Menopause Matters Forum

Menopause Discussion => Personal Experiences => Topic started by: karenja on January 09, 2015, 05:39:28 PM

Title: Off HRT Feeling horrendous
Post by: karenja on January 09, 2015, 05:39:28 PM
Hi

Been off Estradot patches since Wednesday evening, today feeling awful, Ive had terrible fatigue for over a week and I don't know if that's the combination of recovering from cold/cough, lack of sleep and the effects of the Ultorgestan I was taking for a few nights, but Im still v v tired today and achy not sure if coming off the hrt is doing this or not.

Ive also put on so much weight since stopping exercise and snacking to stop me feeling fainty, plus hrt doesn't help, I need to sort this somehow, find something to suit me, start excercising again when I have my heart tested, today I feel like crying, sending hugs to all other ladies feeling the same xx
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 09, 2015, 05:41:44 PM
going to gp Wednesday don't know whether to ask for a different progesterone and go back on estradot, or just sta off it :((
Title: Re: Off HRT Feeling horrendous
Post by: CLKD on January 09, 2015, 05:43:57 PM
Have you read your previous threads?  I suggest you review and read the responses you have received, you may see that there is a pattern to your symptoms, your responses to the replies from ladies here, your behaviour: nothing works immediately. Your GP may well reconsider what you have taken/not …….. and be able to help *but* if you don't give medication a 'try' then you will go round in circles.  I remember wanting a cure yesterday but it took 3 years to find an AD which suited me ……. only you can decide ……..

if you read your threads and make notes about your symptoms and how you reacted to the various medications, you will at least have something to discuss with your GP.  You are lucky to get an appt so quickly!
Title: Re: Off HRT Feeling horrendous
Post by: Taz2 on January 09, 2015, 07:05:27 PM
I think that unless you are prepared to try the HRT for at least three months then it is better for you to try without it for a while. It can't be doing you any good starting and stopping - although I appreciate that the side effects aren't good but most of us have to tolerate them while the body is getting used to a new level of hormones. What symptoms were you hoping to relieve with HRT?

Taz x
Title: Re: Off HRT Feeling horrendous
Post by: honeybun on January 09, 2015, 07:20:49 PM
It takes a little while before HRT leaves your system. I think it's perhaps your anxiety again.

As CLKD says if you have a read back at your previous posts there is a pattern here.

I understand that it's not easy but you have changed so many times I'm sure your body and hormones have not got a clue whether they are coming or going.

Wait until you have had all your tests done and then asses things with the information you have and then decide what to do next.


Honeyb
X
Title: Re: Off HRT Feeling horrendous
Post by: Limpy on January 09, 2015, 08:56:33 PM
Karenja - Like the others have said, read your previous posts.
You have to give things time to work.
That includes coming off HRT.
There are no quick fixes.
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 09, 2015, 09:41:18 PM
Ok I'm going to try and be more tolerant - bad news I weighed today and along with huge weight gain my body fat is 37.6%!! And I'm already worried about my heart :) need to eat betterx
Title: Re: Off HRT Feeling horrendous
Post by: Briony on January 09, 2015, 10:52:11 PM
Karenja, once you've had your heart checked, if you want to get back to your confidence before exercising in a gym/classes/outside, you could try what my mum has done. She has gone from a size 22 to a 14/16 by buying a second hand exercise bike and sitting listening to the radio or reading a magazine as she pedals for 45 mins most days.  She has not eaten any less. Ideally, you'd probably be better off doing something more social for exercise, but if you feel nervous about leaving the house, this is a great starting point. Good luck x
Title: Re: Off HRT Feeling horrendous
Post by: Dancinggirl on January 10, 2015, 09:35:41 AM
karenja - It sounds to me as though you have post viral fatigue.  I've thought all along that you were blaming Utrogestan for the way you were feeling when there were other things going on.  Carrying all that extra weight is tiring and the less exercise you take the more lethargic your become.
I think you were expecting too much from HRT.
Get into a good routine - I find this really helps when I am recovering from a nasty virus. Eat regular small meals and get out for a walk each day.  I simply stopped buying any biscuits, cakes or chocolate about a year ago and feel so much better. Do take a good multivitamin, Vitamin D3 and some Omega 3.
Read funny books, watch films like 'It's a Wonderful Life', join a yoga class - do positive things. 
It is so easy to get stuck in a negative spiral that drags you down.  You can turn this around - so be kind to yourself and take positive baby steps and don't expect things to improve quickly.
Good luck  Dg x
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 10, 2015, 09:59:09 AM
Hi again

