Menopause Matters Forum
Menopause Discussion => Personal Experiences => Topic started by: Peterspots on October 07, 2015, 05:08:11 PM
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In January my face started to tingle. Mainly left side but sometimes on the right. It's also pressure by mouth, cheeks, between eyes & some twitching. Been told it's TMD from clenching at night. When I've gone to phyiso she has said its unusual. It's really wearing me down. Like water torture. You can see my nose twitch when I smile or move my face. I have this the VA & now joint pain (possibly from hrt) I'm so despondent about it all & im really worried what my face is. Anyone had this experience?
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HRT usually eases joint pain :-\
I too get the tingling sensation, in fact I've been more aware of it today even to the point of touching my L cheek ……
Not painful. My L eye feels tight too …….. what's been suggested by your Dentist to ease tooth clenching?
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I think the joint pain could be a side effect so I'm hoping it will fade or
I can try something different. A physio has given me exercises to do to ease the muscles. I have a mouth guard to try. I'm just worried it's not that because it feels so odd & twitching.
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What else could it be, what's your main worry about it? For me it's intermittent so not any point going to the GP 'cos I've forgotten about it ::)
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It's not intermittent with me. It's been constant. I'm worried it's going to turn into trigemeral nueralgi or I'll get diagnosed with atypical face pain which means they don't know what it is and it will never go as no one knows how to treat it. It seems to be getting worse & I don't know how to keep smiling and being positive. I'm just so tired of it all. My body twitches all over but that's not sore.
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I've had neuralgia and it is NOWT like the tingling I experience ;)
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I am going through exactly the same thing as you my left side of my face is worse my gp said its the nerves and dident seem botherd she give me a tablet to take to help me sleep at night even though I told her its no bother at night !I have recently changed from pill to patch and am not getting on to well with it Im thinking maybe its a side affect It horrid though there all the time.
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Hello. Mine started before the hrt. It's horrible. I've been told it's from clenching but if it's at night I'm not sure how to stop it. I'm using a mouth guard at the moment but I'm not sure if it's helping. It's like pressure or tiny tingles/ants. I'm having a rough time as I seem to have reacted to the hrt I'm on & now have joint and muscle pain. I came off Friday night. I hope the muscles joints are side effects as I don't know what to do next. I'm so 😢
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Joint and muscle pain is likely to be hormonal but HRT supposedly stops it!
I've had dental work in the area of the cheek which is sensitive. Using a mouth guard which is built for your mouth may help. Have you spoken with your Dental Surgeon recently Peterspots?
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Hello. Mine started before the hrt. It's horrible. I've been told it's from clenching but if it's at night I'm not sure how to stop it. I'm using a mouth guard at the moment but I'm not sure if it's helping. It's like pressure or tiny tingles/ants. I'm having a rough time as I seem to have reacted to the hrt I'm on & now have joint and muscle pain. I came off Friday night. I hope the muscles joints are side effects as I don't know what to do next. I'm so 😢
That's exactly how I describe it - like 1000s of little ants. I had it worst pre HRT (non stop) ; initially it was in my shoulder and sometimes my chin/jaw, but later it moved to my foot. Eventually it eased for a while, I started Evorel 50 and it returned, though only intermittently. Several months later and I get it for only a matter of minutes, a few times a month. I assume it's the constant dose of hormones helping, but I guess it can never be proven.
Really hope you get some relief soon.
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I'm having physiotherapy for my face. I didn't have the muscle joint pain before the HRT & it is a common side effect. i suppose it is the same when people use ADs people can have different side effects. Trying to stay positive. It will all come won't in the wash if I survive that long! X
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If you survive? Maybe speak with your GP?
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Seeing gynae next week :)
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Travelling to see a lady who specialises in massage for face pain next Friday. I've been to see maxfax & he says your jaws fine it's the muscles. Seen neurologist had brain MRI & that's fine so please help Me get rid of it please. I don't think they know. There must be someone else who has had muscle pressure tingling in their face &
It's gone (any hope) or is it menopause. Tried the evorel &
I know have joint muscle pain. Stopped nearly a week ago & still have it so maybe it's a coincidence. I don't want a miracle (well I do) I just want to feel better. Maybe menopause lady will try another hrt or I'm just doomed. Feel like no one can understand in real life. They are all fine. It's like so what's wrong with you now. I feel like saying yes it's shit & surprisingly I find it Bork f now too! Sorry just a moan
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DOnt apologise. We've all been there! xxxx ;)
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I still have tingling in my face most of the time I have gone back to pill hrt after trying the patch so I'm waiting to see if this solves it.I am fed up with doctors so can't be bothered to even tell them about it anymore just put up with it some days are better than others .
