Menopause Matters Forum

Menopause Discussion => Other Health Discussion => Topic started by: purplenanny on August 28, 2015, 01:20:08 PM

Title: Any tips for Cysitus please
Post by: purplenanny on August 28, 2015, 01:20:08 PM
I have had lower pain for a couple of days with the feeling of a full bladder.
Overnight I had loads of trips to the loo and burning pain
It all took a hold this morning and there was a bit of bleeding
I went to the chemist,  which I shouldn't have as nearly passed out.She said see doctor

I am now waiting for a gp to phone...appts all gone
I had this once about 20 years ago but don't remember it being this awful.
Don't quite know what to do with myself. It was all so sudden.
How did I get it...not active with hubby for years

Any advice would be great ladies. Its bloody agony!
PN x 
Title: Re: Any tips for Cysitus please
Post by: honeybun on August 28, 2015, 01:32:10 PM


 :hug:

You have done the right thing calling the doctor. You will probably have to take a sample in but hopefully they will give you ABs to take immediately.

Hot water bottle, as much to drink as you can and paracetamol is all I can think of.

It's the most horrible thing and can make you feel awful.

Let us know how you get on.

Honeybun
X
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 28, 2015, 01:35:46 PM
Thanks HB
I didn't think about a hot water bottle..good idea. I am very shivery so it will help with that also.
Wish he would phone, its been over 3hrs
PN x x
Title: Re: Any tips for Cysitus please
Post by: honeybun on August 28, 2015, 01:38:34 PM
Take some paracetamol, you might have a bit of a temperature.

Give them another hour then call and remind them you need attention as it's coming up to the weekend.


Honeybun
X
Title: Re: Any tips for Cysitus please
Post by: CLKD on August 28, 2015, 01:40:46 PM
Make sure that the GP sends a urine sample away …. it's the only way to be definite about infection and also it is important to be given the CORRECT AB!

I had to sit on the loo with a cuppa and a glass of cold barley water for several hours when I had an attack.  Awful.  It was the only way I could relax my bladder.

For me it was the beginning of vaginal atrophy  :-\
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 28, 2015, 01:46:05 PM
Hi CLKD
Yes I find staying on the loo is more comfortable
Which are the correct abs? I am allergic to penicillin

Hubby went and got me some cranberry drink

Typical timing with the bank holiday!
PN x x
Title: Re: Any tips for Cysitus please
Post by: Taz2 on August 28, 2015, 03:03:42 PM
You need to drink lots of water and take a painkiller to get your temperature down while you wait for your doc to phone back. Hot water bottle is an excellent idea too. I find that drinking a weak solution of lemon barley also helps but not sure why. I can't use cranberry juice as it upsets my tummy.  Your GP will probably prescribe a broad spectrum antibiotic until they know what bug they are dealing with.

It's easy to develop this as you get older pn. As CLKD says it can be the first signs of the vagina beginning to get drier. The skin thins out and so allows bugs to enter the urethra.

Taz x
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 28, 2015, 03:39:18 PM
Thanks Taz
I am alternating water with cranberry. Would rather not drink as don't want to go to the loo! But realise its important

Could I have caught from a dirty loo seat? Had to go when shopping a few days back and they were disgusting
x x
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 28, 2015, 04:08:14 PM
Doc prescribed
Nitrofurantoin

Only took all day!!

Hope they work fast

PN x x
Title: Re: Any tips for Cysitus please
Post by: Bluebell59 on August 28, 2015, 04:10:43 PM
Go to www.cobfoundation.org/

A wealth of info on there.
Title: Re: Any tips for Cysitus please
Post by: honeybun on August 28, 2015, 04:11:56 PM
Really glad you got something before the bank holiday. At least now it can get better.

Have you any probiotics to take for your tummy and to ward off thrush.

Keep drinking, lots and lots and lots  ::).

 :hug:


Honeybun
X
Title: Re: Any tips for Cysitus please
Post by: CLKD on August 28, 2015, 04:59:55 PM
Sitting on the loo allows the bladder to relax.  I dribbled a lot.  Barley water is what Granny suggested for various ailments, the Jury is still 'out' regarding cranberry juice ;-). 

It is better not to take probiotics until you have finished the AB Course.  After that the Acitmel for example with line the gut and improve any bugs that have been shredded by the effects of the AB.

Title: Re: Any tips for Cysitus please
Post by: Taz2 on August 28, 2015, 05:04:26 PM
You need to drink to flush the bugs out. It's virtually impossible to catch it from a dirty loo seat. Far more likely that your own bacteria sort of made it's way from back to front and due to the thinner tissue around the urethra as we get older the bugs can get in.

Nitrofuantoin is a broad spectrum antibiotic. It turns your urine a lovely shade of bright yellow! What strength have you been given?