yes the cardiologist suggested when Ive had the exercise ecg and that's ok (which it will be) then I need to do yoga or something (which Ive taled about before and haven't done), and any other exercise that ive stopped doing, Ive started today rather than have a buttery biscuit with my tea had an m and s fibre biscuits with sultanas, followed by porridge instead of sugary nutty cereal, with soya milk, im going to start positive steps now, day three starting off hrt, may take a starflower tablet Im sure they are for hormones, thinking positive x
Title: Re: Off HRT Feeling horrendous
Post by: Dancinggirl on January 10, 2015, 10:54:51 AM
karenja
Starflower is good but it's worth getting the Omega 3 and the Vitamin D.  Vitamin D is now known to be a vital element to have, as in winter we get little if any as the main source of Vitamin D in sunlight!!!  You can get Vit D3 quite cheaply from chemists and health food stores.
Here is just one site that can give you info about Vit D
http://www.patient.co.uk/health/vitamin-d-deficiency-including-osteomalacia-and-rickets-leaflet.
DG x
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 10, 2015, 11:32:06 AM
thank you DG x
Title: Re: Off HRT Feeling horrendous
Post by: CLKD on January 10, 2015, 01:07:14 PM
Keep a food/mood journal!  That way you can see how you feel and why - my guide is 1-5 1 being aware of anxiety, 5 being grabbing the medication.  I have it on the calendar for reference.

Be kind to you.  Did you sleep last night?  I am sure that your heart will be fine, maybe your GP could refer you to a dietician? or have a chat with a 'trainer' in your local leisure centre.  Our LA have 'walk for Life' 20 min strolls led by a trained leader, also there are volunteer bureuas across our County which may be worth a look at if your LA has them.

It's the 'wrong' time of year for changes  ::) - grey days, cold, wet, damp - so eat little and often, keep well hydrated - housework is a good place to begin exercise, cheaper than the gym   ;)
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 10, 2015, 02:19:50 PM
I know Ive aleady hovered, hoping o go for a walk tomorrow morning too x
Title: Re: Off HRT Feeling horrendous
Post by: toffeecushion on January 10, 2015, 02:39:25 PM
Ok I'm going to try and be more tolerant - bad news I weighed today and along with huge weight gain my body fat is 37.6%!! And I'm already worried about my heart :) need to eat betterx

I know how you feel about the weight issue.  My body fat is 36.5%, so we are pretty much the same.  I am starting a healthy eating and exercise regime tomorrow.  Do it with me, we can support each other :)
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 10, 2015, 03:10:09 PM
ok I started the day well now im eating pringles so not good :( need to buy lots of fruit I think x
Title: Re: Off HRT Feeling horrendous
Post by: toffeecushion on January 10, 2015, 03:14:33 PM
I am ordering lots of fruit in my shopping delivery for tomorrow.  Also got pringles left over from Christmas, hard to resist.  Got to lose weight, hoping it will help with my health anxiety and palpitations.
Title: Re: Off HRT Feeling horrendous
Post by: Millykin on January 10, 2015, 03:21:30 PM
I'm the opposite karenja need to put it on but I prefer fruit and veg. My hubby was overweight last year and wouldn't touch fruit or veg but went on a major health kick and just can't get enough fruit and veg these days also he started running and boy can he run now for miles!
You can do it, it will also help you feel better rather the comfort food go for it! X
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 10, 2015, 03:45:07 PM
that's brilliant Millykin, I had started running before the palpatations which scared me off it, thoughts of collapsing with a heart attack came to mind :( hopefully all will be ok after ecg and I can stop worrying and if Im staying off hrt then I will need to find other ways to deal with symptoms, good for your hubby with his health kick and running x
Title: Re: Off HRT Feeling horrendous
Post by: CLKD on January 10, 2015, 03:48:13 PM
Running is bad for you - unless you are fit to begin with  ;) …….. little steps!
Title: Re: Off HRT Feeling horrendous
Post by: Dandelion on January 10, 2015, 10:33:05 PM
hi Karenja

