Menopause Matters Forum
Menopause Discussion => Personal Experiences => Topic started by: Annie0710 on October 12, 2016, 10:15:22 AM
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I'm starting this thread as by hook or by crook I WILL get to try testosterone
So to begin with my only update is that my nice GP left a voicemail for me today asking to book a phone appt with her, she said on the voicemail that she's had a response from the NHS gynaecologist. Given that I've not received an appt with them but they've contacted her tells me it'll be a NO, and that's me being realistic not pessimistic
Anything to do with my fight for T I'll post on here to help other ladies who are trying to get their hormones balanced x
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How soon will you get the appt.?
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Awww I hope not maybe they have just said to gp to give you it to try and see how you get on 🤔 Fingers crossed it will be good news xx
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Could be Keepgoing, obviously that'd be the best outcome ever but a gynae there told me last year there's nothing they can do to help with this '2nd menopause' of mine, as I've been on oestrogen since my hysterectomy in 1999, appalling really when I think back to the list of symptoms I handed him, knowing what I know now, they were the same symptoms as T deficiency
GP will either call me back this afternoon or Friday as she's not in tomorrow x
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we'll blow me down and knock me over with a feather !
Lovely GP just rang, there's a new female gynaecologist at the hospital who she consulted and said her gut feeling is to try Tibolone, but GP put my previous concerns about that to her so she said she'll recommend Testim off licence and lovely GP said she'll get the prescription ready at the pharmacy!
I'm so happy!! This may be/not the missing link to my menopause misery but the chance to at least try is unbelievable !
Thank you everyone who has educated me and put your symptoms to make me realise I'm not alone and that there might be an answer for me and given me the kick to fight for a trial
Annie 🍾 Xx
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You will let us know how you get on?
Do you feel deflated ;D
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Fantastic news! Well done for having the strength to persist in trialling it! :) Xx
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You will let us know how you get on?
Do you feel deflated ;D
Deflated ?
Something Hurdity wrote yesterday on someone's post hit me. Something about it's not fair to spend the rest of their life laying on a sofa wiping away their flushes. Well I've never had flushes but the no energy laying on the sofa really hit home. I've spent 45-49 lifeless and now I've hit 50 I'm determined to get my life back x
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Fantastic news! Well done for having the strength to persist in trialling it! :) Xx
Thankyou MadBloss, I'll use this thread to keep ladies updated once I've started x
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That's brilliant news Annie. Hope your journey is like mine. I am on tostran tho and it's double the strength of testim and I was a bit wary but it's working for me, so just incase your journey is a bit slower don't worry cause it should build up nicely and work. Keep us posted xxx
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Thank you so much Keepgoing, I think between reading yours and Hurditys posts it's really got me inspired
GP said "now please be aware that the specialist said your voice could deepen and you could grow facial hair" I said I promised to use the correct amount and will always be honest with side effects or indeed my progress if there's any. This could be the start of a new trend in our town thanks to this sweet GP x
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So my GP *was* correct!
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Great news Annie, here's to the new and revitalised you!
Now all I need do is persuade my gynae at my Oct 25th appt to let me try it. Hmm, I'll not give up though, especially as I know it can be prescribed.
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CLKD I don't understand your comments on this 🤔🤔 xx
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So my GP *was* correct!
That's only if used in high doses
That's why I said to her don't worry I'll take the pea size dose
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Great news Annie, here's to the new and revitalised you!
Now all I need do is persuade my gynae at my Oct 25th appt to let me try it. Hmm, I'll not give up though, especially as I know it can be prescribed.
NICE guidelines say to consider T for no/low libido but to be honest as much as that upsets me it's the other host of symptoms, the weak muscles, low sense of wellbeing, hair loss, anxiety etc
Fight your case telling them about the forum and how other gynaes are recognising that women really need this hormone
I really hope you get results x
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:congrats: Annie0710 it's so nice to hear when things are going the right way! hope it does work for you!
Beginning to think NICE guidelines need updating with new information coming in and they should use sites like MM to gather 1st hand information
I'm very happy for you!
xxx
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:congrats: Annie0710 it's so nice to hear when things are going the right way! hope it does work for you!
Beginning to think NICE guidelines need updating with new information coming in and they should use sites like MM to gather 1st hand information
I'm very happy for you!
xxx
Thankyou !
So hoping this works and is the missing link x
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Hi Annie0710
So pleased to read that you have been prescribed Testim off license do keep us updated on how things go.
Just for information what were your concerns re Tibolone as I have been thinking of changing to this as there is no way my GP would prescribe anything off license ☹
Currently using Oestrogel and Utrogestan which has stopped the hot flushes, still get the occasional night sweat but nowhere near as bad as they were but just feel like something is missing !!!!!!
Lanzalover x
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Hi Annie0710
So pleased to read that you have been prescribed Testim off license do keep us updated on how things go.
Just for information what were your concerns re Tibolone as I have been thinking of changing to this as there is no way my GP would prescribe anything off license ☹
Currently using Oestrogel and Utrogestan which has stopped the hot flushes, still get the occasional night sweat but nowhere near as bad as they were but just feel like something is missing !!!!!!
Lanzalover x
That's exactly how I was feeling Lanzalover
My concerns were 2 reasonably spoke about side effects:hairloss and weight gain
My hair is about 40% less than it was and since being post meno I'd gained @10llb - 1stone
Since my Spanish holiday end of sept I've lost 1/2 stone so really don't want to put it back on plus I can't afford to lose more hair
I've read many success stories of Tibolone on the internet but also wanted to say it was a gynae who told my GP to prescribe T,my GP was worried to without the say so of a specialist
We have to fight for these things and pick your most sympathetic GP, it was only the latest Urine infection that found me this GP, she's been at the surgery since 2012 and I had no idea x
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Hi Annie0710
Many thanks for the reply.
Need to give this one a bit more thought.
Wishing you all the best.
Lanzalover x
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Good luck Lanzalover. My next step would've been borrowing the money to go private but it's really not fair x
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ANNIE!!!!!! What wonderful news. I really hope this is the 'missing link' for you and I will be looking forward to reading your progress. Well done you on being persistent and not giving up. xxxxxx
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Hey Annie0710
That's fantastic news - the prescriptions are coming thick and fast - that's the second today - someone else just posted getting it from their GP. Maybe the NICE Guidelines are working and perhaps the GPs have listened to last week's news from Nick Panay and prepared to consider it!!!!
