Menopause Matters Forum

Menopause Discussion => Other Health Discussion => Topic started by: katsclaws on June 02, 2014, 11:18:29 AM

Title: Vasovagal IBS
Post by: katsclaws on June 02, 2014, 11:18:29 AM
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Title: Re: Vasovagal IBS
Post by: CLKD on June 02, 2014, 12:06:18 PM
Is there a connection between the French bread and the symptoms?  What changes had you made to your diet in the previous few days.

I have had IBS for years ……… due to being anorexic-type, the gut spasm stopped completely ……… my GP was wonderful and gave me appropriate medication and advice.

I have always needed to watch what I eat particularly when away from home due to my intolerance of onions  ;)
Title: Re: Vasovagal IBS
Post by: CLKD on June 02, 2014, 02:03:56 PM
French bread comes into the country half-baked before distribution to the various supermarkets across the UK so it may well have been the same recipe  ;)

Stick to what you know!  I had to for many years ........ once I found a diet which suited my gut I stuck like glue and only in the last 5 years have I dared to 'eat out'  ::)
Title: Re: Vasovagal IBS
Post by: Rowan on June 02, 2014, 02:18:12 PM
Its happened to me too and I ended up in A&E after conking out.

I stupidly took two stool softeners and about half an hour later had severe pain in tummy  went to the loo and that's the last I remember, OH had forced the Loo door open to get to me.

Had all the tests kept in overnight and found nothing wrong.

Its Quite common  http://ibs.about.com/od/symptomsofib1/a/IBS-And-The-Vasovagal-Reflex.htm

When it happened to OH in the loo it was far more serious as it was connected to his heart, it happened twice and was very traumatic, he would have died if I had not been there. They had removed his pacemaker previously but it took two blackouts in the loo for them to replace pacemaker.
Title: Re: Vasovagal IBS
Post by: Rowan on June 02, 2014, 02:43:52 PM
No more episodes thank goodness though it stresses me even now when he goes to the loo, and he does seem to spend a lot of time in there ::)

Title: Re: Vasovagal IBS
Post by: CLKD on June 02, 2014, 03:29:37 PM
Takes a Good Book then ?

My body is like my car: whilst it starts in the mornings I'm OK  ;)
Title: Re: Vasovagal IBS
Post by: oldsheep on June 02, 2014, 05:28:25 PM
I used to get what I called 'vagal attacks' but never as dramatic as yours. Just my heart suddenly beat irregularly and slowly, then 'stopped'. It was food related mostly. Had to climb stairs or jump up and down to restart.
It settled when I took a 6 month course of PPIs (omeprazole) - seemed to make the vagus nerve less sensitive. Not suggesting that it would work for you, but it was an off label suggestion by my then gynae, who was elderly, had vagus nerve problems and had self medicated with omeprazole!

Very scary, what you describe. Can you avoid wheat to see if that helps? I also take ground linseed to avoid straining
Title: Re: Vasovagal IBS
Post by: Taz2 on June 02, 2014, 07:25:00 PM
Me too!! I've had it very infrequently since I was around eighteen but didn't know what it was called until it worsened dramatically last October after having a course of several antibiotics for a kidney infection. It's horrible. The feeling like you are going to faint or vomit the dizziness and drenching sweating coupled with the intense pushing sensation - just like a labour cramp - makes me feel totally exhausted. I haven't found out a cause yet but I've found that Buscopan if taken as soon as I feel that overwhelming sensation begin can help. Taking a book into the loo wouldn't help CLKD as there is no way you could focus or concentrate on reading!

It does make eating out difficult - although the last couple of times it has happened out of the blue and didn't seem to be involved in eating. Not nice at all. Luckily (unluckily for her) my GP also suffers from this so she is very sympathetic.

Taz x
Title: Re: Vasovagal IBS
Post by: Rowan on June 02, 2014, 07:51:54 PM
I had no warning whatsoever when I passed out, OH said he felt himself go though.
Title: Re: Vasovagal IBS
Post by: oldsheep on June 02, 2014, 08:14:32 PM
have you got an alarm button in the loo? Mind you, if no warning at all, not much you can do.
Title: Re: Vasovagal IBS
Post by: Taz2 on June 02, 2014, 09:03:24 PM
My husband and one of my sons have passed out while getting up for a wee in the night. Same sort of thing I believe.