CLKD - there are now a specific type of probiotic tablets to take at the same time as you are on antibiotics. They are called OptiBac. Lots of GP's now recommend you use such products when they prescribe the antibiotics. Actimel etc. are not considered to have enough of whatever it is (brain fail!) to deal with an antibiotic influx although they would be better than nothing.

Taz x
Title: Re: Any tips for Cysitus please
Post by: CLKD on August 28, 2015, 05:09:07 PM
 :thankyou: ……… because ABs can cause 'the runs' it was thought that swelling Actimel-type drinks wasn't of benefit until after the Course was taken.  Can 1 get the Optibac on prescription at the same time as the ABs?
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 28, 2015, 06:34:44 PM
Taz. 100mg twice daily for five days

Can you buy optibac? Dr not available now til Tuesday

Gravygran. Thanks for the tip and your description is perfect!

Thanks Bluebell

I feel rubbish   :( (http://:()
PN x x
Title: Re: Any tips for Cysitus please
Post by: Taz2 on August 28, 2015, 06:37:58 PM
No OptiBac is not available on prescription CLKD. Sorry but you have to pay for it. Most chemists stock them nowadays. 

Hopefully they will work quickly pn. I was always prescribed 50mg four times a day but for my upper UTI it was increased to 500mg four times a day. Big guns as the GP said! They can make you feel a bit woozy when you first start them plus some people get back and neck pain (I did) but this usually goes off by the second or third day. Keep drinking plenty of water to keep the bladder flushed and don't forget the paracetamol too.

Taz x
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 28, 2015, 06:44:16 PM
Thanks Taz
I was surprised gp didn't ask for a sample. I guess he will if the abs don't work
 I will get some optibac tomorrow
PN x x
Title: Re: Any tips for Cysitus please
Post by: honeybun on August 28, 2015, 06:50:51 PM
Superdrug sell them to take alongside ABs. They are not terrible expensive but very effective.
Unfortunately Actimel does absolutely nothing, it tastes nice enough but is pretty useless.

Hope you feel much better soon. Don't forget to keep drinking lots and lots. Every time you go into the kitchen have another glass of water.

Let us know how you are, and I hope you get a good nights sleep.


Honeybun
X
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 28, 2015, 06:53:55 PM
Thanks HB
It has to be better than last night  :( (http://:()
PN x x
Title: Re: Any tips for Cysitus please
Post by: honeybun on August 28, 2015, 06:56:30 PM
I know this sounds daft...but a pair of cosy socks in bed and a hot water bottle. Cold feet make you need a wee.

Nice hot drink, maybe a warm bath and early bed.

Take it very easy tomorrow. You have an infection and need to look after yourself.


Honeybun
X
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 28, 2015, 07:04:02 PM
I normally love my bath but couldn't face it at the moment.
I will do the socks and the bottle has already soothed.
Going up shortly as very tired

Thanks ladies. You are always there.
Title: Re: Any tips for Cysitus please
Post by: CLKD on August 28, 2015, 08:05:32 PM
Thanks Taz. 

There will be an out of hours GP Purplenanny or you can ring a Pharmacist for any advice  ;)

A sample probably wouldn't have been tested over the Bank Holiday so treating the symptoms is important to give you relief.  Hope that you get a good night!
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 29, 2015, 12:16:31 PM
Can cystitis really make you feel this rough?

Had a terrible night

My head is thumping .I feel sick .my neck feels like its been in a brace .and my womb feels like its about to drop.

The burning has eased though so thats a blessing

PN x x
Title: Re: Any tips for Cysitus please
Post by: Dyan on August 29, 2015, 12:25:53 PM
PN  :hug:
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 29, 2015, 12:34:27 PM
Thanks Dyan
Hugs do help x x
Title: Re: Any tips for Cysitus please
Post by: honeybun on August 29, 2015, 12:45:16 PM
And another  :hug: from me too.

Taz is the expert on this so hopefully she will be along soon to advise.

I do know when I have had it it has made me feel really unwell. The ABs could be upsetting your tummy but if you want some advice then call NHS direct to speak to someone.

Take care.


Honeybun
X
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 29, 2015, 12:53:12 PM
Thanks HB
I am so pleased you told me about the neck pain. ..What's that all about   :-\ (http://:-\)
PN x x
Title: Re: Any tips for Cysitus please
Post by: honeybun on August 29, 2015, 12:56:24 PM
Not a clue PN. Years ago I used to loose so many days at work due to infections. I couldn't drive the distance without needing the loo.
All I wanted to do was curl up in bed with a hot water bottle and sleep until it got better.

If you are concerned though then call for advice.