I do hope this will be what makes the difference to you :)
Do please go low and slow - as I have mentioned before Annie Evans said to me that it takes 4-5 months to feel the full effects - so don't be tempted to increase too soon! However great that Keepgoing has seen positive benefits already!
As a matter of interest where did they say you should apply it? There is likely to be hair growth at and around the application site but haven't noticed any (more) facial hair yet - but I am old anyway so there has been a bit of lip hair growth and the occasional below lip anyway. I can't actually work out if I am more downy on the face than before or not but I don't think so!
Anyway this is fantastic and look forward to hearing how you get on :). You should find that as your energy increase you can take more exercise and you should not then get muscle pains and aches after exercise (well obviously a bit if you are unused to it) but I got them all the time after my classes. The decrease in the muscle wastage that occurs with age will also mean that your metabolic rate will be raised ( if you take more exercise to regain your normal muscle strength) and this is an aid to maintaining body weight and if necessary to lose it. Benefits all round hopefully :)
Hurdity x :)
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ANNIE!!!!!! What wonderful news. I really hope this is the 'missing link' for you and I will be looking forward to reading your progress. Well done you on being persistent and not giving up. xxxxxx
Aw thankyou Tempest, bit of a shocker tbh. How are you ? It's so lovely you're still popping in bless you
I picked up my prescription, it was just the one tube but I'll see whether they can arrange more in a batch and I'll do the prepayment to save money
Rubbed a pea size blob on then fell asleep
X
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Hey Annie0710
That's fantastic news - the prescriptions are coming thick and fast - that's the second today - someone else just posted getting it from their GP. Maybe the NICE Guidelines are working and perhaps the GPs have listened to last week's news from Nick Panay and prepared to consider it!!!!
I do hope this will be what makes the difference to you :)
Do please go low and slow - as I have mentioned before Annie Evans said to me that it takes 4-5 months to feel the full effects - so don't be tempted to increase too soon! However great that Keepgoing has seen positive benefits already!
As a matter of interest where did they say you should apply it? There is likely to be hair growth at and around the application site but haven't noticed any (more) facial hair yet - but I am old anyway so there has been a bit of lip hair growth and the occasional below lip anyway. I can't actually work out if I am more downy on the face than before or not but I don't think so!
Anyway this is fantastic and look forward to hearing how you get on :). You should find that as your energy increase you can take more exercise and you should not then get muscle pains and aches after exercise (well obviously a bit if you are unused to it) but I got them all the time after my classes. The decrease in the muscle wastage that occurs with age will also mean that your metabolic rate will be raised ( if you take more exercise to regain your normal muscle strength) and this is an aid to maintaining body weight and if necessary to lose it. Benefits all round hopefully :)
Hurdity x :)
Thankyou Hurdity, I was hoping you'd see my post so I can thank you personally for info and updates
They told me abdomen, so I did tiny pea amount on there but I may move to thighs
I'm not expecting miracles as I've read carefully everything that's been posted by you and Keepgoing and others regarding potential recovery
I've lost some weight since my holiday and have noticed a figure back so will continue to get down to goal, I think I only need @ another 5llb but I want to feel slender again and look nice in my clothes
Really hoping this has an effect on my muscles, they weaken at such a quick rate, even walking from my office to my car can leave my legs feeling lead heavy and sometimes have to have a break from typing/filing so arms can recover
I'm hoping this fixes the night dry eye and I can wake being able to see and focus with no discomfort, I hope my hair thickens, and I really hope I start to have a more positive outlook and start socialising again
And I'm sure if my fiancé would be really honest he's hoping I'll be back to how I was in bed ! X
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It was the relief that made you take a wee snooze, I should think! ;)
I hope you get all the wonderful benefits that Hurdity describes. I hope to join you too eventually! Now if I can only get my measly estrogen levels up...... :o
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Aw I hope you do too Tempest
I don't know what to suggest, mine were low when I was age 32 but got sorted with hrt
What are they putting you on now ? X
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Great news Annie, here's to the new and revitalised you!
Now all I need do is persuade my gynae at my Oct 25th appt to let me try it. Hmm, I'll not give up though, especially as I know it can be prescribed.
NICE guidelines say to consider T for no/low libido but to be honest as much as that upsets me it's the other host of symptoms, the weak muscles, low sense of wellbeing, hair loss, anxiety etc
Fight your case telling them about the forum and how other gynaes are recognising that women really need this hormone
I really hope you get results x
Thank you Annie and I will do! Interesting what you said about weight gain and hair loss, I've experienced those and never thought about testosterone.
Tempest called it the " missing link", what a great description as yes, it does feel as though there is just a little bit of something required to complete the picture.
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Great news Annie, here's to the new and revitalised you!
Now all I need do is persuade my gynae at my Oct 25th appt to let me try it. Hmm, I'll not give up though, especially as I know it can be prescribed.
NICE guidelines say to consider T for no/low libido but to be honest as much as that upsets me it's the other host of symptoms, the weak muscles, low sense of wellbeing, hair loss, anxiety etc
Fight your case telling them about the forum and how other gynaes are recognising that women really need this hormone
I really hope you get results x
Thank you Annie and I will do! Interesting what you said about weight gain and hair loss, I've experienced those and never thought about testosterone.
Tempest called it the " missing link", what a great description as yes, it does feel as though there is just a little bit of something required to complete the picture.
