Menopause Matters Forum

Menopause Discussion => All things menopause => Topic started by: Unicorn on January 24, 2021, 07:02:38 PM

Title: 9 weeks on Evoral Sequi and feeling horrible
Post by: Unicorn on January 24, 2021, 07:02:38 PM
Hi again, I'm so sorry for the constant threads, but I'm so desperate xx

I've been on the above for nearly 10 weeks and my anxiety, panic and alternating low mood is through the roof! I originally took the patch for palpitations, facial flushing and anxiety.  I thought I was better but feel horrific... I really can't cope 🙄.

I'm already taking 50mg of Sertraline.

I don't know what to do? Stick at it? Go without? Change it? Please help xxxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Itwillpass on January 24, 2021, 07:12:37 PM
And me again! So yesterday felt not too bad & woke feeling okayish but from 4.30 been flat out on the sofa  :'( crushing fatigue, sick to my stomach, anxious, buzzing legs, could feel my heartbeat in my stomach too really scared. I’m with you unicorn I don’t know what to do now I’m due to start the 2nd month of combined patch Wednesday xxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Unicorn on January 24, 2021, 11:28:24 PM
Hey Itwillpass! Omg, we are twins 🧡 I've ripped my patch off for now.... I felt awful this week.  I thought these damn patches were supposed to help? Sorry, I sound angry but I'm so fed up and disappointed xxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Unicorn on January 25, 2021, 08:37:41 AM
Please help me someone, I'm beginning to think nothing will help, I'll never get better and it isn't hormonal as the patches haven't worked xxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Itwillpass on January 25, 2021, 09:48:36 AM
I’ve cut mine in half so just 25mg I’m fed up too  :'( just about dragged myself out of bed feel awful tired though I slept well, back is killing, I ache all over & painful cramps now it’s all too much xxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Unicorn on January 25, 2021, 09:58:02 AM
Hi Itwillpass 😚 I've done the same today and cut my conti patch in half.  Hope you feel loads better soon xxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Unicorn on January 25, 2021, 06:06:54 PM
I'm wondering if anyone else uses just half a patch? Xxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: NicolaJ on January 25, 2021, 06:16:38 PM
Hi, I’ve not been following your history thus far but the first HRT I tried made me feel the same. My one and only symptom was anxiety and panic attacks was made much worse by Elleste Duet which I think has the same progesterone in as Evorel (Norethisterone) I changed to an HRT with dydrogesterone and I feel like a different person. Forgive me if I’m wrong here but might be worth thinking about x
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Unicorn on January 25, 2021, 06:33:42 PM
Thank you Nicola J! That is really good to know 😚 I'm so glad you found something that helps! And that gives me some hope xx

 I still had quite regular periods before starting Evorel Sequi which is 2 weeks eostrogen only and 2 weeks combined, so it's  sequential (is that the word?!)  So no idea if it's the Oestrogen only or combined making me worse? I was only on the oestrogen patch when my symptoms became worse in the last two weeks.  I'm so very confused and dont know what to do next xx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: NicolaJ on January 25, 2021, 07:08:00 PM
I’m very similar. I was still having fairly regular bleeds before starting HRT. I am also on a sequential (sequi) regime and take two weeks of oestrogen and then a combination of oestrogen and progesterone. I am on Femoston 1/10 and researched this thoroughly on here and asked for it from my GP. I would try a different progesterone for sure. I discovered Norethisterone is in most of the regimes but there are a few without it. My GP wanted to try a patch called FemSeven Sequi but this is unavailable at present, this also has a different progesterone. Good luck x
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Unicorn on January 25, 2021, 10:16:15 PM
Thank you Nicola J! So do I ask for a sequential one with a different progesterone? Sorry to sound dim, it's my menopausal brain 😁 xxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: NicolaJ on January 26, 2021, 02:13:04 AM
That’s what I did. If you Google different types of progesterone in HRT you’ll find there are different types. Often it’s trial and error for a while until you find the one that suits you. In my case I had to avoid the Norethisterone so asked to have a different one. I was very specific as I didn’t know how knowledgeable the GP was going to be. I’d read on here that knowledge varies so I needed to be prepared to tell them what I wanted. X
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Floo36 on January 26, 2021, 08:21:04 AM
If you are sensitive to hormone changes you can get much worse also before things settle and you begin to feel better.  It is trial and error. I’m two months in since increasing and only now starting to feel anywhere near normal, but I expect it to take at least another month for sleep and anxiety to start to improve. 
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Itwillpass on January 26, 2021, 08:32:24 AM
It’s hard Unicorn but I’m trying really hard to stick with 3 months like my doc said after I called again yesterday & like Floo36 said it’s early days for us all. I thought you felt better on the combined stage (like me) so I would say this progesterone does suit you. I tried femoston & it really upset my digestive system but like NicolaJ it might really suit you, basically it’s all a right nightmare  :-*
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Unicorn on January 26, 2021, 08:57:41 AM
Thank you so much all! I think what I'm going to do (I'm hoping this is possible?) Is cut my patches in half and see if helps for a couple of weeks.... maybe work up to full patches? If I'm brave enough? 😁