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Anjia, I know that feeling. Sometimes I don't even mention things to my partner as I worry he'll just think 'not again?!!'. Remember, things take time. My symptoms didn't go until I'd been taking a 2mg pill for several months (three at least, possibly more). x
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Hello. Yes, it's like really is that wrong with me now too! I will let you know how I get on with the face/jaw person to see if there is a muscle reason or just freaky body wants to make me life miserable reason. X
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Went to see massage therapist who specialises in faces, jaw,neck. She was very gentle & worked inside & outside my mouth/face. Will have to wait and see. Fingers crossed.
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What advice did she offer between sessions? Did she show you how to massage your skin?
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To do exercises stretching my tongue & face. Hard to relax when bladders smarting & tried y do some exercise & Achilles hurting again. The one thing it has done is enabled my tongue to rest in the proper place
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Have you done the exercises this morning ;)
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I did. Thank you for asking.
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Fingers crossed for you x
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Had the massage a week agai & my face is tingling and I have pressure in my mouth. No one has diagnosed me. Maybe teeth clenching, maybe TMD or ...... Just so tired of being told I clench but do people who clench have nerve spasms in their face. I had so much hope for the face massage now my confidence has gone & im worried about makin things worse
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I know how you feel. When I had the pain, pressure and tingling, it was in a slightly different place but I am sure the sheer exhaustion of coping with it is the same. I spent £££ on treatments, every time convinced 'this is the one' when in fact, it wasnt. :'(
Until you definitely know the cause, you cant easily treat it. Assuming it's some sort of nerve/neuralgic pain (estrogen does affect the nervous system and it was in fact a neurologist who made the connection with my weird symptoms and my hormones), and not related to your bones/structural issues (have you had x rays?) have you tried any of the drugs available for nerve pain such as Gabapentin, Amitriptyline, Pregablin or Cymbalta?
For me, I think water retention was the problem, caused by hormonal issues. This impinged on nearby nerves (I believe this is why pregnant women can get CTS, a condition that causes similar issues but obviously in a different part of the body!). Once my hormones were a bit more under control, the symptoms eased. x
B XX
It's possible that hormones have something to do with carpal tunnel syndrome as some women develop the condition during pregnancy or the menopause. Hormones released during pregnancy can result in fluid retention in the tissues and increased pressure in your carpal tunnel. See our frequently asked questions for more information.
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Hello. Thank you so much both. the face pain feels like nerves & now my teeth are hurting. The massage seems to have stirred things up. I just don't know if I have trigemeral neuralgia but it's not typical. I clench but I don't immediately wake up with it. If I wake up in the night I can feel the nerve pain. It's almost as if smiling, talking makes it worse. I haven't tried any real long term medication as I was told it was muscular & would go but it has really got worse the last two weeks. I don't know if the massage has loosened
My jaw & the clenching is irritating the nerve more. Been doing the exercises strengthening my tongue. I am worried I have made things worse. There is the Eastman dental hospital that deals with face pain. I wonder whether to ask to be referred. I haven't know it this bad & im annoyed
That trying to make it better. I've made it worse. I
Can email the therapist but I'm just so worried now.
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My face is burning at the moment. I have been away come back & done exercises for my face & its smarting :( just started on estrogel.
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I haven't had any medication. Just massage. Really think I need some more help. Will see my gp again
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I found in the short term nerve med helped as it eased the pain and also, coincidentally, calmed me down (it was an AD as well as a nerve pain reliever). That got me in a better frame of mind to make choices re longer term. Have you had any blood tests to rule out vit deficiencies ? I know many (rightly) say blood tests for hormones are not very helpful, but I did feel that - after so many other tests revealing nothing - it was reassuring to know my esteogen was very low. In my mind this confirmed the weird symptom was hormonal. I also found the 34 Symptoms of Peri Menopause site helpful too.
