Menopause Matters Forum
Menopause Discussion => Other Health Discussion => Topic started by: Bluebell59 on August 25, 2015, 03:45:09 PM
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Check out Heidi Sawyer on you tube, she also has a website. CFS seems to be something to do with being a highly sensitive person. I've ordered her book from Amazon.
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CFS is ?
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Chronic Fatigue Syndrome?
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Is it similar to Fibromyalgia ?
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Fibro is part and parcel of CFS/ Chronic Fatigue syndrome
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Than you Bluebell, My FM started three years ago and was triggered by me having a twisted stomach....dreadful condition, and unfortunately some people are sceptical about it. :(
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ellie, Fibro is defiantly real !
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:thankyou: ……….. all these conditions are real, if only 1 person suffered it could be said to by psychooglical however! Feeling tired during 'flu or a cold is bad enough without people querying whether a person is skiving/not!
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The one I watched was titled "Highly Sensitive People and Chronic fatigue Syndrome", this rang bells with me from the moment she opened her mouth to speak. It seems that highly sensitive people give too much, care too much, feel too much etc to the extent of compromising themselves and their health. Well I never, that's me all over.
I hope the book by Heidi will show me how to make progress, as recognising, discovering and learning what is wrong - so to speak, gives me the tools and knowledge to put things right.
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It seems that highly sensitive people give too much, care too much, feel too much etc to the extent of compromising themselves and their health.
Abso - flippin' - lutely
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Ordering the book, and can I say.....HURRAY people on here that understand :clapping:.....I can go to bed feeling perfectly OK, and next morning BAM....feel like I have full lown flu.....
The trouble is that not many people understand....MY DH does, because he was with me when I was diagnosed ....
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Depression hits me like that too: 1 moment I feel OK the next moment my brain takes a downer and I get scared.
Let us know how you get on!
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I have severe ME. It came on after an enterovirus related to polio that resulted in pericarditis. Within 2 weeks I was bed bound with severe neurological symptoms. The virus damaged my brain stem and autonomic nervous system. ME is not any form of mental illness or depression, it affects digestion, temperature control, heart rate, breathing, blood pressure and many other things. It is like post polio- I can recommend books if anyone has the condition and needs help. Avoid any books that promise cures or expensive treatments they are not helpful. I have had this condition for 20 years and have improved with lifestyle measures but have been bed bound at times. It is very real and very life limiting.
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Thank you machair, for sharing. I realise what it probably took for you to make that post.
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Machair - hang in there. I also got M.E after a virus and was virtually bed bound for 4 years. I lost count of how many specialists I saw, none of whom could help (other than with moral support in the case of one wonderful elderly doc). I believe it is distinct from fibromyalgia as the latter developed later on - similar and linked, but distinct. I have always had the symptoms you mention, as well as (intermittent) gland pain and sore throats from the M.E and chronic, very severe insomnia only from when the fibro developed (with its own usual muscle issues). I first became ill in 1988. Stabilised with flare ups now, more this year. In the 80s, doctors thought M.E was hysteria/depression/anxiety. Luckily that has changed for the better by now.
I do feel age/hormones have made things far worse and I aged more in the last 2-3 years than I would have without M.E/fibro.
I have about 3 - 5 good hours most days and the rest of the time I have to rest. I look fine if a bit tired, and am only mid 50s so not being able to work causes me distress.
Some people are far worse than I am, and of course no-one gets any disability benefits any more.
PS I think there's a link with glandular fever too. I had that at 12 years of age and believe it never really "left".
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A cousin had rheumatic fever 3 times: at age 9, 18 and again in her late 20s. The first time she was so ill that she had to be treated at home, the GP thought that a journey to Hospital 88 miles away would kill her. We all crept about for weeks.
Thanks Machair - how old were you when the virus struck? Like many of these types of conditions, they can remain dormant. Stress, tiredness, worry can bring them out. The other one that springs to mind is herpes from Chickenpox = shingles which comes out when someone has an accident or shock.
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Sorry to hear about the various conditions several of you have.
It's a pity that the old diagnosis of "Post-Viral Fatigue Syndrome" is no longer used and any such symptoms have been subsumed into a vague ME/CFS diagnosis - and especially as you say re glandular fever as this is a known consequence. It would be much better if the possible causes for them all were tested for and isolated rather than a medical "there-there" and put up with it!
I know this is one of my hobby horses but oestrogen deficiency, testosterone deficiency, thryoid hormones deficiency can all lead to fibromyalgia syndrome, CFS and ME ( so I understand). Probably some vitamin deficiencies too? Some of these at least can be treated with appropriate hormones to alleviate the symptoms. Post-viral syndrome is more difficult so I gather - because the actual physiological basis is not certain (correct me if I'm wrong) so difficult to treat ie the medical profession don't know how the virus causes these lingering symptoms. My son suffered for some time after glandular fever (which he got at university) but it wasn't recognised - although he had to drop out and then repeat a year because he fell behind due to the fatigue. he seems to be OK now though fortunately but how awful if it continues!
Hurdity x
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Chronic fatigue is awful. There are no allowances in our busy World to accommodate it so people lose jobs, friends, partners …… time, energy, holidays, days out ……… managing conditions can in itself, be tiring >:(
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The WHO recognises ME/CFS as a genuine medical condition despite the medical profession not knowing how, what or why it happens.
Hormone turmoil does indeed cause a chronic fatigue but it is not CFS/ME. PVS is different matter in that it is finite. It is when it does not recover that it can become a CFS or ME to use the original term that is not used so often now.
And are the young people and men who suffer with it just hormone deficient? I find the comment that it is all about hormones belittling to those who suffer with this illness and I know several patients with it, including a man, and a young woman who is housebound a lot of the time.