I won't know for sure if this is the missing link but I was desperate to try in case
My ovaries failed when I was 32 and I experienced lots of meno symptoms, I was put on oestrogen and I felt great for years until I hit 45, docs said I was going through a '2nd 'natural''' menopause. It knocked me off my feet. For 4 years I've been saying to them that something's missing but no one GP listened. Then this summer a young meno nurse from our hospital joined and said it sounds like I need testosterone but no GP would prescribe it, that got me fighting. Then I had a urine infection and met this great GP, she sent me for a scan because she was worried about ovarian cancer, sonographer couldn't find my ovaries and reported back to GP that they've likely shrivelled and disintegrated , to me that strengthened my case as I am now relying on my adrenals
You must emphasise the no libido , it hasn't affected my relationship but it's majorly affected me x
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Thank you, Annie! I'm on Estrogel again. Trying to get up to 3 pumps, jittering at that level is crazy though so I'm sticking for a while longer at 2. No possibility of adding the T yet until at least January next year. Hey ho!! And well done on your weight loss, too! I'm thinking you should be able to maintain this as your energy levels should go up as Hurdity says - you'll be outrunning us all, you just wait and see! ;)
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Got my fingers and toes crossed for you Annie...right now having a wee bit of my strength back is a relief and encouraging to me that hopefully it can only get better...I don't care if it's 4 or 5 months before I'm back on top form it's just such a relief that it's working...as hurdity said mine is more concentrated so I'm putting less than a pea sized blob on ( how to say this politely) just along the top of my pubic triangle😜😂😂 as I apply 3 pumps of estrogel on my inner thighs and was told not to apply in the same area of estrogen in case it doesn't absorb...to be honest with 3 pumps of gel on my thighs not much room for anything else...can't wait to read more of your journey...good luck xxx
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I did my thigh this morning
What has surprised me is how watery the gel is. Very hard to measure a petis pois/pea amount
I desperately need stamina and strength. I work all day Mondays and Tuesdays. Wednesday's I have 8 month granddaughter from 12ish then take her to collect my 2 school grandchildren then have them all til@6ish then Thursdays I'm at my daughters @8am to babysit until lunchtime . All these days I'm shattered but still shattered on my days off
My daughters stepmother (nasty woman and she deserves my symptoms lol) is/has menopausal even has all 3 overnight ! Doesn't work but seems to be sailing through it plus she's 2 years older, really puts me to shame X
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I'm tired just reading this Annie 😂😂😂 xx
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I'm tired just reading this Annie 😂😂😂 xx
Tired me writing it lol
Even when I just worked Monday and Tuesday and didn't have babysitting I was shattered ! X
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When I asked for testosterone in the late 1980s my GP said that using it would lower my voice. When I mention that comment here, I get 'shouted' down :-\ …….
Annie - forget about those that think they are 'sailing' through …….. this is about YOU not what anyone might tell you ;-). Some people aren't good witnesses ……
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Been trying too! almost 4 months since ovary removal and hysterectdomy and nothing... Have asked for referral to Nick Panay
And my GP has asked my gynaecologist but there has been no progress!
will chase this week
Abby
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Let us know Abby!
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When I asked for testosterone in the late 1980s my GP said that using it would lower my voice. When I mention that comment here, I get 'shouted' down :-\ …….
Annie - forget about those that think they are 'sailing' through …….. this is about YOU not what anyone might tell you ;-). Some people aren't good witnesses ……
CLKD the lowering of voice etc is old fashioned advice (I'm sure) we naturally produce 1/10 of what a man produces therefore if we use 1/10 of what men are prescribed there shouldn't be a problem. Of course, there can be side effects but from what I've learned these are hair growth on application site and can be some facial growth, this is on correct dose. X
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Abby
This is awful! Especially as you have no ovaries. I think what swung it for me was that a recent scan showed my ovaries have disappeared (had hysterectomy years ago and blood supply to ovaries was damaged)
Don't give up, take facts/papers to them, I reeled off loads to my GP and she totally listened to what I was saying x
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I have tried and my GP I think is sympathetic, but the time this is taking is ridiculous. I have already suffered 5 years of peri menopause symptoms which led to the hysterectomy and ovary removal!
I will push/chase this week.. My gynaecologist I think is saying the same, off licence prescription
why oh why are we forced into this situation?
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I have to say I was gobsmacked that a gynae from hospital didn't want to see me but passed the prescription, I think I'm still in shock
This is not fair on you, you're relying on your adrenals to make these hormones and they'll be reduced without the ovaries
If you're not feeling like fighting have you thought about Tibolone ?
It's sad that going private is some women's only option 😢 X
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My doc agrees I probably *should* have it..
I dont' know much about Tibilone.. I will research...I prefer to go down the transdermal route...
Thanks so much. I'll keep you posted..
Abby
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Abby I would've tried Tibolone myself but a potential side effect is hair loss, and since being post meno my hair has thinned dramatically so I couldn't/wouldn't risk it. I'll be watching very carefully how T affects me
Lots of women say they had increased energy, libido and wellbeing in Tibolone
Your GP can prescribe testosterone , they just need to read up on it, they have the power to decide x
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That's not for me then as have already lost 80% of my hair, drastic thinning after ovary removal too.. my go said she had to ask the gynaecologist at hospital (who is not an HRT specialist) - and therr has been no further movement.. yes she can prescribe, off licence and mo it or as we all know.. she's fairly up for anything I've asked for so far, so I'm sure she will.. fingers xd.. feeling ok but yes tired and a bit down and hair plus the 10lb plus weight gain yes!
I'd love to just be me again.. thanks for all the advice
Abby xx
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You have all the symptoms I have
I gained 10llbs-stone
I lost my appetite whilst on holiday so chose starters for main and I've kept it going and in just a few weeks gone from 10st to 9st5llb
I'm determined to get down to 9st 'ish now and keep it off
My sympathies go to you re hair thinning, it's really sapped the last bit of confidence out of me xxx
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it's all around my middle!
classic 'middle aged spread' but I'm doing my best to exercise and eat well...
:( does Testosterone affect all of this?
Abby
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Yes Abby it does
When the meno nurse first said she's reckons I'd benefit from T I quickly looked up the symptoms, from what I remember they are:
Hair loss
Weight gain (particularly tummy area)
Anxiety
Low mood
Low sense of wellbeing
Muscle loss
Low/loss of libido (reduced or less intense orgasms)
Fatigue
Oh there's more but I can't remember them, I also have started with stiff joints, dry eye through the night (Keepgoing reported this has eased for her since starting T)
I've been on oestrogen for years and felt great until 4 years ago so I knew something was missing, I'm pretty sure I've ruled out everything else, double vision started 2 years ago and so that threw me off track with thinking meno and neurologist thought I might have Myasthenia Gravis because of vision and muscle weakness but I haven't presented (thank god) with any further problems relating to it
I still don't know if T is my answer, but the chance to see means everything x
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That's me, that is! In a nutshell. ;D ;D ;D
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That's me, that is! In a nutshell. ;D ;D ;D
It's horrid isn't it Tempest?
I said in the week to my daughter that hopefully I'll be running around soon, she said not to pin my hopes too high, but I need my energy and everything else back, my house is a tip and it really gets me down x
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I know what you're saying, Annie! Just about managed to drag the hoover over the downstairs and stairs today, and did the dusting yesterday. It now takes me all week to do the housework instead of tearing through in a couple of hours!
