Menopause Matters Forum
Menopause Discussion => Personal Experiences => Topic started by: Suzanne1967 on November 19, 2016, 01:25:52 PM
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Hi
wasn't sure which thread to put this on 🤔
I'm day 5 today in tibilone 2.5 ( I've posed a few bits in here so apologies if going on 😁
I feel so sick all the time
Feel spaced out
Feel just no energy
Taste buds gone funny
Agrophobic
Just so ummmm can't focus
I know I'm a bit impatient and need give it few weeks but ...... Didn't realise I'd feel so awful
Scan and biopsies Thursday which I'm not worried about as think it will be secondary to 4 years estelle combi as have had no bleeding since stopped it 3 weeks ago but had to go back on some hrt as wasn't coping at all
Go I see is very good and out me in tibilone ( as I'd read so much on here THANK YOU ladies 🙋) but ....
Why oh why do I feel sooooooo awful also feel like can't go out .... Stupid I know but want to give my head a wobble but just can't and I'm such a determined woman ....
This is so unlike me 😡
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Hope you start to feel better soon.
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Early days Suzanne 1967 - not sure these symptoms can be totally down to Tibolone. Tibolone tends to be well tolerated - I felt great on it. Get the scan out of the way and hopefully things will settle in a few days.
Have you had any of these symptoms before? DG x
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Dancing girl
Thanks for responding 🙋
No no previous experience of these symptoms Prior to tibilone
nausea
Feel not with it
Losing train of thought
Just feel sooooo rubbish 😩
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Hi suzanne1967. Snap! I'm day 5 also but am ok and haven't experienced anything negative.
I hope what you're experiencing isn't Tibolone related and you feel better soon.
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Hi,
I wonder if you have a virus?
I was on Tibolone and felt great other than headaches. It gave me much more energy and felt on top of the world!
Hope you're feeling well soon x
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Ladies
Thank you 😘
🤔🤔 ... Was convinced was tibilone ...will have To see how I go
Blackeygray ... Have you had no side effects at all ?
No sickness nothing ?
Honest could have sworn was the tibilone
So hoping this feeling goes pretty rapid
I know it's not a virus as I'm a nurse and don't feel ill ill just weird 😩
Thanks ladies I'm so interested how you all get on X
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Otes73
Did you feel great as soon as started it?
Xx
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Hi Suzanne
I had to abandon tibolone as it made me too sedated. I felt as though I'd I'd a few gin and tonics every day and it didn't wear off until about 3 in the afternoon, the thing is I have to be sharp for work so it was no good. It was great for libido though + it quashed any anxiety, I just feel the constant dose if progesterone wasn't right for me x
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peri - did you try taking it early evening with supper - that may have been the answer ??!! Hope you have found a HRT that dose suits you.
Tibolone does work in a different way to normal HRT (it doesn't have oestrogen and progesterone) and will often suit women who don't get on with standard HRT.
For Suzanne1967 I am picking up on extreme anxiety in her posts and I'm wondering if lack of food and possibly something wrong with thyroid function may be bringing more side effects - the rather rapid loss in weight and loss of appetite are a concern. Nausea is often a symptom of anxiety and stress so she may need something for this - possibly an SRRI. DG x
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Peru this is exactly how I feel 😳
DG .. Thanks for this info I do suffer with anxiety but been long standing due to illness in family and have been on Duloxetiene 3 years but thinking about it lots of the anxiety etc I do believe is hormone related
I think I'll start taking the tibilone at night ? Could anyone advise as I thought you HAD to take it in the mornings
I feel slightly better today but haven't taken it yet as think I'll start at night
Ladies I do value your experience and it's helping me so much
Like all of us I just want to feel normal again 😩
Suppose need get this scan and biopsies out of the way Thursday
But tbh I'm not excessively worried about this
Just hope it doesn't bloody hurt 🙄
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Suzanne1967 - I'm sure it is fine to take in the evening with supper - do take it with food as most pills and supplements will cause nausea if taken on an empty stomach.
Maybe a review of your AD might be wise. Sometimes a change or increase in dose is needed - I would discuss this with your GP.
You have clearly been through a tough time and when everything seems to get too much then anxiety can ramp up and become overwhelming. Mix hormonal problems in with stressful life experiences and it's a recipe for poor health generally.
At this time in our lives we really need to put ourselves first - I've learnt this the hard way - health is everything, so really look at your lifestyle and see what changes you can realistically implement to reduce stress. It's not about getting your life back, as life has to change as we age; being open to change, doing things differently, learning to relax a bit more, putting yourself first - these are strategies that will carry you forward in the long term. HRT can help but it won't sort everything. Ask the GP for CBT if need be or if you have a close friend who you can trust to be honest and open with you then it can be good to share. DG x
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Hi Dancinggirl yes I took it at supper time in the hope that I would sleep through the worst of any side effects. I understood that it enabled you to make your own oestrogen/progesterone and testosterone but either way the balance wasn't quite right for me (I did persevere for 3 months). I do seem to be very sensitive to anything I take, I'm back on evorel patches and utrogestan as this as been the best regime I've found. However I do suffer terribly from progesterone withdrawal when I have a period so have asked to be referred to a menopause clinic to see what if anything I can do about this. I'm in West Yorkshire and have an appointment at St James in Leeds on 14 Dec so fingers crossed.
