Menopause Matters Forum
Menopause Discussion => Other Health Discussion => Topic started by: Sarai on April 30, 2012, 09:36:11 AM
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I wrote on here recently about the return of my tinnitus. It is driving me crazy as half the time I cannot even watch TV as it goes up and up.
I joined the BTA it has a forum like this but unlike this it seems there is no hope. Every single thing I have read says the words, there is no cure. I am so despondant.
I thought it could be peri meno but they say hormones play no part. I also have a crazy jaw I thought maybe that but probably not they say. I am so miserable, they put men on the moon and won't fund research into tinnitus. There is a Harley Street clinic with a £6000 gadget on trial, but the NHS will not take part. So thats all but the rich rock stars who can't have that then.
Anybody on here found relief with anything?
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Sarai i have it in my right ear with the pulsing sometimes, you are right it can drive you crazy, I have the sound machine, the pillow speakers and Tinnitus CD that does help. It does seem to come and go so I do have some respite now and then.
At the moment I have slightly blocked ear which also seems to come and go and it does seem to make the tinnitus worse.
I am so sorry I cannot suggest anything as I am looking for answers myself. I will have a good look around the BTA website, thanks for that.
Stress seems to make mine worse and I wonder about blood pressure but my doctor always seems to be satisfied with my reading.
silverlady x
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Hi Sarai
I am fortunate not to suffer from that although I knew a few people who do and I know there are many ladies on here who suffer.
Reflexology and Hopi Ear Candles are treatments that have helped alleviate some of the symptoms for my family and friends. I appreciate it will not suit everyone since it depends on the cause.
Mrs. P is right, if your jaw/skeletal system is out, it may well be affecting the Tinnitus.
I hope you find some relief.
Fx
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Found this interesting http://www.womentowomen.com/womenshealth/tinnitus-hearing-noiseinears.aspx
silverlady x
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Thanks ladies. I feel I am drowning under a sea of posibilities.
It might be hormonal, or TMJ my jaw has to be clicked into place and on it's own is not a problem to me but I would not like to think it is causing the tinnitus. Is osteopathy available on the NHS?
Then I have recent neck problems from too much carrying of a grandchild and an awkward fall. And my latest crazy theory is have normal iron levels for the first time in years making my ear blood vessels sensitive.
A visit to the GP again is on the cards but I am not optimistic after all I have read.
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I have it in my left ear, it is always worse if I am stressed or have a headache, I believe there is a masking device but I am not sure what the success rate is.
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There is a drug called Serc ( betahistine) which is prescribed for Meniere's Disease which causes tinnitus. It could be worth asking your GP if he thinks it is worth you trying it. He may say no if you don't have a diagnosis of Menieres but I used to promote this when I was a medical rep and I know a lot of doctors tried it for patients with tinnitus.
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Been back to GP today and got more antibiotics. Not sure if it's the answer but she says my eardrum is dull so may have fluid behind causing the little bones difficulty moving. Told me to chew gum, yawn a lot and pop my ears. I have asked for referral to ENT and just hope I don't need it. She says I should be optimistic it will go as it has gone before.
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I just been re reading my posts of last year on tinnitus.
Sadly I don't have much good news. 18 months on tinnitus is still there, albeit quieter.
I guess I am 'used to it' now but I have debates with myself everyday regarding it, is it a little quieter, how long since I heard it. It has dominated my life as it s so intrusive.
I definitely feel there is a hormone involvement, as at period time it goes up a gear and after it goes down a gear. So maybe there s still a little hope for after menopause.
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Do you still have jaw problems? Do you mean a clicky jaw? If so have a chat with your dentist. He can make a mouth/teeth guard to wear at night. I had the same problem. The mouth guard is not very glamorous and I hated wearing it at first, but it has made a huge difference. Cost£40.
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Ju Ju my dentist gave me thorough exam and is sure I don't have TMJ.
Because I gave APS my consultant thinks it was a small clot in a tiny vessel in the ear,especially as it is just one side.
I am hoping to get a hearing test again soon to see if my hearing loss has got worse as I have been told a hearing can help with Tinnitus as it stops the ear working so hard.
Here's hoping
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It is a nuisance that can take over our thoughts ::)
Sometimes my ear pulses from deep within
There is often deep itching
A high pitched buzzing - which makes me wonder how long was it there before I noticed ::)
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Just a thought. I had really persistent tinnitus both ringing and pulsating some time back. After I had managed to persuade my GP that this was severely impacting on my life I was referred for ear microsuction. The amount of gunk that came out with the tiny hoover was both disgusting and incredible. Might be worth suggesting to your GP. It is a painless procedure and very effective, much more so than conventional syringing, at clearing the ear of debris that could be contributing to your difficulties.