I'm very encouraged by keepgoing's progress - I'm so glad it's making a difference for her! I'm sure this WILL be you soon! xxxxx
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Keepgoing is doing amazing ! Even her trip to the cinema got me smiling :-)
I want to be out enjoying social events too
We will get there Tempest, our journies will be different and higher mountains to climb than each other, but we must reach that goal of sanity, calm and happiness x
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yes!
1 stone gain - from being slim fit active and happy
mainly on belly, I look like a cartoon, slim legs and arm and weird fat deposit around middle!
80% hair loss. From 2011-2014 gradual but noticeable and since Ovary removal drastic! have almost nothing left :(
anxiety
low mood
loss of libido - broke up with partner because of all above
low energy to exercise, tire on exertion (where previously was super fit and toned)
muscle to fat ratio different.. Am Mr Blobby!
Am so tired of going to Doc with same symptoms and worry.. have been through: fibroids, hysterectomy, anemia, thyroid problems, ovary removal and sporadic depression so bad I have considered suicide.
Loss of self
Want to hibernate all time and am embarrassed to be with people feel old ugly and past it
So, hope that T can alleviate some of these symptoms have really struggled.. :(
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Dear Annie and Abby! I want to send both of you a very big hug! I know, Annie - I smiled too when I read about Keepgoing going to the cinema. That's exactly the kind of things I want to be able to do spontaneously again. We will, we MUST get there!!
Abby - I can relate exactly to what you're saying! This is my experience totally since my oopherectomy. I'm so ashamed of the belly - that's where all my weight is too and I was slim before! It's a 10lb weight gain for me too, despite eating extremely healthily. This is also why, whatever I'm told, that I REFUSE to believe deep down that any of this is anything other than hormonal. I NEVER had anxiety before! Now it's a huge beast that controls my life. Yes, I used to get anxious about things as all people do, but this is just total random terror!
Why on earth this isn't being officially recognised as a symptom of either total ovarian failure or surgical menopause, I have no idea. It's not something we have any control over, for heaven's sake and God knows I've tried. Even the Psychiatrist i see thinks it IS related to loss of hormones and this is why he refuses to force drugs on me apart from offering the odd diazepam for relief until my hormones have been restored as best as they can be.
The fight for our wellbeing and sanity continues, ladies........It's wonderful that at least we have this place to meet up and share our experiences and support each other. xxxx
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Ladies, as well as the anxiety (I never suffered either before meno or pmt, ever) do you both struggle to cope with stress ? I find I distance myself if anyone is having problems as I can't cope with anything negative around me, whereas before this I was considered a good listener
So much of me has gone hidden x
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Thank you both so much for posting this! it makes me feel like I'm not alone and going mad!
I just want to be in a place taking hormones where I dont' feel like I"m pregnant! (except without the glow!) I feel fat, unnattractive and awful and like 52 is too young to feel my life as a woman is over!
I will update as I get some news from chelsea and westminster and Dr Panay and his team. Got letter through on Friday just have to ring and make appointment!
Abby
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Aw Abby I feel sure you'll get help from nick Panay. Good luck and yes keep us updated xx
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Absolutely, Annie! I've shut myself away from so much because of this. Before, I was a Certified Accountant and I can't imagine being able to deal with a job like that now. Also, I never used to think twice about communicating with anyone on any level. I even get in a state when my dear brother comes to visit from Wales. He is lovely and an extremely intelligent man and we used to have such in depth and fascinating conversations. Now, it's like I've even lost my confidence to do that. My brain feels so slow, like it can't keep up and I feel totally inept. :(
I feel exactly the same at 47, Abby! I'm so, so glad that you are going to be in excellent hands with Dr. Panay. Thank goodness he is an advovate for the use of Testosterone - if anyone can have you feeling well again, it is he.
I just want to also bring up Patsy Kensit. Do any of you remember when the poor lassie was on This Morning and she was slated as being drunk and it turned out she had been overdosed on Estrogen? She had a terrible time! I recall she was awfully bloated and even slurring her words a bit. She also had the 'hundred yard stare', which I've experienced when I've overdone it - she looked demented. Now it's a totally different story and I read recently since she is balanced that she feels like 'she has been given another bite of the apple'. She looks great, too! She did admit at one point that her Consultant took her Testosterone away for a little while because she was too fond if it! He told her to use the size of a pea, but she said she was using the size of a brussel sprout! God love her. :)
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Aww thank you Annie and tempest I thourghly enjoyed my trip to the cinema and I'm glad it gave yous a wee smile. I am still feeling good, a wee bit tired at the mo cause period due in 2 days but I can honestly say my head space is much more peaceful and I feel confident in the things I am tackling again. It is all thanks to this site that I started my quest for T, as I said it was never on my radar as something my body might be missing...but I had all the symptoms. I am hugely surprised at the difference it has made to me and I now feel like my old self again pre peri. All I need to do is shift 1 and a half stone that I have put on with all this ( a stone of which was prempak c for 9 weeks). Hopefully with the T kicking into my system it won't take long...I joined slimming world about 6 months ago and all I could shift was 2lb even tho I stuck to it religiously, even went to exercise classes once a week to help but nope it didn't all it did was zap my energy for about 2 days after. And yes most of it went on round the belly...I have never had a belly. So going to stick to my healthy eating and exercise class and see if it helps. Annie how are you getting on with the T...tempest I really hope you get your estrogen levels up, like you I am on the gel but unlike you I have never had a problem with it since day 1...tablets and patches caused me problems. Just goes to show how different we all are hormonally...as my name says Keepgoing as I now feel I'm out the other end but at some points I felt like just giving in...I'm glad I never...big hugs to everyone feeling rotten at the mo it's so horrible at times xxx
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Tempest I wasn't at your level but at 38 I started nightschool whilst working during the day to learn bookkkeeping (computerised and manual ), I passed my exams easily and some before the rest of the class as I threw myself into it. I managed to get a job in bookkeeping and they loved me, said I was the most competent, friendly and methodical bookkeeper they'd ever had. I fitted right in from day one and was there 7.5 years. Then peri hit, I'd look at my reconciliations and it could've been in Japanese for what sense it made to me, I thought I had early onset dementia, I'd hear ringing in my ears, I felt lightheaded and suddenly the job I loved became a nightmare I wanted to hide away from. I was petite, bubbly and joined in the guys banter. Almost overnight I didn't recognise myself at all, I was thinking to call my mum after I'd zonked out on the sofa after work but then remembered she'd passed away 10 years previously, that'd upset me then but I was guessing I yearned for a hug from her, to tell me this was normal, I was gobsmacked when the bloods showed peri and b12d, the symptoms overlapped and not having had periods since my hysterectomy 13 years before I'd never known and thought I'd skipped the menopause when they said my ovaries failed back then
Keepgoing - good to hear from you, please keep in touch as I need to know your progress 😘 I'm on day 4 of a pea size blob (prob more like petis pois) and don't feel any different (I didn't expect to either so soon), but this last week my scalp has itched again which normally means one thing = more hairloss 😢 I feel gutted as I've started wearing clip in extensions and powder to cover visible thinning and that itself has given me a boost. I really feel like menopause is out to finish me off and the more I try to fight it, the harder it comes and hits me
i so need this T to stop this hair malarkey and even help me grow the missing bits x
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Just got off the phone to the appointments line at Chelsea and Westminster (Dr Panay) appointment not until March 2017!
