Menopause Matters Forum

Menopause Discussion => Personal Experiences => Topic started by: Midnight Shadow on June 12, 2016, 07:25:35 PM

Title: Could be another Atrophy flare up.
Post by: Midnight Shadow on June 12, 2016, 07:25:35 PM
Spoke to soon this morning the itching has now turned into burning and prickling. I have had nine really good weeks and my Atrophy has pretty much subsided. Using Vagifem twice a week and Kliovance daily has been a godsend. It has been great. Does anyone else's Atrophy flare up? I hope my problems are short lived. I only have 30 more days working at school before I retire and I really would like to enjoy them.  Anyone used Vagisil for the itching? Sorry to be a nuisance asking questions, but everyone on this site is so helpful. Sleep well all of you.
Title: Re: Could be another Atrophy flare up.
Post by: Maryjane on June 12, 2016, 07:52:35 PM
Twice a week for many is  not enough , it can be used 5 xs a week . You need to use a thousand vagifem to be equal to one application of 1mg oestrogen so don't worry .

I will be seeing Nick Panay , and I am going to thoroughly discuss the Chinese whispers of local vagifem use.
Title: Re: Could be another Atrophy flare up.
Post by: Dorothy on June 12, 2016, 07:54:41 PM
Has it been very hot in your area?  I've been worse recently, but it's been so hot here and I'm always worse in hot weather.
Title: Re: Could be another Atrophy flare up.
Post by: Midnight Shadow on June 12, 2016, 08:09:52 PM
Thank you for the quick responses. Yes Dorothy it has been very hot here recently, particularly last week. I thought this might have started my problem off again. Sitting at school working with children is not ideal. Lucky for me it's not for many more days. Might try wearing a dress tomorrow instead of trousers. As Mary Jane said to up the dose of my Vagifem. Have used another one tonight. Hope I can sleep tonight. Take care both of you.
Title: Re: Could be another Atrophy flare up.
Post by: Dancinggirl on June 12, 2016, 08:15:31 PM
I have used a vgianl moisturiser alongside any hormones treatment as I still need somethings to stop itching and burning.  I use Mulit Gyn Actigel but there are other vaginal lubricants/moisturisers e.g. Hyalofemme which are good as well - these can sting a bit at first but do sooth after that - you apply these up inside and round the outside area if needed. Itching and burning can often be a result of the vaginal flora being slightly out of balance.  Dg x
Title: Re: Could be another Atrophy flare up.
Post by: CLKD on June 12, 2016, 08:59:53 PM
Up the dosage?  If I get more symptoms I use 3-4 nights continuous then back to routine.
Title: Re: Could be another Atrophy flare up.
Post by: Tinkerbell on June 12, 2016, 10:44:11 PM
Mine flares up for no apparent reason from time to time even though I am now on systemic HRT.
I use Vagifem every day, and if I feel I am heading for another flare up I double the dose for a couple of nights.
Title: Re: Could be another Atrophy flare up.
Post by: scriv on June 13, 2016, 07:25:51 AM
This is all made so much worse since the Vagifem 25mcg was withdrawn!!! It makes me sooo mad.


Think about it ladies - so many of us who were managing very well on 25mcg twice weekly were suddenly told ( on the basis of a very small limited study in the US) that 10mcg twice weekly would do the same job.

Errr - no it darned well does not!!!!
Title: Re: Could be another Atrophy flare up.
Post by: Suzi Q on June 13, 2016, 08:20:44 AM
Boy your so right with 25m maybe once and again Id use another one but 2x25 great
since 10m last december ive been pretty rough on and off
now with gps insisting its mfine to use one 10m every night and thanks to clkds advice gp gave me ovestin for outside
even with one in a night its ever present even if its just a twinge xxxxxxxx
Title: Re: Could be another Atrophy flare up.
Post by: scriv on June 13, 2016, 08:54:15 AM
I am convinced that whereas 10mcg a night helps to keep the worst down, the level that it maintains is nowhere near as high as the 25mcg reached - and maintained most of the time. 

And obviously so as it is less than half the strength.

But they never asked us, did they Suzy Q.