Good luck.
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I suffer from T too...I also have a problem with my inner ear chamber as it has a membrane closed over it, which means that all the debris that would normally come out through the eustatian tube stays where it is, locked behind the membrane. I am having a grommet fitted soon which may help the pressure build up in the inner chamber, but alas it is very unlikely to help the T.
I went to see a hearing therapist last week which was quite interesting. She took me back to talking about when the T started. What was going on in my life etc. I had been through a lot of problems at the time (BB throat cancer/ I was made redundant/meno probs & so on). She said that I was focussing so much on these problems that once they were sorted & the panics over, I started looking for something else to think about & there it was - the buzzing, droning noise. What was going on in my head. It made sense to me. I am a born worrier. If I'm not worrying about other peoples problems, then I focus on my own (just like my Mum did).
I have this week purchased a Therapy Hearing Ball which plays "calming" music. Up till now I have had a small electric fan on at night to help lessen the buzzing/droning, which is all well & good in the summer but useless on a cold winters night.
I have regular hearing tests & my hearing has got a little worse but that could have happened anyway with age. :-\
I had the microsuction procedure done as well Pauline, they are good & a lot better then syringing.
Good Luck Sarai.
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I wrote on here recently about the return of my tinnitus. It is driving me crazy as half the time I cannot even watch TV as it goes up and up.
I joined the BTA it has a forum like this but unlike this it seems there is no hope. Every single thing I have read says the words, there is no cure. I am so despondant.
I thought it could be peri meno but they say hormones play no part. I also have a crazy jaw I thought maybe that but probably not they say. I am so miserable, they put men on the moon and won't fund research into tinnitus. There is a Harley Street clinic with a £6000 gadget on trial, but the NHS will not take part. So thats all but the rich rock stars who can't have that then.
Anybody on here found relief with anything?
I had dreeadful tinitus for 6 year premeno and men then it just WENT can get it nw and again for ahour or so
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An aside - how is your Bro Cazikins?
I have a whooshing this morning ::)
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An aside - how is your Bro Cazikins?
/quote]
He's doing well thanks CLKD.
It was February 2008 he was diagnosed with it so he is doing pretty good considering.
His voice is very weak which frustrates the hell out of him, & he still has 6 monthly check ups. He does get depressed but gets a bit of help with that.
I can't say he is the same brother he was before the big C was diagnosed as he has been affected by it so much - but he is still MY Brother & very special (even if he is grumpy most of the time).
Thanks for asking, that was very kind of you to remember him. xx
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Hi I hope it's hormonal as I work up at 4am with it my skin felt tingly too I wad so scared I could eff feel myself starting to have a panic attack and I have not had one for two years since starting her it didn't help that my husband wad away too
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Oops sorry my kindle needed charging so plugged in so I was saying been fine since hrt managed to stop the panic by slow deep breathing but it was just so loud in the quiet of the night I have started to have return of Peru symptoms last couple of weeks feeling insecure and a bit tearfully a few hot glows although no in face but just down my back and now this last night I just wanted to rip my head off!
I just wondered have you thought of nerve damage as I have nerve pain in my hand with my m s And three nights ago I reduced my pills by 5mg to see if there was any change in it or if it had gone for a while I shall increase again tonight and pray it's that and it goes I Will let you know
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Hi Sarai
I said I'd let you know , well I went back to my normal dose in increasing by 5mg to my original 65mg and slept all night and woke this morning and it has actually gone!
So it could either be a coincidence or the tabs!
So could it be nerve damage showing as this in my ear but not exactly pain?
Maybe you should get this checked out with your Doc the medication is called Nortriptyline and it is a type of antidepressant with is used to treat other things like nerve pain ,tension headaches and maybe migraine as well
It could be the answer to your nightmare Tinitus !
Let me know how it goes
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Thanks smokey, I will talk with the GP. But I do already take antidepressants so don't know how it would work. I do have a sense it nerve damage of some sort caused by a small clot. According to tinnitus therapist my T behaves differently from most other sufferers. So I am hoping the prognosis of no respite after a year is wrong.
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The jaw has a great deal to do with some forms of tinnitus. Google tinnitus and jaw or tmj and tinnitus, and maybe trigger points and jaw. Dr. Janet Travell pointed out that TMJ can cause a temporary tinnitus. I got mine from inner ear infection and have endured it for 13 miserable years. Most of time can sort of ignore, but it is awful.
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Mine also came after an infection. I have also noticed that I am loosing a degree of hearing on that side :-\. I had not noticed before but recently I have been using a sleep app. I can hear it fine until my ear that has problems is the one that's not on the pillow. It all goes very muffled. I don't know if it's irreversible. Really don't want to go to the GP with yet another complaint.
Honeyb
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