Suzanne I'd stick with it for 3 months if you possibly can to give it chance but if it doesn't work don't give up there are alternatives x
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Suzanne,
I started taking it in the morning and was fine, but decided to gradually move it later through the day by going an hour later each day, as I thought it would be 'more convenient'. However I found taking it in the evening made me too restless to sleep so now I've gradually moved it back and I take it mid day.
I find I do need the Ovestin - just a small amount every night, it seems to make me feel 'more balanced' and calm.
Are you taking anything else?
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It took about for about 2 weeks before I got the benefit and I felt great! I took it before I went to bed, maybe that will help? The other thing I did for the first month was only take 1/2 tablet and then after 4 weeks I took a full one.
I did get daily headaches and that's the only reason I stopped. I was gutted as other than that it was the best I'd felt since my hysterectomy. I'm taking oestrogel and testosterone gel now and don't get headaches but don't have the get up and go I had with Tibolone which is a shame!!
X
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Ladies
Thank you 😘
🤔🤔 ... Was convinced was tibilone ...will have To see how I go
Blackeygray ... Have you had no side effects at all ?
No sickness nothing ?
Honest could have sworn was the tibilone
So hoping this feeling goes pretty rapid
I know it's not a virus as I'm a nurse and don't feel ill ill just weird 😩
Thanks ladies I'm so interested how you all get on X
No, not a sausage. Nada. I'm sorry to hear that you are.
What I have felt is generally better but this could be physiological as I'm just happy that I've been prescribed something around testosterone.
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Otes73
Thanks for your info x🤗
I've taken it at 7 pm tonight 😁 See how I go have felt much better this afternoon big sure of its because didn't take it ! Or maybe ..... Just maybe it's kicking in 🤔
Sooze love reading your updates
And great re gym not so great re ironing 😂😂
Well I'll post tomorrow see how tonight goes fingers crossed as so much to do this week X
I've been using Estroil Pv for two weeks but think I'll continue it ? Along with tibilone ??
Thank you ALL of you 😘🙋😘
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Ps .... Do any of you think k should have bloods taken re hormone levels ?
Know thyroid ok and lipids etc X
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My gp took my blood pressure before prescribing Tibolone (it was fine) but I have to go back for a blood test (for everything she said) to see where my levels are.
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Sometimes blood tests are useful but this needs to be done 4-6 weeks after treatment has started.
If it's working then you should actually know, as flushes should have reduced or stopped. I was certainly sleeping really well after about a week!! DG x
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Blakeygray - what blood tests have been suggested? I'm not sure how Tibolone affects your actual hormone levels anyway - surely it would not give a true reading?
Hurdity x
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Hi Suzanne 1967. How are you feeling today? I am on day 5 of starting Tibolone and it seems to have heightened the tension/irritability/anxiety, hot flushes and body aches I have been feeling in the last few months. I am in menopause and haven't had a period for over a year so my gynaecologist prescribed Tibolone back in August and I've only just plucked up the courage to start taking them. I felt quite good on the second day but have been feeling worse the last couple of days. I have been taking half of the 2.5mg as I'm usually quite sensitive to tablets. I'm guessing it's my body getting used to the tablet and my hormones levelling out but I'don't be interested in hearing any other experiences. I'm going to stick with them for a couple of months and hope that this passes. Thanks for posting x
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Blakeygray - what blood tests have been suggested? I'm not sure how Tibolone affects your actual hormone levels anyway - surely it would not give a true reading?
Hurdity x
Well I've never had anything measured, tested or prescribed since my hysterectomy 14 yrs ago. My gp said she wanted to test all my levels including hormones and iron
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DAY 7 of tibilone 2.5 mgs
Jules53 hi 🤗
Phew .... Took my tibilone 2.5 at 7 last night was like 😳😳😳😳 but eventually got off felt sooooo sick again but I've had no headaches
I do feel agitated restless twitchy
Today it took me 2 hours to compose an email and attachments that usually j can Do in ten mins 😁 Just losing my train of thought
Not as many flushes it's a different feeling can't explain it but restless agitated unsettled
I don't feel as anxious
but just feel rubbish but I must saY I THINK I feel better than dat 1-2-3-4 -5 so maybe taking at 7 pm is better ? I'll have to see how I go tonight
I listen to mindfulness a lot gave done got months an AP called calm it helps me ( try it )
I was On the phone to a colleague and I was struggling with even holding a sentence together !!! Flipping Eck 🙄🙄
Anyway onwards and upwards I'll continue see what tonight and tomorrow bring
Scand and biopsies Thursday xxx
Sending love to all you ladies 😘🙋💞
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Hi Suzanne. Hope you're feeling better today! I am on day 6 and started the day feeling a lot calmer but as the day went on my whole body started aching and I've had pains in my arms. The anxiety came back this afternoon but I think that's because we went to a funeral and I felt pretty tense. Anyway, I went to yoga this evening and that really helped to calm me down. I take my tablet at lunchtime so will carry on taking it then to see how it goes. I only take half of the 2.5 mg tablet.