Taz x
Title: Re: Vasovagal IBS
Post by: CLKD on June 02, 2014, 09:15:22 PM
I always tell the men (including visitors) in our household to sit over the edge of the bed before going to the loo.  It prevents this sudden fainting …………
Title: Re: Vasovagal IBS
Post by: honeybun on June 02, 2014, 09:47:54 PM
I think I will let my hubby and son figure that out for themselves. They think I fuss enough anyway without me giving them going to the loo in the night instructions  ::)



Honeyb
x
Title: Re: Vasovagal IBS
Post by: Taz2 on June 02, 2014, 09:51:43 PM
Why would you tell them that CLKD? Don't they have to go to the loo at night in their own homes? They might have already figured that one out!

Taz x  :lol:
Title: Re: Vasovagal IBS
Post by: CLKD on June 03, 2014, 03:04:24 PM
Because a friend's husband dropped dead in the bathroom at 2.45 a.m. ....... and the Coroner told her that if all men sat over the edge of the bed before rising, there would be less sudden deaths in the early hours of apparently healthy men  :-\ ... and it's my house so my Rules GO! as I don't want waking in the early hours with a sudden bang ..........
Title: Re: Vasovagal IBS
Post by: Rowan on June 03, 2014, 03:14:48 PM
Just spoke to OH about that and he was told the same thing and I have checked that he does, think I will remember that too when I wake in the night to go to the loo, mind you with BPPV when its in an active faze I am all over the place if I wake and turn suddenly ::)
Title: Re: Vasovagal IBS
Post by: honeybun on June 03, 2014, 06:14:57 PM
Do you stand over them to check CLKD. Afraid my son and hubby would laugh if I started that. Sometimes you just have to leave grown ups to be grown up and look after themselves.
There has to have been more to a sudden death than going for a wee and not sitting on the edge of the bed for a minute.


Honeyb
x
Title: Re: Vasovagal IBS
Post by: Taz2 on June 03, 2014, 08:55:41 PM
The  main thing to remember is for men to get themselves checked out if this does happen to rule out any underlying illness. Vasovagal Syncope doesn't cause death unless you hit your head when passing out of course http://www.mayoclinic.org/diseases-conditions/vasovagal-syncope/expert-answers/micturition-syncope/faq-20058084

Taz  x
Title: Re: Vasovagal IBS - Buscopan is the solution!
Post by: AnneD on June 09, 2014, 10:46:36 AM
I had exactly the same problems for 20 years - at first only 1-2 times a year but gradually increasing to every 6 weeks. Fainting on hard bathroom floors has caused damage to a shoulder and an eye and several head gashes. I have never found a connection with any food i had eaten or any combination of foods in the previous 24 hours.
I have asked many GPs about it over the years but only got mild interest from them, and once when I got pushy I was told it could be investigated if it happened 1-2 times a week... Last year a GP gave me the label but no solution, and searching on line showed that thousands of people suffer from it and don't know what it is.
FINALLY a locum GP I went to about something else prescribed me Hyoscine Butylbromide 10mg tablets (Buscopan) and I've never looked back. You have to take two at the first sign of intestinal cramp, and they work in a couple of minutes. I haven't had an episode in 6 months, but have stopped them progressing from the cramp stage many, many times without fail. I never leave home without them now.
He did warn me that it only works if the digestive system is working, so if it has gone into stasis (eg if you have an adverse reaction to a strong antibiotic) the tablets can't be digested, so won't work. You can buy this OTC too.
Spread the word!!
Title: Re: Vasovagal IBS
Post by: CLKD on June 09, 2014, 01:44:43 PM
Honeybun - it's the sudden drop in BP that causes them to die suddenly.  My friend heard a thump and that was it; married one moment, widowed in seconds  :'( and although I don't stand over them, I wake instantly if someone gets out of bed in our house ….. so I know if they lift the lid  ;) MY HOUSE MY RULES I do not want an undertaker here!!!

Welcome AnneD!
Title: Re: Vasovagal IBS
Post by: Taz2 on June 09, 2014, 06:31:06 PM
I use buscopan too Anne - always just buy mine over the counter. 

Taz x
Title: Re: Vasovagal IBS
Post by: CLKD on June 09, 2014, 08:22:25 PM
We use Buscopan when the dog has wind, he gets all screwed up in his body and it's obvious he is in pain internally ....... sorts it out quite fast! otherwise  :-\
Title: Re: Vasovagal IBS
Post by: honeybun on June 09, 2014, 08:24:30 PM
I thought you did not have a dog CLKD....Just chickens  ???


Honeyb
x
Title: Re: Vasovagal IBS
Post by: CLKD on June 09, 2014, 08:29:01 PM
The one who visits  ;) - yep, 2 chickens - 1 lays soft shelled eggs, steps in them so they break, the other lays pretty brown eggs .......
Title: Re: Vasovagal IBS
Post by: Taz2 on June 19, 2014, 08:22:42 AM
I had a mild attack of vasovagal ibs yesterday which led me to have a bit of a google this morning and I found these experiences from others http://ibs.about.com/u/ua/symptomsofib1/Vasovagal-Symptoms-And-IBS-Attacks.01.htm which just goes to show that it's not all in our heads!