Honeybun
X
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 29, 2015, 01:05:12 PM
That's exactly what I feel I want to do, so I guess i am going to take myself back to bed.
I am just not too good at accepting being poorly....I always try to work through, but this infection won't let me.
I do think its the abs upsetting the tum. Just nibbled some dry biscuits so hope that helps
PN x x
Title: Re: Any tips for Cysitus please
Post by: honeybun on August 29, 2015, 01:09:01 PM
Have you sent hubby for your probiotics yet.

Going back to bed sound the right thing to do.

Let us know how you are, and rest up. This is not something you can work off.


Honeybun
X
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 29, 2015, 01:17:32 PM
He is going later but not sure if our chemist sells them.  We don't have a local superdrug and amazon want 7.99 for delivery!
They certainly have good reviews so I need to get them. There are lots of different types and a specific one for antibiotics
PN x x
Title: Re: Any tips for Cysitus please
Post by: Taz2 on August 29, 2015, 01:56:48 PM
Hi purplenanny - I wouldn't worry too much about the probiotics right at the moment - they wont make a difference to how you are feeling - but it's good to get them eventually.

Neck pain and nausea can be side effects of nitrofuantoin (should be on the side effects leaflet) so try not to stress too much about it. I found that by the second day both of these side effects wore off. I see that you were suffering for a couple of days before you phoned the GP which means your level of bacteria may have risen quite high and so does lead to high temperature and feeling awful. By tomorrow you should begin to feel better I would think. I am a bit surprised that you have not been given a higher dose of antibiotics though. Have you got a fever? It's a good idea to check this if you have a thermometer.

Taz x




















Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 29, 2015, 02:11:05 PM
Hi Taz, thanks very much for your reassuring post.

Surprisingly there wasn't a leaflet with the abs. I know that's wrong.

I don't have a thermometer but don't feel feverish. I did yesterday but better today.

It's mainly my head, neck and low down pain. I might take some more paracetemol. Sickness is easing after nibbling dried biscuits. Always difficult when feeling sick to actually eat

Thanks again PN x x
Title: Re: Any tips for Cysitus please
Post by: Taz2 on August 29, 2015, 03:52:06 PM
Were you given instructions to take the tablets with food? I found that if I had them after some biscuits or toast with a large glass of water it helped. This is the information leaflet https://www.medicines.org.uk/emc/PIL.22065.latest.pdf  which doesn't mention neck pain but the pharmacist had printed that side effect on the label.

Taz x
Title: Re: Any tips for Cysitus please
Post by: honeybun on August 29, 2015, 03:56:44 PM
Told you Taz was the expert.

Bet you wish you weren't Taz.

Blooming miserable thing though. Maybe need to think about Vagifem PN, although your infection might not be down to that.

Hope you start to improve really soon.

Maybe try some dry toast or a little soup, just to put something in your tummy.


Honeybun
X


Title: Re: Any tips for Cysitus please
Post by: Taz2 on August 29, 2015, 04:06:11 PM
Not sure about being an expert but, yes, I would rather not know anything about it! Hope you're feeling better pn?

Taz x
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 29, 2015, 07:32:16 PM
Hi Ladies

I have had a good sleep this afternoon and a small amount of mashed potato this evening
( I love mash and always eat it when I start feeling better!!)

The sickness has eased and my head is not so pounding. Still burning below, but much better

I see light at the end of the tunnel! Tomorrow should see me even better.

Quick question, should I keep taking the sachets from the chemist, alongside the abs? I have been doing this but wasn't sure. I have 3 left. It does say to take them all but I don't know if this is if you don't have the abs? I guess they won't harm

PN x x
Title: Re: Any tips for Cysitus please
Post by: CLKD on August 29, 2015, 07:40:46 PM
Glad that the ABs seem to be improving symptoms!
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 29, 2015, 07:45:38 PM
Thanks CLKD, just a shame they bring their own problems! Are you going to try the probiotic tablets? They seem to have good reviews

Taz, meant to say thanks for the leaflet link. Yes, it said on the box to take with food x x

PN x x
Title: Re: Any tips for Cysitus please
Post by: CLKD on August 29, 2015, 09:13:31 PM
If I need ABs in future I will try to remember the probiotics as suggested  ;)
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 31, 2015, 11:18:30 AM
Finally feeling better, albeit totally washed out.
Still experiencing low down heaviness and needing the loo,  but 2 more days of abs so hopefully all will go when they are finished
Having a cozy lazy day not doing much. Not much energy
Thanks for helping me ladies   :thankyou: (http://:thankyou:)
PN x x
Title: Re: Any tips for Cysitus please
Post by: Taz2 on August 31, 2015, 11:26:46 AM
I'm glad you're feeling better. Keep drinking though!

Taz x
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 31, 2015, 11:30:32 AM
Thanks Taz, yes I will x x
Title: Re: Any tips for Cysitus please
Post by: CLKD on August 31, 2015, 01:46:27 PM
Go back to your GP before the ABs run out though. 
Feet up, keep warm.  Barley drink ?
Title: Re: Any tips for Cysitus please
Post by: Katejo on August 31, 2015, 05:08:57 PM
Doc prescribed
Nitrofurantoin

Only took all day!!

