Menopause Matters Forum

Menopause Discussion => All things menopause => Topic started by: MIS71MUM on January 31, 2017, 12:33:03 PM

Title: 5 Days Post TAH!
Post by: MIS71MUM on January 31, 2017, 12:33:03 PM
Hello
I've posted before about erratic bleeding, differing HRT regimes and the Mirena. In the end, my condition of adenomyosis got the better of me and I had a Total Abdominal Hysterectomy on Thursday.

My question is, following this operation, is it automatically required that you should increase your oestrogen? Or is it still trial and error? I'm currently on about 44 mg of an extradot patch. I kept my ovaries by the way.

Title: Re: 5 Days Post TAH!
Post by: Elizabethrose on January 31, 2017, 12:35:19 PM
No idea about the HRT but just wanted to wish you well Mis71Mum. Feet up, take it easy! x
Title: Re: 5 Days Post TAH!
Post by: MIS71MUM on January 31, 2017, 01:00:02 PM
Thank you Elizabethrose.

Doing well so far, not needing painkillers and haven't been constipated! However, putting my feet up is the hard bit!
Title: Re: 5 Days Post TAH!
Post by: Menomale on January 31, 2017, 01:06:06 PM
Hi Mis71Mum

I hope you get full and speedy recovery! If you have kept your ovaries I think your docs will go on with your regime but without the need of progesterone (amen). I guess the oestrogen level will be addressed based on your menopause symptoms rather than the absence of uterus, but I'm just guessing...
I'm sure someone here will pop up with a more scientifc answer.

XXX
Title: Re: 5 Days Post TAH!
Post by: Annie0710 on January 31, 2017, 01:06:44 PM
Personally, I'd say stay as you are.  If your ovaries haven't been affected by the surgery nothing hormonal should  be different

I had my total hysterectomy when I was 32, I just stayed as I was but within 6 months I experienced menopausal symptoms, my gp said the blood supply to the ovaries had been affected, it can and does happen but you'll know it as you'll experience more or stronger meno symptoms then you can increase your oestrogen
Title: Re: 5 Days Post TAH!
Post by: dazned on January 31, 2017, 02:01:59 PM
Wishing you a speedt recovery  :)

 :foryou:
Title: Re: 5 Days Post TAH!
Post by: Milamam on January 31, 2017, 04:25:34 PM
Mum71, this is a very brave step, wish you speedy recovery and end of peri-related problems!



Milamam x
Title: Re: 5 Days Post TAH!
Post by: Yorkshire Girl on January 31, 2017, 07:32:44 PM
Hello Milamam
Sorry can't help as I had a TAH but with BSO on 6th Dec last year, just want to wish you a speedy recovery x
Title: Re: 5 Days Post TAH!
Post by: MIS71MUM on January 31, 2017, 08:56:30 PM
Thanks ladies for your replies.

As I still my ovaries I think I will have to put up with fluctuations here and there. However I won't have to take any progesterone again.

For now, just enjoying being bleed free for the first time in 6 months!

Title: Re: 5 Days Post TAH!
Post by: Murphydurf on January 31, 2017, 09:28:41 PM
Hi Mis71Mum - wow, I think we chatted briefly about our mirenas? I take it yours wasn't going too well! I hope you continue to feel great and things just keep getting better. No prog! Yay!!

Mx
Title: Re: 5 Days Post TAH!
Post by: MIS71MUM on January 31, 2017, 09:44:36 PM
Yey MurphyDurf, you're back!
Did you realise you are famous on another thread? Some members have been missing you.

Yes I do remember us speaking before - constant bleeding, back ache, stomach ache, low mood with the Mirena all got to me! In the end, I realised that whilst ever I took oestrogen my condition wouldn't improve, so took a gamble whilst relatively stable. Let's hope it pays off.

How are you now you've have the Mirena removed?
Title: Re: 5 Days Post TAH!
Post by: Murphydurf on January 31, 2017, 09:53:33 PM
Well the first few days after removal were nasty with VERY heavy bleeding which I didn't expect but seems to be calming now. Like you, I had all the bad side effects and none of the good things. Feeling brighter already. Did you have yours removed before surgery or do they do it during? Pardon my ignorance, don't know about these things but I'm interested, particularly the no prog part!