Hope you're doing OK x
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Hello 🙋
Well day 8 today 😁 Feeling slightly better and laughing at myself lots 😉
However ... Realised when I checked my payroll as own a business that all hours were totally wrong and random 🙄😳 how did that happen !
Eating sooooo much chocolate 😡 And munchies 😁 I'm going to get fatter 🙄😁😩
Sleep improved ✅
Mood improved ✅
Eating like a pig ❎
Random madness ❓❗️
Anxiety ✅
Hot flushes ❎/✅ slight reduction i think
Well that's my update rather scared tonight scan and biopsies tomorrow and as had two c sections worried re cervix so tight wimp eh !
Wish me luck 💗💜💙💚💛❤️
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Hi Suzanne. Glad you're starting to feel better. Day 7 for me and I started the day feeling a bit better. Still had pains in my arms but felt a lot calmer. I went to work and mid morning the anxiety kicked in big time and didn'the subside until mid afternoon! TIght chest and a feeling of dread😢
When I got honest I did some meditation/mindfulness from a DVD I've got and I started to feel much calmer and have been out for the evening with friends! 😊
I'might sure the anxiety is my hormones trying to sort themselves out and am trying to stay positive and get through it. I'll let you know how day 8 goes.
Good luck for tomorrow. Hope all goes well!❤💙💛💜
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Hello 🙋
Well day 8 today 😁 Feeling slightly better and laughing at myself lots 😉
However ... Realised when I checked my payroll as own a business that all hours were totally wrong and random 🙄😳 how did that happen !
Eating sooooo much chocolate 😡 And munchies 😁 I'm going to get fatter 🙄😁😩
Sleep improved ✅
Mood improved ✅
Eating like a pig ❎
Random madness ❓❗️
Anxiety ✅
Hot flushes ❎/✅ slight reduction i think
Well that's my update rather scared tonight scan and biopsies tomorrow and as had two c sections worried re cervix so tight wimp eh !
Wish me luck 💗💜💙💚💛❤️
Good luck tomorrow Suzanne
Did your tick on anxiety mean Tibolone is helping it ?
Hope so
X
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All the best for today suzanne and here's hoping all tests come back clear.
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Thanks ladies
Day 9 today and goodness me woke feeling like have drinks several crates of wine 😳 Banging headache awful !
Anyway iff to hospital shortly OH taking me bless him he's more anxious than me
I'm so not looking forward to procedure .. Apt @ 2-10 😁
Listen anyone know if I'll get some sort of results today ? I know biopsies I won't yet in respect of endometrial thickening if this is the case ...
Any advice of what to ask X
Ps in respect of after care will I bleed ? Will it be painful X
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Jules53
Sorry to hear te you anxiety and pains etc ... It's awful isn't it and so random comes from nowhere !
As stated in previous posts I too do the mindfulness and I think it really helps ...
Glad to see you nailed it and still went out with friends ! Keep going 😉
Keep us posted we cAn compare ! Xxxx
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Hello ladies 🤗
Well had my scan all good ! Nothing to be concerned about
No polyps
No fibroids
No endometrial thickening " nice and thin " quote
gynaecologist
Thought I'd got away with biopsies 🙋 Until ....I got my feet up in stirrups 😳😳 I was like hmmmmmm
! Phew they said were doing biopsies under anaesthetic as need take a few so had put me on list for Monday day case 🙄as Hurts blah blah ......
told him just get on with it as haven't time so they're done flip it hurt .. No wonder they said anesthetic Anyway scAn looks ok and nothing noted but need rule out any changes in womb
I was like oh just do it he was like are you sure 😳😳😳 i said well you in there now 😂😂😂 nurse was like Suzanne are you sure I was like yeah 🙋🙋 then I was like 😩😩😩😩😱😱😱 😂...
Discussed hrt Consultant Said I could go back on estelle diet combi but I stated tibilone is better ? Libido etc he was great tbh
Understanding didn't rush me and stated could add in testosterone if required after 3 months on tibilone but I could go back to estelle duet if I wanted
Went through ( as they do med history )
Colin cancer very predominant in maternal mothers grandmother ( biological fam as I'm adopted )
So in all positive day hoping results biopsies are ok
Goodness me though I've eaten sooo much chocolate again tonight 😁🙄
If I could vanish these headaches in a morning I'd be so much happier
Xxxxx
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I'm glad you've been given the all clear and you are very brave getting all that done without an anaesthetic.
I didn't know you could take testosterone as well as Tibolone, this is good news if you can as it sounds like the perfect cocktail for me.
So do you think the Tibolone is responsible for the headaches and the chocolate cravings?
Or, if you stopped eating chocolate the headaches might subside too?