I dunno how long you were on hrt for, but this thead http://www.menopausematters.co.uk/forum/index.php/topic,26569.0.html is about the possibility of hrt making us worse before better.
Briony, in her post, mentions this and is thankful she persevered for a while.
I have had to persevere also, and it's only now, since moving upto 75mcg that I have seen some improvements and I am still trialling 75mcg, so am not ruling out the possibility of other improvements. The improvements took weeks, rather than days at my current dose to be really appreciated.
Would you consider re starting hrt and persevering?
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 11, 2015, 08:37:24 AM
Hi dandelion my thoughts were to come off as I've tried so many different ones ok I admit I've not given some of them time maybe thougn I did stay on one for three months then had to come off, I don't feel I can go back on the ultrogestan it maybe a give it time sutuation but after having high hopes for that one it was the progesterone I struggled with the most - estradot patches no
Problem at all with these so is there another progestetone anybody can suggest bearing in mind ive tried the one beginning with n and the one in femseven - having had anxiety in the night first time it's been bad in a while - I'm going to go wednesdày so if anybody can suggest another progesterone then I'd maybe give it another go x
Body
Title: Re: Off HRT Feeling horrendous
Post by: Dancinggirl on January 11, 2015, 09:36:53 AM
karenja
Utrogestan is the kindest of the progesterones and I'm not convinced it was the Utrogestan that was causing your problems as you had a virus at the time.
I don't know if you have bad flushes and night sweats but I think your are wise to give yourself a break from everything and allow your body to recover from the virus.
If anxiety is your main symptom then, if this persists, perhaps ask for some CBT and possibly try an SSRI (like Citalopram) again but this time ask for something to take that will cover the negative side effects in the first couple of weeks until the benefits kick in.
If your are getting flushes and night sweats - have your tried Femoston HRT (look under HRT Preparations) as this has a progesterone that is tolerated well by many women. If you are post menopausal then I would stick to sequential HRT if I were you.
I think you will start to feel better once you're given the all clear about your heart. Give yourself a few weeks with a good diet plus Vit D, Omega 3 and brisk walks and see how you feel.  DG x
Title: Re: Off HRT Feeling horrendous
Post by: Kathleen on January 11, 2015, 10:44:27 AM
Hello karenja.


So sorry that you are struggling, this hormone business is a minefield for some of us.

I can't add to the advice given by the other ladies but I do know what it is like to be desperate for relief and frustrated that nothing seems to be working. 

Take care and sending hugs.

K.
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 11, 2015, 02:18:50 PM
Hi well I went for a walk this morning and whilst im sure it was doing me good I felt v light headed towards the end and had to have food, im getting this fainty feeling a lot, I think today this was mainly due to the fact Id had a cup of tea and biscuit at half six, then porridge at 9.00 only ate bit of that as I dried it up too much, then by half eleven felt awful, saying that on a work day I have cereal around 7am, then throughout the morning eat bananas, tangerines, chocolate (ok not so good) and mini chedders and still feel fainty lunchtime and after work, so not sure whats going on there will mention this to the doctor also x

Havent tried Femston but haven't had a natural period since Dec 2013, only the one brought on in June 2014 by coming off hrt too soon x
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 11, 2015, 02:21:16 PM
definitely going to look into cbt, and was on hrt for flushes, bad night sweats and it did help my anxiety, the cardiologist advised me against anti depressants and I wasn't that keen to take them anyway after a bad experience with Citalopram, though I know a lot of ladies have found them very helpful x
Title: Re: Off HRT Feeling horrendous
Post by: toffeecushion on January 11, 2015, 02:25:50 PM
I went for a walk too, I took a flask of soup with me for afterwards.  Did have palpitations at one point, but had just walked up a hill.  The funny thing is my shoulders ache and not my legs :)
Title: Re: Off HRT Feeling horrendous
Post by: dahliagirl on January 11, 2015, 02:45:23 PM
Hi Karenja

I just want to add my voice to Dancinggirl's - I have been taking Vit D3 since I had a blood test which showed my levels as low (but not deficient).  I feel so much better.  Vitamin D is important in the thyroid pathways, as well as for bones and joints.  It started to change after 6 weeks.

I'm not really into taking supplements and prefer to do things from diet.  I am now taking D3, omega 3 and multivitamin, as well as all the fruit and veg.  I stopped taking the D3 over Christmas and the pains in the back of my neck came back, so I have gone back to it.

HRT has helped me too, but it seems a good idea to optimise everything else with your health to make the best of it.
Title: Re: Off HRT Feeling horrendous
Post by: Dancinggirl on January 11, 2015, 03:41:48 PM
dahliagirl - my experience is very similar to yours - this is why I continue with the supplement regime I'm on. I am a life vegetarian (includes dairy and eggs) and eat lots of vegetables and legumes etc. - in fact I have such a high fibre diet I have to make sure I eat eggs regularly - well to put it simply, constipation is simply not in my vocabulary! I started Vitamin D after hearing the recommendation from 2 GPs who attended my dance class.