Itwillpass and Floo 😚 I have been on the combined patch for 2 days now on half a patch.... I was hoping for a miracle to feel better, but I dont at the moment (I know 2 days is asking a bit much!) I will do the same with the oestrogen patches too.... hopefully if I can cope that long without dumping the patches and asking for something else, maybe see if I can get what NicolaJ suggests.... it's awful isn't it?

I all hope you get relief very soon and feel better... fingers crossed for you all xxxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Itwillpass on January 26, 2021, 09:41:16 AM
I’ll keep my fingers crossed for you Unicorn  :-* shouldn’t be a problem getting tablets they are a lot cheaper for doctors to prescribe & usually what they try first  ;D
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Unicorn on January 27, 2021, 10:44:37 AM
Hi all, feeling slightly better today so far but I'm going to speak to a different Doc tomorrow morning and see about changing my patches to different ingredients 😬😮 or just to get another fresh point of view.... it can't hurt.... hopefully we can all feel more human soon gang xxxxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Unicorn on January 29, 2021, 09:19:07 AM
Hi all, just a recap...😁 I spoke to a lovely lady Doc yesterday (I was a blubbering mess, so a bit embarrassing!) And told her everything.  I've been off the patches for 3 days now and still a quivering, palpitating mess 🤦‍♀️.  I asked if I could change hrt but she said because I was still having periods it would be hard to get something due to shortages still round here.  She suggested counselling to help with the anxiety but I wasn't that keen as I feel it's more physical, if that makes sense? Anyway, she asked if I wanted to increase my Sertraline, which I will do anything now to try to feel better... I think she was at a bit of a loss to help, but very kind.  I think the hrt made me feel worse as the weeks went by sadly 😥 .  She has also booked me in today for a blood test to check my thyroid.  Wish me luck and I hope you all find some relief too xxxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Itwillpass on January 29, 2021, 10:36:20 AM
Awww Unicorn I’m sorry you still feel unwell, do you think you will completely stop the hrt? Good you are having bloods done I find this really puts my anxious mind at rest  ::) it always feels more physical with me too the aches, pains & bad back which then sets off my health anxiety viscous circle xxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Unicorn on January 29, 2021, 10:56:53 AM
Hi Itwillpass! 😚