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Blakeygrey thank you 💗
He was more than keen to try testosterone added in with either tibilone or estelle duet
When I said to testosterone being sometimes sort of taboo ( he did asks how I knew) I told him about these forums and all support he said that's was great to get such support as clearly it helps make decisions
He has put In the Drs letter to start testosterone if required 😉
So they cant refuse
Honestly I was impressed with the service start to finish
Felt more empowered with my list of questions due to support on here
Re headaches 🙄 Woke again today goodness me feel like been drinking all night ( I don't really drink either )
Chocolate no I'm sure it's the tibilone but I'm not moaning as it passes after 3-4 hours but goodness me it's awful ... I get migraines but this is much worse so hoping that to will settle
So there you go X
I find this so supportive X
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I'm getting headaches every morning and evening since I increased my blob of Testim
Maybe it's a T thing ? X
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Hi Suzanne. So glad it went well for you yesterday.
The update from me is that yesterday, day 9, I felt so much better and really calm so I thought I had got through the worst. However, I thought wrong! Today my anxiety has been through the roof and I had bad chest pains and couldn't breathe so my work colleagues insisted on taking me to A & E! I was there for 3 hours and they did several ecg's and some blood tests.
To cut a long story short the blood tests and ecg's were fine and my blood pressure is normal. They said I've got costochondritis which is inflammation of the cartilage between each rib, which is causing the chest and arm pain! I think I must have had a panic attack which is why I felt like I couldn't breathe. I'm feeling really stupid and still feel really tense! Has anyone else had heightened anxiety when they started on tibolone?
Thankfully I'm seeing the gynaecologist on Monday, which is also my birthday, so I really hope I feel better by then!
Hope you are having a good day Suzanne and thanks to you and the other ladies for your advice and support. It's nice to have someone to talk to about it ☺xx
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Suzanne,
Good news :), brave you getting the biopsy done.
Jules,
I've had the odd muscle twinge in my shoulder and chest, bit like I've pulled/strained a muscle. If I relaxed and massage the area it passes in a few minutes. It's defiantly muscular and reminds me of the time I pulled my intercostal muscle once, but much shorter lived.
Re anxiety I had a few episodes of anxiety at night, but I also had some before starting Tibilone, so don't think it's a cause for me.
Hang in there.
Should we start the Tibilone Tribe? :ola:
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Jules53 😩 Nightmare ! However .....
Positive you had ECG cardiac bloods blood pressure MOT and all good 😉😘
Good luck with gynae on Monday keep us posted
I wrote a list took it in with me it was like he was on mastermind all the 's I was asking 😂😂
Keep focused 😉
I've had loads of energy this afternoon 2-3 hours of feeling like a real person .. Whoop whoop 🙋🙋
But headaches resurfaced 🤔
And I've not had chocolate but could eat the whole of Thorntons choc shops 😂🙄
Anxiety im keeping a lid on it
Nausea gone
Sweats ummm still surfacing catching me out 😡
Memory fog brain etc still variable 🤔
Sooze ! 🙋
Good idea the tibilone tribe !
Keep going ladies 👯👯👯👯
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Hi ladies. Thanks so much for your responses. Apologies that I didn't reply yesterday but I have been in Manchester visiting my daughter. I still felt quite tense as we went to the Christmas markets and it was really crowded but I got through it with deep breathing and quite enjoyed it.
I suffered with anxiety when I started peri about 8 years ago but managed to get it under control and only started suffering from it again before I went on Tibolone. Have you ladies found that it eventually helped with anxiety? I'mean on day 11 of half a 2.5mg tablet so I'm hoping my hormones will level out!😨
Sooze - The Tibolone Tribe is a good name!😁
Suzanne 1967 - good idea about the list to take to my appointment. I'll let you know how it goes tomorrow. Hope yxou ladies are having a good day 😙 xx
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I was at the Christmas markets yesterday too, it was so cold!
My anxiety lifted about 2-3 weeks after taking 1/2 Tibolone per day. It just cleared and I felt really calm but had great energy. Fingers crossed it helps you soon.
X
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Haha re the Tibolone Tribe! We used to have the Utrogestan Gang a few years ago when there were only a few of us on it but now fortunately it is common!
I'd be interested to read the risk profile for this in the over 60's. I know there is a possibility of endometrial thickening with long term use but wondered about other potential risks. A friend of mine was on it until her mid 60's I do know - but can't remember why she stopped - probably was asked to by her doc!
Hurdity x
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Thanks for your reply Otes 73 and what a coincidence we were both at the market! I agree it was absolutely freezing but, thankfully it was lovely and sunny☺. Thanks so much for the reassurance about your anxiety lifting! It will be 2 weeks next Wednesday since I taking it so fingers crossed! I have felt much calmer this afternoon so, hopefully that's a sign of things to come! Will keep you posted.
A quick question ladies - how is your tolerance to alcohol on Tibolone ladies? I don't drink a lot but I had a couple of drinks last night and felt rubbish this morning xx
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Now its funny you should ask this question, I was going to mention it in my weekly post tomorrow.
