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Author Topic: Am I the only person here with Lichen Sclerosus?  (Read 53074 times)

Firewalker50

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #45 on: October 08, 2012, 02:37:07 PM »

I am just so very grateful that I do not have to experience or suffer LS in the way you have described it and the treatment some of you have had.   I hope each of you finds something that makes it easier for you.

HUGS.

Fx
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flushtered

  • Guest
Re: Am I the only person here with Lichen Sclerosus?
« Reply #46 on: October 08, 2012, 02:40:57 PM »

Thanks Firewalker.  Elena - I might be wrong, but I'm sure I've read about female circumcission before and think that the hood can be too tight, so they remove it to relieve the problem - makes me want to cross my legs thinking about it though!
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Taz2

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  • Posts: 26860
Re: Am I the only person here with Lichen Sclerosus?
« Reply #47 on: October 08, 2012, 04:14:53 PM »

Hi Elena - LS can cause fusing of the clitoris and clitoral hood. This leads to a feeling that the hood is too tight so this could be the reason for your discomfort.

Taz x
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Elena

  • Guest
Re: Am I the only person here with Lichen Sclerosus?
« Reply #48 on: October 08, 2012, 07:26:27 PM »

You are probably right Taz, it could well be that the hood is trying to fuse but I am not going to let it if I can help it.  Apart from that and the fused inner lips I have no other symptoms of LS so who knows?  I do worry about getting old and not being able to do the manipulation cos it really hurts if I dont keep on top of it.

Not sure female circumcision is just the removal of the hood.  From all I have read over the years it's a lot more radical than that and has the most awful repercussions.

Ellie
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Taz2

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #49 on: October 09, 2012, 06:50:27 AM »

It's called FGM and does mean far more than removal of the hood. http://www.bbc.co.uk/health/physical_health/conditions/female_genital_mutilation.shtml   Such a barbaric custom.

Taz x
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flushtered

  • Guest
Re: Am I the only person here with Lichen Sclerosus?
« Reply #50 on: October 09, 2012, 02:47:54 PM »

Eek!  Sorry, could only just remember reading something about it a long time ago - thought it was just the hood.  It's awful what some races put their women through.
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Elena

  • Guest
Re: Am I the only person here with Lichen Sclerosus?
« Reply #51 on: October 09, 2012, 04:52:55 PM »

I didnt click the link as I know more about it than I wish to know already.  What is scandalous is how many girls are sent to the UK from abroad to have this mutilation carried out because our govt is too spineless to prosecute, unlike France.

Ellie
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Bette

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  • Posts: 10361
Re: Am I the only person here with Lichen Sclerosus?
« Reply #52 on: October 09, 2012, 05:08:22 PM »

I remember reading about this in Cosmo in the late 70s. I was so shocked and horrified; I remember telling my Mum all about it. Poor woman; I was a late baby and a bit "radical" for her at times!
Bette x
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flushtered

  • Guest
Re: Am I the only person here with Lichen Sclerosus?
« Reply #53 on: October 10, 2012, 03:43:35 PM »

Sex was painful last night, even with lubrication and ached afterwards  :'(
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Elena

  • Guest
Re: Am I the only person here with Lichen Sclerosus?
« Reply #54 on: October 11, 2012, 01:37:20 PM »

So sorry to hear that Flushtered :(.  It really eats at the heart of being a woman when you cant enjoy sex without some kind of unpleasant pain intruding.
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flushtered

  • Guest
Re: Am I the only person here with Lichen Sclerosus?
« Reply #55 on: October 11, 2012, 04:06:47 PM »

Thanks Elena, painful period here today  :'(  oh the joys of womanhood.....
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Eddie

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #56 on: October 12, 2012, 08:08:10 PM »

Just wanted to check with u's fellow sufferers of LS, my symptoms are the hood is closing up or my clit is disappearing, my labia is shrinking, where the skin fold in always splitting, as is the skin above my clit, a white film all over and when this is removed the skin is almost blue and shiny? I wondered if i need to have biopsies done to confirm it, have been given dermovate which i used until i felt better, but don't really want to keep using such a strong steroid to prevent it, it has now returned and i am using the cream again.
Eddie. x
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flushtered

  • Guest
Re: Am I the only person here with Lichen Sclerosus?
« Reply #57 on: October 12, 2012, 08:26:13 PM »

Hi Eddie

I never got biopsy, consultant knew what it was straight away.  Sounds like you have all of the typical symptoms though and I wouldn't think that you'd be given dermovate unless dr was sure.  Now that I know that menopause also shrinks 'bits', I'm not so worried about the dermovate causing thinner skin - think that gives the white film/blue, shiny look.  When clit 'fuses' it disappears under a white thickened piece of skin and this thickening can occur at entrance of vagina too and has started happening to me causing 'tightness'.  I'm hoping the dermovate will stop it getting any worse. 
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Eddie

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Re: Am I the only person here with Lichen Sclerosus?
« Reply #58 on: October 12, 2012, 08:41:33 PM »

Thanks Flustered. So do you use dermovate daily? I am also tender but red around the entrance but think that is prob meno. Eddie. x
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flushtered

  • Guest
Re: Am I the only person here with Lichen Sclerosus?
« Reply #59 on: October 12, 2012, 08:47:34 PM »

I use it daily if I need to, but when it's not bothering me too much I try not to.  I had thought this latest bout was VA, but GP said no and that she could see the LS at the entrance. 
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