Hope they work fast

PN x x

I hope it works for you. I was given that one 3 months ago and it didn't do anything for me.
Title: Re: Any tips for Cysitus please
Post by: honeybun on August 31, 2015, 07:33:35 PM
How are you PN ?


Honeybun
X
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 31, 2015, 09:42:26 PM
Thanks CLKD, drinking barley water and plain water as much as I can

Katejo, assuming this was for Cystitis did you get another prescription?

Hi HB, feeling much better this evening thank you.
My tummy is really bloated though and I have low down heavy pressure feeling like my womb is about to drop out (sorry for tmi) I am putting it down to the abnormal amount I am drinking? I am not eating much. I am in and out of the loo much more than normal, which can only be a good thing I guess.

Oh the joys of being a woman!
PN x x
Title: Re: Any tips for Cysitus please
Post by: CLKD on August 31, 2015, 09:45:11 PM
Try sitting on the loo and drinking - that way the bladder and bowel are relaxed = less pressure.  Trouble is, I then get pins and needles in the feet  ;D   :P ……. I don't know what's in Barley Water but it supposedly works, my Practice recommend it as a first defence ……… trouble is I can't stand the taste   :-X
Title: Re: Any tips for Cysitus please
Post by: purplenanny on August 31, 2015, 10:00:48 PM
Okay, you lost me....not sure I should ask   ;) (http://;)) but how does sitting on the loo give you pins and needles in your feet?   ;D (http://;D) How long are you there for? 

Forgive me, I do appreciate your help, it just tickled me

I love barley water so I am happy to drink it. I definitely don't like the sachets the chemist gave me  :sick02: (http://:sick02:)  but they are all finished now, thank goodness.
Title: Re: Any tips for Cysitus please
Post by: Maryjane on September 01, 2015, 06:39:40 AM
It will be pressure in the L5 nerve when sitting......I get this along with all my other nerve wows.....
Title: Re: Any tips for Cysitus please
Post by: CLKD on September 01, 2015, 09:02:00 AM
Glad I gave you a giggle.  It depends too on how low the toilet is situated.  But sitting with thighs against a hard service = pins and needles in the feet  ;) - and if I have a Very Good Book or difficult Xword puzzle book ……..  :whist:

How have symptoms been over-night?
Title: Re: Any tips for Cysitus please
Post by: purplenanny on September 01, 2015, 09:08:45 AM
 ;D (http://;D)

Still about the same as yesterday.  Final abs today

PN x x
Title: Re: Any tips for Cysitus please
Post by: CLKD on September 01, 2015, 09:09:15 AM
Appt.?
Title: Re: Any tips for Cysitus please
Post by: Katejo on September 02, 2015, 04:31:00 PM
Thanks CLKD, drinking barley water and plain water as much as I can

Katejo, assuming this was for Cystitis did you get another prescription?

Hi HB, feeling much better this evening thank you.
My tummy is really bloated though and I have low down heavy pressure feeling like my womb is about to drop out (sorry for tmi) I am putting it down to the abnormal amount I am drinking? I am not eating much. I am in and out of the loo much more than normal, which can only be a good thing I guess.

Oh the joys of being a woman!
PN x x

Mine was a UTI infection rather than cystitis. I tend to get a dull ache and feeling of irritation inside  (plus needing the loo frequently). I don't get the burning of cystitis. I was given a 2nd antibiotic Cephalexin. It made me feel really ill for a couple of days. As it happen I am about to go to an NHS drop in centre to try and see a doctor. I think I might have a similar infection again now but I am not sure. I am also going to ask if it might be a vaginal irritation. I always get these things just before a holiday.....!
Title: Re: Any tips for Cysitus please
Post by: Taz2 on September 02, 2015, 04:50:49 PM
Cystitis comes under the umbrella term of UTI katejo. Cystitis affects the bladder and urethritis affects the urethra. These two are lower UTI's and ones affecting further up the urinary tract such as the kidneys are upper UTI's. Very confusing. Lower ones are less dangerous than upper ones. I certainly don't want another upper one. It took me months to feel really better again.  They don't prescribe cephalexin here now due to it's association with C.Dif in our local area. I usually end up on Ciprofloxacillin. I hope you get something sorted.

One thing - as we get older, apparently, we don't always get any burning sensation even when it is a lower UTI.