I so hope that one day someone makes another 25mcg as using two is not as effective and brings in other issues like soreness cos of all the filler for some people.

I despair.
Title: Re: Could be another Atrophy flare up.
Post by: babyjane on June 13, 2016, 09:52:23 AM
personally I find that stress can flare up my VA.  I also use estriol cream externally alongside Vagifem and on the whole it keeps it ticking over quite well.  :)
Title: Re: Could be another Atrophy flare up.
Post by: scriv on June 13, 2016, 10:26:36 AM
The secret may be catching VA early, Babyjane.

Sadly mine was very extreme and severe when it was diagnosed and really needs a high level of Vagifem.
Title: Re: Could be another Atrophy flare up.
Post by: ancient runner on June 13, 2016, 11:01:32 AM
At risk of sounding like a broken record - Estring gives you the "old" vagifem dose every week, no fillers. It's working very well for me at the moment though I have had some blips. Worth a try?
Title: Re: Could be another Atrophy flare up.
Post by: scriv on June 13, 2016, 11:14:25 AM
I'm afraid  there is no way with my personal history that I could even think about that method as an option - so no, not worth a try at all :(

I appreciate what you say though about the level of oestrogen it gives and I am very pleased it is working well for you :)
Title: Re: Could be another Atrophy flare up.
Post by: Suzi Q on June 13, 2016, 02:12:46 PM
I am convinced that whereas 10mcg a night helps to keep the worst down, the level that it maintains is nowhere near as high as the 25mcg reached - and maintained most of the time. 

And obviously so as it is less than half the strength.

But they never asked us, did they Suzy Q.

I so hope that one day someone makes another 25mcg as using two is not as effective and brings in other issues like soreness cos of all the filler for some people.

I despair.

I agree I did 2 at once for a month 2x 1 night miss 1night then 2x1 night miss a night then 1=50 It didnt work and the outer stuff on 2 pressaries was too much it burnt me IMO it was the BIG HIT of 25 then easing down made it work some lady on here said I can get 25m in Singapore on ebay I looked you can
But Id be too scared they were the real thing
Title: Re: Could be another Atrophy flare up.
Post by: scriv on June 13, 2016, 06:19:08 PM
I'd be too scared to risk that too, Suzi :(
Title: Re: Could be another Atrophy flare up.
Post by: scriv on June 13, 2016, 06:22:46 PM
Yes, Hasty - that is exactly what I am saying. It is not the amount or type of oestrogen delivered which is the problem, it is the method of delivery.

E string : A slightly opaque ring, made of a silicone elastomer, with a whitish core, containing a drug reservoir of Estradiol Hemihydrate. The product has the following dimensions. Outer diameter - 55 mm; cross sectional diameter - 9 mm; core diameter - 2 mm.

This silicone ring is inserted and stays inside, so is a totally different product to Vagifem which is a simple suppository.
Title: Re: Could be another Atrophy flare up.
Post by: CLKD on June 13, 2016, 10:26:10 PM
I wouldn't fancy anything up there unless absolutely necessary  ::)  as an aside, does anyone remember the female contraceptive  ;D ……… like a very floppy long Durex from what I remember which had to be inserted up there before 'he' went in  ::).  Don't think that they lasted long on the market.
Title: Re: Could be another Atrophy flare up.
Post by: ancient runner on June 14, 2016, 08:16:39 AM
CLKD once it's up there you don't know it's there. I too used the female condom and it was appalling with a huge floppy ring outside. However, I've also used a contraceptive cap (both sorts) and a Mooncup - no problems, nothing exterior. I have to say I really don't understand the squeamishness about having something "up there".
Sorry Scriv - broken record comment wasn't aimed at you or anyone else - nobody much was using the Estring when I started a couple of years ago and lots of GPs don't know about it either. So I've made it a bit of a mission to tell people about it, as it's a good option for many.
Today I am having a blip and am a bit sore and itchy after a bad night. I should never, ever comment when things are going well.
 ;D
Title: Re: Could be another Atrophy flare up.
Post by: babyjane on June 14, 2016, 08:50:15 AM
I think for some women it is about having control.  I, also, would not choose to have an estring inserted and just left there but that is just me and I am doing just fine with the vagifem so I don't have to really think about alternatives.
Title: Re: Could be another Atrophy flare up.
Post by: ancient runner on June 14, 2016, 09:05:25 AM
I take your point - but it's not inserted for you, you insert it yourself and remove it yourself. It's ever so easy to do. I can't say that I don't feel in control of it because I do.
Title: Re: Could be another Atrophy flare up.
Post by: babyjane on June 14, 2016, 10:40:07 AM
Hmmm, I don't really like things like that. I always used the tampons with applicator, not the ones where your fingers go up as well.  As I am ok with VF I think I will give it a miss
Title: Re: Could be another Atrophy flare up.
Post by: scriv on June 14, 2016, 11:23:07 AM
It really is a very personal thing. I have had such bad experiences with caps and coils and infections and a history of prolapses and repair ops and stiches gone wrong, allergies to creams etc, painful smears and examinations and intrusive devices damaging my tender thin VA skin, that I cannot bear the thought of anything other than Vagifem and its applicator, which is the only thing that has not caused me any trouble.