karenja
I think you are interpreting your "fainty feeling" or light headedness as low blood sugar when in fact you could simply be dehydrated. Tea and coffee can make you more dehydrated so perhaps having a bottle of water with you and having regular small sips would be better.  All these snacks between meals is really not good - no wonder you are putting on weight. You are also eating high sugar foods and these will give you the extreme highs and lows - you get a fast high after eating as the sugar kicks in but then the blood sugar will drop quickly and you then feel low quite quickly afterwards. 
You can certainly start your day with a cup of tea to get you going but try having a boiled or scrabbled egg for breakfast alongside your porridge and have about 200ml of water with a multi vitamin (Menopace is actually good because it has a good dose of Vitman D in it) plus an Omega 3 capsule - this will keep you going far longer.  Then have a small packet of nuts or sunflower seeds as a snack if need be.
As for feeling dizzy after your walk - well that's to be expected as you will need to build things up gradually - your body is simply not used to doing exercise.  The more you do the easier it will get.
During my brisk walks with the dog each day, when I start to feel myself flagging I actually push myself to walk a bit faster and harder to really build up a bit of a sweat - when I get home and relax with a glass of water or a hot herbal tea I feel really good. Incidentally, I've just hoovered round the house - this is great exercise.

I'd give yourself at least 3-4 weeks of trying the good routine before attempting any more HRT. If you haven't tried Femoston then I would certainly consider this but take the sequential version which will give you a withdrawal bleed as there will be a couple of weeks of just oestrogen and then the combined oestrogen and progesterone phase and you can then tell how you are feeling on both sections.  The progesterone in Femoston seems to suit many women and some women even report that they feel better when on the combined section than on the oestrogen only part!!!!!.  It comes in 2 strengths as well so you could try the lower dose to start with and go on to the bigger dose if you feel you need it.
Good luck  Dg x
Title: Re: Off HRT Feeling horrendous
Post by: CLKD on January 11, 2015, 03:50:02 PM
You feel 'faint' because you haven't eaten correctly  :( ………. do you need to sit/lay down when out walking, I used to fall right over  ::) ………… eating every 3 hours - bananas, fruits, nuts, chocolate, mini Cheddars - it's OK to eat what you fancy as your body will burn it off whilst exercising  ::) -  I carry Dextrose tablets when walking any distance.
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 11, 2015, 05:09:35 PM
thanks Ladies, ok im going to see how it goes off the hrt, going to keep my gp appointment for Wednesday just to have a chat and may mention Femoston then as something to consider if I do need to go back on hrt.

Ive taken a starflower oil tablet today, ok I felt faint walking but Im  not used to it and had v little to eat beforehand, but Im getting fainty feelings every day another thing I need to mention to gp.

Ive bought some mangos and kiwi fruit and bananas to chop up to take to work tomorrow for snacking on and will now avoid chocolate bars if I can, even the tracker bars I eat have choc chips, I will get some sunflower seeds to try.

Ive bought more porridge for breakie sachets, will have two with semi skimmed milk this time as it didn't work really with soya milk which I have been taken as meant to be good for hormones?

I will also get some vit d tomorrow to try alongside the starflower oil.

Little steps! x
Title: Re: Off HRT Feeling horrendous
Post by: CLKD on January 11, 2015, 05:36:42 PM
I ate GOApple bars ……… little and often
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 11, 2015, 05:55:49 PM
ok I will look out for them then x
Title: Re: Off HRT Feeling horrendous
Post by: Dandelion on January 11, 2015, 06:37:26 PM
Hi Karenja

Have you mentioned these fainty feelings to your GP?

Femoston is one of the best HRT's.
Very rarely have I seen it not working on the ladies I have met, since coming here a year and a bit ago, in fact, I think I am the only one, and even then, it was only because I was not absorbing the tablet hrt, and not because the hormones themselves were somehow defective. I take oestradiol now and it works and I would have been happy to have taken the dydrogesterone (the progestin in femoston) in a patch,if they did it, but they don't so I went on utrogestan.
I would say it took a good five - seven weeks for my estradiol to make a difference.
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 11, 2015, 06:48:22 PM
Hi Dandelion

No Im going to mention it to gp on Wednesday x
Title: Re: Off HRT Feeling horrendous
Post by: Hurdity on January 11, 2015, 08:24:53 PM
Hi karenja

Just to re-iterate - I think what I said on your fainty feelings thread - that your fainty feelings may or may not be due to low blood sugar.

