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[Annie0710]

Sparkle if you're supplementing you won't get a true result, the tablets will just make your result higher but may not be reaching your blood cells.  It takes 3-4 months for blood cells to renew so you'd need 4 clear months from supplementing for a true result

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[Annie0710]

They gave me supplements in 2012 then retested, I went to 219 (range 211-911) so they felt chuffed they'd got me back in range, and I believed it

It was only last year researching it all that I realised how naive I'd been (and the surgery)

I've been off supplements long enough now to retest but get embarrassed to ask as menopause and my fight for different hrt has got me phoning/visiting quite a bit lately

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[Maryjane]

Sparkle I will message you , as it may be considered to much info re names etc .

[Maryjane]

" in range " is the difference between a bath with a inch of water in it , and a bath filled to the over flow that is literally how the NHS " in range works.

If you are lucky and you are the low end and your symptoms are suggestive that this could be the reason , your GP may help.

I have seen a Professor who said doctors are scientists who unfortunately stop using there brains when qualified, and donot think out of the box.

[Jennie A Holden]

Well just been to the docs armed wit all he info and literature on Vitamin B12 etc but doctor wouldn't give me a blood test as apparently I had them checked last March and there would be no point rerunning I can't even remember having them checked !!

[Jennie A Holden]

Sorry I forget to say that the doc said my level was 349

[Taz2]

Were you advised on a possible painkiller Jennie? In the info from John Radcliffe it mentions alphalipoic acid which is available in health shops as being helpful in some cases. http://www.ouh.nhs.uk/patient-guide/leaflets/files%5C110407burningmouth.pdf

Taz x

[Annie0710]

Well just been to the docs armed wit all he info and literature on Vitamin B12 etc but doctor wouldn't give me a blood test as apparently I had them checked last March and there would be no pgoint rerunning I can't even remember having them checked !!

B12 levels can change anytime , unfortunately Drs don't cover b12d in detail in training

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[Otes73]

My sister has burning mouth syndrome and is low in B12. From what I can remember your can be within range but not have enough free B12 which the NHS doesn't  test for. She paid £30 for a private test which was done via a finger **** test at home and then posted to the lab. This showed she was indeed low and the GP did then prescribe B12 injections when she produced these results. She also has CFS and digestive issues so no matter how many supplements she was taking they weren't helping. You can buy online high strength B12 lozenges which are supposed to be very good. I can give you the name if I'm allowed?! Not sure as I'm new to the forum!
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[Michelle46]

I had burning mouth syndrome for 4 solid months. I was referred to a maxofacial specialist which I saw twice. It has subsided now but was absolutely awful. Nothing helped other than ice lollies x

[Otes73]

Jarrows 5000 mcg B12 are the ones she was recommended. I think these are the strongest available other than injections.
I agree it's totally wrong you should have to pay! I know there is a very good forum dedicated to this B12 where my sister got some really good advice. X

[Otes73]

She's slowly getting better but it's taken a while. She's stopped taking lanzaprzole (not sure how it's spelt!)
She was informed it can lower B12, she's also given up gluten and dairy which has helped her acid. She still has some inflammation but has started taking a prebiotic, magnesium and a food enzyme so fingers crossed for her.
There's a B12 spray too but I think the jarrows are a higher strength.
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[Otes73]

She went to see a nutritionist after getting nowhere for years! She's only 40 with a 4 year old little girl and desperate to get her health back. She advised before she could help with the CFS her digestive issues were a priority as the nausea, bloating, burning and sore throats are making her more exhausted! The above are the regime they put her on. Very slowly there are improvements which is great.

Hope you find something that helps you, I'll speak to her tomorrow and see what else she was advised.
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[Maryjane]

Hubby was on 9,000 a day then 6,000 and now 3,000 as directed by specialists, the under the tounge ones are better.

If these hadn't worked he would of had the jabs , however the way the HNS do the jabs they are to infrequent.

Buy the book "Could it be B12" by Sally Patholock it is really worth buying. You will probably have a light bulb moment.

Also it is highly likely it won't just be B12 that's the problem .....all the B bits, .Vit d , ferritin , gut absorption . Need healthy working guts to absorb thevits , bad guts can't absorb nutrients.

We are what we eat.

Can't remember if I have already posted this so apologise.

I am about to embark on a nutritional path , will report on it in 3/6 months if I feel it has worked.

[Otes73]

Yes MaryJane, she also takes a vitamin B complex, vitamin D and ferritin as she was low in all of these! She maybe in Peri too as oestrogen was low but as she'd just come off the pill they are going to retest her in 6 months.
I think it's good to source the highest quality supplements you can afford as a lot of the cheaper ones are full of rubbish fillers. Plus research the best time to take them to get the most benefit.
So far giving up gluten has been better for her tum and also raw peppers and onions etc.
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