Really hope you get some relief soon xx
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Thank you I have low oestrogen 309, FSH 46.4, low testosterone & low vit d & low ferritin & low iron saturation. Been told it's tmd and muscle tension but the nerve/tingling feels like nerve pain. Went to maxilliofacial person he said can't do anything stop clenching :( been to massage therapy but it's really flared now
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& an underactive thyroid
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The osteo definitely made my pain/tingling issues worse. Dont blame him at all, but I just think neither he nor I knew what he was treating.Presume you take supplements for the iron and vit d issues? Why not ask if you can have something more longer term for the nerve pain? No point in suffering which you clearly are at present. If it's nerve pain, normal pain killers wont touch it. x
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I take vit d & just bought some iron tablets. I am on estrogel 1 pump for the last couple of days & then to add the estrodot 25. I am struggling with the face pressure/pain. I have been told it's muscles but it feels like nerve. I don't know whether to ask to see a neurologist. :'( my face twitches/pulls with it. Can it really be clenching?
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I'd push to see a neurologist. I did (twice, in fact!). It was the neurologist who suggested a hormonal cause too, once he'd check for other things. Just saw this on another meno site.
Menopause and Electric Shocks on the Skin
The sensation of electric shocks on the skin can be quite disconcerting and uncomfortable. You may experience this common menopause symptom as a twitching sensation, zaps, tingles or the feeling of a rubber band snapping inside your skin. In some cases, the tingling, numbness or twitching of shocks may precede a hot flash or night sweat. Natural menopause treatment products may be able to relieve your discomfort.
As your estrogen levels fluctuate during perimenopause and decrease during menopause, your nerve tissue can be affected. You may experience numbness in your extremities or electric shocks on the skin. Both of these irritating symptoms are linked to abnormal electrical impulses passing through your body, or misfiring neurons.
Electric shocks on the skin can range from mild to quite painful, but they can be managed. Lifestyle changes and a menopause natural cure are often able to provide significant relief. Women who are experiencing this symptom should avoid alcohol and caffeine. Getting regular exercise and eating a healthy diet that is rich in vitamins B, C, D and E may alleviate abnormal nerve impulses. Women who are experiencing significant stress may benefit from stress management techniques, relaxation programs, massage or aromatherapy.
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Thank you Briony, so disheartened. Had the massage &
Hoped so much things would improve. I don't know if relaxing the jaw has caused tooth issues. Really so fed up with trying to stop this horrid pain in my face & now tooth pain. Feel like I'm in a nightmare. Really struggling today. Loosing so much life & friends.
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Thank you. I think I have some amytriptiline somewhere. Trying to get a docs appointment tomorrow & a referral to a neurologist/facial pain specialist. I am really worried about the I intraoral massage and what's it done to my face pain as its increased so much & now tooth pain. My lips are to tingling/twitching constantly. The twitch when I yawn/move as gone but been replaced with the nerve spasms by my lips. Really worried this is nerve damage. Really appreciate your comments/experience. I'm really not dealing with this very well
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I feel like I have pressure/tingling across my cheek. Some times across my forehead. Since the massage inside my mouth it is nervy around my mouth & it feels like it's twitching. It also seems positional so whe I lay down to sleep on good side it goes across my face like a hand. I think the nerve has been irritated more by the massage & Im worried about what I have done. My face feels burning. I have had a Brain Mri & they said normal trigemeral and jaw. I feel so stupid having the massage but it is to help TMD (TMJ). I was told by maxilliofacial jaw was ok & it is all muscle. It is mainly my left side & a tiny tingle on my right cheek. Whe I yawned it felt like the skin by my nose is being tugged. The burning has increased.
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Thank you. Had the problem out of the blue since january but the massage has really accelerated it. Don't knowmif that means it is for the masseter muscles but I am sos scared this will ever end.
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I am still getting this face tingling mine started when I changed from Oestrogen pill to patch mine is mostly on the left side of my face it can sometimes be much worse than others there is no way that I will stop HRT though so I just put up with it .
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I'm so worried about what the massage has done. My lip is constantly twitching & my teeth hurt. My mouth is more relaxed but it has increased the problem. When I look on the internet about facial pain it is so miserable. I'm worried this is it & I will be in pain for all my life
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Really annoyed at myself. The massage I had for my face pressure/tingling has made me wrose. Much worse. My tooth hurts constantly and my mouth aches, my jaw aches & I've got twitching on top of my original twotching. Emailed therapist & she said because my muscles have released I am now clenching harder. So worn down & now feeling worse. It was my choice to go. My teeth & jaw didn't hurt before I went. I thought it would help. I was looking for the miracle &. Now I, worse. Don't know how to tell my husband.