I am seriously freaking out, I can't go on like this.. Can't my doc prescribe T alongside my existing Oestrogel? The gynae at the hospital who did my surgery can surely advise (only advice is 'off licence') I have booked a telephone consultation with her today (my GP) and will beg.. I can't wait another half a year, I have been suffering for years.. I feel like my life is just ebbing away...
Sorry to be negative.. hope everyone else is dealing with all of this ok
Abby
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Oh no please don't say that Annie...I have a sensitive scalp and it is always itchy so I won't know unless I start losing more hair 😩 I have not seen loads come out in the shower like I did last year but have noticed hair on my clothes but we naturally shed hair every day so hoping it's just the turn in the weather as it's not loads just your usual amount xx
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Abby I agree waiting is a nightmare...do keep on at your gp but keep in mind also you have a date and you have hung in this long and for me it was worth the wait and I'm hoping for you it will be to xx
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Hi Abby!
Wee soul!! If its and consolation, I won't be getting any TRT until at least my follow up appointment which is in January 2017 as I have to build my estrogen levels up first.
I went 18 months with NO HRT whatsoever following my oopherectomy, so have to address my estrogen deficiency first. Can I ask what HRT you're taking at the moment, and if you know what your estrogen levels are?
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HI TEmpest!
I'm on 1/1 half pumps oestrogel at the moment and starting to take 25mg of DHEA...
no don't know my E levels! will have them tested I hope soon
Abby x
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I would make an appointment with your GP and ask to have your estrogen and testosterone levels tested. It will let you know if you're absorbing the gel too. Also, I would speak to the GP and tell them how desperate you are and ask if they can contact the Menopause Clinic at the C&W and ask for an URGENT appointment. If you read back my posts, you will see some of the desperate measures I had to go to to get treatment.
It's disgusting that us surgical ladies are treated this way! HRT is NOT an optional extra for us, we need it to feel well and function more than anyone! Whatever you do, don't give in and don't give up. Keep pushing - I know it's hard but it's better than sinking lower and feeling desperate.
Please know that you're not alone!
:hug:
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Thanks Tempest so appreciateD!!!
:) I have requested a telephone appointment with GP asap!!!
xxx
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Good stuff, Abby! Really press them and say that you're struggling badly. Your whole HRT picture needs looking at, as 1 pump of Estrogel really isn't going to cut it after having your ovaries taken. Please let me know how you get on, and if you want to do please PM me any time. I'm travelling the same road as you! xxxxx
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Hi ladies
Abby, have you thought about contacting prof stuff if dr Panay is so heavily booked ?
Best to get up to date bloods done on NHS as I've heard private ones are costly. Your GP can also test ALL your sex hormones, I've had mine done quite a few times and although everything kept coming back as post meno I still had my results
I don't know how long I've had no ovaries for but I'm guessing it's as long as this peri hit me at least
Keepgoing - does itchy scalp usually mean hair loss for you too ?
Day 5 on T, so technically half way through my first tube and I've hardly made a dent in it, It's so hard to measure a pea size blob, I usually just scoff peas I've never analysed one for its size x
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HI Annie! Hi Tempest! Thanks both for your supportive comments.
Annie, yes I've had spotty itchy scalp for ages and yes have lost a lot of hair :( I look at myself in mirror and can't figure out who the nearly bald person looking at me is! I used to have a wild mane of long glossy hair.. Just some strands (it feels that way anyway!) remain...
Tempest, I will up to 2 pumps but just can't bear the increased boobage!!! Any ideas if this settles down or would be countered with T? I feel pre-menstrual ALL the time - minus the weeping etc - just huge boob shelf that does nothing for my confidence running or exercise wise.. In fact the whole weight gain and tiredness (today so tired travelling on tube with smallish bag, could hardly drag myself up the escalator!)...
I have a thyroid thing too, mild antibodies and have got NOWHERE with all that - and am taking a small dose of natural dessicated thryoid but think I'm going to stop as all a bit much .. maybe better to straighten out the HRT...
I've read that really adding T, DHEA and maybe even a bit of micronised progesterone into the mix is the way t go.. I just want to feel ME again, the one that loved dancing, going out and being alive.. I just want to hibernate with my cats and not do anything anymore.. I've lost all confidence.. and I used to have a LOT...
THey don't call it THe Change for nothing...
sending hugs to all xx
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Hi Abby
Progesterone (I've tried it and actually like it although I've got no uterus) will oppose your oestrogen so you definitely need to up your oestrogel dose for a while. Same with T apparently, if you don't have good oestrogen levels the T will become even more androgenic = unwanted side effects so start on that higher dose of oestrogel sooner rather than later
It is horrible I agree, before all this I was young at heart and had a playful disposition, now I found myself muttering moans about all the things you'd associate an old lady groaning about x
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Hi Annie nope itchy scalp doesn't mean hair loss for me as my scalp itches quite a lot and has done all my life xx
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Oh I've only started with an itchy scalp since the hair loss started
I use nizoral for the itching, it helps x
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abbyH, I have been taking DHEA for over a year now and it really does make a difference. I started on 25mg but when I started producing my own oestrogen again, my gynaecologist told me to reduce it to 10mg but my silent migraines returned during the progesterone phase. Therefore, I have gone back to 25mg and what a difference! It takes a while to work and it does mean you will produce your own oestrogen and testosterone again and I also think a small amount of progesterone because my periods have become lighter.