The point is - don't eat just because you think you have to, because you have been told it's because of low blood sugar! I think what I said on the other thread is that you would know if it was, as these feelings are unmistakeable ie you go from moderate hunger to feeling "fainty", sweaty and trembly in a very short space of time and absolutely crave sugar and need to get it down yourself as fast as possible! (This is what happens to me). If you are not getting this too or anything like it then this may not be the cause. Your doc and the heart specialist should be able to tell you.

That being said - it does sound like you are not eating enough for breakfast. I am exactly the same - my need to keep blood sugar levels up happens in the morning. I cannot get by unless I have a proper breakfast. By that I mean proper slow release carbs ie muesli, porridge or similar. If I'm going to take exercise as well in the morning or I am working ( I use a lot of energy in my work) then I eat more eg brown toast or eggs as well as the cereal. Sometimes I also have banana mid morning. I'm not overweight - well just a few pounds - and I don't generally overeat - just need to eat enough at the right times for me.

Don't go for the cereal bars - they have too much sugar in them, nor the mini-cheddars, choc or crisps (too much fat). Do look on the website I showed you on the other thread about low GI foods which release carbs slowly and keep your blood sugar levels steady (this does not mean it's OK to snack on anything every couple of hours if you have exercise - it takes a lot of exercise to burn up the calories of a high fat/sugar snack like those metnioned!). Yes nuts are good - but quite high in fat so not too many. Wholewheat crackers with low fat cream cheese or something too.

I agree keeping hydrated is also very important.

As for the HRT - perhaps Femoston would suit you better? I thought you had tried that one. If you suffer from digestive/stomach problems then tablet HRT not advised

Also to add (I tried to explain this on another thread) that the main problem with HRT is that it extends the progesterone phase really into 2 and a half to 3 weeks. There is usually 2 weeks of taking progesterone and then when one transfers to the oestrogen only - one is still physiologically under the influence of the progesterone - ie the pre-menstrual phase. In our natural cycle all of this happens in two weeks - following ovulation and before the bleed - but with HRT it is extended. Therefore many women only actually feel good on the second week of the oestrogen only part (if they can't tolerate the progestogen) or feel better on the progestogen part because the first week on the oestrogen only part is withdrawal from the prog. Wish I could draw this - much easier than explaining!

The crux of it is if you find a progestogen that you feel OK on, then all you will have to put up with is a bit of pms for the few days following the switch over the oestrogen only, or you can take progestogen all the time ( if you are OK on it) and maybe not get any pms.

Oh dear that really was a mega-ramble but hope some of it is helpful!

Clear as mud?!  ;D

Hurdity x

Title: Re: Off HRT Feeling horrendous
Post by: CLKD on January 11, 2015, 08:38:46 PM
Yep  ;D and very useful!
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 12, 2015, 05:48:20 PM
Hi and thanks Hurdity again

Well today I have ate well, porridge to start, two sachets, Oats so good with sultannas and something in, I don't like porridge but forced it down, got to work about ten ate my mango and kiwi fruits Id chopped up nice! then I ate two bannanas and a tangerine a bit later, after lunch I ate a little bag of greats and another little pot of salad, melons bits, then had a few nuts, and that's it healthy day, oh I did have one chocolate as somebody in work brought in their chocs to stop them eating them at home, I didn't have  a funny fainty turn lunchtime oh I forgot I did eat two ham rolls instead of my usual one x
Title: Re: Off HRT Feeling horrendous
Post by: Hurdity on January 12, 2015, 06:05:55 PM
Well done karenja! Make sure you eat the rolls with brown or wholemeal bread if you can because brown grains, rice, bread, pasta etc is slow release carbs  - having said that we don't eat brown rice and have a hard time getting my husband to eat brown pasta - but it definitely fills you up more with fewer calories. Fill your rolls with salad to go with the ham....

When I worked in office based job I also used to take in Cup-a-Soup as well for lunch - the only really artificial processed food I eat - only because it's very low calorie and fills you up. Researchers found that if you have liquid with food it fills you up for longer. I expect water might do the same but soup in winter is comforting (at home I have home-made!). You could also replace one of the fruit breaks with something savoury to ring the changes - eg a cup a soup and a crispbread sometimes - or cut up some carrot sticks to eat with some of the fruit - if you like them that is, or some baby tomatoes....

One chocolate is fine - good to have little treats - just not a whole bar!

Hurdity x
Title: Re: Off HRT Feeling horrendous
Post by: Millykin on January 12, 2015, 07:04:00 PM
Well done karenja keep it up
X
Hurdity we eat brown bread and rice but would not touch brown pasta just don't like it, the rice we can just about stomach
X
Title: Re: Off HRT Feeling horrendous
Post by: Suzyq on January 12, 2015, 11:40:46 PM
Karens just a quick note!