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Tooth still hurting. Don't know whether to go back in 2 weeks. Just so fed up with the face pain. Does anyone know of any dentists/TMj specialists who make mouth splints or you would recommend in. London/Essex. Don't know what to do next. I know some people have/do have face pain pressure. I think mine is from clenching but I don't know. Just want to be going in the right direction. The tooth pain has set me back physically & emotionally.
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Something is wrong with my face after the massage. The nerve pain has increased & my teeth hurt. Went to see another specialist who thinks it's my neck but really struggling. Feels like waves over my face & nerve sensation. I have been given something called an aqualizer to wear to ease the clenching at night. Can't concentrate with the pain. :(
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Hello English Rose. Really sorry to read about your sufferings. I remember what happened with your urethra a few months ago and your anxiety that allowing a medical investigation had caused that. Has that pain eased up now? I wonder if that would give you hope for your face difficulties.
If your most recent consultation suggested it might be a neck problem, was any treatment suggested? I don't know what an aqualiser is, sorry - could you tell us a bit more?
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Thank you ancient runner. It has improved with HRT & vagifem & the initial pain of the procedure started to fade. An aquilizer is a mouth guard that is supposed to balance the jaw when you sleep. I'm waiting for advice but I'm so reluctant to see a cranial osteopath but I'm so reluctant to trust anyone as I am now worse off after having the massage as I now have tooth pain. It is so demoralising. It's like they don't know what's wrong with me. My face is spasming & tingling &
It is so wearing. I just feel so traumatised by what's happening to me. My body twitches & I put that down to the HRT or menopause. The tooth pain has really tipped me over the edge
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Going to dentist Friday but before the massage I didn't have the tooth pain. Just feel in an awful tunnel with no way out with nerve pain in face, aching growing & now tooth pain. I can't be the only one who has pain in their face. I just don't know what to do next. Can't believe my face can be from clenching. Just getting it out on here. Even if I heard this I would think there was something not right with that person. No one has so many things go wrong in my RL.
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Yes, a good talk with your dentist might be helpful.
I wouldn't rule out the clenching being a big contributor to the problem though - you do sound (understandably) very anxious and it may be a vicious circle.
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My face is tingling and I have pressure. Habe asked to be referred to the Eastman dental hospital. It is really getting me down. Seeing max fax person next week. If it is tmd not sure what would be next. Going to ask for a nerve test. Went to see a tmd person and they tested my nerves by pressing in certain areas so I don't know how scientific it is & they thought it was originating in my neck but I'm just so unsure if that. Have been offered anti depressants but just not sure as if the oain was gone I wouldn't be so sad. It's 10 months of face & bladder (easinf) that has ground me down.
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Been to Dentist. He things I have either trigeminal neuralgia or atypical facial pain. Could still be TMd but there seems to be too many nerve symptoms :(
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Seeing maxillary facial man tomorrow. Face twitching & sore. I have low ferritin don't know if this is relevant. I am also getting body twitches
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Thank you sparkle :)
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My problem started before hrt. Went to see max fax consultant. He said I need an Mir on brain,face,jaw & neck. Really getting me down. Scalp burning today. He also took blood test for iron (ferritin very low and iron saturation) and calcium and parathyroid. It will be a year in January & emotionally I think I have to accept I may go past a year and also my 50th in January feeling like this. If things dont show a ready. He suggests an anti epileptic. My face is twitching timgling burning. One twitch stopped after the massage inside my mouth but gave me toothache so not s good swap. Feel like a freak. Struggling to keep it together at work........& what is with the burning scalp aaaaaaarrrrrrrgggghhh! What Physio are you having?
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Trigenimal neuralgia isn't constant. It is due to the blood vessel laying across the nerve and as the vessel pulsates, it causes ACUTE sudden pain in the top sinus area along the bone near the nose. I can still feel the bruising in the area and I haven't had it since 1999. The GP gave me Amitripalyene but it didn't touch the pain. It was so acute that I hit the floor with shock, it was instant, sudden and fortunately didn't last long each time. People watching me walking my dog probably thought I was drunk :-\. Cold wind can cause it to happen too.