So I would recommend you stick with the DHEA but if push comes to shove and you desperately need to get hold of testosterone, why not book a consultation with Professor Studd - he also does telephone consultations if that helps. He will prescribe it for you and write to your GP with his recommended prescription and that should clinch it. He did this for Freckles and she gets testosterone, Oestrogel and Utrogestan via the NHS and it saved her a lot of money.
I hope that helps.
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HI mary, thanks for all that. i have no womb or ovaries so technically not in need of prog, but will investigate... and Professor Studd will do phone ? how much? I'd be happy to do that and at least get ball rolling!!!! I have the oestrogel (and utrogestan if needed) via the NHS, thank god and thanks to this board for helping find out !!!
Abby x
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abbyH, sorry, I hadn't realised that you have had a hysterectomy and don't need the Utrogestan. You could ring Professor Studd's office and ask his secretary how much a telephone consultation would cost but I can tell you that his usual consultation fee is about £300. If you can ask him to write to your GP, you should not need to have any further consultations and your surgery will continue with the testosterone prescription.
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Ok, I will do... anything to get more balanced!!!
seems ridiculous these are the lengths we have to go to!
Thanks so much
Abby x
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Abby I rang his office and spoke to secretary
He prefers face to face consults but would do telephone in dire circumstances i.e. :anxiety attacks re travelling etc
I'm sure initial consult for either phone or in person is £350 and he'd want copies of full range of blood tests x
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Thanks Annie
I will wait and see what my GP says and maybe she can get ball rolling with CWE appointment
xx
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HI Annie! Hi Tempest! Thanks both for your supportive comments.
Annie, yes I've had spotty itchy scalp for ages and yes have lost a lot of hair :( I look at myself in mirror and can't figure out who the nearly bald person looking at me is! I used to have a wild mane of long glossy hair.. Just some strands (it feels that way anyway!) remain...
Tempest, I will up to 2 pumps but just can't bear the increased boobage!!! Any ideas if this settles down or would be countered with T? I feel pre-menstrual ALL the time - minus the weeping etc - just huge boob shelf that does nothing for my confidence running or exercise wise.. In fact the whole weight gain and tiredness (today so tired travelling on tube with smallish bag, could hardly drag myself up the escalator!)...
I have a thyroid thing too, mild antibodies and have got NOWHERE with all that - and am taking a small dose of natural dessicated thryoid but think I'm going to stop as all a bit much .. maybe better to straighten out the HRT...
I've read that really adding T, DHEA and maybe even a bit of micronised progesterone into the mix is the way t go.. I just want to feel ME again, the one that loved dancing, going out and being alive.. I just want to hibernate with my cats and not do anything anymore.. I've lost all confidence.. and I used to have a LOT...
THey don't call it THe Change for nothing...
sending hugs to all xx
Hi AbbyH
Sorry to hear about your continued problems.
You mention thyroid antibodies - how long has this been going on? My first thought on reading this and about your weight gain and fatigue is that thyroid deficiency is the most likely explanation and I would first get a proper referral for this. Maybe your dosage needs increasing? Could it be that the Hashimoto's has got worse since your hysterectomy and ovary removal? I really would sort this out before the T replacement as well as getting your oestrogen dose right. Oestrogen should not increase boob size to much greater than they were before although they tend to be denser ( especially if you were nearing menopause and they had shrunk) - but increasing fat does go on the boobs too.
Re fat round the middle (rather than hips and thighs) - this - apple rather than pear shape is not due to lack of testosterone but a relative dominance of Testosterone over oestrogen. It happens to women as we age because our oestrogen declines more drastically than our testosterone.
I would try to get your oestrogen to a decent level where your symptoms of flushes and sweats disappear and you gain a better sense of well being - perhaps you should ask for blood tests to check if you are absorbing it well? However your thyroid is a top priority too. No amount of female hormone replacement will make up for a malfunctioning thyroid.
Re DHEA - as far as I understand there is little consistent evidence on the effect of taking DHEA and as it is not regulated personally and the dosage needed ( for what?) has not been determined then I would steer clear. There have been some promising studies but I think it is early days. I have said before that just because it is a precursor does not mean that it will definitely be converted to T or O and which of these. If taking precursors to our hormones were all that is required then we could all just eat more cholesterol and that would do the job! Our hormones are governed by complex endocrine feedback control mechanisms and it is not as simple as taking a precursor. It may well be harmless in small doses if you are also taking oestrogen though - but I really don't know?
I would see if you can get a gynae appointment earlier but definitely keep that March appointment with Panay - but in the meantime I would increase your oestrogen (with doc approval) and get your thyroid sorted if you can.
Also T replacement - although off licence has long been recommended for women who have had hysterectomy and ovary removal - so you should be able to get this easily. I really would ask your GP to contact a specialist so that you can be prescribed some without having to wait. It is mentioned here ( scroll down):
http://www.menopausematters.co.uk/aftermeno.php
Hope this helps and good luck with it all :)
Hurdity x
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Yes I'm currently taking thyroid meds.. (NDT) Although my doctor initially refused to acknowledge that the presence of antibodies meant hashimoto's and refused to prescribe meds... so have had to medicate myself, which I was doing successfully..
Maybe upping the thyroid meds, but without supervision I feel really worried about doing this.. I'm currently on 1 grain of NDT which is about the lowest dose you can get, so maybe I do need to increase
I am sure everything has got worse since the op, but the swollen boobs are really annoying and getting me down as one of the symptoms of PMS I hated the most, surely on such a low dose of OEstrogel, this would not be an issue?
thanks for the comments, will get some thyroid tests soon and see what they say..
Abbyx
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Hi, Anne!
Noticing anything changing yet? I know it's early days, but I'm keen to hear any updates. :) ;)
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Hi Tempest
I'm on day 8 but won't finish the tune I reckon til early next week as I'm obviously not using a pea size blob, incidentally put in another prescription and it wasn't at pharmacy, apparently it hasn't been put on repeats ! So I have to phone tomorrow to sort it (soooo frustrating)
Anyhow, no obvious effects as yet. I'm trying to stay calm about my hair (itchy scalp and I'm sure I'm noticing more gaps but being positive it would've happened anyway and it's not the T)
I've had that viral cold/aching for last 2-3 weeks so think my better mood/feeling better is because I'm recovering from that and not the T
But I will keep watching
X
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Hi everyone! Just to say ((with Tempest's help!!! ;D ;D ;D))I managed to get an earlier appointment - by ringing up and whinging basically!!! So I'm being seen in Dr Panay's clinic on the 30th November! ;D
I'm so grateful to her for spurring me on to put my case - that I'd basically been left to get on with it aftero being put into Surgical Menopause by my operatiion earlier this year and not been given much, if any, follow up.