I am a type 1 diabetic and as such have to be very regimented about my foods etc. progesterone normalizes your blood sugars I.e.,raises them and low progesterone causes low blood sugars and 'faintly' feeling! I discussed this in depth with my endocrinologist recently as I was concerned at my readings with the progesterone! This month I have taken a break from the progesterone and my blood sugars are bottoming out every day!

I would suggest that you cut way back with your fruits - they do contain an absolute ton of sugar - I am only allowed a half a banana a day - you really want slow release foods and not sugary stuff! Hope this is useful info!
Title: Re: Off HRT Feeling horrendous
Post by: karin on January 13, 2015, 01:53:57 AM
Goodness thats a lot of advice- good advice but a lot to consider! Id say firstly be reassured that you are ok, that its ok to come off hrt but you need to give it a go and accept you  might feel a bit rubbish initially but you are safe and it will settle. Next take some good supps and  vits- everything suggested is good and works together but you may need a couple of weeks to feel a benefit.
Weight wise stopping hrt might help a bit with that too. I get fainty if i stand up too quickly or am hungry ( as suggested a packet if dextrose tablets in your handbag will sort that!)
When im dieting i cut carbs because there seems more available to eat!! I have lots of veggies and lean meats, fish , sweet pots, scrambled  eggs with toms and watercress. Cheese with celery batons, but you need to find the diet that fits your life so do some googling. Move more, that helps, and try and do a little socialising, nothing beats a good giggle to make the world  seem a better place! Hope you are feeling better very soon xx
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 13, 2015, 07:32:39 PM
Aww thanks everybody, thanks Karin, had lots of fruit again today, I know I have to watch this with the sugar, bought pumpkin and sunflower seeds (awful), I must admit I had lasagne and chips for tea after being good all day, where can I get dextrose tablets??

On the whole been ok a few light headed moments but better than it was, doctors tomorrow Ive got a little list, not sure about asking to go back on hrt or whether to see how it goes???

I even thought what if my menopause is over today, wishful thinking maybe???  :-\
Title: Re: Off HRT Feeling horrendous
Post by: honeybun on January 13, 2015, 07:39:29 PM
Dextrose tablets can be bought from any pharmacy. Be very careful with them though. It's a pure glucose shot. I have them for my hubby but he is a Type 1 diabetic so it's a bit different. They give you a very quick boost but a big drop afterwards and you can end up feeling worse.
Better with a banana to be honest.

Honeyb
X
Title: Re: Off HRT Feeling horrendous
Post by: CLKD on January 13, 2015, 08:00:04 PM
I NEVER have a dip with them Honeybun - as walkers we always have them to hand, have been a Life-saver on 1 occasion. [not me I might add  ::)].  If I am low on sugar they fizz in my mouth which is quite nice  :D ………. but I eat them if I can't get to my fruits/nuts/banana ……. they stop that nausea feeling.

If one is eating a 'balanced' diet whatever that might be  ::) fruit is fine.  It is filling and the body uses the sugars 'up' ……. I LOVE fresh Pakistani mangoes but they aren't in season for very long  ;) ….. gone off bananas though  :-\ …… even with cream  :-X
Title: Re: Off HRT Feeling horrendous
Post by: karin on January 13, 2015, 11:17:43 PM
Dextrose from boots
Its just like a very sweet sweet ! If you feel a bit fainty then chew one they  are very nice!

Title: Re: Off HRT Feeling horrendous
Post by: carrs on January 13, 2015, 11:20:16 PM
I might have missed something in the thread, but dizziness is often due to lack of hormones - that is, lack of HRT, rather than lack of sugar.

Sugar tablets and sugar drinks are not a good idea unless someone has unstable diabetes and needs a quite boost.
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 14, 2015, 07:30:55 AM
Morning - awful anxiety this morning silly as it sounds Im frightened of thunderstorms and we had some yesterday evening and through the night, my chest it tight with pain down one side, im sure its anxiety but awful just the same:( x
Title: Re: Off HRT Feeling horrendous
Post by: toffeecushion on January 14, 2015, 08:21:22 AM
It's horrible when it takes over isn't it.  You're be fine.  Have you got doctors today?
Title: Re: Off HRT Feeling horrendous
Post by: peegeetip on January 14, 2015, 12:53:34 PM
Hi Karen it took 6 months plus for me with HRT before I felt comfortable and back to near normal.

I'm not sure who advised the utrogestin but there are other options that should be easier for you.

A single tablet each day would be much easier to cope with till you get used to increased hormone levels.