Mx
Title: Re: 5 Days Post TAH!
Post by: MIS71MUM on January 31, 2017, 10:00:35 PM
This was a question that I asked my gynaecologist. The Mirena came out at the same time as my uterus, so I didn't have to endure any more bleeding.
I think I had read that some ladies do have the Mirena removed before surgery but luckily that wasn't the case for me.
I'm hoping that in time, my brain will register that I no longer need progesterone and I will happily take Oestrogen alone! That's the plan anyway!
Hope things settle and improve for you xx
Title: Re: 5 Days Post TAH!
Post by: Murphydurf on January 31, 2017, 10:04:14 PM
Thank you, and you!

Keep posting on your progress.

Mx
Title: Re: 5 Days Post TAH!
Post by: Tempest on January 31, 2017, 10:31:31 PM
Biggest hugs to you, Mis71mum!! You take it easy, ok? Much love and healing hugs to you! xxxxx :foryou:
Title: Re: 5 Days Post TAH!
Post by: MIS71MUM on February 01, 2017, 09:05:14 AM
Hi Ladies

Thanks for your replies and kind words.
Since my operation, my flushes are back with avengence! To be honest, not sure if I ever felt my Oestrogen was quite right pre op. Just hoping things balance out. 

Anyway, off to read the Tiblone thread as that's my next treatment if patches alone don't suit me.
Title: Re: 5 Days Post TAH!
Post by: Tempest on February 01, 2017, 05:31:36 PM
You're welcome to join the 'tribe' Mis71mum if you choose to take Tibolone. We're a friendly bunch! Hugs!!!! xxxx
Title: Re: 5 Days Post TAH!
Post by: Murphydurf on February 02, 2017, 04:26:35 PM
How are things Mis71Mum - are you feeling ok? Got flushed under control?

Mx
Title: Re: 5 Days Post TAH!
Post by: MIS71MUM on February 02, 2017, 05:12:56 PM
Hi MurphyDurf
Thanks for asking after me, today is exactly a week post operation.
Flushes not quite under control yet but going to hold off before increasing Oestrogen.
I know I've had major surgery but I have noticed less back ache, less low mood and no indigestion/ nausea since the Mirena/Adenomyosis removal.
I've noticed a bit of nervousness and mood swings but I know I've got to allow for re-balancing following the op.
The problem is keeping myself busy, without overdoing it. But then if I take it too easy, it's harder to sleep at night. I suppose it's all part of the recovery process.
How's things with you?
Title: Re: 5 Days Post TAH!
Post by: Murphydurf on February 02, 2017, 08:58:14 PM
Good news on losing some of the nastier side effects.  I too am benefiting from mirena removal, like you, I had backache and very low mood including just feeling out if it all the time. It may well have settled but I just found myself sitting staring into space like a fart in a trance!

Happy that's gone!

Back on patches and increased dose as I'm determined to get my E levels up after a very low blood test result.

Onwards and upwards we go.....

Mx
Title: Re: 5 Days Post TAH!
Post by: MIS71MUM on February 03, 2017, 07:26:19 PM
It's funny you mention the staring into space. I felt quite drugged up sometimes with the Mirena. But as already on AD's and estradot, I didn't want to add any more to the mix.

Good luck with the patches, I too couldn't get on with gel.
Title: Re: 5 Days Post TAH!
Post by: Murphydurf on February 03, 2017, 07:40:23 PM
Oh that's interesting re the gel, there's another lady posted today re. not absorbing properly. It's such a lottery, with some ladies doing really well on their 1st hrt choice and others never seeming to get the balance. I'm doing ok past few days on patches. Used a double dose and when I felt a bit 'high' I removed one patch, so far, so good. Seems like more even delivery but who knows?

Mxx
Title: Re: 5 Days Post TAH!
Post by: MIS71MUM on February 03, 2017, 08:04:08 PM
I've tried Femoston 1/10 & 2/10, evorel sequi, oestrogel and utrogestan and Mirena & estradot!
All gave me heavy bleeding which led to investigations that showed up Adenomyosis. I realised that I suffered from progesterone withdrawal on Femoston, evorel sequi and oestrogel and utrogestan. So for me the Mirena and estradot was the best.
I saw on another post your Oestrogen reading - mine was 126 pmol this time last year.
I'm glad that I no longer need to take progesterone as the withdrawal wasn't great.
Having a glass of red 8 days post op as not on any medication for pain.
Also since having Mirena removed I am no longer raiding the fridge for food!
Title: Re: 5 Days Post TAH!
Post by: Murphydurf on February 03, 2017, 08:12:16 PM
Good for you! Enjoy!

You only have to find suitable E now and there's lots of options out there. Possibly it was just the prog in the combined patches that didn't suit and the E only patch might in those brands? Or Sandrena gel?

Anyway enjoy the Vino! Salut!

Mx