I will stop it for a while I think.... I dont know what's what at the moment! I'm going to try something herbal for the moment along with my increase in AD's.... I really dont know what to do... maybe I had an overload of hormones??! I must be very sensitive as I had PND 2 times with my girls.... I really dont know anymore 😥 xxx How are you Itwillpass? Xx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Itwillpass on January 29, 2021, 12:33:13 PM
I think maybe it’s good to stop so you can try find out where abouts your body is at the moment? If you don’t feel you can feel any worse there’s nothing too loose, I’ve feel okayish the last 4 days don’t know if my body is starting to accept the hrt, I’m still very achy & my back is still really tense. I’ve been getting out everyday for a walk too which has really helped. Keep me posted how you get on with bloods xxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Unicorn on January 29, 2021, 12:52:28 PM
Thank Itwillpass! How's your mood? Is that ok? I'm glad that things maybe going in the right direction for you 😚😚 how long have you been on the patches now? You probably did say, but my menobrain.... the nurse who did my bloods was lovely, I used to go to school with her 😊 she is my age and been suffering with palpitations and her cousin, who  is also the same age has been suffering awful with them.  It's hard to know now whether mine are palpitations which has changed into anxiety or just anxiety now 🙄 bah! Stupid hormones... take care Itwillpass and onwards and upwards for you... love your name btw 😁 xxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Itwillpass on January 29, 2021, 01:22:58 PM
I’m ever hopeful it will pass  ;) it’s quite reassuring to know others are having palpitations too, my nurse told me at 46 I was too young for menopause I then went on to explain about peri menopause & she’s a health professional was unbelievable! Moods okay still can change several times a day which is weird, I’m 7 weeks in now so just put a conti patch on 🤞 hormones are cruel when you have good days then bam bad days come back xxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Unicorn on January 29, 2021, 01:34:06 PM
Yes! I know! Hormones are vile like that... I had an episode a year ago of the same, but just thought I was cuckoo but i now know it must be hormones 🙄 then I was ok for a few months, felt pretty good, then September started going downhill, then up then started hrt November then up.... then down again badly 🙄 I had a good Christmas and thought things were on the up, but no.... lol! My periods had gone haywire on hrt, bled for about 2 weeks when I started to go downhill again, so God only knows! My cousin who is 6 months older than me suffers anxiety and hot flushes, wonky periods and thought she was going cuckoo last year, hers comes and goes..... my Mum and sister sailed through theirs just having flushes ... I'm glad but feel why me?? Xxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Unicorn on January 29, 2021, 05:36:06 PM
Omg, had a few hours of no palpitations and nearly feeling 'normal.... ! I don't understand this lark! Xxx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Itwillpass on January 29, 2021, 07:45:36 PM
Unbelievable Unicorn bam I’ve felt awful since about 3pm dizzy, weak, nauseated & anxious! What is going on, managed to eat my dinner & my heart felt like it was bursting out my chest. How can we go from feeling good to bad so quickly, how is it even possible, hope you’re still okay. Do you have a Fitbit my heart rate is all over the place at the moment x
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Unicorn on January 30, 2021, 09:12:55 AM
Oh Itwillpass, big hug to you 😚 I wish there was something I could suggest to you.... were you this bad without the patches? I'm still feeling ok, my nose is snuffly, like I'm getting a cold but my palpitations are ok (at the moment!)  It's so horrible as you don't know how you are going to feel from 1 hour to the next at the moment xxx I haven't got a Fitbit but I have an app on my phone xx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Itwillpass on January 30, 2021, 03:56:25 PM
I think my overall anxiety, energy & stomach issues are better on hrt, it’s the dizzy unbalanced feeling which is so strange. I’m definitely going to get to the 3 month mark, I’m about 6 weeks in now 🤞 was slow to get going this morning but trying to push through the day & keep my mind busy even though I just want to curl up & hibernate 😊 my nose seems to have been snuffly for months no doubt another hormone issue! xx
Title: Re: 9 weeks on Evoral Sequi and feeling horrible
Post by: Unicorn on February 01, 2021, 06:13:04 AM
Sorry Itwillpass, been on 3 night shifts! 😁

I feel better palpitation and anxiety wise now, I think the patches definitely made things worse and didn't improve anything and my bleeding was so irregular for long periods on them 😥... I can cope with the physical symptoms but not the palps and anxiety, that's horrid.... i have had my Sertraline increased and I will play it by ear at the moment.... Hope you are feeling a bit better xxxxx😚