There is an operation to release the blood vessel - only a few Surgeons perform it. Initially an injection is given into the nerve affected to see how long the results last …….. B4 surgical intervention is considered.
How long before the blood test results are back? Will they be sent to your GP with a copy to yourself? There are lots of nerve roots around the mouth/face area which can become aggravated. What pain relief do you take [sorry I can't remember ::)]
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I have an MRI booked Friday. I'm so worn down. Since Monday I have had a burning scalp and neck and I have seen an osteopath. Not for treatment but to ask if he thought the face pain & burin scalp were connected. He said they are different nerves so now I could possibly have two nerve problems. Can't even put into words how I feel.
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I read an article by Dr Sarah Jarvis last night, *if* I remember I'll quote …….. chronic pain is wearisome :-\
:bighug:
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I don't know what's happening anymore. Why after all this time would my scalp start to burn. The more this goes on I feel like I will never recover.
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My scalp hurts if I haven't washed my hair often enough ::) ……. due to laziness, usually!
Of course, I forgot to find the article :kick:
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Went for mri today. Left my home at 10.30, walk, train, tube , bus, scan, bus,tube,train walk. Got home at 5.30. I thought the mri was to be on my brain, jaw & neck. They only had the jaw, tmj on their sheet. So disappointed. I had scan then 3 more scans with different positions with my mouth open. Feel like I have a 100 ants on my face :(
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When do you get the results? Did you get the chance to discuss your symptoms?
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The radiologist the consultant wanted to look at the scans is on Monday.
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Will they ring you or send results via your GP :-\
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Still waiting for results :( been referred to the Eastman dental hospital facial pain clinic. Keeps going up & down with tooth pain. Wearing a mouth guard at night. Now only on vagifem not patches so will see how that effects my bladder problem. Seems stable at the moment with vagifem every other day. Think my only option may be the anti epileptic drug
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Today woke up & my knees, elbows, hips hurting fro being fine. What is going on. Constant face tingling and odd symptoms like this. Just Wearing me down.
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It's like my whole body is vibrating. Still waiting for blood tests & MRI results. Could it be stress, low ferritin, hormones or lots of things. I'm so low it
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Reading your symptoms sounds so familiar, especially the crawling ants thing. Have they offered you anything like Gabapentin or Pregablin? I really hope the tests reveal the cause so you can move forward; however, be prepared for the 'all normal' response too. I had to fight back tears when I heard this - not tears of joy, but tears of sheer exhaustion and frustration. I couldn't accept how I could feel as I did, with such physical symptoms, yet be told all was 'normal'. No, it's not normal to be turning into a human vibrator! For me, it was sheer luck that a neurologist said test estrogen as well as FSH (which was normal). In general, estrogen tests are not helpful, but for me this was the break through I needed. Really, really hope you get some answers soon. Big hugs x x
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Thank you. Woke up this morning & felt so worn down by it all. I did stop the esteogen patch because I was putting on weight but now bits are sore. Stupid. It was only two weeks so going back on today. I am so depressed with my situation. Keep thinking hold on another week/month. When the tooth pain eases I think yay it's gone and it comes back and butted me. Waiting for the blood tests hoping it will show something. Trying to keep positive but it is so lonley being in pain all the time. Thank you for listening
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Have they not offered you anything for the pain? Obviously you need to find the cause, but in the meantime, you should not be left to suffer like this. There are certain anti depressants (like Amitriptyline, Cymbalta) and anti convulsants (Gabapentin, Pregablin) prescribed for this purpose. I hate to think of you feeling like this and having to wait for your next appointment x :hug:
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I have been offered amytriptiline and cymbalta. I was hoping it was going to was but today the burning scalp has co e back. I feel like I have a trapped nerve in my neck but have been told by consultant it was a mistake not to do the mri of my brain and neck. Memo consultant has said I can take progesteronr now. What one is best. I am on estrodot and she has also prescribed estrodel gel but don't know what's next. She did sugar cavette (is that the BCP) hoping to see go next week. Does estrodot come as a dual patch?
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I can't understand all of your post due to typos and autocorrect! However Estradot does not come as a combi patch so you need to take separate progesterone. I'm not sure if the POPs are high enough dose for opposing HRT and protecting the womb lining but you have two main options - Provera (synthetic) or Utrogestan (bio-identical to our own body's progesterone) listed here: http://www.menopausematters.co.uk/to_progestogens.php
Some GPs or consultants prescribe norethisterone but I'm not sure it comes in low enough doses on its own to be used as part of HRT.