I had a glass of white wine yesterday and sweet Jesus :o the room was spinning and I couldn't close my eyes without feeling as if I was on the big one at Blackpool.
I've had half a glass of red with today's Sunday dinner and I'm ok.
So that's white wine on the contraband list - won't do me any harm I suppose :)
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Take a look at my diary - white wine/prosecco a definite no go. Not feeling more drunk, but hangover symptoms. First time I woke at 3am feeling very dodgy.
More tolerant to red wine but still less than before Tibilone.
Had to cut my evening espresso too BTW
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Thanks ladies, that's interesting to hear. I thought I would have the weakest drink I like, Martini and lemonade so had a couple of those. The mistake I made was having a glass of Rose as well and that's probably what did it!
My usual tipple is Bacardi so I don't know whether I'll be able to drink it whilst I'm taking Tibolone😢. I also like Prosecco and it sounds like that's a no no too😣
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1) Yes I'm assuming so, hysterectomy 14 yrs ago. Ovaries still intact.
2) I'm taking 2.5mg once a day.
3) I had the white after food. Now, I also remember that I had a couple of glasses of Asti with no ill effects but I would have been in the first week of taking Tibolone. I'll try it with Proseco at the weekend ;)
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I turned 50 in March, 2.5mg from day and yes I'm looking forward to the proseco or possibly Asti too :)
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Hi Meno male. I am 53 (today!) and haven't had a period for a year, so just in menopause.
I went to see the gynaecologist today and told him I was only taking half a tablet at lunchtime and by the morning the anxiety/tension is back. He has told me to take half in the morning and half at night. It's still quite bad today so I'm going to give that a go. Will keep you posted X
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Happy birthday 🎉 Jules ! X
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Hi all
Happy birthday jules 🙋🎂🍾...
Glad all went ok at gynae
Memo I'm 49 on 2-5mgs
I'm feeling a bit better I think 🤔
Headaches intermittent
Anxiety gone
Sleep much much improved 😉
Eating like a horse though 🙄
Libido zero
Fog brain still there 😁
Bursts of energy then wrecked
Aches pain intermittent
Having very weird vivid dreams ( nightmares )
One thing must state though my contact lenses very very dry and my soft seems to have deteriorated ? Odd ! But very dry eyes
Feel on the whole much better ... Slowly but surely X
Feeling very Positive 🤗
Waiting for biopsies results 🙄
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Meno
Hello 🤗 ...
I don't know what I am 😂😂 honest I don't .......
.........think I'm post menapausal
No bleeding 4 years ( been ) on combined hrt 5 years then boom bleeding 🙄
So stooped two weeks urgent scan biopsies back on tibilone day 16
Got told off go I was Peri @ 37 .. But persevered 37-44 suffering 😏 If only I had this Group discussion forum then I wouldn't have suffered as much !
Onwards and upwards I so try to be positive
I've so struggled on tibilone since starting but hoping coming out other side now
She says trying this feeling like my thermostat hyst been turned up on full 😮 Where did that come from !
Love to all you amazing ladies 💜💗💋🙋
Ps how do I start new topic ? I've forgot 😂 Memory 🙄🙄
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Suzanne - I can't remember whether they have tested your thyroid function lately????
Pleased things are settling - it can take time and if you have had hormone problems for some time then it could take the body longer to adjust. Many ladies feel good on Tibolone so I believe it is worth your while persevering fro at least 3 months. Dg x
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Thanks for the birthday wishes. Unfortunately I felt quite tense most of the day but managed to get through it! Have started taking half a tablet last thing at night and took half this morning and I am feeling less tense today, so I hope this is the start of a big improvement!
Suzanne, it's great news that you are starting to feel much better on Tibolone. It's really reassuring as I'm a few days behind you so it gives me hope☺. Please keep sharing. Thanks! Take care ladies x x
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I'm stalking all you Tibolone Tribers!!! Lol!!!! ;D
Wishing all of you well with this, I may be joining you in the not too distant future!
:hug:
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I'm finding this topic really helpful too. It's reassuring to hear success stories x
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Well if you do, I hope it works for you. I still can't believe that the hot flushes and sweats have gone.
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Hello TT 😉 Tibilone Tribe
Well not a bad day at all 🤗
Just quick post before I go to sleep
Actually felt ummmm normal today for several hours .. Not anxious not agitated not fallng out with myself 😂😂
Managed to achieve several small things on my very long to do list 🙋
Sickness come back a bit tonight 🙄 And tired but think I'm doing ok
Am so positive ! And so greatful for all your support ! 💜🙋💗🤗...
I'm still ditsy and fog brain concentration rubbish but small steps day by day !
Oh this will make you laugh 🙄🤔😋... Nearly cleaned my teeth with the Estroil cream 😂😂😂...
Xxx night all keep plodding ! 😘
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Hi TT
A quick update from me on day 15 of Tibolone. Well, what a difference today! I feel so calm and the anxiety seems to have all but disappeared! A couple of stressful moments at work when I noticed it briefly but other than that I have felt so much better 😃! I'm still having 2-3 hot flushes a day but I can cope with that and it's still early days.