Taz x
Title: Re: Any tips for Cysitus please
Post by: CLKD on September 02, 2015, 07:13:38 PM
I didn't have the burning in recent years.  There was a nip as the bladder shut off after passing urine which made me go 'ouch'  >:(

Did you see anyone Katejo ?
Title: Re: Any tips for Cysitus please
Post by: purplenanny on September 02, 2015, 07:43:51 PM
Wish I hadn't of had the burning! It was truly horrible  :o (http://:o)

I think it has finally cleared up. Still got a bloated tum, but I think that may be the antibiotics giving me constipation!  ::) (http://::))

PN x x
Title: Re: Any tips for Cysitus please
Post by: CLKD on September 02, 2015, 08:12:03 PM
It's 1 thing after another  >:(
Title: Re: Any tips for Cysitus please
Post by: Taz2 on September 02, 2015, 08:13:10 PM
I agree the burning is horrible although it would have alerted me to an infection which then travelled further up. That's how I discovered that burning isn't always present. Think of it as an unpleasant early warning system!

Taz x
Title: Re: Any tips for Cysitus please
Post by: purplenanny on September 02, 2015, 08:25:15 PM
A funny kind of bonus but I get what you mean

PN x x
Title: Re: Any tips for Cysitus please
Post by: honeybun on September 02, 2015, 09:03:05 PM
Glad you are feeling better PN. Is the GP going to give you another urine test to make sure you are infection clear.

Loose Women and Martin....yes .



Honeybun
X
Title: Re: Any tips for Cysitus please
Post by: purplenanny on September 02, 2015, 09:15:34 PM
Thanks HB, surprisingly he never asked for a sample
I guess they think if it comes back I will go back to them  >:( (http://>:()

PN x x
Title: Re: Any tips for Cysitus please
Post by: CLKD on September 02, 2015, 09:55:03 PM
Your GP hasn't sent a urine sample for testing probably due to Bank Holiday ……… however!  Give them a ring and ask if a urine sample is now required! because if there isn't growth it may be VA  ::)

Did I dream it or are you going to see Loose Women  :-\
Title: Re: Any tips for Cysitus please
Post by: Scampi on September 03, 2015, 07:29:03 AM
Google d-mannose.  It really does work - I used to get regular doses of cystitis with just the degree of symptoms you have described (burning pain - enough to make me cry - urgent need to urinate every 10 minutes, blood in the urine, nausea, raised temperature, general malaise ... you get the picture), and I'd get attacks like that every few months.  In desparation one day, I was searching the internet and found d-mannose.  It's expensive, but I ordered some anyway ... and I've never looked back.  I now carry it everywhere with me and take big dose if I feel that tell-tale tingle.  I've been cystitis free now for over 6 years.
Title: Re: Any tips for Cysitus please
Post by: purplenanny on September 03, 2015, 08:05:17 AM
I will definitely get some of that Scampi as I hate taking antibiotics   :thankyou: (http://:thankyou:)


pN x x
Title: Re: Any tips for Cysitus please
Post by: purplenanny on September 03, 2015, 08:22:08 AM
Blimey, just looked and yes, it is very expensive!  But then I guess a prescription is over £8.  But not after December.....yay!  Or is it   :( (http://:()

PN x x
Title: Re: Any tips for Cysitus please
Post by: Scampi on September 03, 2015, 09:45:20 AM
It is expensive, but I don't take a maintenance dose, so it's not too bad.  I just load up if I feel something might be brewing.  For me, it's been worth every penny.  Best wishes.
Title: Re: Any tips for Cysitus please
Post by: Katejo on September 03, 2015, 07:39:24 PM
Cystitis comes under the umbrella term of UTI katejo. Cystitis affects the bladder and urethritis affects the urethra. These two are lower UTI's and ones affecting further up the urinary tract such as the kidneys are upper UTI's. Very confusing. Lower ones are less dangerous than upper ones. I certainly don't want another upper one. It took me months to feel really better again.  They don't prescribe cephalexin here now due to it's association with C.Dif in our local area. I usually end up on Ciprofloxacillin. I hope you get something sorted.

One thing - as we get older, apparently, we don't always get any burning sensation even when it is a lower UTI.

Taz x
es I know that. I just meant that I don't get the intense burning feeling. I did go to the hospital yesterday. I saw a nurse practitioner. I said that I didn't want cephalexin or Nitrofurantoin. She suggested Trimethroprim which has worked for me before so i agreed to that. A previous doctor had told me that it had been replaced by nitrofurantoin because it had become less effective. I mentioned this but she said that it was only if used too frequently. I have only taken 1 tablet so far (another this evening) but things seem a bit better than yesterday so hopefully it will work!

I had to go to the health centre this morning and leave another sample for testing. Will get the results when i get back from my holiday. Why oh why do I get this just before a holiday!