My choice would be utrogestan rather than the synthetic types as less likely to cause odd side effects - and mainly tiredness, possibly headache if unlucky.
Hurdity x
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Thank you. I have been given femseven 50 Sequi by gp. If this is not the best option then cerrazette is the next option with an estrogen patch.
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Be careful with Cerazette. It has the same progesterone on it that Marvelon has. I am usually ok with progesterones, but this one knocked me for six. I agree with Hurdity - if you can try Utrogestan, it would probably be preferable.
I took both Cymbalta and Amitriptyline for the nerve pain. Amitrityline was the easier one to tolerate and did help, but takes a while to work. Push for an MRI if you can. It gave me peace of mind, even if it did not bring any answers!
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Thank you. I'm trying the femseven first with progesterone in the last two weeks. I was supposed to have an mri on my brain, neck & jaw. But they just did the jaw so have asked consultant to request the mri I was supposed to have. have your neurological problems eased. The last two weeks mine have got worse :( after I stopped the estrogen. My scalp & neck have joined in with my face and body twitches
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And now the burning scalp, neck & shoulders have retuned. So sad. Trying to remain positive but I'm so sad with all this. Every new symptom is harder to take. I had this for a week 3 weeks ago & it went. I actually have so many things to be grateful for but this is wearing me down. Writing on here so I don't cry
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Thank you. The scalp and neck have scared me. It is so painful & I just don't Know what's happening to me. I have been through so much this year. I don't want to go out with any friends for Christmas because it just reminds me of what I've lost this year. Every day is a struggle and now this on top. I read about a lady who killed herself because of face pain yesterday and it just panicked me that this may never be over. I still have the anti depressants or the anti convulsants to take but I always hoped this would go or settle the addition of the burning just feels too far. I don't want to go to work I just don't want to see anyone. I've woken up and I'm burning
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It feels like a burning nerve problem. I dont know if its connected to my face but it is horrible and has really increased my worry
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Hoping to see consultant Monday. He is a Maxilliofacial consultant. Had scan on jaw a month ago & bloods & still no answer. Thinking about taking cymbalta/duluxotine in January. I have tried for a year to find something to help & now with the added scalp & neck burning. I'm just lost. I don't think it's flushes. Started sequential gems even Friday so hoping that may help somewhere. Just feel defeated
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I finally got my blood test and mri (jaw) results
the menopause ones were done but just because he was doing a group of blood tests
FSH 5.3
LH 14.4
Oestradiol 1754 pmol/L
The things that have show up are low ferritin, low iron saturation, low vitamin D and low parathyroid hormone. My calcium was ok though
Having a low parathyroid can cause problems with calcium and the symptoms are
Symptoms can range from quite mild (tingling in the hands, fingers, and around the mouth) to more severe forms of muscle cramps. The most severe symptoms are tetany (severe muscle cramping of the entire body)
probably clutching at straws again. if my clacium had been low too then it would have been more obvious it could be that
Seeing maxilliofacial man on monday but the jaw mri was fine so he is still sending me for a brain and neck mri
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Hello Sparkle thank you for asking. I feel I'm not coping. I have struggled all year with this. Trying to carry on but I feel so overwhelmed today. The symptoms have escalated this month. My face is tingling, pressure burning and now my scalp and shoulders. I have seen the Maxilliofacial person and he diagnosed TMD and I just don't think that is right. I'm hoping the MRIs will be soon but have almost lost hope and I'm scared. I have so hopef
That I would have relief and I don't know how to carry on. I've lost so many friends this year and other than my immediate family people just think it can't be that bad she's going to work and I'm being akward if I don want to go out for drinks or go here or there and I just want to say please can you not understand how awful
I feel and I am so tired of putting on a front. I just want to sob at the moment. I really can't face this anymore.
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I have husband, daughter back from uni & 16 year old. I can't understand how This is happening. The pain in my face now burning in my neck & shoulders & im starting to get shooting pains in my head. This can't all be from clenching. I will be 50 on January 7th & I planned to have a party & I had an account I saved up in but I'm not now. I can't bear to feel like this on my birthday. I look fine but I'm not. I have got so desperate. It's been a year & it's got so much worse this month. How can I ever get better when nobody knows what's wrong. Emotionally I'm desperate.