By far the worst symptom of peri and menopause for me has been the anxiety and it is definitely starting to make a difference, so I really hope it continues. I haven't noticed any weight gain yet and I am still trying to watch what I eat!
I hope you ladies are all doing well xx
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It's good to hear of the small changes and improvements.
Happy for all of us :)
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Good evening TT
oh my what a day !
Raging lunatic today ! 😜😳🤔😋 what's going on ?
Day 19 tibilone 2.5 phew beeen going ok then today ....😡😰😖🤔😳😟😤😴 what's going on ???
Have been like a mad woman 30 seconds agitated 2 mins angry 2 mins hot flushes
Palpitations nauseous ... thus has been allday changing min by min 😩😩😩.....
so exhausted aches and pains feel like hit by a truck 😮...
Phew !
Hoping tomorrow a better day !!!
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Suzanne - it doesn't sound to me as though your mood swings are down to the Tibolone. I do wonder if you are still getting some of your own hormones kicking in??? I can't remember whether you have had your thyroid function checked recently?
Did this anxiety and low mood start when you became menopausal? Have you previously had episodes of anxiety before?
I know some find that beta blockers can help with palpitations - it seems to me you are swinging so wildly at the moment and maybe you need something alongside the HRT to help control things. DG x
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Sorry to hear yesterday was a bad day for you Suzanne and I really hope things have been better for you today?
Well, it's day 17 for me and things have gone back down 😠. It's been stressful at work today and I also ache all over and feel like I've been hit by a bus! When my anxiety was bad at the beginning of peri I used to feel like this and it was because I was tensing my muscles up so I think this is what this is and probably nothing to do with the Tibolone. As I have had some good days as well on it I am hopeful that as time goes on, it will start to get rid of the tension. It's early days yet and I know I have to give it 3 months for my hormones to level out.
Hope it's going well for everyone xx
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Hi Suzanne 1967. Just wondered how you are doing?
I have had more good days than bad, which is great and the hot flushes are getting less😊. Today is quite a stressful day at work so I'might feeling quite shaky and a bit tearful but that is down to circumstances rather than the Tibolone I'm sure. Any feedback on Tibolone would be greally appreciated. Thank you xx
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Hello :P
Ummm well 💗... up and down ladies
I've really not had the best few days 😖
Sleep rubbish can't get off to sleep
Hot flushes appear at night 🙄 Not every night but most
Just generally feel rubbish past couple of days and soooo tired ! & achy ...
Libido zero
Was like phew 🤗.. this is going to Be great but now getting a bit disillusioned !
Keep kicking myself up the backside 😉
Xx 💗💗💗 hope you doing ok all you awesome ladies out there 🙋💗😘
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Hi Suzanne. Sorry to hear you haven't had the best few days. Yesterday I really thought I had come out the other side but stressful situations at work have undone all of that today!😢
I think my hormone levels were fighting back at the stress and my body feels so tense and achy. 😣
My gynaecologist said to stick with Tibolone for 3 months and on the good days I've had, I've had some real moments of hope. I'm now taking a whole tablet in the morning with breakfast. My sleep has been mostly ok but I woke up at 3 am this morning and couldn't get back to sleep so started the day feeling exhausted. Like you, my libido is zero! I'd be interested to hear from other people how long this has taken to return 😀.
I know what you mean about having to keep kicking yourself up the backside! Sending you some positive vibes Suzanne❤💚💛 and hoping things improve for you very soon Xx
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Jules 🙋💗
I could have wrote that status ! 😬😳
It's rubbish eh ... but step by step my moods rather irrational tonight 😩😬.. all in five mins
Agitated tearful sad hot no concentration. Mind flitting and Generally rubbish
Feel like a slug 😂😂 not that I know what a slug feels like ....
Mwahhhhhhhh tomorrow's another day !
Can fall out with myself quite easily at mo 🙄🙄😳
Night all x keep focused jules 😘😘💗❤️💜💗
Off to bed now !
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Thanks Suzanne! Hope you'very had a much better day today?
A quick update from me - the anxiety has been much better but the aches and pains were a lot worse today😠😢!
It felt like I had pulled a muscle in my neck when I woke up but it got worse over the day and I have had a burning pain between my shoulder blades and the pain radiates down my arms and across my shoulders. I feel like I've been hit by a bus 🚃! Can this be from the Tibolone I wonder?🙆
Anyway I hope this gets better over the next few days as it's making me feel miserable. Hope you are doing OK today Suzanne💜💛x
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Jules53 - unlikely to be the Tibolone. I get this type of pain and it's usually tension or I've been in a cold draught. It's worth having a session with a physio to have a look at posture - many of us don't sit or stand well and some tips about this can be really helpful. Some Yoga or Pilates can really help with shoulder and back tension. DG x
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Thanks Dancing Girl. The pains had completely disappeared the following day☺! I had a really good day yesterday but I'm not feeling so great today as I had a couple of drinks last night! Only 2 Martini and lemonades as that's the weakest drink I have, but I guess my body isn'the going to tolerate alcohol well on Tibolone! Does anyone else find this? I feel like I have bad indigestion today after those 2 drinks😠.