Have any of you used Amoxycillin with UTI's?  In general it works well for me without side effects but I haven't tried it for UTI's. 
Title: Re: Any tips for Cysitus please
Post by: Katejo on September 03, 2015, 07:42:29 PM
Google d-mannose.  It really does work - I used to get regular doses of cystitis with just the degree of symptoms you have described (burning pain - enough to make me cry - urgent need to urinate every 10 minutes, blood in the urine, nausea, raised temperature, general malaise ... you get the picture), and I'd get attacks like that every few months.  In desparation one day, I was searching the internet and found d-mannose.  It's expensive, but I ordered some anyway ... and I've never looked back.  I now carry it everywhere with me and take big dose if I feel that tell-tale tingle.  I've been cystitis free now for over 6 years.

What is d-Mannose exactly? I also want an alternative to antibiotics. The nurse suggested an anti cystitis powder which could be bought from a pharmacy.
Title: Re: Any tips for Cysitus please
Post by: purplenanny on September 03, 2015, 10:25:33 PM
I used the powders from the chemist katejo, but I think I left it too late before realising what it was and therefore needed antibiotics. Not sure which cured it as I kept going with both!

Hope you feel better soon
PN x x
Title: Re: Any tips for Cysitus please
Post by: CLKD on September 03, 2015, 10:34:30 PM
Different ABs are used to target different types of infection Katejo - Penicillin being the original and other types being developed since.  Sadly over-use both in human and animal care is resulting in bugs becoming 'resistant' = ABs no longer as effective. 
Title: Re: Any tips for Cysitus please
Post by: Katejo on September 04, 2015, 11:13:14 AM
Different ABs are used to target different types of infection Katejo - Penicillin being the original and other types being developed since.  Sadly over-use both in human and animal care is resulting in bugs becoming 'resistant' = ABs no longer as effective.

Yes I am fully aware of this.   :)I don't want to take AB's if not necessary. However, with UTI's, it can get worse if you delay going to the GP. I just wondered whether other forum members had had success with Amoxicillin for this purpose. When i get this, it starts just before I am due to go on holiday! It can't be entirely a coincidence. When the symptoms started on Tuesday, I wondered whether my body was just imitating the condition.
Title: Re: Any tips for Cysitus please
Post by: LizeeeH on September 04, 2015, 02:20:22 PM
Cystitis has been the bane of my life, from early 20's when Dr's called it "honeymoon" disease ;)
Title: Re: Any tips for Cysitus please
Post by: CLKD on September 04, 2015, 02:21:51 PM
Is Amoxcycillin a suitable AB for cystitus?
Title: Re: Any tips for Cysitus please
Post by: Katejo on September 04, 2015, 05:09:42 PM
Is Amoxcycillin a suitable AB for cystitus?

Have a look at this link  http://www.rxlist.com/urine_infection/page8.htm
There are others too.  I am feeling a bit better this evening so am cautiously optimistic that the Trimethoprim might be doing its job.
Title: Re: Any tips for Cysitus please
Post by: honeybun on September 04, 2015, 07:33:50 PM
It's one of the few ABs I can take with few problems as with the others...I really struggle.
I have not taken any, except for one course 5 years ago for a tooth abscess.

Apart from that it's been about ten years.

I don't really understand whether I would have to have something different due to AB resistance when I have taken them so rarely.

Oh I hate them....did I mention that  ::)


Honeybun
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Title: Re: Any tips for Cysitus please
Post by: Katejo on September 04, 2015, 08:18:39 PM
It's one of the few ABs I can take with few problems as with the others...I really struggle.
I have not taken any, except for one course 5 years ago for a tooth abscess.

Apart from that it's been about ten years.

I don't really understand whether I would have to have something different due to AB resistance when I have taken them so rarely.

Oh I hate them....did I mention that  ::)

Yes I hate them too but can also take Amoxycillin without side effects. I have had too many AB's this year and the other UTI ones had horrible side effects. I had a tooth infection in July but it did improve quickly with Amoxycillin. I suspect that I will have to take this course. Apart from July, I haven't had any for quite a while.
 Earlier I felt more positive but the symptoms have crept back. I have 2 doses of Trimethoprim left (day 3) to take tomorrow. I really want my appetite to return. It is very small at the moment.


Honeybun
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Title: Re: Any tips for Cysitus please
Post by: Taz2 on September 04, 2015, 10:02:27 PM
[quote author=honeybun link=topic=29040.msg461536#msg461536 date=144139

I don't really understand whether I would have to have something different due to AB resistance when I have taken them so rarely.




Honeybun
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[/quote]

Honeybun - it's not you that is resistant to the antibiotics - it's the fact that a certain antibiotic has been used in other people to such an extent that the bug in question has now developed a resistance to it. It makes no difference as to how often you have used it. If it's an antibiotic used to combat a common bug then it's to do with the extent of it's use across the whole spectrum of patients that's the problem.

I've developed allergic reactions to many of the antibiotics used to deal with UTIs. Trimethropin is one of the ones which brings me out in a rash within a few hours, sadly, because it is an effective antibiotic.