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Hi English Rose
I've read your posts and although I can't offer any help with the tingling but I also have low ferritin levels and low vitamin d levels. Both of these have really affected my mood and possibly caused anxiety and depression. I also take Duloxetine too. So if I can help at all or offer any advice, please let me know.
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Hi EnglishRose
Do you still have this problem or have you found any answers? I ask because I have very similar symptoms which have gradually spread from my jaw area up to my left cheek and round the neck. I have ENT appt end of Jan and feel I can't wait to find out what is going on as it is making me so miserable. My cheek twinges and My neck feels like it is burning.
Don't know if you still check in with the forum, hope so.
C x
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Neuropathy ? tingling and burning ………. nerves are 'funny' things and can be affected by lots of bodily issues which can take time to discover why. Pain can radiate from the initial source which can make it harder to diagnose. In the meantime the patient feels worse and worse because they don't get a resolution. Add muscle tension due to uncertainty = intensity of symptoms.
Maybe a Very Good Cry would help? Bottling stressors wont' help!
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Went to the facial pain clinic at Eastman dental hospital and they diagnosed TMD and said their main role is management of symptoms. I can take noratryptiline for 6 weeks then go back. They have a psychology program to help manage the symptoms. I want a solution. That on top of my bladder pain is miserable. I've got an MRI on my face next Friday. Has anyone found a solution TMd (tmj but the joint is fine) my face is constantly twitching & my eye is bad at the moment. I stopped hrt thinking vagifem would be enough. My consultant has recommeded estradot 50 & utergesterone 100 every day to stop my cycle to see if it stops my bladder pain.
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Bladder pain just keeps going up & down. The pressure is really bad behind my pubic bone. Can't understand how I've got to this point. Constant bladder pain & a face that won't stop twitching
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You are getting a solution - you have been listened to and management has been suggested. Some pain becomes chronic but there are Pain Clinics often run by Aneastathetists. [pity I can't spell ::)]. How often do you need to take the medication? Sorry but I can't remember if you have tried this one before?
There can be referred pain and if an area of the body tenses, it can cause twitching and annoyance in the surrounding area.
As for the bladder, maybe discuss re-starting HRT to see if it eases symptoms? I know I wanted a cure once I had plucked up the courage to ask for help I wanted to be better immediately - but the body doesn't play ball sometimes >sigh<. Is there a continence nurse in your area?
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You poor thing English Rose. So sorry you're still suffering. The Noretriptyline really helped a friend of mine with bladder/pelvic pain. I think she took it with Pregablin? (Or possibly she moved to Pregablin - I cant remember).
Hope you get some relief soon x
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PS< I could be totally wrong, but isn't your estogen very high? (1754 pmol). Could that be exacerbating things? We need someone more knowledgeable than me, but I am fairly sure that a four figure reading is very high? Mine was 41 pmol, and I am not yet officially menopausal.
This is from GP's notebook (website):
Reference range (oestradiol)
pmol/L
50-200 males
70-510 females: early fol. phase (day 5)
390-1480 females: preovulatory peak
70-600 females: luteal phase
< 130 post-menopausal
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:thankyou: Briony
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When I contacted the consultant she just said the ratios where indicative of a hormonal problem. When I started to hrt I think my estrogen was 300? I stopped the hrt because I thought it was high and now my bladder problem is worse. Going to start on the regime she suggested at the weekend. I was hoping to have a period first. I feel I am going backwards and have made bad decisions about the hrt. the regime suggested is 50 estradot and 100 urogestan contiuously to shut down my cycle. It is just so confusing .
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Just joined this site and read this old email I've been experiencing the same thing jaw pain a wierd feeling in bridge of nose I did have pain around eye but now my teeth are hurting didn't before and on top of that my lip as started twitching now and again sometimes it feels like my jaw is moving and now and again getting fluttering feelings in right cheek these feeling are mostly on right side of face had a ct sinus that was clear got an appt with dentist to see what they say in couple of weeks if you are still on this site I was wondering what was the outcome and what treatment did you receive and isthere a light at the end of a very dark tunnel like the the way you felt I just think my life is over cant plan anything I'm am menopausal and am hrt at mo just so fed up
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Any improvement or what was the outcome?
Am going through similar