Suzanne 1967 how are you doing? Better I hope! Thanks for the feedback Dancinggirl xx
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Hi Jules, I'm on Tibolone too, coming up to week 4 and yes I've found that my reaction to white wine was extreme. I'd barely finished the glass and the room was spinning.
Still, I see it as a positive as it'll help keep the weight off and it's a price worth paying as my sweats, chills, aches and pains have gone.
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I wonder if it's something to do with T ?
Since meno I'm a complete lightweight and can usually only handle a couple and last night we had a Baileys at home, only a small one and my god I felt like I'd had the bottle lol
I put a link on a Tibolone thread today, they do 5mg pills too and ladies are taking a 2.5 plus half of other if their symptoms start returning, always good to know I guess x
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I wonder if it's something to do with T ?
Since meno I'm a complete lightweight and can usually only handle a couple and last night we had a Baileys at home, only a small one and my god I felt like I'd had the bottle lol
I put a link on a Tibolone thread today, they do 5mg pills too and ladies are taking a 2.5 plus half of other if their symptoms start returning, always good to know I guess x
Yes I've just read it, what an excellent find; I didn't know a double strength version was available, I think that's what I need to give me the reaction I want.
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Jules 🙋Hi
And all the TT crowd 🤗
Phew awful few days
Today was the worst ever 🤔
Headache +++
Aches and pains 😩 Hit by a bus ummm felt like hit by a 🚉🚝🚚🚎🚌😩 been like this has been the past few days hence not posting 😳...
Honestly I'm Day 26 and I'm thinking i thought I'd feel better then 💥💥wham I feel awful ! 😩...
Honestly simple things ... trying to juggle life ! Today honestly I had to really concentrate to make my sons packed lunch grandma( she's staying with me at mi as poorly ) a cup of tea and let the dog out 😬 I ended up laughing at Myself I'm like goodness me what's going on ! 🙄🙄
I'm just so rubbish 😳
I'm just sooooo not with it ! I was thinking today that my headache was so bad that maybe I should keep a diary maybe it's a hormone RUSH !
Libido is zero still ! My hot flushes have come back too from nowhere x
🤔🤔 oh happy days !
Tomorrow's another day onwards and hormones !!! 😘😘
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Suzanne1967 - you sound totally overwhelmed. I really don't think it's the Tibilone causing your problems and I don't think it's going to solve everything for you either. I think you need to adjust your lifestyle a bit. I'm can't remember whether you go out to work or not but you clearly have quite a hectic life and I'm afraid when meno hits many of us find we need to pace things more - relaxation is the key and really planning the day so you don't take on too much and then feel overwhelmed.
It is still early days and no HRT is going to be a quick fix - the Tibolone is simply one part of a range to strategies to keep everything on an even keel.
The weather has been mild over the last few days and my flushes have been awful - I've also had a headache - viruses flying around at the moment ??!!
I expect your headache is tension related - you sound so stressed out.
Deep breathes, shoulders down, get some fresh air and make sure you get at least 30 mins each day to lie down calmly and meditate. DG x
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Hi everyone in the TT🙋
Day 24 for me today. Hot flushes have all but disappeared and my aches and pains are definitely better😀. The only thing I'm still suffering with is the tension/anxiety. I agree with Dancinggirl about taking deep breaths and taking time to meditate. I did some meditation and it definitely improved the tension! My libido has still disappeared though😢.
Hope you are all doing OK ladies and that things are getting better for you Suzanne?💚💜xx
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HI JULES 53 and all other members in this group.
I have been following you girls regularly. I am perimenopause and been on AD which did not help me. I will going to menopause clinic in Sydney tomorrow. I really want them to prescribe me some HRT form. Do you girls think it is worth taking Tibilone? I am 45 with periods still a bit of irregular in a way. My biggest problems are anxiety, foggy mind, low libido, body aches, headaches though no night sweats. Hard to sleep more than 4-5 hours. I am trying to do pilates and meditation and yoga as part of it. I really feel blessed to read all this from you girls sitting in this part of world but reading makes me feel a little secure.
thanks girls for being bothered to share.
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Pam Madra - I'm afraid Tibolone won't be prescribed in peri meno - you have to be post meno or have treatment to block your own hormones. Why not ask for something like Femoston 1/10 - this has a kinder progesterone and suits many women very well. The alternative would be to have a Mirena fitted (really helps with sleep) and then have oestrogen as patch or gel alongside. DG x
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Hello Ladies.
I am post meno and using Evorel Conti 50 mcg patches atm but I'm thinking of trying something else and I've been reading this thread with interest.
Pam Madra - it's good to know that the sisterhood spreads far and wide! I hope your appointment goes well and please keep us updated. P. S. My husband and son went to Sydney in 2012 for the British Lions rugby tour and really enjoyed the city.