So I hope I can get testosterone prescribed by Dr Panay or one of his team
So far on oestrogen only I'm not doing so well it has to be said, the more I have (up to nearly two pumps now) the weepier and more emotional Ive got and also very sore and heavy boobs
So, obviously I need something else in the mix to balance everything..
Thanks everyone!
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Excellent news Abby !
Fingers crossed (but I'm ever so optimistic) that you'll get the chance to experience T
I've had a right rigmarole this week trying to get tube no 2 prescribed, it's Friday now and no dr has signed the prescription as it's not on repeat, I have to phone later to get it sorted, what's worse is that the prescription clerk I spoke to yesterday is a skanky sister of a girl my daughter had beef with a few years ago and in the phone yesterday she said a few times in a snotty voice "like I just told you the dr hasn't signed it off yet" I could've throttled her and nearly choked on my words thanking her for her 'help'
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Day 10 of first tube and not finished it (I reckon it'll be finished about day 14 as my idea of a pea doesn't seem to be big enough)
I got 2 more tubes prescribed yesterday
Hair: I'm sure I'm not shedding as much, but don't want to tempt fate , I took an antihistamine this morning after putting on the gel as my head has been itching, again not sure if coincidental but I've not felt itchy
I've got loads done today, I can't remember the last day I've felt this (not energetic as such, but a yearn to sort out things that have built up while I've been ridiculously fatigued)
As a result I've hurt my back (ongoing from slipped disc so I know I'm limited with activity) so I have to keep resting on one bum cheek in between jobs and just took painkillers
X
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That's an improvement Annie I have the urge to gut my house but it's still a bit at a time...sorry about your back tho still need to take it easy. Have you noticed any difference in your dry eyes like I have ? Xx
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Annie, that is SUCH encouraging news!!! Can I just say that the change in the seasons can also make your scalp itch? I was talking to my Mum In Law about this only yesterday. She gets the itchies at this time of year every year, and yes - she has a full head of hair still so don't panic. It can be other things too and it's so encouraging that you're noticing less shedding.
Watch that back though, Mrs Dynamo - and no chasing Mr. Annie round the bedroom! ;D xxxxxx
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Annie, that is SUCH encouraging news!!! Can I just say that the change in the seasons can also make your scalp itch? I was talking to my Mum In Law about this only yesterday. She gets the itchies at this time of year every year, and yes - she has a full head of hair still so don't panic. It can be other things too and it's so encouraging that you're noticing less shedding.
Watch that back though, Mrs Dynamo - and no chasing Mr. Annie round the bedroom! ;D xxxxxx
Lol nothing on the sex front Tempest !!!! Yet anyway 🙈
Itching usually indicates hair loss with me , I've had it all year round and since this all started July 2015 but I'm wondering (hoping) that this itching is a side effect and not loss, hence me trying a tablet, it might've just not have itched anyway today but the itching drives me crazy
My pea size blob , well my tiny blob that isn't as much as it should be, it'd still give me some T right ? I keep agonising over just going for it and increase the blob but I'm tooo scared to, so do you think I'm ok going along at this pace ?
My back is constant, sitting at my desk at work does it to me too it's just frustrating that it's held me back today, I've got loads done but was hoping to get even more done and sorted
X
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That's an improvement Annie I have the urge to gut my house but it's still a bit at a time...sorry about your back tho still need to take it easy. Have you noticed any difference in your dry eyes like I have ? Xx
Hmmmm still gritty when I wake up but this morning I didn't notice the little funky stuff that more often than not appears at one outer edge, I think (trying so hard not to get my hopes up) my eyes were ready to use quicker though this morning
X
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Day day 12: And I STILL have more T left in my tube ! I am really dreadful at working out how much to use BUT I am worried to use too much as my hair is my constant concern 😢
I seem to be less tired, it'd be a bit untrue to say I have energy but I certainly feel less tired BUT I'm recovering from that nasty cold virus so that could be why I'm not so tired
X
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I'm losing count on what day of T I'm on
I started oct 12
I'm away on holiday in Lanzarote and I asked my fiancé if he is noticing any improvements since starting T. He said I'm more up for adventures than before (we hired electric bikes today), I've been swimming (can't remember the last time I did), he said I don't need babysitting lol, I offer to leave the table to get drinks etc (I'd have been rooted to my seat before), he said I'm more energetic, and on the sex front...... well I'm more responsive and managing orgasms easily again !
I'm feeling more attractive too
It's just my hair :-(. Really not sure if it's worse, it's definitely no better :-(
Anyway, just thought I'd update, oh yes and still not using a whole pea size still
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Abby I would've tried Tibolone myself but a potential side effect is hair loss, and since being post meno my hair has thinned dramatically so I couldn't/wouldn't risk it. I'll be watching very carefully how T affects me
Lots of women say they had increased energy, libido and wellbeing in Tibolone
Your GP can prescribe testosterone , they just need to read up on it, they have the power to decide x
Have been reading up on your t journey. I've often wondered if I'm low on t (won't bore you with details). I've had a hair-loss problem with a testosterone derived progesterone though and that has put me off. Would testosterone cause me more hair loss do you know?
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Hi Peacegirl
Really hard to say, there's so many reasons why we lose hair, low T can be one of them
If I didn't try T I'd never know if that was the reason. Hair loss can be hereditary, deficiency, because of meds etc
I got to the stage where I thought "I can get a wig or whatever, but I can't go and buy a sex drive, energy or sense of well being"
I know it doesn't help you make a decision but I'm one for trying and searching for the balance
x
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Hi Peacegirl
The testosterone derived progestogens can have androgenic effects partly because they bind to testosterone receptors. as well as progesterone receptors, so I've read. They are at very high concentrations in the BCP and fairly high in HRT too - as they need to be in order to do their job. I would suggest (just thinking aloud here) this is not the same situation as with taking a small amount of testosterone itself where your own levels have declined so it does not necessarily follow that you would experience hair loss if you took a small dose and were also taking bio-identical HRT (ie oestrogen as estradiol, and micronised progesterone).