If you want to switch back to your patches and utro later when you know what a 6 month spell on stable HRT feels like then that would give you a clearer picture of whats possible.

 :-*
Title: Re: Off HRT Feeling horrendous
Post by: Briony on January 14, 2015, 06:21:18 PM
I might have missed something in the thread, but dizziness is often due to lack of hormones - that is, lack of HRT, rather than lack of sugar.

Sugar tablets and sugar drinks are not a good idea unless someone has unstable diabetes and needs a quite boost.

Couldn't agree more. It was lack of estrogen that caused my dizziness. It's calmed down so much since I've got used to the HRT. Now only got it occasionally, usually before I come on. Wish I'd known this before as it caused me to go from someone who ate really healthily and sensibly to someone who thought I 'had' to have sugar or else I'd collapse. Not good for the waist line, nor my self esteem  :-\
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 14, 2015, 07:00:26 PM
HI - well I cancelled my doctors appointment for one I felt so anxious I couldn't face it and the weather wasn't great we had sleet last night and the roads/pavements by me were lethal, I live in a very hilly area and walking down hills too the doctors would have ended up with me flat on my bum, and when my neighbour texted do you want a lift to work I accepted, going to see dr 26th now, so bit of a wait as I want to see a particular doctor the one that referred me for my scans and actually listened to me, strangely enough later on this morning I felt good until lunchtime when I had the funny head feeling again even after having a roll, I had to buy a yoghurt and stand and eat it outside boots to stop me feeling light headed.

This afternoon I felt ok again, even remarked to a colleague maybe the menopause has finished as Ive been ok really apart from the odd symptom (been off hrt a week today) still getting the light head feeling, then when I came home from work bad anxiety panic attack following pains in my chest (under my chest and down my left arm) which frightened me so I took an asprin as it sticks in my head when I rang 999 they told me to do that, prob anxiety and not anything I was thinking.

I haven't taken my starflower today would be my third day on it, does anybody know if I can take it after taking an asprin in the last hour (another thing one doctor warned me don't mix!, its horrible the anxiety coming back is it just after being anxious last night and now Im back in the house on my own again I don't know, when the panic attack passed I could feel like pins and needles in my face, horrible, sorry to moan again xx
Title: Re: Off HRT Feeling horrendous
Post by: honeybun on January 14, 2015, 07:14:07 PM
Sorry you missed your appointment. I really think it's anxiety that's the problem.

Light headedness was a huge problem for me when my anxiety was really bad. Standing in a queue was a nightmare. I came to regognise it for what it was. Anxiety.
I take a beta blocker and St Johns Wort. I have read and still do self help books on anxiety to help me understand what's happening.

You can be pro active or not. It's really down to you now but when you have your heart tests and they are hopefully fine then you will know what is wrong and that you have to deal with it.

I know there is a lot of talk of low blood sugar. If you are well fed like most of us are then this really will not be an issue. Dextrose tablets give a quick high then a big slump. My hubby takes them in emergency situations until he can get to slow release foods. He is a type 1 diabetic.
If you eat properly three times a day and avoid junk food and lots of sugar then really you should not give your glucose levels another thought.
If you are concerned then some chemists do checks.
When I went through my light headed period I did check my glucose levels on my hubbies machine. I felt wobbly and my glucose levels were just fine.....as I said ....anxiety.



Honeyb
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Title: Re: Off HRT Feeling horrendous
Post by: Millykin on January 14, 2015, 07:32:27 PM
I definetly think anxiety as well light headed ness is a symptom, as HB said you can easily get your levels checked at your local pharmacy the majority do it nowadays ask in boots if it is near your work. When I felt like that llyods done it for me twice in one month  ;D just to put my mind at ease as we think all sorts! It may be harder for you if you live alone where as most of us have partner / family to distract us now and again. Wishing you well karenja
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Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 14, 2015, 07:34:31 PM
thanks both, I thought the anxiety had passed by Im still feeling odd, still having chest pain, may just go to bed and rest x
Title: Re: Off HRT Feeling horrendous
Post by: Briony on January 14, 2015, 07:47:22 PM
Do you have a date for when you get the heart checks done? x
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 14, 2015, 07:48:43 PM
Hi - no the cardiologist said a few weeks, I went last Thurs so hopefully wont be long x
Title: Re: Off HRT Feeling horrendous
Post by: CLKD on January 14, 2015, 08:36:46 PM
Also - I have a nerve in the back of my neck which makes me 'dizzy' if I bend my head backwards it makes me go 'oh' but is gone in an instant.