Taz x
Title: Re: Any tips for Cysitus please
Post by: Katejo on September 05, 2015, 04:38:14 AM
The trimethropin has worked for me before but is doing nothing thks time. Am about to start the Amoxicillin as a last resort.  If it doesn't work quickly I won't be going on my holiday on Sunday.
Title: Re: Any tips for Cysitus please
Post by: LizeeeH on September 05, 2015, 09:12:15 AM
yes trimethropin seems to work for me  ;)
Title: Re: Any tips for Cysitus please
Post by: Taz2 on September 05, 2015, 10:05:57 AM
Has your urine been cultured Kate to find out which antibiotics the bug is resistant to? I've found that's the only way to get it sorted.

Taz x
Title: Re: Any tips for Cysitus please
Post by: Katejo on September 05, 2015, 10:31:51 AM
Has your urine been cultured Kate to find out which antibiotics the bug is resistant to? I've found that's the only way to get it sorted.

Taz x

Yes I provided a sample at my practice on thursday to be sent to the lab but the result won't be available until next week. I am supposed to be going on holiday tomorrow. The duty doctor at the hospital also gave me a prescription for Amoxycillin as an alternative and i have just started taking it. I just hope that it will work. If there is no improvement by tomorrow, I am not sure if I will go.
Title: Re: Any tips for Cysitus please
Post by: Katejo on September 05, 2015, 10:33:26 AM
yes trimethropin seems to work for me  ;)

Was it just a 3 day course as mine was or longer?
Title: Re: Any tips for Cysitus please
Post by: Bluebell59 on September 05, 2015, 03:20:15 PM
Please don't drink tea, even decaf.  Tea, (including decaf) contains Tannin.  Tannin, is used to soften leather so imagine what it does to the bladder !  Also do not drink cranberry, cranberry irritates the bladder which is why people drink it just when they have an infection as it irritates the bladder wall to get rid of stuff.  I found all this out on www.cobfoundation.org/   this is the cystitis and over active bladder foundation, neither drink orange juice - citrus is an acid.

Also look at your diet, are you acidic? Get some ph strips from the internet, if you are acid in your urine then you probably are in your blood too, leave off acid foods/look up acid & alkaline foods on the internet.  For example, meat is acid, vegetables are not.  From yesterday I cut out red meat which is hugely acidic.  I don't think I can cut out meat completely so I shall eat chicken and fish and see how I get on.  You can get ph drops to put into your drinks to make them more alkaline.

Oh and sugar, bacteria sticks to it and breeds.

I now drink just herbal tea, camomile, peppermint and Red bush tea and I sip water and I don't drink after 8pm.
Title: Re: Any tips for Cysitus please
Post by: CLKD on September 05, 2015, 05:31:17 PM
The only way to avoid tannin is to avoid any tea.  I have been a tea drinker for years: black with 2 sugars thanks : there is NO evidence that cranberry juice does/not ease urine type problems.  It was the 'in' drink but the research was done by yep, those who sell cranberry juice. [which reminds me about another topic in the Press recently: off to search the Brain Cell].

How is meat acidic  :-\ .. as with sugars, there are several types of acids dependant on the fruit of choice.  How will you buy your chicken and fish?  Cheap chicken is 'cheap' for a reason; and fish is often farmed, which I believe to be cruel and often pumped with antibiotics and other chemicals to get rid of sea lice. 

Trim ….. may well do good but I couldn't tolerate it  :-\ so it was a waste of a prescription.
Title: Re: Any tips for Cysitus please
Post by: honeybun on September 05, 2015, 09:33:46 PM
Actually Cranberry Juice from the supermarket does absolutely no good at all. It's very little juice, water and a huge amount of sugar which is not good.
The only good way to take cranberry juice is to buy the concentrate from a health shop. It has to be taken very strong and is very acidy on the tummy.

I don't know anything about meat being acidic but it is vety difficult to digest.

You don't have to buy cheap chicken or fish. I would rather eat better and less than more and cheap.

Bluebell has gone to guest status....don't know why though.


Honeybun
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Title: Re: Any tips for Cysitus please
Post by: CLKD on September 06, 2015, 09:06:09 PM
I asked a question maybe she didn't like it?

I find that red meat can be difficult to process.  I don't have indigestion as such but find my bowel feels heavier than usual.  It also makes me feel bunged up.  Doesn't stop me eating it though probably 1 every couple of weeks.  Usually it's chicken; fried, curried, roasted …...
Title: Re: Any tips for Cysitus please
Post by: Scampi on September 07, 2015, 07:15:31 AM
Google d-mannose.  It really does work - I used to get regular doses of cystitis with just the degree of symptoms you have described (burning pain - enough to make me cry - urgent need to urinate every 10 minutes, blood in the urine, nausea, raised temperature, general malaise ... you get the picture), and I'd get attacks like that every few months.  In desparation one day, I was searching the internet and found d-mannose.  It's expensive, but I ordered some anyway ... and I've never looked back.  I now carry it everywhere with me and take big dose if I feel that tell-tale tingle.  I've been cystitis free now for over 6 years.