Annie0710 - glad things are improving and lets hope they continue to do so when you are back from hols :)
Hurdity x
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Hi Peacegirl
The testosterone derived progestogens can have androgenic effects partly because they bind to testosterone receptors. as well as progesterone receptors, so I've read. They are at very high concentrations in the BCP and fairly high in HRT too - as they need to be in order to do their job. I would suggest (just thinking aloud here) this is not the same situation as with taking a small amount of testosterone itself where your own levels have declined so it does not necessarily follow that you would experience hair loss if you took a small dose and were also taking bio-identical HRT (ie oestrogen as estradiol, and micronised progesterone).
Annie0710 - glad things are improving and lets hope they continue to do so when you are back from hols :)
Hurdity x
Hurdity thanks, will discuss this too, if I decide to see the 'special' specialist :o
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How do I get this moved to Private section please ?
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Send a pm to administrator Emma who will move it for you. I expect there is probably only emergency cover at weekends though so may not happen until Monday?
Hurdity x
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Thankyou Hurdity
We flew back from Lanzarote yesterday and when we sat down and relaxed last night I said to my fiancé something that really shocked me yesterday...... now as you can imagine being at 2 airports and a 3.5 HR flight a lot happened. He immediately said that maybe the same thing shocked him, the way I flew up some stairs and how I ran through the airport ! He was spot on !
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Sounds to me like the benefits of T are kicking in for you Annie I'm soooo pleased for you xx
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I think it is Keepgoing
I just really wish this anxiety in certain situations would do one. Considering how much we were meeting people I guess it is improving but I had a few moments yesterday when we were chatting to someone in a queue, my instinct was to walk away but I knew I couldn't, it soon passed though
Today I'm getting palpitations but I haven't put my gel on yet
Definite improvements in the bedroom, I'm starting to have sex on the brain !
X
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I'm so pleased to hear that you're starting to feel the benefits of the testim gel, Annie! :)
I remember after about 5 weeks of beginning the gel the 2 things I really noticed were: 1) running upstairs again instead of dragging myself up, and 2) going from not being in the least bit interested in sex to finding myself thinking about sex often.
Try and be patient about the anxiety... I think, from memory, that you've only been using the gel for a few weeks? If so, I was told that it takes a good 6 weeks to start feeling the real benefits of T. I'm sure things will continue to get better for you x
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I'm so pleased to hear that you're starting to feel the benefits of the testim gel, Annie! :)
I remember after about 5 weeks of beginning the gel the 2 things I really noticed were: 1) running upstairs again instead of dragging myself up, and 2) going from not being in the least bit interested in sex to finding myself thinking about sex often.
Try and be patient about the anxiety... I think, from memory, that you've only been using the gel for a few weeks? If so, I was told that it takes a good 6 weeks to start feeling the real benefits of T. I'm sure things will continue to get better for you x
That's reassuring Ellie thankyou
Yes I started oct 12 so 3-4 weeks now? And only using half dose. So am/was prepared that things might take a little longer for me, I guess I'm noticing a slight spring in my step which I'd forgotten I once had but I do remember thinking about sex and enjoying it a lot before meno , before Testim I actually felt repulsed at the thought of sex and felt very prudish when anyone mentioned it, now I'm finding I can find those jokes funny again
X
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Yes Annie give it a wee while longer and anxiety should go xx
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Yes Annie give it a wee while longer and anxiety should go xx
Aw thank you Keepgoing, I can't remember if anxiety was a symptom for you ?
X
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Oh yes Annie anxiety was a major problem for me and was one of my first symptoms, suffered two years of hell and was on diazepam 3 times a day, thought I was going to end up having a breakdown. Didn't have a clue it was hormones till I started taking night sweats...hrt helped this immensely but still not wanting to be social till I got the T now I'm me again...so it will happen for you xx
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Omg Keepgoing your replies really do keep me going lol
If I could say goodbye to this social anxiety (and get my hair back) I really would be a 4 year older version of my old self
It's crazy the extent hormones affect us, I've said it before but I'll always be amazed, I'd never given hormones a thought until this nightmare
I'm really grateful for your encouragement during my journey (mwah)
Xx
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Your very welcome Annie 😀 I knew hormones were a bugger as they've plagued me every month but this peri menopause has really been an eye opener to just how bad and soul destroying they can be. If my experience and posts help even 1 person not suffer as long as I did not even knowing all my symptoms were me starting the change then this can only be a good thing. Like me most people only associate missed periods, flushes and night sweats with the menopause, where as I had loads of other symptoms pointing to it roughly 2 years before I had night sweats (I personally have not had hot flushes nor missed periods). I'm scared to say it in case I jinx myself but I really think I'm sorted, for now anyway 😀😀😀😀 xxx
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I had the night sweats years ago after my hysterectomy and the oestrogen sorted it
And so I didn't have periods to go by and no hot flushes so when my symptoms developed (and bearing in mind I'd done 'menopause' at 32 ) I had no idea what was wreaking havoc with my mind and body
I'd never suffered pmt and had pnd after baby no2 but I put that down to losing my baby girl just 13 months earlier
I'd never been a depressive person, I always saw a positive side to everything
I was flabbergasted
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Sorry to hear about your baby 😢 How are you doing now your back home from holiday and back to the usual ? Xx
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Sorry to hear about your baby 😢 How are you doing now your back home from holiday and back to the usual ? Xx
Aw thankyou it was back in 1990 so a long time ago but it does still give me a tear when I think of the time before, during and after her loss
Well, interesting you ask Keepgoing, i think the libido was due to holiday, heat, relaxed , no son in next bedroom , but my fiancé has got a snippet of what we were before meno so I'm kinda stuck at being the sex kitten lol . I've not used or needed any lubrication NOR have I split or been sore down there , I've managing 2 orgasms each time (not sure I'll keep that up now we're home!) , but I've been tired :-(. My mood is improved (I think) but like you said it's still early days for me so I'll keep on and keep being optimistic
How are you ?
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Hi Annie your probably just settling in now your back home...holidays are always great. I'm doing ok at the moment...on my utro phase so a bit more tired but that's always the case but not as bad as before T. Going to my keep fit tonight so probably be shattered later lol xx
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Glad you're doing good, enjoy keep fit
X