Taz x
Title: Re: Vasovagal IBS
Post by: Taz2 on June 19, 2014, 10:10:18 AM
It's very interesting how many people are affected by this and yet it's rarely mentioned by GP's. I don't have so much a pain as an overwhelming pressure sensation and you just have to let your body get on with it. It always leaves me feeling very tired and out of sorts. I hate eating out because of it. It's not as if you can just go to the loo and come back to the table - each episode can take up to twenty minutes and you emerge from the loo looking like you've just run a marathon.

Tazx
Title: Re: Vasovagal IBS
Post by: CLKD on June 19, 2014, 02:03:43 PM
 :hug:
Title: Re: Vasovagal IBS
Post by: Taz2 on June 19, 2014, 05:56:50 PM
Thanks CLKD!

Taz x
Title: Re: Vasovagal IBS
Post by: honeybun on June 19, 2014, 06:40:44 PM
When you feel it coming on can you take something that might help. Lots of IBS (D) sufferers take Immodium before they go out for a meal.....would that help.
I take a herbal preparation that is an anti spasmodic and also stops the runs. You can take the drops as and when and if I am going out I take them. I also take at the first signs of ominous stomach rumbles that I know won't end well.

I have felt hot and sweaty and light headed during a toilet episode but never faint.



Honeyb
x
Title: Re: Vasovagal IBS
Post by: Taz2 on June 19, 2014, 06:47:57 PM
With me it's not so much tummy rumbles like you get with an upset stomach but more a growing sense of pressure within the lower stomach - much like a contraction. It comes in waves and you really can't do anything but sit on the loo and wait for the body to expel what it wants to expel. It's very strange.

Taz x
Title: Re: Vasovagal IBS
Post by: honeybun on June 19, 2014, 06:53:39 PM
Have you tried taking something at that point Taz ?

The herbal stuff works within about ten mins. If it's a bad bout then it does not stop it completely but does limit things a lot.
It can make the difference between getting up an hour earlier than you need to in the morning and also horrible episodes in restaurants. I take them at the table as soon as my meal is finished.


Honeyb
x
Title: Re: Vasovagal IBS
Post by: CLKD on June 20, 2014, 02:16:59 PM
If the body wants to out something then it should be allowed to do so.  As awful as it is.  Katsclaws, I think the symptoms described is a shock reaction …………. until the body stabilises itself?
Title: Re: Vasovagal IBS
Post by: CLKD on June 20, 2014, 04:28:49 PM
I was like that with panic attacks.  Shivering, hot and cold, shaking ……… kind of shock reaction  :'(  :-\ …… and if the body ejects stuff fast, the same happens.  Awful ……..
Title: Re: Vasovagal IBS
Post by: Taz2 on June 20, 2014, 05:08:49 PM
I think you are probably right CLKD about the body being allowed to do whatever it needs to do but it doesn't fit in with working and travelling and I can't afford to retire yet so it's all a bit worrying.

Taz x
Title: Re: Vasovagal IBS
Post by: honeybun on June 20, 2014, 06:14:00 PM
So does not taking something head off potential episodes.

I have IBS but apart from getting hot and sweaty I have never had the kind of attacks some of you describe.

Just wondering how much notice you get and perhaps treating it before it gets to its worse is possible.

The body can be headed off before things get bad possibly.


Honeyb
x
Title: Re: Vasovagal IBS
Post by: CLKD on June 20, 2014, 07:23:39 PM
Like taking pain relief for a headache before nausea sets in ………  :-\

I had onions yesterday, I knew they were in the pizza and picked out as many as I could: it was a spicy pizza so I've known about it today  ::) although fortunately, it didn't make me feel ill but it was necessary to get to the bathroom pronto  :o
Title: Re: Vasovagal IBS
Post by: honeybun on June 20, 2014, 07:30:35 PM
I get a little warning before an episode so take something that can help.


I suspect what has been described it completely different though.


Honeyb
x
Title: Re: Vasovagal IBS
Post by: CLKD on June 20, 2014, 07:31:21 PM
Which is why it's difficult to treat it initially ………..
Title: Re: Vasovagal IBS
Post by: Taz2 on June 21, 2014, 08:37:39 AM
I get around five minutes warning - starts with a feeling of pressure in the lower abdomen - no pain. I didn't used to get these sort of attacks. I had the early-morning-rush type IBS and after that things settled down for the day but this is different. This explains the causes maybe http://solvingtheibspuzzle.com/lower-abdominal-pain-and-fatigue.html

Taz x