What is d-Mannose exactly? I also want an alternative to antibiotics. The nurse suggested an anti cystitis powder which could be bought from a pharmacy.

d-mannose is a sugar (the d- bit is important!).  The vast majority of cases of cystitis are caused by e.coli and is difficult to shift as e-coli 'sticks' to the lining of the bladder (causing the inflammation and pain).  e.coli actually has more affinity with d-mannose than it does with the bladder wall, so if you can load your urine with d-mannose, the e-coli 'sticks' to it and is flushed out with the urine.  Luckily, d-mannose passes through the kidneys into the urine easily, so all you have to do to load the urine with it is eat the stuff!  The important bit for effective treatment is getting hold of pure d-mannose, not a mixture with a low contentration of d-mannose in it.
Title: Re: Any tips for Cysitus please
Post by: Katejo on September 08, 2015, 01:25:12 PM
Thanks. Can hou give me the web link which you used please? I will have a look.
Title: Re: Any tips for Cysitus please
Post by: CLKD on September 08, 2015, 02:00:07 PM
Where does e.coli live?  I know that some bacteria thrive in the bowel so that if the toilet paper comes into contact with the urethra it can cause infections. 
Title: Re: Any tips for Cysitus please
Post by: Scampi on September 08, 2015, 03:03:40 PM
Katejo - I'd love to, but as they sell they sell the stuff, I can't  ;)  If you google d-mannose, look for a site with a name that reminds you of Niagra!!

CLKD - e-coli lives quite happily in your gut causing no problems (I'm not talking about the 'nasty' strains that cause food poisoning), but if it gets in the bladder it can cause cystitis.  As women have a short urethra, the route into the bladder is very easy, even without the help of toilet paper!
Title: Re: Any tips for Cysitus please
Post by: CLKD on September 08, 2015, 05:58:55 PM
 :thankyou:
Title: Re: Any tips for Cysitus please
Post by: Katejo on September 09, 2015, 02:30:10 AM
Have any of you been given  Bactrim? It is trimethropin with sulfametoxazolo? My problem got worss on holiday and I had to go to an Italian hospital.  They did a thorough examination and then gave me this. I didn't realise until after leaving the hospital that it included trimethropin which I have already tried.  That brought doubts to my mind that it would work!  I have lost confidence in general in antibiotics for UTI. Have only just started it so too early to te.
Title: Re: Any tips for Cysitus please
Post by: Taz2 on September 09, 2015, 06:42:31 AM
I can't have Bactrim as I developed a severe allergy to Septrin (no longer prescribed as far as I know) which is also an antibiotic with a sulphur content. I'm not sure that Bactrim is used in the UK?

If you've never had one of these types of drugs before then watch out for side effects such as a rash. I didn't feel well the first time I took it but carried on. The second time I developed a very fine rash which I didn't think much about but two days after this I went into a full blown allergy reaction. The fine rash turned into huge hives within a few hours. Everything swelled up including lips and tongue. My feet were too swollen to wear any shoes or slippers for three weeks and the same with my fingers. I had severe vomiting and diarrhoea and a month off work. If I'd stopped taking it the minute I spotted the first rash I would have been saved the more horrible aspects.

Did they test your urine knowing that you had recently had another antibiotic?

Taz x  :hug:

Title: Re: Any tips for Cysitus please
Post by: Katejo on September 11, 2015, 05:40:56 AM
I can't have Bactrim as I developed a severe allergy to Septrin (no longer prescribed as far as I know) which is also an antibiotic with a sulphur content. I'm not sure that Bactrim is used in the UK?

If you've never had one of these types of drugs before then watch out for side effects such as a rash. I didn't feel well the first time I took it but carried on. The second time I developed a very fine rash which I didn't think much about but two days after this I went into a full blown allergy reaction. The fine rash turned into huge hives within a few hours. Everything swelled up including lips and tongue. My feet were too swollen to wear any shoes or slippers for three weeks and the same with my fingers. I had severe vomiting and diarrhoea and a month off work. If I'd stopped taking it the minute I spotted the first rash I would have been saved the more horrible aspects.

Did they test your urine knowing that you had recently had another antibiotic?

Taz x  :hug:
hit

That sounds terrible. I haven't had an allergic reaction but suspect that it isn't going to work. Yesterday I thought it had but the symptoms have come back this morning. Already half way through course. Arrive back in UK today but not much point in returning to GP until I finish this course on Sunday. Any test won't work effectively.