How did you eat today?  Grazing can help those fuzzy feelings ……… making sure that you keep hydrated and keep to regular eating patterns, you will eventually recognise the light-headedness for what it is - and realise that it won't harm you …….. when it happens, stand quietly and breath deeply; in through your nose, hold your breath, let out slowly through your mouth, 3 times.  It slows the autonomic [?] nervous system so that the person regains control.

Why are you taking aspirin ….. how do you take the sunflower oil?  I think you should consider keeping to a basic good diet, keep a diary of what you eat and when so that you see if there is a pattern?  If you haven't eaten in the night then you may well feel a bit 'odd' first thing - getting out of bed and starting the day can use energy so maybe having a biscuit before getting out of bed!  Finding out for yourself means you will regain control of your eating patterns.
Title: Re: Off HRT Feeling horrendous
Post by: Hurdity on January 14, 2015, 08:57:25 PM
As I said on a previous thread - you can take anything with starflower oil - it's not a drug or a hormone or a herbal remedy - it's a concentrated food supplement made from borage seeds.

Re blood sugar - as I also said before you would know if your light-headeness was such low blood sugar (symptoms) that you need to eat (sugar) immediately. As honeybun says most people who get this are diabetics but others (like me) get similar from time to time - sometimes known as reactive hypoglycaemia but this is unmistakeable if you get it - it is not just light-headeness so shouldn't be any need to eat all the time. I used to carry dextrose tabs when I got it a lot when I was peri - but only when I was walking about in town or something and would have fallen over if I hadn't had glucose quickly. It's not a thing to be taken all the time every time you feel peckish or a bit hungry or faint as it won't help to regulate blood sugar levels as honeybun says - it just brings them up quickly so you stop sweating and trembling and feeling desperate!

Here is a good website I found for diet to regulate blood sugar levels - it's American but the pronciples are the same:
http://www.pmscomfort.com/pms-diet/pms-pmdd-balance-diet-hypoglycemia.aspx

Sorry to hear about your anxiety attack - have you seen the site nomorepanic? http://www.nomorepanic.co.uk/ Looks like there is a forum as well so hopefully you can get advice from others for non-drug methods of coping with your anxiety?

Hurdity x
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 15, 2015, 07:24:16 AM
Hi Ladies

Went to bed at 7.45 really didn't feel right shaky, just strange, didn't eat too badly yesterday grapes, bananas, tangerine before lunch, then for lunch I had an egg roll, after that I started to feel fainty then bought a yoghurt and ate it outside boots it helped a bit, in the afternoon I had more grapes, small bag of cashew nuts, for tea I had a pie, veg and potatoes and gravy, I also drank a few glasses of water through the day.

I was only saying at one stage yesterday I was feeling ok, didn't last x
Title: Re: Off HRT Feeling horrendous
Post by: carrs on January 15, 2015, 11:40:48 PM
Hi karen

You might want to think about having more protein in the mornings. as it seems you only start at lunch time or later. That might "set you up" for a few hours.
Title: Re: Off HRT Feeling horrendous
Post by: Hurdity on January 16, 2015, 05:56:26 PM
I agree with carrie!

I just have one more thing to say about eating and keeping up your blood sugar levels!

"Breakfast like a king, lunch like a queen, dine like a pauper".

That signifies the order of size of meals that we are supposed to eat to help us get through the day. Nowadays most of us do it in reverse so no wonder we can't cope and feel funny! I am like you, I have my "fainty" times in the morning so also need a good breakfast and - yes it sets me up for some time.  Try shifting around when you eat most food and maybe only have a small or light meal in the evening, remembering that you may also need your low calorie low GI snacks (slow energy release) to keep you going.

Hurdity x
Title: Re: Off HRT Feeling horrendous
Post by: karenja on January 16, 2015, 08:10:28 PM
HI

Thanks Hurdity for the link re blood sugar levels, its strange I was shaky tonight as I left it late to have tea and have had that before, I don't know if its hormones or blood sugar levels causing the problems I may find a chemist who can test this??

Ive started eating porridge in the morning but one sachet as I don't like it much, may try ready break instead as finer and doesn't end up like wall paper paste :) I also have banana, then fruit through the morning I did also have some cashew nuts which I know are not great, I don't usually have a lot for lunch one roll maybe followed by crisps or something and then fruit in the afternoon, do maybe that's a problem too as you say, though it would be expensive to go and a eat a big meal every day as I tend to walk round town rather than stay in the office.

Ok Ive had anxiety but on the whole Im not to bad on just the starflower at the moment, hate to speak too soon xx