Take care.
K.
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Hi Pam Madra - this thread might interest you:
http://www.menopausematters.co.uk/forum/index.php'topic=31868.0
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Hi Pam Madra
Good luck and do let us know how you get on after your appointment! :)
Hurdity x
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Hello all TT clan 😉
Dancing girl I do mindfulness daily and at night been Doing that 6 months 😬
Lifestyle is very hard ☹️ My son is 24/7 Care long long story and rather not put on here
I own a care home
Hubby had triple bypass 4 years ago
I had neurology surgery 18 months ago 🙄 And need instrumentation in lower spine but can't be laid in hosp as too busy caring for son
Mum also elderly and look after her
Anyway I could write a book Drs ask me how I'm still stood up 🤔 But I'm a tough cookie ... but just need to feel better 😩
Anyway today's not been too bad but I can say that now as laid flat in bed 😉 And can rest
Anyway you ladies help me so much 🙋💗
Just quick ? Should I go get my hormone levels done ? Day 27 today of tibilone
Love to all you ladies 🙋💋
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Hi All. I went to menopause clinic today and was given option to try out another AD or half a tablet tibilone as there is research going on using it peri menopause women with anxiety as issue. I am not sure but may be I will have a go and see what happens over next month.
I am little confused
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Suzanne1967 - The outline of your life you have just given sounds enormously stressful - I am not in the least surprised your are struggling. The repercussions of this lifestyle over many years, then adding in menopausal symptoms, will naturally take it's toll. What you really need is some good practical help to relieve your stressful situation - you need more time to look after yourself. Whether it is possible to get this help, I suspect, will be very challenging but it really sounds to me as though you are carrying far too much on your shoulders. It's often the toughest people, who are pragmatic and resourceful, that end up needing more help, possibly because they are reluctant to seek or accept help. You are accepting our support so this is great - I just wonder what else you might be able to do to relieve things, even in the short term, to give yourself the time to get back on track?
It is far too easy to get into a cycle that is difficult to break - I know this only too well. I have a son with Special Needs and have faced quite a few challenges through my life that put me close to the edge - I have learned that I can't be all things to all people and now say “NO†to a lot of things.
Look at your priorities - your health and welling must be at the top of this list. I firmly believe you are on the right road but there won't be any quick fixes and somehow you need to have space and time to let your mind and body recover from all that has been thrown at you.
I hope this hasn't sounded patronising but I had counselling for a year back in my 30s which I found really beneficial - this made me really take stock and changed how I do things in a very positive way - I was taking far too much responsibility on myself, to the detriment of my physical and mental health and to the detriment of my close family and friends. Please, please take care of yourself. DG :hug: xxx
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thanks girls I have been following you all. We all have a package of burdens to carry on. thanks for brave words dancinggirl. Suzanne 1967 how are you going with tibolone. Please update.
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Dancing girl 🙋😘💗
thank you I know it all but don't take heed I'm a do as I say not as I do 😬
I honestly think I'm wonder woman but feel like blunder woman 🤔🙄
I'm day 32 I think today and ummmm how do I feel 🤔
Hot flushes have come back at night ...😳😱 is this normal ? I'd got completely rid of them on Estelle duet am I still producing hormones ? Oh I'm confused 😝
Headaches intermittent
Sleep little better
Anxiety much improved
Eating like a pig 😬
Craving chocolate I don't like chocolate 😂
Concentration v v v poor
Executive function poor
Fog brain
Poor memory
Was reading on another thread where someone said list inner happiness and peace that's me ! Has been For years and I'm sure all down to menopause 😡
I'm doing lots of mindfulness that's good ladies calm ap ! Try it 😉
I am getting the odd flutter in my chest I've never had like I'm skipping a beat or an extra beat and it's quite prominent
Libido 😩 Nil grrrrrrr😡
going to continue tibilone for 3 months then maybe add in the testosterone gel as per consultant stated ? Any views
Should I still use the estriol PC cream twice a week ?
Energy levelheaded variable feel like a yo yo !
Not had my biopsies back yet x
So ladies there ya go my little update 🙋🙋😘😘😘
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Gosh! All that at this time of year too. I hope it all turns around for you.
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Hi Blakegray. If I am not wrong you took tibolone and I was interested in knowing how you went it so far. Please update.
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Suzanne1967 - thank you for the update.
I still don't think the Tibolone is completely responsible for your slight side effects. All treatments are a balance of benefits versus side effects - if you are getting some improvements then that is great. The flushes at night are a mystery - could be slight virus???? A lot of low grade viruses flying around right now.
As I mentioned before, the libido requires you to feel good about yourself - a bit of pampering, a new outfit, some quiet cuddle time on the sofa with hubby.
When did you last do something frivolous and fun?
DG x
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I am really interested in you all girls Blakegray, Suzzane19767, Osteo, Jules 53 how tibolone is going for you all. Though I know I am perimeopause and there is little data on how it helps during this phase of time. Please keep posted about your progress girls as I am following your day by day progress. I just one week into it yet.