I didn't take offence at your comment, ancient runner, and my answer wasn't meant to imply I did. I was just continuing the theme lol. I do hope your current blip is just a temporary one.

I think we all have 'broken record' missions - I am still on a mission about them reducing the Vagifem dose to 10mcg as you all know, but I won't go down that track now ha ha
Title: Re: Could be another Atrophy flare up.
Post by: babyjane on June 14, 2016, 11:31:12 AM
I wasn't on VF for very long before it was changed to the 10mcg.  I have to be honest, I prefer 10mcg every other night to 25mcg twice a week.  I have always been better with 'little and often' with most things  :)
Title: Re: Could be another Atrophy flare up.
Post by: ancient runner on June 14, 2016, 11:45:20 AM
It's so good that we have this forum to at least talk about this stuff - and I always hold out the faint hope that what we say about the available products might somehow get fed back to pharma companies. It baffles me that Ovestin has irritant ingredients in it, or that Gynest cream has peanut oil, or that VF is now only available in the one flavour (as it were). We're not sticking this stuff on our feet, but some of the most delicate areas of the body which are already pretty irritated... surely we're a huge expert patient group here giving useful feedback (as well as supporting each other hand and having the odd rant).
Ah well. Rant over.
PS Scriv, if I ever inadvertently recommend Estring on a thread you're on please accept apologies in advance - I can see where you're coming from on not wanting to use it. Poor you!
Title: Re: Could be another Atrophy flare up.
Post by: scriv on June 14, 2016, 12:31:31 PM
Don't worry at all about me,  ancient runner -  do carry on recommending it whenever you can.

I  won't respond lol but I won't argue as I really believe it is horses for courses and it is so important for people to know what's available out there.  I learnt about Vagifem and Estring from forums such as this one, so I think you are doing a great job. :)
Title: Re: Could be another Atrophy flare up.
Post by: Suzi Q on June 14, 2016, 12:48:24 PM
NO WAY NOT A CHANCE
Im not having somut shuved up there ewwww
Men bet theyd not have invented something for them to shuv up the u know what bit
NOT A CHANCE yuk
Anyway I couldnt even use tampons they fell out
The first time it stayed in probably cos I inserted the entire thing remember the Cardboard?
Tried many times on and off to use them especially living in the tropics it was a bit whiffy!!!!
NOPE Id shove it in and with in half an hour it would be slipping out to say HIIIII
Being serious it is about control too I want to control my own body
I couldnt take the contraceptive pill till they introduced in 72 the Mini Pill
GPS were loath to give it out you only had a 3 hr window in those days
Coming to Ozz they didnt get the mini pill till the early 90s so for 15 years or so Bobbles wore
AN OVERCOAT no coil for me no cap if he wanted happy times it was his responsability hehe
Title: Re: Could be another Atrophy flare up.
Post by: CLKD on June 14, 2016, 12:54:36 PM
"An overcoat" - love it!  :lol: