GP.
Title: Re: Aching everywhere??
Post by: Peroxideblader on April 27, 2017, 03:06:35 PM
I don't get woken by the grinding I get woken by the pain all round jaw ears and when I eat the pain is awful some days so I chew the other side...no pain med touches it only morphine and I'm loathe to take that much as I can't function on it and makes me sick...and yes my gp practice is rubbish I think I may have to contact someone can you email that doctor??
Title: Re: Aching everywhere??
Post by: Peroxideblader on May 02, 2017, 11:23:48 AM
Hi I've put on my previous post I needed to find a menopause specialist to discuss all my symptoms and suitable hrt and have said the option of Dr currie is no good as for 25 quid I only get to ask one question in the email but I see you've used prof studd can I ask if you emailed or in person and what costs and outcome you got thany you